Abstract
A physician’s ability to provide quality care to their patients and their families is enhanced if he/she understands the impact of chronic disability on family (individually and collectively) function and development. Influencing factors include onset of the disability, intensity, severity, frequency, and complexity of interventions and resource availability. Chronic disability disrupts the lives of all members of the families. Early identification and intervention helps to mitigate the adverse impact (mental, physical, social, emotional, developmental) on function of chronic disabilities on the lives of family members.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Patel DR, Greydanus DE, Calles JL Jr, Pratt HD. Developmental disabilities across the lifespan. Dis Mon. 2010;56(6):299–398.
Pratt HD. Psychological issues in chronically ill adolescents. In: Omar HA, Greydanus DE, Patel DR, Merrick J, editors. Adolescence and chronic illness. A public health concern. New York, NY: Nova Science; 2009. pp. 151–63.
Council on Children with Disabilities. Section on Developmental Behavioral Pediatrics, Bright Futures Steering Committee, Medical Home Initiatives for Children with Special Needs Project Advisory Committee. Identifying Infants and Young Children with developmental disorders in the medical home: an algorithm for developmental surveillance and screening. Pediatrics. 2006;118(1):405–20.
Centers for Disease Control and Prevention. Developmental disabilities. http://www.cdc.gov/ncbddd/dd/resources.htm
Pratt HD. Neurodevelopmental issues in the assessment and treatment of deficits in attention, cognition, and learning during adolescence. Adolesc Med. 2002;13(3):579–98.
Pratt HD. Mental health aspects of chronic illness in adolescence. Int J Public Health. 2009;1(1):5–16.
Wirrell E, Cheung C, Spier S. How do teens view the physical and social impact of asthma compared to other chronic diseases? J Asthma. 2006;43:155–60.
Kyngäs H. Support network of adolescents with chronic disease: adolescents’ perspective. Nurs Health Sci. 2004;6:287–93.
Kirk S. Families experiences of caring at home for a technology-dependent child: a review of the literature. Child Care Health Dev. 1998;24(2):101–14.
Fisher HR. The needs of parents with chronically sick children: a literature review. J Adv Nurs. 2001;36(4):600–7.
Muralidharan A, Yoo D, Ritschel LA, Simeonova DI, Craighead E. Development of emotion regulation in children of bipolar parents: putative contributions of socioemotional and familial risk factors. Clin Psychol Sci Pract. 2010;17(3):169–86.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2011 Springer Science+Business Media B.V.
About this chapter
Cite this chapter
Pratt, H.D. (2011). Working with Families and Caregivers of Individuals with Developmental Disabilities. In: Patel, D., Greydanus, D., Omar, H., Merrick, J. (eds) Neurodevelopmental Disabilities. Springer, Dordrecht. https://doi.org/10.1007/978-94-007-0627-9_24
Download citation
DOI: https://doi.org/10.1007/978-94-007-0627-9_24
Published:
Publisher Name: Springer, Dordrecht
Print ISBN: 978-94-007-0626-2
Online ISBN: 978-94-007-0627-9
eBook Packages: MedicineMedicine (R0)