Religiös-spirituelle Begleitung von Demenzkranken aus der Sicht von Pflegekräften

  • Janusz Surzykiewicz
Conference paper

Zusammenfassung

Die Rolle von Spiritualität und Religiosität wird in jüngster Zeit auch im pflegerischen Bereich betont und praktisch bedacht. Dies wird nicht nur in einer vermehrten Anzahl theoriebezogener Publikationen und empirischer Forschungsarbeiten der Pflegewissenschaften zum Thema Demenz deutlich und durch eine Hervorhebung spirituell-religiöser Akzente in der praktischen Pflege sichtbar, sondern zeigt sich auch in einer wachsenden Nachfrage nach Seminar- und Fortbildungsmöglichkeiten zu diesem Themenfeld. Die vorliegende Herausarbeitung eröffnet zunächst einen kurzen Einblick in existierende Befunde, um dann diesbezüglich Ergebnisse eigener Forschungsarbeiten darzustellen.

Literatur

  1. Acton GJ, Miller EW (2003) Spirituality in caregivers of family members with dementia. Journal of Holistic Nursing 21(2):117–130PubMedGoogle Scholar
  2. Agency for Health Care Research and Quality (2010) Alzheimer’s Disease and Cognitive Decline. www.ahrq.gov Google Scholar
  3. Ajzen I (1991) The theory of planned behavior. Organizational Behavior and Human Decision Processes 50:179–211Google Scholar
  4. Albert MS, DeKosky ST, Dickson D, Dubois B, Feldman HH, Fox N et al (2011) The diagnosis of mild cognitive impairment due to Alzheimer’s disease: Recommendations from the National Institute on Aging – Alzheimer’s Association workgroups on m diagnostic guidelines for Alzheimer’s disease. Alzheimers Dement 7(3):270–279PubMedCentralPubMedGoogle Scholar
  5. Alzheimer’s Association (2007) Alzheimer’s disease facts and figures. http://www.alz.org/national/documents/Report 2007FactsAnd Figures.pdfGoogle Scholar
  6. Alzheimer’s Association (2014) Alzheimer’s disease facts and figures. Alzheimer’s & Dementia 10(2): 135–270, e27–e92Google Scholar
  7. American Psychiatric Association (2000) Diagnostic and statistical manual of mental disorders. American Psychiatric Association, Arlington, VAGoogle Scholar
  8. Baldacchino DR (2006) Nursing competencies for spiritual care. Journal of Clinical Nursing 15(7):885–896PubMedGoogle Scholar
  9. Baldacchino DR (2011) Teaching spiritual care: The perceived impact on qualified nurses. Nurse Education in Practice 11:47–53PubMedGoogle Scholar
  10. Bell V, Troxel D (2001) Spirituality and the person with dementia: A view from the field. Alzheimer’s Care Quarterly 2(2):31–45Google Scholar
  11. Belschner W, Krischke N (2005) Transpersonales Vertrauen. Manual. LIT, MünsterGoogle Scholar
  12. Beuscher L, Grando VT (2009) Using spirituality to cope with early-stage Alzheimer’s disease. Western Journal of Nursing Research 31:583–98PubMedCentralPubMedGoogle Scholar
  13. Bharucha AJ, Pandav R, Shen C, Dodge HH, Ganguli M (2004) Predictors of nursing facility admission: A 12-year epidemiological study in the United States. Journal of the American Geriatrics Society 52(3):434–439PubMedGoogle Scholar
  14. Blanchflower D, Oswald A (2008) Is well-being u-shaped over the life cycle? Social Science & Medicine 66(8):1733–1749Google Scholar
  15. Bond J (1999) Quality of life for people with dementia: Approaches to the challenge of measurement. Aging and Society 1(9):561–579Google Scholar
  16. Borg C, Fagerström C, Balducci C, Burholt V, Ferring D, Weber G, Wenger C, Holst G, Hallberg I (2008) Life satisfaction in 6 European countries: the relationship to health, self-esteem, and social and financial resources among people (aged 65–89) with reduced functional capacity. Geriatric Nursing 29(1):48–57PubMedGoogle Scholar
  17. Bourgeois MS (2002) The challenge of communicating with persons with dementia. Alzheimer’s Care Quarterly 3(2):132–144Google Scholar
  18. Brennan M, Heiser D (2005) Introduction: Spiritual assessment and intervention: Current directions and applications. Journal of Religion, Spirituality & Aging 17(1–2):1–20Google Scholar
  19. Brodsky A (2000) The role of religion in the lives of resilient, urban, African American, single mothers. Journal of Community Psychology 28(2):199–219Google Scholar
  20. Büssing A, Kohls N (2011) Spiritualität transdisziplinär: wissenschaftliche Grundlagen im Zusammenhang mit Gesundheit und Krankheit. Springer, Berlin, HeidelbergGoogle Scholar
  21. Büssing A, Ostermann T, Matthiessen PF (2005) Role of religion and spirituality in medical patients: confirmatory results with the SpREUK questionnaire. Health Quality Life Outcomes 3(10):1–10Google Scholar
