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Ethics and Human Genetics

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References

  1. Allan JL, Robbie M, Phelan PD, Danks DM [1980] The incidence and presentation of cystic fibrosis in Victoria 1955–1978. Aust Paediatr J 16: 270–273

    PubMed  CAS  Google Scholar 

  2. Bell JA, Pearn JH [1985] Prenatal cytogenetic diagnosis: medical and social implications. Indications, acceptance by doctors and patients, impact and cost: a 10-year review. Med J Aust 142: 80–83

    Google Scholar 

  3. Bell JA, Pearn J, Cohen G, Ford J, Halliday J, Martin N, Mulcahy M, Purvis-Smith S, Sutherland G [1985] Utilization of prenatal cytogenetic diagnosis in women of advanced maternal age in Australia, 1979–1982. Prenat Diag 5: 53–58

    Article  CAS  Google Scholar 

  4. Bell J, Hilden J, Bowling F, Pearn J, Brownlea A, Martin N [1986] The impact of prenatal diagnosis on the occurrence of chromosome abnormalities. Prenat Diag 6: 1–11

    Article  CAS  Google Scholar 

  5. Cox D [1975] “Welfare of Migrants”. Australian Commission of Inquiry into Poverty. Australian Government Publishing Service, Canberra

    Google Scholar 

  6. Danks DM, Halliday JL [1983] Incidence of neural tube defects in Victoria, Australia. Lancet 55: 65

    Article  Google Scholar 

  7. Dawson K [1987] In vitro fertilisation: Legislation and problems of research/British Medical Journal 295: 1184–1186

    CAS  Google Scholar 

  8. Drew JH, Parkinson P, Walstab JE, Beischer NA [1977] Incidences and types of malformations in newborn infants. Med J Aust 1: 945–949

    PubMed  CAS  Google Scholar 

  9. Field B [1978] Neural tube defects in New South Wales, Australia. J Med Genet 15: 329–338

    Article  PubMed  CAS  Google Scholar 

  10. Fletcher JC, Berg K, Tranoy K [1985] Ethical aspects of medical genetics. A proposal for guidelines in genetic counseling, prenatal diagnosis and screening. Clin Genet 27: 199–205

    Article  PubMed  CAS  Google Scholar 

  11. Fletcher JC, Wertz DC, Sorenson JR, Berg K [1987] Ethics and human genetics: a cross-cultural study in 17 nations. In: Vogel F, Sperling K (eds) Human genetics: proceedings of the 7th International Congress of Human Genetics. Springer-Verlag, Heidelberg, pp 657–672\

    Google Scholar 

  12. Hayes SY, Hayes R [1982] Mental Retardation Law Policy and Administration. New South Wales Health Commission, Sydney, Australia

    Google Scholar 

  13. Kenan RH [1986] Growing pains of a new health care field: Genetic counseling in Australia and the United States. Aust J Soc 21: 172–182

    Google Scholar 

  14. Oberklaid F, Danks DM, Jensen F, Stace L, Rosshandler S [1979] Achondroplasia and hypochondroplasia. Comments on frequency, mutation rate, and radiological features in skull and spine. J Med Genet 16: 140–146

    Article  PubMed  CAS  Google Scholar 

  15. Pitt DB [1962] A study of congenital malformations, Part 1. Major malformations in single births. Aust N.Z. J Obs & Gynaecol 2: 23

    Google Scholar 

  16. Pitt DB [1963] Major malformations and multiple births. Aust N.Z. J Obs & Gynaecol 3: 40–43

    CAS  Google Scholar 

  17. Pitt D, Connelly J, Francis I, Wilcken B, Brown DA, Robertson E, Hill G, Masters P, Raby J, McFarlance J, Bowling F, Hancock J [1983] Genetic screening of newborn Australia. Results for 1981. Med J Aust 1: 333–335

    PubMed  CAS  Google Scholar 

  18. Rosshandler S, Danks DM, Rogers JG [1981] An economic survey of genetic clinic clients. Med J Aust 2: 641

    PubMed  CAS  Google Scholar 

  19. Smith GP [1984] Eugenics and family planning. Exploring the Yin and the Yang. Univ Tas Law Rev 6: 4–24

    Google Scholar 

  20. Stamatoyannopoulos G [1973] Problems of screening and counselling in the haemoglobinopathies. Proceedings of the IVth International Conference on Birth Defects, Vienna, p 268

