Skip to main content
SpringerLink
Log in

Il caregiver: Ruolo, rischi, supporto

  • Chapter
Aspetti psicologici nella sclerosi multipla

Riassunto

Il termine inglese caregiver indica coloro che si prendono cura di un altro individuo, che non riesce più a occuparsi autonomamente di se stesso, e si preoccupano dei suoi bisogni fisici, psichici e sociali. Mentre si parla di helper per designare colui che fornisce sostegno in maniera limitata, il termine caregiver comprende sia coloro che svolgono questo ruolo per motivi professionali, come i medici e gli infermieri, sia coloro che sono mossi da legami affettivi e familiari. In quest’ultimo caso il caregiver svolge il proprio compito in maniera continuativa e rilevante in virtù del senso di responsabilità, senza ricevere una retribuzione e senza avere una preparazione specifica. Frequentemente il carico assistenziale grava su un’unica persona, anche quando potrebbe essere suddiviso tra più soggetti, e di solito si tratta di una donna (Heron, 1998).

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

Letture consigliate

  • Akkuş, Y (2011) Multiple sclerosis patient caregivers: the relationship between their psychological and social needs and burden levels. Disabil Rehabil 33(4):326–333

    Article  PubMed  Google Scholar 

  • Argyriou AA, Iconomou G, Ifanti AA et al (2011a) Religiosity and its relation to quality of life in primary caregivers of patients with multiple sclerosis: a case study in Greece. J Neurol 258(6):1114–1119

    Article  PubMed  Google Scholar 

  • Argyriou AA, Karanasios P, Assimakopoulos K et al (2011b) Assessing the quality of sleep in greek primary caregivers of patients with secondary progressive multiple sclerosis: a cross-sectional study. J Pain Symptom Manage 42(4):541–547

    Article  PubMed  Google Scholar 

  • Argyriou AA, Karanasios P, Ifanti AA et al (2011c) Quality of life and emotional burden of primary caregivers: a case-control study of multiple sclerosis patients in Greece. Qual Life Res 20(10):1663–1668

    Article  PubMed  Google Scholar 

  • Aronson KJ et al (1996) Assistance arrangements and use of services among persons with multiple sclerosis and their caregivers Disabil Rehabil 18(7):354–361

    Google Scholar 

  • Aronson KJ (1997) Quality of life among persons with multiple sclerosis and their caregivers. Neurology 48(1):74–80

    Article  PubMed  Google Scholar 

  • Boeije HR, Dunijnstee MS, Grypdonck MH (2003) Continuation of caregiving among partners who give total care to spouses with multiple sclerosis. Health Soc Care Community 11(3): 242–252

    Article  PubMed  Google Scholar 

  • Bowen C, MacLehose A, Beaumont JG (2011) Advanced multiple sclerosis and the psychosocial impact on families. Psychol Health 26(1):113–127

    Article  PubMed  Google Scholar 

  • Buchanan RJ, Radin D, Chakravorty BJ, Tyry T (2009) Informal care giving to more disabled people with multiple sclerosis. Disabil Rehabil 31(15):1244–1256

    Article  PubMed  Google Scholar 

  • Buchanan RJ, Radin D, Huang C (2010) Burden among male caregivers assisting people with multiple sclerosis. Gend Med 7(6):637–646

    Article  PubMed  Google Scholar 

  • Buhse M (2008) Assessment of caregiver burden in families of persons with multiple sclerosis. J Neurosci Nurs 40(1):5–31

    Article  Google Scholar 

  • Chipchase SY, Lincoln NB (2001) Factors associated with carer strain in carers of people with multiple sclerosis. Disabil Rehabil 23(17):768–776

    Article  PubMed  Google Scholar 

  • Christian LM, Graham JE, Padgett DA et al (2006) Stress and wound healing. Neuroimmunomo-dulation 13(5–6):337–346

    Article  Google Scholar 

  • Corry M, While A CE4 (2009) The needs of carers of people with multiple sclerosis: a literature review. Scand J Caring Sci 23(3):569–588

    Article  PubMed  Google Scholar 

  • Courts NF, Newton AN, McNeal LJ (2005) Husbands and wives living with multiple sclerosis. J Neurosci Nurs 37(1):20–27

    Article  PubMed  Google Scholar 

  • Ehrensperger MM, Grether A, Romer G et al (2008) Neuropsychological dysfunction, depression, physical disability, and coping processes in families with a parent affected by multiple sclerosis. Mult Scler 14(8):1106–1112

    Article  PubMed  Google Scholar 

  • Figved N, Myhr KM, Larsen JP, Aarsland D (2007) Caregiver burden in multiple sclerosis: the impact of neuropsychiatric symptoms. Neurol Neurosurg Psychiatry 78(10):1097–1102

    Article  Google Scholar 

  • Forbes A, While A, Mathes L (2007) Informal carer activities, carer burden and health status in multiple sclerosis. Clin Rehabil 21(6):563–575

    Article  PubMed  Google Scholar 

  • Good DM, Bower DA, Einsporn RL (1995) Social support: gender differences in multiple sclerosis spousal caregivers. J Neurosci Nurs 27(5):305–311

    Article  PubMed  Google Scholar 

  • Heron C (1998) Working with carer. Jessica Kingsley Publishers, London and Bristol, Pennsylvania (traduzione italiana: Aiutare i carer. Erickson, Trento, 2002)