  22. Calvo A, Moglia C, Ilardi A, Cammarosano S, Gallo S, Canosa A et al (2011) Religiousness is positively associated with quality of life of ALS caregivers. Amyotrophic Lateral Sclerosis 12(3):168–171PubMedGoogle Scholar
  23. Carr TJ, Hicks-Moore S, Montgomery P (2011) What’s so big about the „little things“: A phenomenological inquiry into the meaning of spiritual care in dementia. Dementia 10(3):399–414Google Scholar
  24. Cecchin ML (2001) Reconsidering the role of being a daughter of a mother with dementia. Journal of Family Studies 7(1):101–107Google Scholar
  25. Chibnall JT, Duckro PN (2000) Does exposure to issues of spirituality predict medical students’ attitudes toward spirituality in medicine? Academic Medicine 75:661PubMedGoogle Scholar
  26. Choi G, Tirrito T, Mills F (2008) Caregiver’s Spirituality and Its Influence on Maintaining the Elderly and Disabled in a Home Environment. Journal of Gerontological Social Work 51(3/4):247–259Google Scholar
  27. Cipriani G, Dolciotti C, Picchi L, Bonuccelli U (2011) Alzheimer and his disease: a brief history. Neurological Sciences 32(2):275–279PubMedGoogle Scholar
  28. Clarke J (2009) A critical view of how nursing has defined spirituality. Journal of Clinical Nursing 18(12):1666–1673PubMedGoogle Scholar
  29. Collins WL, Bowland S (2012) Spiritual Practices for Caregivers and Care Receivers. Journal of Religion, Spirituality & Aging 24(3):235–248Google Scholar
  30. Conley V, Burman ME (2011) Informational needs of caregivers of terminally ill patients in a rural state. Virginia Henderson International Nursing Library. http://hdl.handle.net/10755/169169 Google Scholar
  31. von Dach C, Osterbrink J (2013) Spiritualität der Pflege. Spiritual Care 2(3):21–30Google Scholar
  32. Dein S (2005) Working with a patient who is in denial. European. Journal of Palliative Care 12(6):251–253Google Scholar
  33. Dilling H, Mombour W, Schmidt MH (Hrsg) (2010) Internationale Klassifikation psychischer Störungen. ICD-10 Kapitel V (F), Klinisch-diagnostische Leitlinien. Verlag Hans Huber, BernGoogle Scholar
  34. Doherty D (2006) Spirituality and dementia. Spirituality and Health International, 7(4):203–210Google Scholar
  35. Duffy B, Oyebode JR, Allen J (2009) Burnout among care staff for older adults with dementia. Dementia 8:515–541Google Scholar
  36. Ehrhardt T, Hampel H, Hegerl U, Möller H-J (1998) Das Verhaltenstherapeutische Kompetenztraining VKT – Eine spezifische Intervention für Patienten mit einer beginnenden Alzheimer-Demenz. Zeitschrift für Gerontologie und Geriatrie 31:112–119PubMedGoogle Scholar
  37. Ennis EM, Kazer MW (2013) The role of spiritual nursing interventions on improved outcomes in older adults with dementia. Holistic Nursing Practice 27(2):106–113PubMedGoogle Scholar
  38. Eppel H (2007) Stress als Risiko und Chance. Grundlagen von Belastung, Bewältigung und Ressourcen. W. Kohlhammer, StuttgartGoogle Scholar
  39. Erichsen NB, Büssing A (2013) Spiritual needs of elderly living in residential/nursing homes. Evidence-Based Complementary and Alternative Medicine. http://dx.doi.org/10.1155/2013/913247 Google Scholar
  40. Everett D (1996) Forget me not: The spiritual care of people with Alzheimer’s Disease. Inkwell Press., EdmontonGoogle Scholar
  41. Favre CA (2004) Relational spirituality and social caregiving. Social Work 49(2):241–249Google Scholar
  42. Frick E, Riedner C, Fegg M, Hauf S, Borasio GD (2006) A clinical interview assessing cancer patients’ spiritual needs and preferences. European Journal of Cancer Care 15:238–243PubMedGoogle Scholar
  43. George L (2010) Still happy after all these years: Research frontiers on subjective well-being in later life. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences 65(3):331–339Google Scholar
  44. Gerritsen DL, Ettema TP, Boelens E, Bos J, Hoogeveen F, de Lange J et al (2007) Quality of life in dementia: do professional caregivers focus on the significant domains? American Journal of Alzheimer’s Disease and Other Dementias 22(3):176–183PubMedGoogle Scholar
  45. Glueckauf RL, Davis WS, Allen K et al (2009) Integrative cognitive, behavioral and spiritual counseling for rural dementia caregivers with depression. Rehabilitation Psychology 54:449–461PubMedGoogle Scholar
  46. Golberg B (1998) Connection: an exploration of spirituality in nursing care. Journal of Advanced Nursing 27:836–842PubMedGoogle Scholar
  47. Goodall MA (2009) The evaluation of spiritual care in a dementia care setting. Dementia 8(2):167–183Google Scholar
