Northwest-German Hemophilia Study An Example of Descriptive Epidemiology and Evaluation of Health Care
In 1976, hemophiliacs in Northwest-Germany (Figure 1) asked for an intensivation of contacts between their attending physicians and themselves. This led to the formation of a study group of hemophilia centers aiming at an improved information exchange. Since then this group has met regularly two or three times a year in working sessions. In 1977, a pilot study for the documentation of hemophilia treatment was initiated. Data of 14b patients were collected at that time in 12 centers and were evaluated with descriptive statistics.
KeywordsMulti Center Study Medical Informatics Unauthorized Access Quarterly Report Descriptive Epidemiology
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