Northwest-German Hemophilia Study An Example of Descriptive Epidemiology and Evaluation of Health Care

  • W. D. Hoffmann
  • O. Rienhoff
Conference paper
Part of the Lecture Notes in Medical Informatics book series (LNMED, volume 16)


In 1976, hemophiliacs in Northwest-Germany (Figure 1) asked for an intensivation of contacts between their attending physicians and themselves. This led to the formation of a study group of hemophilia centers aiming at an improved information exchange. Since then this group has met regularly two or three times a year in working sessions. In 1977, a pilot study for the documentation of hemophilia treatment was initiated. Data of 14b patients were collected at that time in 12 centers and were evaluated with descriptive statistics.


Multi Center Study Medical Informatics Unauthorized Access Quarterly Report Descriptive Epidemiology 
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  1. (1).
    Klonk J, Hoffmann WD. A Data Base for the Study of Therapeutical Strategies for Hemophiliacs. to be published in Abstracts of MIE’82, Dublin 21.–25.3. 1982, Springer-Verlag, Berlin Heidelberg New York.Google Scholar
  2. (2).
    Hoffmann WD, Rienhoff O. Multi Center Study for Monitoring Ambulatory Therapy of Hemophiliacs in Northwestern Germany. Abstracts of the 1st International Hemophilia Conference, Bonn, F.R.Germany, 3.–7. 10. 1980.Google Scholar
  3. (3).
    Hoffmann WD, Klonk J, Rienhoff O. Organization Scheme and Data Flow Chart of the Multi Center Study of Hemophiliacs in Northwestern Germany. Abstracts of the XIV Congress of the World Federation of Hemophilia, San Jose, Costa Rica, 3.–7. 7. 1981.Google Scholar

Copyright information

© Springer-Verlag Berlin Heidelberg 1982

Authors and Affiliations

  • W. D. Hoffmann
    • 1
  • O. Rienhoff
    • 1
  1. 1.Institute of Medical InformaticsMedical School HannoverHannoverW. Germany

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