  48. Gräßel E, Stemmer R, Eichenseer B, Pickel S, Donath C, Kornhuber J, Luttenberger K (2011) Non-pharmacological, multicomponent group therapy in patients with degenerative dementia: a 12-months randomized, controlled trial. BMC Medicine 9:129Google Scholar
  49. Gräßel E, Siebert J, Ulbrecht G, Stemmer R (2013) Was leisten „nicht-medikamentöse“ Therapien bei Demenz? Ein Überblick über aktuelle Projekte. Informationsdienst. Altersfragen 40(2):7–16Google Scholar
  50. Greasley P, Chiu LF, Gartland RM (2001) The concept of spiritual care in mental health nursing. Journal of Advanced Nursing 33(5):629–637PubMedGoogle Scholar
  51. Greene RR, Conrad AP (2002) Basic assumptions and terms. In: Greene RR (Hrsg) Resiliency: An integrated approach to practice, policy, and research. NASW Press, Washington, DC, S 29–62Google Scholar
  52. Greene RR, Galambos C, Lee Y (2003) Resilience Theory: Theoretical and Professional Conceptualization. Journal of Human Behavior in the Social. Environment 8(4):75–91Google Scholar
  53. Greenstreet WM (1999) Teaching spirituality in nursing: a literature review. Nurse Education Today 19:649–658PubMedGoogle Scholar
  54. Grossarth-Maticek R (2010) Formen der Religiosität und ihre Auswirkungen auf Gesundheit und Kreativität: Einige Ergebnisse aus den Heidelberger prospektiven Interventionsstudien. Wege zum Menschen 62(4):313–331Google Scholar
  55. Grypdonck M (2005) Ein Modell zur Pflege chronisch Kranker. In: E, Seidl, & I, Walter (Hrsg) Chronisch kranke Menschen in ihrem Alltag. Maudrich, Wien, S 9–60Google Scholar
  56. Gunzelmann T (2008) Ist Altern messbar? In: Oswald WD, Gatterer G, Fleischmann UM (Hrsg) Gerontopsychologie, Grundlagen und klinische Aspekte zur Psychologie des Alterns. Springer, Wien, S 59–77Google Scholar
  57. Harrison C (1993) Personhood, dementia, and the integrity of a life. Canadian Journal on Aging 12(4):428–440Google Scholar
  58. Hauf, St. T. (2009). Das halbstrukturierte, klinische Interview „SPIR“ zur Erfassung spiritueller Überzeugungen und Bedürfnisse von Patienten mit Krebserkrankung. Dissertation zum Erwerb des Doktorgrades der Medizin an der Medizinischen Fakultät der Ludwig-Maximilians-Universität zu München.Google Scholar
  59. Hebert RS, Arnold RM, Schulz R (2007) Improving well-being in caregivers of terminally ill patients. Making the case for patient suffering as a focus for intervention research. Journal of Pain and Symptom Management 34(5):539–546PubMedCentralPubMedGoogle Scholar
  60. Held C, Ermini-Fünfschilling D (2004) Das demenzgerechte Heim: Lebensraumgestaltung, Betreuung und Pflege für Menschen mit leichter, mittelschwerer und schwerer Alzheimerkrankheit. Karger, Medical and Scientific PublishersGoogle Scholar
  61. Heller A, Knipping C (2007) Palliative Care – Haltungen und Orientierungen. In: Knipping C (Hrsg) Lehrbuch Palliative Care, 2. Aufl. Verlag Hans Huber, BernGoogle Scholar
  62. Heo GJ, Koeske G (2013) The role of religious coping and race in Alzheimer’s disease caregiving. Journal of Applied Gerontology 32(5):582–604PubMedGoogle Scholar
  63. Herdman TH (2012) NANDA International Diagnosis: Definitions and Classifications 2012–2014. Wiley Blackwell, OxfordGoogle Scholar
  64. Hide K (2002) Symbol ritual and dementia. Journal of Religious Gerontology 13(3):77–90Google Scholar
  65. Higgins P (2005) Bringing spiritual light into dementia. Journal of Dementia Care 13(2):10–11Google Scholar
  66. Higgins P (2013) Meeting the religious needs of residents with dementia: Being helped to follow lifelong faith practices can be a source of comfort to many people living with cognitive impairment. Nursing older people 25(9):25–29PubMedGoogle Scholar
  67. Hillier SH, Barrow GM (2007) Aging, the individual, and society, 8. Aufl. Thomson Wadsworth, Belmont, CAGoogle Scholar
  68. Hirakawa Y, Kuzuya M, Enoki H, Uemura K (2011) Information needs and sources of family caregivers of home elderly patients. Archives of Gerontology and Geriatrics 52:202–205PubMedGoogle Scholar
  69. Holt J, Stiltner L, Wallace R (2009) Do patients at high risk of Alzheimer’s disease benefit from early treatment? Journal of Family Practice 58(6):320–322PubMedGoogle Scholar
  70. Hudson R (2012) „Personhood.“. In: Cobb M, Puchalski CM, Rumbold B (Hrsg) The Oxford Textbook of Spirituality in Healthcare. Oxford University Press, Oxford, S 105–111Google Scholar
  71. Hughes N, Closs SJ, Clark D (2009) Experiencing cancer in old age: a qualitative systematic review. Qualitative Health Research 19(8):1139–1153PubMedGoogle Scholar
  72. Islam M, Alam S, Ferdousy R, Chowdhury E (2010) Analysis of Morphological Brain Change of Alzheimer Disease (AD) Patients. Applied Physics Research 2(2):148–155Google Scholar
