Skip to main content
SpringerLink
Log in

Lebensqualität im Kontext von Gesundheitsförderung und Prävention für Menschen mit Demenz

  • Chapter
  • First Online:
Gesundheitsförderung und Prävention für Menschen mit Demenz

Zusammenfassung

In diesem Beitrag erfolgt eine theoretische Annäherung an das Konzept Lebensqualität und dessen Verwendung im Zusammenhang mit Menschen mit Demenz, die Potenziale für Prävention und Gesundheitsförderung sowie die Möglichkeiten der quantitativen Erfassung. Zu Beginn wird die Verwendung des Begriffs Lebensqualität in Abhängigkeit von Zeit und Kontext beschrieben. Anschließend werden unterschiedliche theoretische Grundlagen mit Bezug zur Demenz vorgestellt. Prävention und Gesundheitsförderung werden als Potenziale für die Lebensqualität von Menschen mit Demenz beleuchtet und den Abschluss bildet eine ausführliche Beschreibung von allgemeinen Grundlagen, Perspektiven und ausgewählten Instrumenten zur Erfassung der Lebensqualität von Menschen mit Demenz.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 44.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 59.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Literatur

  • Achterberg WP, Gambassi G, Finne-Soveri H, Liperoti R, Noro A, Frijters DH, Cherubini A, Dell’aquila G, Ribbe MW (2010) Pain in European long-term care facilities: cross-national study in Finland, Italy and The Netherlands. Pain 148(1):70–74. https://doi.org/10.1016/j.pain.2009.10.008

    Article  PubMed  Google Scholar 

  • Beerens HC, Zwakhalen SM, Verbeek H, Ruwaard D, Hamers JP (2013) Factors associated with quality of life of people with dementia in long-term care facilities: a systematic review. Int J Nurs Stud:1259–1270. https://doi.org/10.1016/j.ijnurstu.2013.02.005

    Article  Google Scholar 

  • Borsje P, Wetzels RB, Lucassen PL, Pot AM, Koopmans RT (2015) The course of neuropsychiatric symptoms in community-dwelling patients with dementia: a systematic review. Int Psychogeriatr S 385–405. https://doi.org/10.1017/s1041610214002282

    Article  Google Scholar 

  • Bowling A, Rowe G, Adams S, Sands P, Samsi K, Crane M, Joly L, Manthorpe J (2015) Quality of life in dementia: a systematically conducted narrative review of dementia-specific measurement scales. Aging Ment Health 19(1):13–31. https://doi.org/10.1080/13607863.2014.915923

    Article  PubMed  Google Scholar 

  • Brod M, Stewart AL, Sands L, Walton P (1999) Conceptualization and measurement of quality of life in dementia: the dementia quality of life instrument (DQoL). Gerontologist 39(1):25–35

    Article  CAS  Google Scholar 

  • Burgener SC, Twigg P, Popovich A (2005) Measuring psychological well-being in cognitively impaired persons. Dementia 4(4):463–485. https://doi.org/10.1177/1471301205058303

    Article  Google Scholar 

  • Clare L, Nelis SM, Quinn C, Martyr A, Henderson C, Hindle JV, Jones IR, Jones RW, Knapp M, Kopelman MD, Morris RG, Pickett JA, Rusted JM, Savitch NM, Thom JM, Victor CR (2014) Improving the experience of dementia and enhancing active life–living well with dementia: study protocol for the IDEAL study. Health Qual Life Outcomes 12:164. https://doi.org/10.1186/s12955-014-0164-6

    Article  PubMed  PubMed Central  Google Scholar 

  • Cooper C, Mukadam N, Katona C, Lyketsos CG, Ames D, Rabins P, Engedal K, de Mendonca Lima C, Blazer D, Teri L, Brodaty H, Livingston G, World Federation of Biological Psychiatry – Old Age T (2012) Systematic review of the effectiveness of non-pharmacological interventions to improve quality of life of people with dementia. Int Psychogeriatr 24(6):856–870. https://doi.org/10.1017/s1041610211002614

    Article  Google Scholar 

  • Dichter MN, Ettema TP, Schwab CGG, Meyer G, Bartholomeyczik S, Halek M (2016a) Benutzerhandbuch für die deutschsprachige QUALIDEM Version 2.0. DZNE/VUm, Witten

    Google Scholar 

  • Dichter MN, Schwab CG, Meyer G, Bartholomeyczik S, Halek M (2016b) Linguistic validation and reliability properties are weak investigated of most dementia-specific quality of life measurements-a systematic review. J Clin Epidemiol 70:233–245. https://doi.org/10.1016/j.jclinepi.2015.08.002

