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Adolescence, Emerging Adulthood, and Problems of Transition

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Inherited Metabolic Diseases

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Abstract

Medical progress results in longer and even long-time survival in those with chronic diseases. Children with chronic conditions and special health-care needs survive into adulthood passing through adolescence and young adulthood and may live successful personal and professional lives. Unfortunately, the social and health-care structures needed for successful transition of each of these steps still lack behind with sometimes severe medical consequences. This article describes the transition from adolescents to young adults for healthy young people, delivering background information. The transition process is further investigated from the viewpoint of adolescence with special health-care needs giving emphasis to the transition from young to mature adulthood. This is followed by the discussion of existing guidelines and structures outlining options and future directives with emphasis on patients with inborn errors of metabolism.

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References

  • American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine (2002) A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 110(6 Pt 2):1304–1306

    Google Scholar 

  • Annunziato RA, Shemesh E (2010) Tackling the spectrum of transition: what can be done in pediatric settings? Pediatr Transplant 14:820–822

    Article  PubMed  Google Scholar 

  • Annunziato RA, Parkar S, Dugan CA et al (2011) Brief report: deficits in health care management skills among adolescent and young adult liver transplant recipients transitioning to adult care settings. J Pediatr Psychol 36:155–159

    Article  PubMed  Google Scholar 

  • Anthony SJ, Martin K, Drabble A et al (2009) Perceptions of transitional care needs and experiences in pediatric heart transplant recipients. Am J Transplant 9:614–619

    Article  CAS  PubMed  Google Scholar 

  • Betz CL (2013) Health care transition for adolescents with special healthcare needs: where is nursing? Nurs Outlook 61:258–265

    Article  PubMed  Google Scholar 

  • Betz CL, Lobo ML, Nehring WM, Bui K (2013) Voices not heard: a systematic review of adolescents’ and emerging adults’ perspectives of health care transition. Nurs Outlook 61:311–336

    Article  PubMed  Google Scholar 

  • Bitzer J (2013) Oral contraceptives in adolescent women. Best Pract Res Clin Endocrinol Metab 27:77–89

    Article  CAS  PubMed  Google Scholar 

  • Bleidorn W (2012) Hitting the road to adulthood: short-term personality development during a major life transition. Pers Soc Psychol Bull 38:1594–1608

    Article  PubMed  Google Scholar 

  • Blum RW, Garell D, Hodgman CH et al (1993) Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health 14:570–576

    Article  CAS  PubMed  Google Scholar 

  • Bundesärztekammer (2011) 114. Deutscher Ärztetag. Beschlußprotokoll; VI-111 Tranistion von Jugendlichen mit Behinderungen oder chronischen Erkrankungen. http://www.bundesaerztekammer.de/downloads/114Beschlussprotokoll20110704.pdf. Accessed 25 Mar 2015

  • Burt KB, Paysnick AA (2012) Resilience in the transition to adulthood. Dev Psychopathol 24:493–505

    Article  PubMed  Google Scholar 

  • Dorr HG, Hauffa BP, Wallaschofski H (2009) Management of adolescents with childhood onset growth hormone deficiency in the transition – results of a field based study in Germany. Dtsch Med Wochenschr 134:2551–2555

    Article  CAS  PubMed  Google Scholar 

  • Dummer TJ, Kirk SF, Penney TL et al (2012) Targeting policy for obesity prevention: identifying the critical age for weight gain in women. J Obes 2012:934895

    Article  PubMed  PubMed Central  Google Scholar 

  • Flume PA (2009) Smoothing the transition from pediatric to adult care: lessons learned. Curr Opin Pulm Med 15:611–614

    Article  PubMed  Google Scholar 

  • Frech A (2012) Healthy behavior trajectories between adolescence and young adulthood. Adv Life Course Res 17:59–68

    Article  PubMed  PubMed Central  Google Scholar 

  • Fredericks EM (2009) Nonadherence and the transition to adulthood. Liver Transpl 15(Suppl 2):S63–S69

    Article  PubMed  Google Scholar 

  • Gesundheitswesen, S. z. B. d. E. i. (2009) Sondergutachten 2009 4. Spezielle Versorgungsnaforderungen im Übergang vom Jugend- ins Erwachsenenalter. http://www.svr-gesundheit.de/index.php?id=22. Accessed 25 Mar 2015

  • Herzer M, Goebel J, Cortina S (2010) Transitioning cognitively impaired young patients with special health needs to adult-oriented care: collaboration between medical providers and pediatric psychologists. Curr Opin Pediatr 22:668–672

    PubMed  Google Scholar 

  • Hollak CEM, van Spronsen F (2014) Transitionsmedizin in den Niederlanden. In: vom Dahl S (ed) Angeborene Stoffwechselkrankheiten bei Erwachsenen. Springer, Berlin, pp 47–53

    Chapter  Google Scholar 

  • Irwin C (2010) Young adults are worth off than adolescents. J Adolesc Health 46:405–406

    Article  PubMed  Google Scholar 

  • DGKJ-Jahrestagung (2015) Bericht der interdisziplinären AG Transition. Monatsschrift Kinderheilkunde Mitteilungen der DGKJ 179(2):179–180