  73. Jacobs BJ (2006) The emotional survival guide for caregivers: Looking after yourself and your family while helping an aging parent. The Guilford Press, New YorkGoogle Scholar
  74. Jenkins D, Price B (1996) Dementia and personhood: A focus for care? Journal of Advanced Nursing 24:84–90PubMedGoogle Scholar
  75. Johnson GE, Johnson RH (2007) Implicit and explicit memory: implications for the pastoral care of persons with dementia. Journal of Religion, Spirituality, and Aging 19(3):43–53Google Scholar
  76. Jolley D, Benbow SM, Grizzell M, Willmott S, Bawn S, Kingston P (2010) Spirituality and faith in dementia. Dementia 9(3):311–325Google Scholar
  77. Journal of Advanced Nursing 61–64 (2008)Google Scholar
  78. Kaiser P (2007) Religion in der Psychiatrie, eine (un-)bewusste Verdrängung? Vandenhoeck & Ruprecht, Göttingen.Google Scholar
  79. Käppeli S (2001) Mit-Leiden – eine vergessene Tradition der Pflege? Pflege 14:293–306PubMedGoogle Scholar
  80. Kaufman Y, Anaki D, Binns M et al (2007) Cognitive decline in Alzheimer’s disease: impact of spirituality, religiosity, and QOL. Neurology 68(18):1509–1514PubMedGoogle Scholar
  81. Keast K, Leskovar C, Brohm R (2010) A systematic review of spirituality and dementia in LTC. Ann Long Term Care 18:41–47Google Scholar
  82. Killick J (2011) Becoming a friend of time: A Consideration of how we may Approach Persons with Dementia through Spiritual Sharing in the Moment. In: Jewell A (Hrsg) Spirituality and Personhood in Dementia. Jessica Kingsley Publishers, London, S 52–63Google Scholar
  83. Kitwood T, Bredin K (1992) Towards a theory of dementia care: personhood and well-being. Ageing Society 12:269–87PubMedGoogle Scholar
  84. Knutson LD (2007) Compassionate caregiving: Practical help and spiritual encouragement. Baker Books, Bethany House Publishers, Baker Publishing Group. South Bloomington, Minnesota.Google Scholar
  85. Koenig HG, McCullough M, Larson D (2001) Handbook of religion and health. Oxford University Press, New YorkGoogle Scholar
  86. Koenig HG, George LK, Titus P (2004) Religion, spirituality, and health in medically ill hospitalized older patients. Journal of American Geriatrics Society 52:554–562Google Scholar
  87. Körtner U, Müller S, Kletecka-Pulker M, Inthorn J (2009) Spiritualität, Religion und Kultur am Krankenbett. Springer Verlag, WienGoogle Scholar
  88. Koslander T, da Silva AB, Roxberg Å (2009) Existential and spiritual needs in mental health care: An ethical and holistic perspective. Journal of Holistic Nursing 27:43–44Google Scholar
  89. Krämer G, Förstl H (2008) Alzheimer und andere Demenzformen. TRIAS, StuttgartGoogle Scholar
  90. Krischak G, Schmidt JP, Kaluscha R, Gassner I, Rakowski D, Tepohl L, Christiansen M (2013) Prognose des Rehabilitationsbedarfs bis 2040 anhand aktuarieller Risikoklassifikationen. German Medical Science GMS Publishing House, DüsseldorfGoogle Scholar
  91. Kruse A (2006) Plädoyer für ein Pro-Aging. Informationsdienst Altersfragen 33(5):4–7Google Scholar
  92. Lackey, S. L. (2014). Christianity and resilience as experienced by caregivers of dementia patients.Dissertation. Sam Houston State University. Google Scholar
  93. Lawrence RM (2003) Aspects of Spirituality in Dementia Care When Clinicians Tune into Silence. Dementia 2(3):393–402Google Scholar
  94. Leblanc AJ, Driscoll AK, Pearlin LI (2004) Religiosity and the expansion of caregiver stress. Aging and Mental Health 8(5):410–421PubMedGoogle Scholar
  95. Lehr U (2007) Psychologie des Alterns, 11. Aufl. Quelle & Meye, WiebelsheimGoogle Scholar
  96. Leininger M (1978) Transcultural nursing: Concepts, theories, and practices. Wiley, New YorkGoogle Scholar
  97. Lenshyn J (2004) Reaching the living echo: a new paradigm for the provision of spiritual care for persons living with Alzheimer’s. Alzheimer’s Care Quarterly, 5(4), 313–323.Google Scholar
  98. Leppert K, Strauß B (2011) Die Rolle von Resilienz für die Bewältigung von Belastungen im Kontext von Altersübergängen. Zeitschrift für Gerontologie und Geriatrie 44(5):313–317PubMedGoogle Scholar
  99. Lopez GA (2006) Ethics Outflanked. America 194(8):14Google Scholar
  100. Lopez V, Fischer I, Leigh MC, Larkin D, Webster S (2014) Spirituality, religiosity, and personal beliefs of Australian undergraduate nursing students. Journal of Transcultural Nursing 25(4):395–402PubMedGoogle Scholar
  101. Lowis MJ, Edwards AC, Roe CA, Jewell AJ, Jackson MI, Tidmarsh WM (2005) The role of religion in mediating the transition to residential care. Journal of Aging Studies 19(3):349–362Google Scholar