    Article  Google Scholar 

  • Dichter MN, Wolschon EM, Meyer G, Köpke S (2016c) Cross-cultural adaptation of the German version of the Quality of Life in Alzheimer’s Disease scale – Nursing Home version (QoL-AD NH). Int Psychogeriatr:1399–1400. https://doi.org/10.1017/s1041610216000107

    Article  Google Scholar 

  • Dichter MN, Wolschon EM, Schwab CGG, Meyer G, Kopke S (2018) Item distribution and inter-rater reliability of the German version of the quality of life in Alzheimer’s disease scale (QoL-AD) proxy for people with dementia living in nursing homes. BMC Geriatr 18(1):145. https://doi.org/10.1186/s12877-018-0834-z

    Article  PubMed  PubMed Central  Google Scholar 

  • Dröes RM (1991) In movement; on psychosocial care for elderly people with dementia [In beweging: over psychosociale hulpverlening an demente ouderen]. PhD Thesis, Vrije Universiteit

    Google Scholar 

  • Edelman P, Fulton BR, Kuhn D, Chang CH (2005) A comparison of three methods of measuring dementia-specific quality of life: perspectives of residents, staff, and observers. Gerontologist 45 Spec No 1(1):27–36

    Article  Google Scholar 

  • Ettema TP, Dröes RM, de Lange J, Mellenbergh GJ, Ribbe MW (2005a) A review of quality of life instruments used in dementia. Qual Life Res 14(3):675–86

    Google Scholar 

  • Ettema TP, Dröes RM, de Lange J, Ooms ME, Mellenbergh GJ, Ribbe MW (2005b) The concept of quality of life in dementia in the different stages of the disease. Int Psychogeriatr 17(3):353–370

    Article  Google Scholar 

  • Ettema TP, Dröes RM, de Lange J, Mellenbergh GJ, Ribbe MW (2007a) QUALIDEM: development and evaluation of a dementia specific quality of life instrument – validation. Int J Geriatr Psychiatry 22(5):424–430

    Article  Google Scholar 

  • Ettema TP, Dröes RM, de Lange J, Mellenbergh GJ, Ribbe MW (2007b) QUALIDEM: development and evaluation of a dementia specific quality of life instrument. Scalability, reliability and internal structure. Int J Geriatr Psychiatry 22(6):549–556

    Article  Google Scholar 

  • Fuh JL, Wang SJ (2006) Assessing quality of life in Taiwanese patients with Alzheimer’s disease. Int J Geriatr Psychiatry 21(2):103–107

    Article  Google Scholar 

  • Gräske J, Meyer S, Wolf-Ostermann K (2014) Quality of life ratings in dementia care – a cross-sectional study to identify factors associated with proxy-ratings. Health Qual Life Outcomes 12(1):177. https://doi.org/10.1186/s12955-014-0177-1

    Article  PubMed  Google Scholar 

  • Hays RD, Reeve BB (2010) Measurement and modeling of health-related quality of life. In: Killewo J, Heggenhougen HK, Quah SR (Hrsg) Epidemiology and demography in public health. Academic Press, San Diego, S 195–202

    Google Scholar 

  • Huang HL, Chang MY, Tang JS, Chiu YC, Weng LC (2009) Determinants of the discrepancy in patient- and caregiver-rated quality of life for persons with dementia. J Clin Nurs 18(22):3107–3118. https://doi.org/10.1111/j.1365-2702.2008.02537.x

    Article  PubMed  Google Scholar 

  • Hylla J, Schwab CGG, Isfort M, Halek M, Dichter MN (2016) Internal consistency and construct validity of the Quality of Life in Alzheimer’s Disease (QoL-AD) proxy – a secondary data analysis. Pflege 29(4):183–191. https://doi.org/10.1024/1012-5302/a000494

    Article  PubMed  Google Scholar 

  • Johnson LB (1964) Text of Johnson’s address at rally in the garden. http://www.nytimes.com/books/98/04/12/specials/johnson-garden.html. Zugegriffen: 20. Okt. 2016

  • Jonker C, Gerritsen DL, Bosboom PR, Van der Steen JT (2004) A model for quality of life measures in patients with dementia: Lawton’s next step. Dement Geriatr Cogn Disord 18(2):159–164

    Article  CAS  Google Scholar 

  • Kales HC, Gitlin LN, Lyketsos CG (2015) Assessment and management of behavioral and psychological symptoms of dementia. BMJ 350:369. https://doi.org/10.1136/bmj.h369