    Google Scholar 

  21. Transcript [1987] of hearing before the Honourable Mr. Justice Vincent in the Supreme Court of Victoria. July 2. Re F; F against F Ref. No. PD 2/7. Melbourne, Victoria

    Google Scholar 

  22. Azevêdo JL [1986] Desempenho e rumos da Genética no Brasil. Sociedade Brasileira de Genética, Ribeirão Preto

    Google Scholar 

  23. Baird PA [1980] La pratique de diagnostic prénatal à Vancouver. In: Le Diagnostic prénatal — Cahiers de Bioéthique 2. Les Presses de L’Université Laval, Québec, p 54

    Google Scholar 

  24. Beiguelman B [1981] A Genética Humana no Brasil. In: Ferri MG, Motoyama S (eds) História das Ciências no Brasil, Vol 2. Editora Pedagógica e Universitária e Editora da Universidade de Sao Paulo, p 273

    Google Scholar 

  25. Benn PA, Hsu LYF, Carlson A, Tannenbaum HL [1985] The centralized prenatal genetics screening program of New York City. III: The first 7,000 cases. Am J Med Genet 20: 369–384

    Article  PubMed  CAS  Google Scholar 

  26. Bochkov NP [1979] Genetic counseling in the USSR. Progr Clin Biol Res 34: 31–40

    CAS  Google Scholar 

  27. Buchalter MS, Wannmacher CMD, Wajner M [1983] Tay-Sachs disease: screening and prevention program in Porto Alegre. Rev Bras Genet 6: 539–547

    Google Scholar 

  28. Castilla EE, Ferrari I, Monteleone Neto R, Parreiras I MO, Paz J, Pina Neto JM, Simões AL [1977] Levantamento dos casos atendidos no ambulatório de Genética Medica (HC-FMRPUSP) no periodo de 1974 a 1976.Cienc Cult (Suppl) 29: 717

    Google Scholar 

  29. Castro MPP, Mastrorocco DA, Castro BM, Mumford SD [1984] An innovative vasectomy program in Sao Paulo, Brazil. Intern Fam Plan Persp 10: 125–130

    Article  Google Scholar 

  30. Collaborative Study [1975] Frequency of inborn errors of metabolism, especially PKU, in some representative newborn screening centers around the world. Humangenetik 30: 273–286

    Article  Google Scholar 

  31. Czeizel A, Métneki J, Osztovicz M [1980] Cases of a genetic counselling clinic. Acta Paediatr Acad Sci Hung 21: 33–54

    PubMed  CAS  Google Scholar 

  32. Da Cunha AB, Frota Pessoa O, Blumenschein A [1961] Atas do Primeiro Simpósio Sul-Americano de Genética. Faculdade de Filosofia, Ciencias e Letras da Universidade de Sao Paulo, Sao Paulo

    Google Scholar 

  33. Duarte FAM [1984] Cadastro de geneticistas brasileiros. Sociedade Brasileira de Genética, Ribeirao Preto

    Google Scholar 

  34. Esperon LCM [1978] Erros inatos do metabolismo dos aminoácidos. Fundaçao Universidade do Rio Grande, Rio Grande

    Google Scholar 

  35. Figueiredo N [1977] Amazonia: tempo e gente. Prefeitura Municipal de Belém, Belém

    Google Scholar 

  36. Geiger CJ, Salzano FM, da Rocha FJ [1985] Who seeks genetic counseling and why — a Brazilian evaluation. Rev Bras Genet 8: 395–403

    Google Scholar 

  37. Gollop TR, Eigier A, Vianna-Morgante AM, Naccaehe N [1986] Chorionic villi sampling for early prenatal genetic diagnosis. Rev Bras Genet 9: 381–385

    Google Scholar 

  38. Gonçalves A [1981] Avaliaçao do desempenho de um ambulatório de genética em nosso meio. Rev Bras Clin Terap 10: 593–596