  102. Lünstroth R (2006) Vom Kranken zum Menschen: Ein Plädoyer gegen die Rede vom defizitären Menschen. In: Bolle G-F (Hrsg) Komm mal mit: Demenz als theologische und kirchliche Herausforderung. Glaubenszeugnisse unserer Zeit. Knesebeck, München, S 35–41Google Scholar
  103. MacKinlay E (2009) Using spiritual reminiscence with a small group of Latvian residents with dementia in a nursing home: A multifaith and multicultural perspective. Journal of Religion, Spirituality and Aging 21(4):318–329Google Scholar
  104. MacKinlay E (2010) Ageing and Spirituality across Faiths and Cultures. Jessica Kingsley Publishers, LondonGoogle Scholar
  105. MacKinlay E, McFadden SH (2004) Ways of studying religion, spirituality, and aging: the social scientific approach. Journal of Religious Gerontology 16(3–4):75–90Google Scholar
  106. Marti P (2014) Das Zusammenspiel von Wohlbefinden und Lebenssinn in der Entwicklung zum Alter: eine praktisch-theologische Studie Bd. 5. LIT Verlag, MünsterGoogle Scholar
  107. Martin M (2012) Religion, Gesundheit und Alter: Einflüsse auf die Inanspruchnahme und die Bereitschaft zur Übernahme von gesundheitlicher Versorgung. Schlussbericht. Ein Projekt im Rahmen des Nationalen Forschungsprogramms „Religionsgemeinschaften, Staat und Gesellschaft (NFP 58)“. Psychologisches Institut der Universität Zürich. http://www.nrp58.ch/files/downloads/NFP58_Schlussbericht_Martin.pdf
  108. Maschewsky-Schneider, U., & Hey, M. (2011). Abschlussbericht Projekt „Menschen mit Demenz in der Kommune – Achtsamkeit und seelsorgerische Begleitung für Menschen mit Demenz“. Charite Berlin School of Public Health. Google Scholar
  109. Mauk KL, Schmidt NK (2004) Spiritual care in nursing practice. Lippincott Williams & Wilkins, PhiladelphiaGoogle Scholar
  110. McCurdy DB (1998) Personhood, spirituality, and hope in the care of human beings with dementia. The Journal of Clinical Ethics 9:81–91PubMedGoogle Scholar
  111. McEwen M (2005) Spiritual nursing care: state of the art. Holistic nursing practice 19(4):161–168PubMedGoogle Scholar
  112. Meier Robinson, K (2013) Faith and Spirituality: Supporting Caregivers of Individuals with Dementia. In: St. Zarit H, Talley RC (Hrsg) Caregiving for Alzheimer’s disease and related disorders. Research, practice, policy. Springer Science+Business Media, New York, S 91–106Google Scholar
  113. Messikomer CM, De Craemer W (2002) The Spirituality of Academic Physicians: An Ethnography of a Scripture-based Group in an Academic Medical Center. Academic Medicine 77(6):562–573PubMedGoogle Scholar
  114. Mittelmann M (2013) Psychosocial Interventions to Address the Emotional Needs of Caregivers of Individuals with Alzheimer’s Disease. In: St. Zarit H, Talley RC (Hrsg) Caregiving for Alzheimer’s disease and related disorders. Research, practice, policy. Springer Science+Business Media, New York, S 17–34Google Scholar
  115. Molzahn AE, Sheilds L (2008) Why is it so hard to talk about spirituality? The Canadian Nurse 104(1):25PubMedGoogle Scholar
  116. Motel-Klingebiel, A, Tesch-Römer, C, Kondratowitz, v H-J (2003) Die gesellschaftsvergleichende Studie OASIS: Familiale und wohlfahrtsstaatliche Determinanten der Lebensqualität im Alter. In: Karl F (Hrsg) Sozial- und verhaltenswissenschaftliche Gerontologie. Juventa, Weinheim, S 163–183Google Scholar
  117. Nagai-Jacobsen MG, Burkhardt MA (1989) Spirituality: cornerstone of holistic nursing practice. Holistic Nursing Practice 3(3):18–26Google Scholar
  118. Narayanasamy N (2001) Title Spiritual care: a practical guide for nurses and healthcare practitioners. Quay Books, LancasterGoogle Scholar
  119. National Alliance for Caregiving, AARP (2004) Caregiving in the United States. http://www.caregiving.org/data/04finalreport.pdf
  120. National Institute on Aging, Fetzer Institute Working Group (1997) Measurement scale on religion, spirituality, health, and aging. National Institute on Aging, Bethesda, MDGoogle Scholar
  121. National Institutes of Health (2010) Preventing Alzheimer’s Disease and Cognitive Decline. Final Panel Statement. http://consensus.nih.gov Google Scholar
  122. Nelson-Becker H, Nakashima M, Canda ER (2006) Spirituality in Professional Helping Interventions. In: Berkman B, D’Ambruoso S (Hrsg) Oxford handbook of social work in health and aging. Oxford Press, Boston, S 797–807Google Scholar
  123. Niklewski G, Nordmann H, Riecke-Niklewski R (2006) Demenz: Hilfe für Angehörige und Betroffene. Stiftung Warentest, BerlinGoogle Scholar