    Google Scholar 

  • Khan F, Pallant J, Brand C (2007) Caregiver strain and factors associated with caregiver self-efficacy and quality of life in a community cohort with multiple sclerosis. Disabil Rehabil 29(16):1241–1250

    Article  PubMed  Google Scholar 

  • Knight RG, Devereux RC, Godfrey HP (1997) Psychosocial consequences of caring for a spouse with multiple sclerosis. J Clin Exp Neuropsychol 19(1):7–19

    Article  PubMed  Google Scholar 

  • Koopman Wj, Benbow CL, Vandervoort M (2006) Top ten needs of people with multiple sclerosis and their significantive others. J Neurosci Nurs 38(5):369–373

    Article  PubMed  Google Scholar 

  • Kubler-Ross E (1969) On death and dying. MacMillan, New York (traduzione italiana: La morte e il morire. Cittadella Editrice, Assisi, 1979)

    Google Scholar 

  • Maslach C (1982) Burnout — The Cost of Caring. Prentice Hall Press, Inc, New York (traduzione italiana: La sindrome del burnout. Cittadella Editrice, Assisi, 1992)

    Google Scholar 

  • McKeown LP, Porter-Armstrong AP, Baxter GD (2003) The needs and experiences of caregivers of individuals with multiple sclerosis: a systematic review. Clin Rehabil 17(3):234–248

    Article  PubMed  Google Scholar 

  • McKeown et al (2004) Caregivers of people with multiple sclerosis: experiences of support. Mult Scler 10(2):219–230

    Article  PubMed  Google Scholar 

  • Mutch K (2010) In sickness and in health: experience of caring for a spouse with MS. Br J Nurs 10;19(4):214–219

    Google Scholar 

  • National Family Caregivers Association www.nfcacares.org

  • Pakenham KI (2005) The positive impact of multiple sclerosis (MS) on carers: associations between carer benefit finding and positive and negative adjustment domain. Disabil Rehabil 27(17):985–997

    Article  PubMed  Google Scholar 

  • Pakenham KI (2008a) Making sense of caregiving for persons with multiple sclerosis (MS): the dimensional structure of sense making and relations with positive and negative adjustment. Int J Behav Med 15(3):241–252

    Article  PubMed  Google Scholar 

  • Pakenham KI (2008b) The nature of sense making in caregiving for persons with multiple sclerosis. Disabil Rehabil 30(17):1263–1273

    Article  Google Scholar 

  • Patti F, Amato MP, Battaglia MA et al (2007) Caregiver quality of life in multiple sclerosis: a multicentre Italian study. Mult Scler 13(3):412–419

    Article  PubMed  Google Scholar 

  • Pozzilli C, Palmisano L, Mainero C (2004) Relationship between emotional distress in caregivers and health status in persons with multiple sclerosis. Mult Scler 10(4):442–446

    Article  PubMed  Google Scholar 

  • Rivera-Navarro J, Morales-González JM, Benito-León J; Madrid Demyelinating Diseases Group (GEDMA) (2003) Informal caregiving in multiple sclerosis patients: data from the Madrid Demyelinating Disease Group study. Disabil Rehabil 25(18):1057–1064

    Article  PubMed  Google Scholar 

  • Rivera-Navarro J, Benito-León J, Oreja-Guevara C et al; Caregiver Quality of Life in Multiple Sclerosis (CAREQOL-MS) Study Group (2009) Burden and health-related quality of life of Spanish caregivers of persons with multiple sclerosis. Mult Scler 15(11):1347–1355

    Google Scholar 

  • Sherman TE, Rapport LJ, Hanks RA et al (2007) Predictors of well-being among significant others of persons with multiple sclerosis. Mult Scler 13(2):238–249

    Article  PubMed  Google Scholar 

  • Solari A, Ferrari G, Radice D (2006) A longitudinal survey of self-assessed health trends in a community color of people with multiple sclerosis and their significant others. J Neurol Sci 243(l–2):13–20

    Article  PubMed  Google Scholar 

  • Waldron-Perrine B, Rapport LJ, Ryan KA, Harper KT (2009) Predictors of life satisfaction among caregivers of individuals with multiple sclerosis. Clin Neuropsychol 23(3):462–478

    Article  PubMed  Google Scholar 

Download references

Author information

Authors and Affiliations

  1. AISM Onlus — Associazione Italiana Sclerosi Multipla, Centro di Riabilitazione AISM Liguria, Genova, Italia

    R. Litta

Authors
  1. R. Litta
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to R. Litta .

Editor information

Editors and Affiliations

  1. Onorario di Psicologia dello Sviluppo e dell’Educazione Dipartimento di Psicologia, Università di Torino, Italia

    Silvia Bonino (Professore) (Professore)

Rights and permissions

Reprints and permissions

Copyright information

© 2013 Springer-Verlag Italia

About this chapter

Cite this chapter

Litta, R. (2013). Il caregiver: Ruolo, rischi, supporto. In: Bonino, S. (eds) Aspetti psicologici nella sclerosi multipla. Springer, Milano. https://doi.org/10.1007/978-88-470-2724-4_14

Download citation

Publish with us

Policies and ethics

Search

Navigation