    Google Scholar 

  39. Greenberg CR, Hamerton JL [1980] Profil du diagnostic prenatal a Winnipeg. In: Le Diagnostic prenatal — Cahiers de Bioethique 2. Les Presses de L’Universite Laval, Quebec, p 47

    Google Scholar 

  40. Harris DJ, Begleiter ML [1976] First year’s experience in a new genetics clinic. Missouri Med 73: 271–274

    PubMed  CAS  Google Scholar 

  41. Kanan JHC [1981] Comparaçao de diversas caracteristicas biologicas entre duas amostras de malformados portadores de cariotipos normais e anormais e de seus familiares. Bachelor’s Thesis, Universidade Federal do Rio Grande do Sul, Porto Alegre

    Google Scholar 

  42. Klein D, Wyss D [1977] Retrospective and follow-up study of approximately 1,000 genetic consultations. J Genet Hum 25: 47–57

    PubMed  CAS  Google Scholar 

  43. Landmann J [1985] A etica medica sem mascara. Editora Guanabara, Rio de Janeiro

    Google Scholar 

  44. Lemoine VR [1984] Genetica. VI Congreso Latinoamericano de Genetica y I Congreso Venezolano de Genetica. Asoeiacion Venezolana de Genetica, Maracaibo

    Google Scholar 

  45. Landmann J [1985] A etica medica sem mascara. Editora Guanabara, Rio de Janeiro

    Google Scholar 

  46. Mattevi MS, Salzano FM [1982] Effect of chromosome changes on body and mind development. Adv St Birth Defects 5: 67–87

    Google Scholar 

  47. Medeiros-Neto G, Maciel RMB, Halpern A [1986] Iodine deficiency and congenital hypothyroidism. Ache, Sao Paulo

    Google Scholar 

  48. Merrick TW [1983] Fertility and family planning in Brazil. Intern Fam Plan Persp 9: 110–119

    Article  Google Scholar 

  49. Naoum PC [1985] Grupo cooperativo em hemoglobinopatias. Hemo Antropo 11: 1–20

    Google Scholar 

  50. Naoum PC, Mattos LC, Curi PR [1984] Prevalence and geographic distribution of abnormal hemoglobins in the State of Sao Paulo, Brazil. Bull Pan Am Health Organ 18: 127–138

    PubMed  CAS  Google Scholar 

  51. Nazareth HRS, Pinto W Jr, Andrade JAD [1981] Diagnostico prenatal de aberrasoes cromossomicas. Primeira experiencia brasileira. Rev Bras Genet 4: 459–470

    Google Scholar 

  52. Ramalho AS [1986] As hemoglobinopatias hereditarias. Um problema de saude publica no Brasil. Sociedade Brasileira de Genetica, Ribeirao Preto

    Google Scholar 

  53. Ramalho AS, Magna LA, Costa FF, Grotto HZW [1985] Talassemia menor: um problema de saude publica no Brasil? Rev Bras Genet 8: 747–754

    Google Scholar 

  54. Ribeiro D [1977] As Americas e a civiliza9ao. Vozes, Petropolis

    Google Scholar 

  55. Rocha E Jr [1985] Etica medica. Forum nacional. Academia Nacional de Medicina, Rio de Janeiro

    Google Scholar 

  56. Rodeck CH [1984] Obstetric techniques in prenatal diagnosis. In: Rodeck CH, Nicolaides KH (eds) Prenatal diagnosis. John Wiley & Sons, Chichester, p 15

    Google Scholar 

  57. Rudd N, Doran T [1980] Le programme de diagnostic genetique prenatal de Toronto. In: Le Diagnostic prenatal — Cahiers de Bioetique 2. Les Presses de L’Universite Laval, Quebec, p 40

    Google Scholar 

  58. Rodeck CH [1984] Obstetric techniques in prenatal diagnosis. In: Rodeck CH, Nicolaides KH (eds) Prenatal diagnosis. John Wiley & Sons, Chichester, p 15

    Google Scholar 

  59. Salzano FM (1979) Estudo sobre a evolus§o biologica no Brasil. In: Ferri MG, Motoyama S (eds) Historia das ciencias no Brasil, Vol 1. Editora Pedagogica e Universitaria e Editora da Universidade de Sao Paulo, Sao Paulo, p 241

