Abstract
The control of thalassemia, a genetic disease, depends upon preventive and therapeutic programs, that are planned at Regional level and carried out by a large number of autonomous health services. On this structure, a specialized hierarchic Information System was designed, as a part of the whole Health Information System now under development in Italy.
No specific I.S. for thalassemia was available before, so that the design was planned following a preliminary study to obtain a reference framework and to identify precise objectives.
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References
D.J. Weatherall, J.B. Clegg: The Thalassemia síndromes. Blackwell Publications, Oxford 1972
J.L. Peterson: Petri Net theory and the modeling of systems. Prentice Hill, 1981
F.L. Ricci, A. Rossi-Mori: Definizione delle caratteristiche di base di un Sistema Informativo per le Talassemie. (unpublished)
P. Chen: The Entity-Relationship model: toward a unified view of data. ACM TODS, 1976
C. Batini, G. Santucci: Top-down design in the Entity-Relationship model. Int.Conf. on the E-R approach to system analysis and design, Los Angeles, dec. 1979
E. Attanasio, A. Rossi-Mori, G. Ansuini: La prevenzione della talassemia in Sardegna, in Atti del Simposio “Analisi Costi Benefici nei Sistemi Sanitari” Bellagio, 1979; Fondazione Smith Kline ed.
E. Attanasio, R. Galanello, A. Rossi-Mori: Analisi costi benefici di un intervento preventivo per la talassemia. in Atti del VI congr. Int. sulla Prevenzione delle Malattie Microcitemiche, Roma, 1980
G. Modiano, A. Rossi-Mori: Distribuzione teorica e frequenza del morbo di Cooley in Italia, in Atti del VI congr. int. sulla Prevenzione delle Malattie Microcitemiche, Roma, 1980
B. Rossi, A. Rossi-Mori: L’anemia di Cooley in Italia. Una analisi di alcune fonti di dati. Ili congr. naz. AlCM, Ferrara, 1980
B. Rossi, A. Rossi-Mori: La prevenzione della talassemia. Stime di alcune grandezze rilevanti per la pianificazione degli interventi. Ili congr.naz.AIGM, Ferrara, 1980
A. Rossi-Mori, B. Rossi: La talassemia beta in Italia. Dati statistici e prime elaborazioni, (unpublished)
J.M. Weddel: Registers and registries: A Review. Int.J.Epidemiology, 2, 221–228, 1973
Emery et al: A Report on Genetic Registers. J.Medical Genetics, 15, 435–442, 1978
G.S. Stamatoyannopoulos: Problems of screening and counseling in the hemoglobinopaties. in Birth Defects (A.G. Motulsky, W. Lenz ed.) Excerpta Medica, 1974 pag. 268–276
G.S. Stamatoyannopoulos: Population screening of recessively inherited disorders. Lancet, ii, 679–680, 1980
F.L. Ricci, A. Rossi-Mori, B. Rossi: The role of the Information System in planning the control of a genetic disease, in Medical Informatics Europe 1981, Lecture Notes in Medical Informatics, Springer Verlag, lC8l (D.A.B. Lindberg and P.L. Reichertz eds.)
A. Rossi-Mori: Criteri per la valutazione dei programmi di screening. III congr. liazo AIGM, Ferrara, 1980
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© 1982 Springer-Verlag Berlin Heidelberg
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Rossi-Mori, A., Ricci, F.L., Bocchi, A.M., De Blasi, A., Gaviano, R., Rossi, B. (1982). The design of a National Information System for Thalassemia. In: O’Moore, R.R., Barber, B., Reichertz, P.L., Roger, F. (eds) Medical Informatics Europe 82. Lecture Notes in Medical Informatics, vol 16. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-93201-4_126
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DOI: https://doi.org/10.1007/978-3-642-93201-4_126
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