Care of high-risk newborns often involves complex ethical problems, such as quick decisions about questions with a high degree of uncertainty. It is not always possible to define recovery, establish a long-term prognosis or predict future quality of life. This indicates the complexity of factors involved in relating to parents. I have been working for 20 years in the Neonatal and Intensive Care Unit of San Gerardo Hospital, Monza. I am also the president of an association of families with handicapped children (Gli Amici di Giovanni), which is affiliated with the national association “Famiglie per l’Accoglienza”. I am not an expert in communicating, but all neonatologists have had to break “bad news”, such as neonatal pathology, to parents, and have therefore had occasion to reflect on this experience. I shall touch on some points that seem important in the dynamics of communication between neonatologists and parents. I shall start with some data relating to my back-ground experience.
KeywordsPremature Infant Down Syndrome Handicapped Child Quick Decision Extreme Prematurity
Unable to display preview. Download preview PDF.
- 1.Bellieni CV (1999) La Care in TIN: chi è il prematuro? Corso di Aggiornamento sulla Care neonatale. SienaGoogle Scholar
- 3.Burgio GR, Notarangelo LD (1999) La comunicazione in pediatria. Edizioni UtetGoogle Scholar
- 7.Giussani L (1995) Alla ricerca del volto umano. Edizioni RizzoliGoogle Scholar
- 8.Mastroiacovo PP et al (1986) Le malformazioni congenite. Medico e Bambino 5Google Scholar
- 9.Jankovic M (1999) Come parlare ai bambini della loro malattia. Prospettive in Pediatria 29:61–66Google Scholar