    Article  Google Scholar 

  • Kane RA, Kling KC, Bershadsky B, Kane RL, Giles K, Degenholtz HB, Liu J, Cutler LJ (2003) Quality of life measures for nursing home residents. J Gerontol A Biol Sci Med Sci 58(3):240–248

    Article  Google Scholar 

  • Karimi M, Brazier J (2016) Health, health-related quality of life, and quality of life: what is the difference? Pharmacoeconomics 34(7):645–649. https://doi.org/10.1007/s40273-016-0389-9

    Article  PubMed  Google Scholar 

  • Kovács L (2016) The “development” of quality of life. about the history and career of a new evaluation criterium in medicine. [Die “Entstehung” der Lebensqualität. Zur Vorgeschichte und Karriere eines neuen Evaluationskriteriums in der Medizin]. In: Kovács L, Kipke R, Lutz R (Hrsg) Lebensqualität in der Medizin. Springer VS, Wiesbaden, S 11–26

    Chapter  Google Scholar 

  • Lawton MP (1991) A multidimensional view of quality of life in Frail Elders. In: Birren EJ, Lubben EJ, Rowe CJ, Deutchman ED (Hrsg) The concept and measurement of quality of life in the frail elderly. Academic Press, San Diego, S 3–23

    Chapter  Google Scholar 

  • Lawton MP (1994) Quality of life in Alzheimer disease. Alzheimer Dis Assoc Disord 8(Suppl 3):138–150

    Article  Google Scholar 

  • Lazarus RS, Folkman S (1984) Stress, appraisal and coping. Springer Publishing Company, New York

    Google Scholar 

  • Leontjevas R, Teerenstra S, Smalbrugge M, Koopmans RT, Gerritsen DL (2016) Quality of life assessments in nursing homes revealed a tendency of proxies to moderate patients’ self-reports. J Clin Epidemiol 80:123–133. https://doi.org/10.1016/j.jclinepi.2016.07.009

    Article  PubMed  Google Scholar 

  • Logsdon RG, Gibbons LE, McCurry SM, Teri L (1999) Quality of life in Alzheimer’s sisease: patient and caregiver reports. J Ment Health Aging 5(1):21–32

    Google Scholar 

  • Luppa M, Riedel-Heller SG, Stein J, Leicht H, Konig HH, van den Bussche H, Maier W, Scherer M, Bickel H, Mosch E, Werle J, Pentzek M, Fuchs A, Eisele M, Jessen F, Tebarth F, Wiese B, Weyerer S (2012) Predictors of institutionalisation in incident dementia–results of the German study on Ageing, Cognition and Dementia in Primary Care Patients (AgeCoDe study). Dement Geriatr Cogn Disord 33(4):282–288. https://doi.org/10.1159/000339729

    Article  PubMed  Google Scholar 

  • Moos RH, Schaefer JA (1977) The crisis of physical illness: an overview. In: Moos R (Hrsg) Coping with physical illness. Plenum Medical Book Company, New York, S 3–25

    Google Scholar 

  • O’Rourke HM, Duggleby W, Fraser KD, Jerke L (2015) Factors that affect quality of life from the perspective of people with dementia: a metasynthesis. J Am Geriatr Soc 63(1):24–38. https://doi.org/10.1111/jgs.13178

    Article  PubMed  Google Scholar 

  • Pickard AS, Knight SJ (2005) Proxy evaluation of health-related quality of life: a conceptual framework for understanding multiple proxy perspectives. Med Care 43(5):493–499

    Article  Google Scholar 

  • Pigou AC (1920) The Economics of welfare. Macmillan and Co, London

    Google Scholar 

  • Robertson S, Cooper C, Hoe J, Hamilton O, Stringer A, Livingston G (2017) Proxy rated quality of life of care home residents with dementia: a systematic review. Int Psychogeriatr 29(4):569–581. https://doi.org/10.1017/S1041610216002167

    Article  PubMed  PubMed Central  Google Scholar 

  • Sampson EL, White N, Leurent B, Scott S, Lord K, Round J, Jones L (2014) Behavioural and psychiatric symptoms in people with dementia admitted to the acute hospital: prospective cohort study. Br J Psychiatry 205(3):189–196. https://doi.org/10.1192/bjp.bp.113.130948

    Article  PubMed  PubMed Central  Google Scholar 

  • Schölzel-Dorenbos CJ, Ettema TP, Bos J, Boelens-van der Knoop E, Gerritsen DL, Hoogeveen F, de Lange J, Meihuizen L, Droes RM (2007) Evaluating the outcome of interventions on quality of life in dementia: selection of the appropriate scale. Int J Geriatr Psychiatry 22(6):511–519