  124. Oesterreich K (1993) Gerontopsychiatrie. Forschung, Lehre, Praxis, Perspektiven. Quintessenz, MünchenGoogle Scholar
  125. Olvera LS (1999) What are the effects of caregiving on caregivers? Masteral Thesis. California State University, SacramentoGoogle Scholar
  126. Oppikofer S (2008) Lebensqualität bei Demenz. Eine Bestandaufnahme, Sichtung und Dokumentation bestehender Instrumente zur Messung der Lebensqualität bei Menschen mit schwerer Demenz Züricher Schriften zur Gerontologie, Bd. 5.Google Scholar
  127. Ortiz LPA, Langer N (2002) Assessment of spirituality and religion in later life: „acknowledging clients“ needs and personal resources. Journal of Gerontological Social Work 37(1):5–21Google Scholar
  128. Padmaprabha D, Sperlinger DJ, Boddington S (2012) The lived experience of spirituality and dementia in older people living with mild to moderate dementia. Dementia 11:75–94Google Scholar
  129. Pargament KI (2011) Spiritually integrated psychotherapy: Understanding and addressing the sacred. Guilford Press, New YorkGoogle Scholar
  130. Pargament K, Koenig H, Tarakeshwar N, Hahn J (2004) Religious coping methods as predictors of psychological, physical and spiritual outcomes among medically ill elderly patients: a two-year longitudinal study. Journal of Health Psychology 9(6):713–730PubMedGoogle Scholar
  131. Peterson D, Berg-Weger M, McGillick J, Schwartz L (2002) Basic care I: The effect of dementia-specific training on certified nursing assistants and other staff. American Journal of Alzheimer’s Disease and Other Dementias 17(3):154–164PubMedGoogle Scholar
  132. Petersen RC, Stevens JC, Ganguli M, Tangalos EG, Cummings JL, Cummings JL (2001) Practice parameters: early detection of dementia: mild cognitive impairment (an evidence based review). Neurology 56:1133–1143PubMedGoogle Scholar
  133. Petzold H (1997) Das Ressourcenkonzept in der sozialinterventiven Praxeologie und Systemberatung. Integrative Therapie 23(4):435–471Google Scholar
  134. Post SG (2000) The concept of Alzheimer disease in a hypercognitive society. In: Whitehouse PJ, Maurer K, Ballenger JF (Hrsg) Concepts of Alzheimer Disease. Biological, Clinical, and Cultural Perspektives. John Hopkins University Press, Baltimore, S 245–256Google Scholar
  135. Potyk D (2005) Treatments for Alzheimer Disease. Southern Medical Journal 98(6):628–635PubMedGoogle Scholar
  136. Powers BA, Watson NM (2011) Spiritual nurturance and support for nursing home residents with dementia. Dementia 1(10):159–180Google Scholar
  137. Puchalski CM (2006) Spiritual Care: Practical tools. In: Puchalski CM (Hrsg) A time for listening and caring: Spirituality and the care of the chronically ill and dying. Oxford University Press, Oxford, New York, S 229–251Google Scholar
  138. Puchalski CM (2008) Spirituality and the care of patients at the end-of-life: an essential component of care. OMEGA 56(1):33–46Google Scholar
  139. Puchalski CM, Larson DB (1998) Developing curricula in spirituality and medicine. Academic Medicine 73:970–974PubMedGoogle Scholar
  140. Quinn C, Clare L, Woods RT (2012) What predicts whether caregivers of people with dementia find meaning in their role? International Journal of Geriatric Psychiatry 27(11):1195–1202PubMedGoogle Scholar
  141. Radebold H, Hirsch RD (2003) Tiefenpsychologische/psychoanalytische Behandlungsverfahren. In: Förstl H (Hrsg) Lehrbuch der Gerontopsychiatrie und -psychotherapie. Grundlagen – Klinik – Therapie. Thieme, Stuttgart, New York, S 179–187Google Scholar
  142. Reber J (2013) Christlich-spirituelle Unternehmenskultur. Kohlhammer Verlag, StuttgartGoogle Scholar
  143. Renz M (2003) Grenzerfahrung Gott. Spirituelle Erfahrungen in Leid und Krankheit. Herder, Freiburg im BreisgauGoogle Scholar
  144. Richards M (2000) Communicating „soul to soul“ – Challenges for care providers. Southwest Journal of Aging 16(1):3–6 (15(2))Google Scholar
  145. Richards PS, Bergin AE (2004) Religion and psychotherapy: A case book. American Psychological Association, WashingtonGoogle Scholar
  146. Riley LD, Bowen C (2005) The sandwich generation: Challenges and coping strategies of multigenerational families. The Family Journal 13(1):52–58Google Scholar
  147. Roff LL, Parker MW (2003) Person to person: spirituality and Alzheimer’s disease care. Alzheimer’s Care Quarterly 4:267–270Google Scholar
  148. Rosmarin DH, Krumrei EJ, Andersson G (2009) Religion as a predictor of psychological distress in two religious communities. Cognitive Behaviour Therapy 38:54–64PubMedGoogle Scholar