    Google Scholar 

  60. Salzano FM [1983] A Genetica e a lei. Aplicasoes a Medicina Legal e a Biologia Social. TA Queiroz, Editor e Editora da Universidade de Sao Paulo, Sao Paulo

    Google Scholar 

  61. Salzano FM [1985] Incidence, effects, and management of sickle cell disease in Brazil. Am J Ped Hematol/Oncol 7: 240–244

    Article  CAS  Google Scholar 

  62. Salzano FM [1987] Brazil. In: Schwidetzky I (ed) Rassengeschichte der Menschheit. Vol. 12, R Oldenbourg, München, p 137

    Google Scholar 

  63. Salzano FM, Freire-Maia N [1970] Problems in human biology. A study of Brazilian populations. Wayne State University Press, Detroit.

    Google Scholar 

  64. Sanford H [1985] Demografia e saude — aspectos politicos. In: Fonseca AS (ed) Demografia e saude. Forum nacional. Academia Nacional de Medicina, Rio de Janeiro, p 18

    Google Scholar 

  65. Simpson NE [1975] Experiences of a genetic counselling clinic in Kingston, Ontario. Can J Publ Health 66: 375–378

    CAS  Google Scholar 

  66. Wajner M, Wannmacher CMD, Gaidzinski D, Dutra-Filho CS, Buchalter MS, Giugliani R [1986] Detection of inborn errors of metabolism in patients of pediatric intensive care units of Porto Alegre, Brazil: comparison of the prevalence of such disturbances in a selected and an unselected sample. Rev Bras Genet 9: 331–340

    Google Scholar 

  67. Wannmacher CMD, Wajner M, Giugliani R, Giugliani ERJ, Costa MG, Giugliani MCK [1982] Detection of metabolic disorders among high risk patients. Rev Bras Genet 5: 187–194

    Google Scholar 

  68. Witt RR, da Rocha FJ [1982] Aspectos do comportamento dos pacientes submetidos a aconselhamento genético entre 1980 e 1981. Rev Gaucha Enf 3: 185–195

    Google Scholar 

  69. Zago MA, Costa FF [1985] Hereditary haemoglobin disorders in Brazil. Trans Royal Soc Trop Med Hyg 79: 385–388

    Article  CAS  Google Scholar 

  70. Zago MA, Costa FF, Tone LG, Bottura C [1983] Hereditary hemoglobin disorders in a Brazilian population. Hum Hered 33: 125–129

    Article  PubMed  CAS  Google Scholar 

  71. Ad Hoc Committee on Genetic Counseling [1985] Genetic counseling, Am J Hum Genet 27: 240–242

    Google Scholar 

  72. Baird PA [1987] Measuring birth defects and handicapping disorders in the population: the British Columbia Health Surveillance Registry, CMAJ 136: 109–111

    PubMed  CAS  Google Scholar 

  73. Calabresi G, Bobbitt P [1978] Tragic choices. W.W. Norton, New York

    Google Scholar 

  74. Canadian College of Medical Geneticists [1986] Professional and ethical guidelines. CCMG, Ottawa

    Google Scholar 

  75. Charbonneau M, Laberge C, Scriver CR, Dussault JH, Lemieux B, Melangon S [1986] The Quebec network of Genetic Medicine. In Press

    Google Scholar 

  76. Dagenais DL, Courville L, Dagenais MG [1985] A Cost-benefit analysis of the Quebec network of genetic medicine. Soc Sci Med 20: 601–607

    Article  PubMed  CAS  Google Scholar 

  77. Dickens BM, Cook R [1979] The development of commonwealth abortion laws. International Comparative Law Quarterly 28: 424–457

    Article  Google Scholar 

  78. Graham LR [1977] Political ideology and genetic theory: Russia and Germany in the 1920’s. Hastings Center Rep 7: 30–39

