Skip to main content

The design of a National Information System for Thalassemia

  • Conference paper
Medical Informatics Europe 82

Part of the book series: Lecture Notes in Medical Informatics ((LNMED,volume 16))

  • 49 Accesses

Abstract

The control of thalassemia, a genetic disease, depends upon preventive and therapeutic programs, that are planned at Regional level and carried out by a large number of autonomous health services. On this structure, a specialized hierarchic Information System was designed, as a part of the whole Health Information System now under development in Italy.

No specific I.S. for thalassemia was available before, so that the design was planned following a preliminary study to obtain a reference framework and to identify precise objectives.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 39.99
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. D.J. Weatherall, J.B. Clegg: The Thalassemia síndromes. Blackwell Publications, Oxford 1972

    Google Scholar 

  2. J.L. Peterson: Petri Net theory and the modeling of systems. Prentice Hill, 1981

    Google Scholar 

  3. F.L. Ricci, A. Rossi-Mori: Definizione delle caratteristiche di base di un Sistema Informativo per le Talassemie. (unpublished)

    Google Scholar 

  4. P. Chen: The Entity-Relationship model: toward a unified view of data. ACM TODS, 1976

    Google Scholar 

  5. C. Batini, G. Santucci: Top-down design in the Entity-Relationship model. Int.Conf. on the E-R approach to system analysis and design, Los Angeles, dec. 1979

    Google Scholar 

  6. E. Attanasio, A. Rossi-Mori, G. Ansuini: La prevenzione della talassemia in Sardegna, in Atti del Simposio “Analisi Costi Benefici nei Sistemi Sanitari” Bellagio, 1979; Fondazione Smith Kline ed.

    Google Scholar 

  7. E. Attanasio, R. Galanello, A. Rossi-Mori: Analisi costi benefici di un intervento preventivo per la talassemia. in Atti del VI congr. Int. sulla Prevenzione delle Malattie Microcitemiche, Roma, 1980

    Google Scholar 

  8. G. Modiano, A. Rossi-Mori: Distribuzione teorica e frequenza del morbo di Cooley in Italia, in Atti del VI congr. int. sulla Prevenzione delle Malattie Microcitemiche, Roma, 1980

    Google Scholar 

  9. B. Rossi, A. Rossi-Mori: L’anemia di Cooley in Italia. Una analisi di alcune fonti di dati. Ili congr. naz. AlCM, Ferrara, 1980

    Google Scholar 

  10. B. Rossi, A. Rossi-Mori: La prevenzione della talassemia. Stime di alcune grandezze rilevanti per la pianificazione degli interventi. Ili congr.naz.AIGM, Ferrara, 1980

    Google Scholar 

  11. A. Rossi-Mori, B. Rossi: La talassemia beta in Italia. Dati statistici e prime elaborazioni, (unpublished)

    Google Scholar 

  12. J.M. Weddel: Registers and registries: A Review. Int.J.Epidemiology, 2, 221–228, 1973

    Article  Google Scholar 

  13. Emery et al: A Report on Genetic Registers. J.Medical Genetics, 15, 435–442, 1978

    Article  Google Scholar 

  14. G.S. Stamatoyannopoulos: Problems of screening and counseling in the hemoglobinopaties. in Birth Defects (A.G. Motulsky, W. Lenz ed.) Excerpta Medica, 1974 pag. 268–276

    Google Scholar 

  15. G.S. Stamatoyannopoulos: Population screening of recessively inherited disorders. Lancet, ii, 679–680, 1980

    Google Scholar 

  16. F.L. Ricci, A. Rossi-Mori, B. Rossi: The role of the Information System in planning the control of a genetic disease, in Medical Informatics Europe 1981, Lecture Notes in Medical Informatics, Springer Verlag, lC8l (D.A.B. Lindberg and P.L. Reichertz eds.)

    Google Scholar 

  17. A. Rossi-Mori: Criteri per la valutazione dei programmi di screening. III congr. liazo AIGM, Ferrara, 1980

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 1982 Springer-Verlag Berlin Heidelberg

About this paper

Cite this paper

Rossi-Mori, A., Ricci, F.L., Bocchi, A.M., De Blasi, A., Gaviano, R., Rossi, B. (1982). The design of a National Information System for Thalassemia. In: O’Moore, R.R., Barber, B., Reichertz, P.L., Roger, F. (eds) Medical Informatics Europe 82. Lecture Notes in Medical Informatics, vol 16. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-93201-4_126

Download citation

  • DOI: https://doi.org/10.1007/978-3-642-93201-4_126

  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-540-11208-2

  • Online ISBN: 978-3-642-93201-4

  • eBook Packages: Springer Book Archive

Publish with us

Policies and ethics