  149. Roth DE (2005) Culture change in long-term care: Educating the next generation. Journal of Gerontological Social Work 45(1/2):233–248PubMedGoogle Scholar
  150. Rott C (2011) Zwischen Vitalität und Pflegebedürftigkeit: Stärken und Schwächen des hohen Alters. In: Petzold HG, Horn E, Müller L (Hrsg) Hochaltrigkeit. Herausforderung für persönliche Lebensführung und biopsychosoziale Arbeit. VS Verlag für Sozialwissenschaften, Wiesbaden, S 55–74Google Scholar
  151. Ruder S (2009) Incorporating Spirituality Into the Care of Persons with Alzheimer’s Disease. Alzheimer’s Care Today 10(4):221–227Google Scholar
  152. Ruhland R (2008) Spiritualität im Alter. Verlag Dietmar Klotz GmbH, EschbornGoogle Scholar
  153. Sadler E, Biggs S (2006) Exploring the links between spirituality and „successful aging. Journal of Social Work Practice 20(3):267–280Google Scholar
  154. Sanborne EL (2008) Praying with those who might forget: pastoral considerations with memory impairment. Journal of Pastoral Care and Counseling 62(3):207–217PubMedGoogle Scholar
  155. Schaeffer D, Moers M, Steppe H, Meleis A (1997) Pflegetheorien. Beispiele aus den USA. Verlag Hans Huber, BernGoogle Scholar
  156. Schäfer-Walkmann S, Kolben A, Nißl-Gambihler A (2004) Ein Handbuch zur Betrieblichen Gesundheitsförderung in sozialen Einrichtungen. Selbstpflegeprogramm. Neues Soziales Wissen e. V., AugsburgGoogle Scholar
  157. Schneider N, Lückmann SL, Behmann M, Bisson S (2009) Problems and challenges for palliative care: What are the views of different stakeholders on the meso and macro level of the health system? Health Policy 93(1):11–20PubMedGoogle Scholar
  158. Schultz NC (2004) Forgetting but not Forgotten: Understanding, Support and Spiritual Care for People with Dementia and Those who Care for them. Openbook Publishers, Adelaide, South AustraliaGoogle Scholar
  159. Selman L, Harding R, Gysels M, Speck P, Higginson IJ (2011) The Measurement of Spirituality in Palliative Care and the Content of Tools Validated Cross-Culturally: A Systematic Review. Journal of Pain and Symptom Management 41(4):728–752PubMedGoogle Scholar
  160. Sessanna L, Finnell DS, Underhill M, Change YP, Peng HL (2011) Measures assessing spirituality as more than religiosity: A methodological review of nursing and health-related literature. Journal of Advanced Nursing 67(8):1677–1694PubMedGoogle Scholar
  161. Smith GE, Lunde A (2013) Early Diagnosis of Alzheimer’s Disease, Caregiving, and Family Dynamics. In: St. Zarit H, Talley RC (Hrsg) Caregiving for alzheimer’s disease and related disorders. Research, practice, policy. Springer Science+Business Media, New York, S 3–16Google Scholar
  162. Spurlock WR (2005) Spiritual well-being and caregiver burden in Alzheimer’s caregivers. Geriatric Nursing 26:154–161PubMedGoogle Scholar
  163. Städtler-Mach B (2009) Religiöse Bedürfnisse bei Menschen mit Demenz. Eine Studie. Zeitschrift für Gerontologie und Ethik 2:124–136Google Scholar
  164. Steffen-Bürgi B (2007) Reflexionen zu ausgewählten Definitionen von Palliative Care. In: Knipping C (Hrsg) Lehrbuch Palliative Care. Verlag Hans Huber, BernGoogle Scholar
  165. Stern B (2005) Phenomenological approach towards understanding the nature and meaning of engagement in religious ritual activity: perspectives from persons with dementia and their caregivers. UMI Dissertation Services, ProQuest Information and Learning, Ann Arbor, MIGoogle Scholar
  166. Stevens-Barnum B (2002) Spiritualität in der Pflege. Verlag Hans Huber, BernGoogle Scholar
  167. Stolley JM, Buckwalter KC, Koenig HG (1999) Prayer and religious coping for caregivers of persons with Alzheimer’s disease and related disorders. American Journal of Alzheimer’s Disease and Other Dementias 14(3):181–191Google Scholar
  168. Stranahan S (2001) Spiritual perception, attitudes about spiritual care, and spiritual care practices among nurse practitioners. Western Journal of Nursing Research 23(1):90–104PubMedGoogle Scholar
  169. Stuart E, Deckro J, Mandle C (1989) Spirituality in health and healing: a clinical model. Holistic Nursing Practice 3:35–46PubMedGoogle Scholar
  170. Stuckey JC (2001) Blessed assurance: The role of religion and spirituality in Alzheimer’s disease caregiving and other significant life events. Journal of Aging Studies 15:69–84Google Scholar
  171. Stuckey JC (2003) Faith, Aging, and Dementia Experiences of Christian, Jewish, and Non-Religious Spousal Caregivers and Older Adults. Dementia 2(3):337–352Google Scholar
  172. Stuckey JC, Gwyther LP (2003) Dementia, religion, and spirituality. Dementia 2:291–297Google Scholar
