Conclusion

Abstract

The idea of this book arose out of necessity. So far, there has been no publication of OT intervention with children and youths with EB, probably because this condition is a socalled rare disease, and only a relatively small number of therapists are involved in such treatment. In therapeutic practice this meant starting with the OT treatment of EB clients on the principle of ‘trial and error’ or ‘try and discard’. Only gradually have meaningful, goal-orientated measures with relevance to everyday life crystallised; the special needs of those affected by EB and the resulting requirements of treatment have become more distinct and clear.