    Article  Google Scholar 

  • Selai C, Trimble MR, Rossor MN, Harvey RJ (2001) Assessing quality of life in dementia: preliminary psychometric testing of the Quality of Life Assessment Schedule (QOLAS). Neuropsychol Rehabil 11(3–4):219–243. https://doi.org/10.1080/09602010042000033

    Article  Google Scholar 

  • Selbaek G, Engedal K, Bergh S (2013) The prevalence and course of neuropsychiatric symptoms in nursing home patients with dementia: a systematic review. J Am Med Dir Assoc 14(3):161–169. https://doi.org/10.1016/j.jamda.2012.09.027

    Article  PubMed  Google Scholar 

  • Smith SC, Lamping DL, Banerjee S, Harwood RH, Foley B, Smith P, Cook JC, Murray J, Prince M, Levin E, Mann A, Knapp M (2005) Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technol Assess 9(10):1–93

    Article  CAS  Google Scholar 

  • Sozialgesetzbuch V. § 35b Abs. 1 SGB V [Online]. http://www.sozialgesetzbuch-sgb.de/sgbv/35b.html. Zugegriffen: 6. Juli 2018

  • Streiner DL, Norman GR, Cariney J (2015) Health measurement scales. A practical guide to their development and use. Oxford University Press, Oxford

    Google Scholar 

  • Trigg R, Jones RW, Skevington SM (2007a) Can people with mild to moderate dementia provide reliable answers about their quality of life? Age Ageing 36(6):663–669

    Article  Google Scholar 

  • Trigg R, Skevington SM, Jones RW (2007b) How can we best assess the quality of life of people with dementia? The Bath Assessment of Subjective Quality of Life in Dementia (BASQID). Gerontologist 47(6):789–797

    Article  Google Scholar 

  • van Kooten J, Smalbrugge M, van der Wouden JC, Stek ML, Hertogh C (2017) Prevalence of pain in nursing home residents: the role of dementia stage and dementia subtypes. J Am Med Dir Assoc 18(6):522–527. https://doi.org/10.1016/j.jamda.2016.12.078

    Article  PubMed  Google Scholar 

  • Verkaik R, Francke AL, van Meijel B, Spreeuwenberg PM, Ribbe MW, Bensing JM (2011) The effects of a nursing guideline on depression in psychogeriatric nursing home residents with dementia. Int J Geriatr Psychiatry 26(7):723–732. https://doi.org/10.1002/gps.2586

    Article  PubMed  Google Scholar 

  • Weidekamp-Maicher M (2013) Nonpharmacological treatments: their influence on quality of life of people with dementia and possible impacts by corresponding instruments. A systematic review of literature. Z Gerontol Geriatr 46(2):134–143. https://doi.org/10.1007/s00391-012-0341-3

    Article  CAS  PubMed  Google Scholar 

  • WHO (1995) The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med 41(10):1403–1409

    Article  Google Scholar 

  • WHO (2014) Constitution of the World Health Organization. Basic documents of the Word Health Organization. Geneva

    Google Scholar 

Download references

Author information

Authors and Affiliations

  1. Deutsches Zentrum für Neurodegenerative Erkrankungen, Witten, Deutschland

    Martin N. Dichter & Margareta Halek

Authors
  1. Martin N. Dichter
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Margareta Halek
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Martin N. Dichter .

Editor information

Editors and Affiliations

  1. Fakultät für Sport- und Gesundheitswissenschaften, Technische Universität München, München, Germany

    Doris Gebhard

  2. Studienbereich Gesundheit und Soziales, Fachhochschule Kärnten, Klagenfurt, Austria

    Eva Mir

Rights and permissions

Reprints and permissions

Copyright information

© 2019 Springer-Verlag GmbH Deutschland, ein Teil von Springer Nature

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Dichter, M.N., Halek, M. (2019). Lebensqualität im Kontext von Gesundheitsförderung und Prävention für Menschen mit Demenz. In: Gebhard, D., Mir, E. (eds) Gesundheitsförderung und Prävention für Menschen mit Demenz. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-662-58130-8_6

Download citation

  • DOI: https://doi.org/10.1007/978-3-662-58130-8_6

  • Published:

  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-662-58129-2

  • Online ISBN: 978-3-662-58130-8

  • eBook Packages: Medicine (German Language)

Publish with us

Policies and ethics

Search

Navigation