  173. Taner N (2010) Genetics of Alzheimer’s Disease: Lessons Learned in Two Decades. Turkish Journal of Neurology 16(1):1–11Google Scholar
  174. Taylor B (2008) Entertainment Theology (Cultural Exegesis): New-Edge Spirituality in a Digital Democracy. Baker Books, Grand Rapids, MIGoogle Scholar
  175. Taylor EJ (2002) Spiritual care: Nursing theory, research, and practice. Pearson, Prentice Hall Pearson, Upper Saddle River, NJGoogle Scholar
  176. Teixeira ME (2008) Self-transcendence: A concept analysis for nursing praxis. Holistic Nursing Practice 22(1):25–31PubMedGoogle Scholar
  177. Tesch-Römer C, Kanowski S, Engstler H (2002) Das hohe Alter: Individuelle und gesellschaftliche Verantwortung. In: Bundesministerium für Familie, Senioren, Frauen und Jugend (Hrsg) Vierter Altenbericht zur Lage der älteren Generation in der Bundesrepublik Deutschland, S 51–58Google Scholar
  178. Theil MM (2011) Geriatric-focused CPE as a tool in seminary training. Journal of Religion, Spirituality and Aging 23(1/2):128–138Google Scholar
  179. Thompsell A, Lovestone S (2002) Out of sight out of mind? Support and information given to distant and near relatives of those with dementia. International Journal of Geriatric Psychiatry 17:804–807PubMedGoogle Scholar
  180. Trevitt C, MacKinlay E (2006) „I am just an ordinary person …“. Spiritual reminiscence in older people with memory loss. Journal of Religion, Spirituality and Aging 18(2–3):79–91Google Scholar
  181. Vance DE (2004) Spiritual activities for adults with Alzheimers’s disease: the cognitive components of dementia and religion. Religion, Spirituality and Aging 1–2(17):109–130Google Scholar
  182. Wackerbarth SB, Johnson MMS (2002) Essential information and support needs of family caregivers. Patient Education and Counselling 47:95–100Google Scholar
  183. Wald C, Walker M, Livingston G (2003) What to tell dementia caregivers: The rules of three. International Journal of Geriatric Psychiatry 18:313–317PubMedGoogle Scholar
  184. Walter J, Haass, C (2004) Zellbiologische Grundlagen der Alzheimer-Demenz. In: Bergener W, Hampel H, Zaudig, M (Hrsg) Gerontopsychiatrie: Grundlagen, Klinik und Praxis. Wissenschaftliche Verlagsgesellschaft mbH, Stuttgart, S 46–58Google Scholar
  185. Watson J (1996) Pflege: Wissenschaft und menschliche Zuwendung. Huber, BernGoogle Scholar
  186. Wattis J, Curran S (Hrsg) (2003) Practical management of dementia: a multi-professional approach. Radcliffe Medical Press., OxfordGoogle Scholar
  187. Webb G (2010) Intimations of the great unlearning: Interreligious spirituality and the demise of consciousness which is Alzheimer’s. http://speakingoffaith.publicradio.org/programs/2009alzheimers/essay_web Google Scholar
  188. Weiher E (2009) Das Geheimnis des Lebens berühren – Spiritualität bei Krankheit, Sterben, Tod. Stuttgart: Kohlhammer VerlagGoogle Scholar
  189. Whitehouse PJ (2013) Ethical Issues: Perspective 1: Providing the Care for Individuals with Alzheimer’s Disease: Practice, Education, Policy, and Research. In: St. Zarit H, Talley RC (Hrsg) Caregiving for Alzheimer’s disease and related disorders. Research, practice, policy. Springer Science + Business Media, New York, S 139–152Google Scholar
  190. Wilks DE, Vonk ME (2008) Private prayer among Alzheimer’s disease caregivers: mediating burden and resiliency. Journal of Gerontological Social Work 50(3–4):113–131PubMedGoogle Scholar
  191. Wilks SE, Ketchum MM, Chen Z, Bowman AM (2013) Psychometric Reevaluation of the Spiritual Support Scale in a Sample of Alzheimer’s Caregivers. Journal of Religion & Spirituality in Social Work: Social Thought 32(4):313–329Google Scholar
  192. Wood JB, Parham IA (1990) Coping with perceived burden: Ethnic and cultural issues in Alzheimer’s family caregiving. Journal of Applied Gerontology 9(3):325–339Google Scholar
  193. Woods, B, Pratt R (2005) Awareness in dementia: Ethical and legal issues in relation to people with dementia. Aging & Mental Health 9(5):423–429Google Scholar
  194. Wright S, Neuberger J (2012) Why spirituality is essential for nurses. Nursing Standard 26:19–21PubMedGoogle Scholar
  195. Zarit, St H, Talley, RC (Hrsg) (2013) Caregiving for Alzheimer’s disease and related disorders. Research, practice, policy. Springer Science + Business Media, New YorkGoogle Scholar

Copyright information

© Springer-Verlag Berlin Heidelberg 2015

Authors and Affiliations

  • Janusz Surzykiewicz
    • 1
  1. 1.Katholische Universität Eichstätt-IngolstadtEichstättDeutschland

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