    Article  CAS  Google Scholar 

  79. Hubbard R [1985] Prenatal diagnosis and eugenic ideology. Women’s Studies Int Forum 8: 567–576

    Article  Google Scholar 

  80. Iglehard JK [1986] Canada’s health care system. N Engl J Med 315: 202–208

    Article  Google Scholar 

  81. Morgentaler v. The Queen, Supreme Court of Canada, January 28, 1988 (unreported)

    Google Scholar 

  82. Muller-Hill B [1987] Genetics after Auschwitz. Holocaust and Genocide Studies 2: 3–20

    Article  CAS  Google Scholar 

  83. Murphy EA [1978] Eugenics: An ethical analysis. Mayo Clin Proc 53: 655–664

    PubMed  CAS  Google Scholar 

  84. Ostrowsky JT, Lippman A, Scriver CR [1985] Cost-benefit analysis of a thalassemia disease prevention program. Am J Publ Hlth 75: 732–736

    Article  CAS  Google Scholar 

  85. Roy DJ [1986] First-trimester fetal diagnosis: prudential ethics. CMAJ 135: 737–739

    PubMed  CAS  Google Scholar 

  86. Sadovnik AD, Baird PA [1981] A Cost-benefit analysis of prenatal detection of Down syndrome and NTDs in older mothers. Am J Med Genet 10: 367–378

    Article  Google Scholar 

  87. Sadovnik AD, Baird PA [1982] A Cost-benefit analysis of prenatal diagnosis for NTD selectively offered to relatives of index case. Am J Med Genet 12: 63–73

    Article  Google Scholar 

  88. Sadovnik AD, Baird PA [1983] A Cost-benefit analysis of population screening for NTD by measurement of maternal alpha-fetoprotein levels. Prenatal Diagnosis 3: 117–126

    Article  Google Scholar 

  89. Scriver CR, Laberge C, Clow CL, Fraser FC [1975] Genetics and medicine: an evolving relationship. Science 200: 946–951

    Article  Google Scholar 

  90. Scriver CR, Scriver DE, Clow CL, Schok M [1978] The education of citizens: human genetics. Amer Biol Teacher 40: 280–284

    Google Scholar 

  91. Society of Obstetricians and Gynecologists of Canada [1983] Canadian recommendations for prenatal diagnosis of genetic disorders. Bulletin 5: 1–10

    Google Scholar 

  92. Van Den Berghe H (1988) Impact of genetics on society. Birth Defects: Original Article Series. Alan R Liss, New York 23: 1–5

    Google Scholar 

  93. Andersen D, Mabeck CE, Riis P (eds) [1986] Medicinsk etik. FADL’s forlag, København

    Google Scholar 

  94. Betænkning om om prænatal genetisk diagnostik. Betæsnkning nr. 803 København 1977. In Danish

    Google Scholar 

  95. De Walls P, Lechat MF [1986] Eurocat report 1. Surveillance of congenital anomalies years 1980–1983. Department of Epidemiology, Catholic University of Louvain, Bruxelles

    Google Scholar 

  96. Goldstein HG [1987] Report from 2nd economic office, Ministry of Internal Affairs, May 18th

    Google Scholar 

  97. Jensen PKA, Rasmussen K, Bro P [1982] Belastningen af genetiske sygdomme blandt indlagte pa en regional borneafdeling. Ugeskrift for Læger 144: 2489–2492.

    PubMed  CAS  Google Scholar 

  98. Law of the Establishment of an Ethical Council and the Regulation of Certain Biomedical Experiments. Law no.353, Ministry of Internal Affairs, June 3rd, 1987.

    Google Scholar 

  99. Law no. 326, June 4th 1986. Ministry of Justice.

    Google Scholar 

  100. Munck E, Bjerg S [1986] Ansvarlighed. Medicinsk etik, Gyldendal, København.

    Google Scholar 

  101. Nielsen G, Mikkelsen M, Wamberg E [1974] Cost-benefit analyse af forebyggende andssvageforsorg. Socialt tidsskrift 9: 147–167.

