Advertisement

The Alzheimer patient in the family context: how to help the family to cope

  • J. Selmes van den Bril
  • M. Selmes Antoine
Part of the Key Topics in Brain Research book series (KEYTOPICS)

Summary

Alzheimer’s disease is the commonest type of dementia. At the present time, there are no medical or surgical measures for curing it or for preventing its appearance — and there will be none in the near future.

During the years that elapse between the onset of the disease and the death of the patient (average 8.1 years), a ‘continuum of care’ responding to specific criteria — adaptation to the patient’s condition, flexibility in relation to the course of the disease, easy and free access to health services — must be provided.

Apart from the purely medical aspects, this continuum of care represents an extremely heavy social burden. This is borne essentially by two structures:
  • the society, or the nation, as a whole, which bears the economic burden;

  • the family, in whose bosom, traditionally, the person with this disease is provided with care for as long as possible.

Since the 1980s a movement, operating at a level between the above two structures and composed of people who do not find in the existing institutions the help or the type of help that they are seeking, has been playing a leading role in providing a continuum of care. Based on the principle of self-help, this movement has 3 principal aims: (1) to increase the awareness of and to educate the public; (2) to provide the patients and their families with material, psychological and social help; and (3) to incite the political and health authorities to find socio-medical solutions.

Before looking at these 3 aims in more detail, it is important to know why the social aspects of the disease have been arousing such great interest in the last few years.

Keywords

Alzheimer Patient Economic Burden Residential Care Family Care Family Context 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. Battelle Memorial Institute (1984) The economics of dementia. Contract report prepared for the Office of Technology Assessment. US CongressGoogle Scholar
  2. Frank Father D, Smith M, Caro F (1981) Family care of the elderly. Lexington Books, TorontoGoogle Scholar
  3. Hu TW, Huang LF, Cartwright WS (1988) Evolution of the costs of caring for the senile demented elderly. A pilot study. Gerontologist 26: 158–163Google Scholar
  4. Huang LF, Hu TW, Cartwright WS (1986) The economic cost of senile dementia in the United States, 1983. Contract report prepared for the National Institute of Ageing No 1-AG-3–2123Google Scholar
  5. Losing of million minds (1987) VS Congress, Office of Technology Assessment, OTA-BA-323 ( Washington, DC: US Government Printing Office )Google Scholar
  6. Male NL, Rabins PV (1981) The 36-hour day. John Hopkins University Press, Baltimore LondonGoogle Scholar
  7. Stone R, Caffarata G, Sanglel J (1986) Care givers of the frail elderly: a national profile. US Department of Health and Human Services, National Center for Health Services ResearchGoogle Scholar
  8. US Department of Health and Human Services (1984) “Alzheimer’s disease”. Report of the Secretary’s Task Force on Alzheimer’s Disease. DHHS 841323, Washington DC, Sept 1984Google Scholar

Copyright information

© Springer-Verlag Wien 1990

Authors and Affiliations

  • J. Selmes van den Bril
    • 1
  • M. Selmes Antoine
    • 1
  1. 1.Fundación Ciencia y MedicinaMadridSpain

Personalised recommendations