    Google Scholar 

  • LaRosa C, Baluarte HJ, Meyers KE (2011) Outcomes in pediatric solid-organ transplantation. Pediatr Transplant 15:128–141

    Article  PubMed  Google Scholar 

  • Lausch M, Reincke M (2004) Transition clinics in endocrinology and diabetology for the chronically ill in Germany. A recent inquiry. Dtsch Med Wochenschr 129:1125–1129

    Article  CAS  PubMed  Google Scholar 

  • Moons P, Pinxten S, Dedroog D et al (2009) Expectations and experiences of adolescents with congenital heart disease on being transferred from pediatric cardiology to an adult congenital heart disease program. J Adolesc Health 44:316–322

    Article  PubMed  Google Scholar 

  • Mutze U, Roth A, Weigel JF et al (2011) Transition of young adults with phenylketonuria from pediatric to adult care. J Inherit Metab Dis 34:701–709

    Article  PubMed  Google Scholar 

  • Office NA L f P w r D N C (2014) National plan of action for people with rare diseases. Action fields, recommendations, proposed actions. http://www.namse.de/images/stories/Dokumente/Aktionsplan/national%20plan%20of%20action.pdf. Accessed 4 Apr 2015

  • Packman W, Mehta I, Rafie S et al (2012) Young adults with MSUD and their transition to adulthood: psychosocial issues. J Genet Couns 21:692–703

    Article  PubMed  Google Scholar 

  • Park MJ, Adams SH, Irwin CE Jr (2011) Health care services and the transition to young adulthood: challenges and opportunities. Acad Pediatr 11:115–122

    Article  PubMed  Google Scholar 

  • Philpott JR (2011) Transitional care in inflammatory bowel disease. Gastroenterol Hepatol (NY) 7:26–32

    Google Scholar 

  • Poobalan AS, Aucott LS, Clarke A, Smith WC (2012) Physical activity attitudes, intentions and behaviour among 18–25 year olds: a mixed method study. BMC Public Health 12:640

    Article  PubMed  PubMed Central  Google Scholar 

  • Protheroe S (2009) Symposium 6: young people, artificial nutrition and transitional care. Transition in young people on home parenteral nutrition. Proc Nutr Soc 68:441–445

    Article  PubMed  Google Scholar 

  • Rakhmanina NY, van den Anker JN, Soldin SJ et al (2010) Can therapeutic drug monitoring improve pharmacotherapy of HIV infection in adolescents? Ther Drug Monit 32:273–281

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Roberts B, Wood D, Smith JL (2005) Evaluating five factor theory and social investment perspectives on personality trait development. J Res Pers 39:166–184

    Article  Google Scholar 

  • Rook M, Rosenthal P (2009) Caring for adults with pediatric liver disease. Curr Gastroenterol Rep 11:83–89

    Article  PubMed  Google Scholar 

  • Royal College of Nursing (2004) Adolescent transition care-guidance for nursing staff. http://www.rcn.org.uk/__data/assets/pdf_file/0011/78617/004510.pdf. Accessed 4 Apr 2015

  • Suris JC, Akre C, Rutishauser C (2009) How adult specialists deal with the principles of a successful transition. J Adolesc Health 45:551–555

    Article  PubMed  Google Scholar 

  • Tsybina I, Kingsnorth S, Maxwell J et al (2012) Longitudinal evaluation of transition services (“LETS Study”): protocol for outcome evaluation. BMC Pediatr 12:51

    Article  PubMed  PubMed Central  Google Scholar 

  • Wong LH, Chan FW, Wong FY et al (2010) Transition care for adolescents and families with chronic illnesses. J Adolesc Health 47:540–546

    Article  PubMed  Google Scholar 

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Acknowledgment

The manuscript was made possible due to an unrestricted grant from Genzyme-Sanofi.

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Authors and Affiliations

  1. Kompetenzzentrum Seltene Stoffwechselkrankheiten, Interdisziplinäres Stoffwechsel-Centrum: Endokrinologie, Diabetes und Stoffwechsel, Charité-Universitätsmedizin Berlin, Campus Virchow-Klinikum, Augustenburger Platz 1, 13352, Berlin, Germany

    Ursula Plöckinger

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  1. Ursula Plöckinger
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Correspondence to Ursula Plöckinger .

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Editors and Affiliations

  1. Department of Pediatrics, University of Heidelberg, Heidelberg, Germany

    Georg F. Hoffmann

  2. Division of Human Genetics, Medical University Innsbruck, Innsbruck, Austria

    Johannes Zschocke

  3. Department of Pediatrics, University of California San Diego , La Jolla, California, USA

    William L. Nyhan

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Plöckinger, U. (2017). Adolescence, Emerging Adulthood, and Problems of Transition. In: Hoffmann, G., Zschocke, J., Nyhan, W. (eds) Inherited Metabolic Diseases. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-662-49410-3_10

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  • DOI: https://doi.org/10.1007/978-3-662-49410-3_10

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  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-662-49408-0

  • Online ISBN: 978-3-662-49410-3

  • eBook Packages: MedicineMedicine (R0)

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