Northwest-German Hemophilia Study An Example of Descriptive Epidemiology and Evaluation of Health Care
In 1976, hemophiliacs in Northwest-Germany (Figure 1) asked for an intensivation of contacts between their attending physicians and themselves. This led to the formation of a study group of hemophilia centers aiming at an improved information exchange. Since then this group has met regularly two or three times a year in working sessions. In 1977, a pilot study for the documentation of hemophilia treatment was initiated. Data of 14b patients were collected at that time in 12 centers and were evaluated with descriptive statistics.
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