    Google Scholar 

  102. Nielsen J, Sillesen I [1975] Incidence of chromosome aberrations among 11,148 newborn children. Humangenetik 30: 1–12

    Article  PubMed  CAS  Google Scholar 

  103. OECD rapport [1985] Measuring health care 1960–1983, Paris

    Google Scholar 

  104. Sørensen SK [1981] Meddelelse til laeger, jordremødtre og sygehuse om forebygende undersøgelser for kromosomsygdomme, medfødte stofskiftesygdomme, neuralrørsdefekter m.v. hos fostre. Sundhedsstyrelsen 21st April, 1–7.

    Google Scholar 

  105. Altner G [1980] Leidenschaft für das Ganze. Zwischen Weltflucht und Machbarkeitswahn. Kreuzverlag, Stuttgart

    Google Scholar 

  106. Boeekle F, von Eiff WA [1982] Wissenschaft und Ethik. Christlicher Glaube in moderner Gesellschaft XX. Freiburg, pp 119–147

    Google Scholar 

  107. Boland P, Krone HA, Pfeiffer RA (eds) [1981] Kindliche Indikation zum Schwangerschaftsabbruch. Bamberger Symposion. Wissenschaftliche Information VII: 7. Milupa-AG, Friedrichsdorf/Ts

    Google Scholar 

  108. Bräutigam HH, Grimes DA [1984] Ärztliche Aspekte des legalen Schwangerschaftsabbruchs in der Bundesrepublik Deutschland und in den USA. Blicherei des Frauenarztes, Band 14. Enke Verlag, Stuttgart

    Google Scholar 

  109. Catenhusen WM, Neumeister H (eds) [1987] Chancen und Risiken der Gentechnologie. Enquete-Kommission des Deutschen Bundestages. Dokumentation des Berichts an den Deutschen Bundestag. Gentechnologie — Chancen und Risiken 12. Schweitzer-Verlag, München

    Google Scholar 

  110. van den Daele W [1985] Mensch nach Mafi? Ethische Probleme der Genmanipulation und Gentherapie. Beck’sche Schwarze Reihe 299. München

    Google Scholar 

  111. Das Leben achten [1988] Maßstäbe für Gentechnik und Fortpflanzungsmedizin. Gütersloher Verlagshaus Gerd Mohn, Gütersloh

    Google Scholar 

  112. Deutsche Forschungsgemeinschaft [1977] DFG Forschungsberieht: Schwangerschaftsverlauf und Kindesentwicklung. Harald Boldt Verlag, Boppard

    Google Scholar 

  113. Eibach U [1983] Experimentierfeld: Werdendes leben. Eine ethische Orientierung. Vandenhoeck & Ruprecht Verlag, Göttingen

    Google Scholar 

  114. Eibach U [1986] Gentechnik — der Griff nach dem Leben. Eine ethische und theologische Beurteilung. Brockhausverlag, Wuppertal

    Google Scholar 

  115. Emery AEH, Rimoin D [1983] Nature and incidence of genetic diseases. In: Emery AEH, Rimoin D (eds) Principles and practice of medical genetics. Ch. Livingstone, Edinburgh, pp 1–3

    Google Scholar 

  116. Engert J, Quakernack K (eds) [1985] Pranatale Diagnostik. Zweites Bochumer Symposion. Wissenschaftliche Information XI, 3. Milupa-AG, Friedrichsdorf/Ts

    Google Scholar 

  117. Erhard B [1985] Verdunkelung, wo Klarheit erforderlich ist. In: Hoffacker P, Steinschulte B, Fietz PJ (eds) Auf Leben und Tod. Abtreibung in der Diskussion. Gustav Lübbe Verlag, Bergisch Gladbach, pp 159–170

    Google Scholar 

  118. Evangelische Kirche in Deutschland, Kirchenamt [1985] Von der Wiirde werdenden Lebens. Extrakorporale Befruchtung, Fremdschwangerschaft und genetische Beratung. Eine Handreichung der Evangelischen Kirche in Deutschland zur ethischen Urteilsbildung. Hannover

    Google Scholar 

  119. Evangelische Kirche in Deutschland, Kirchenamt (ed) [1987] Zur Achtung vor dem Leben. Maßstäbe für Gentechnik und Fortpflanzungsmedizin. Kundgebung der Synode der Evangelischen Kirche in Deutschland (Berlin 1987). Hannover

    Google Scholar 

  120. Floehl R (ed) [1985] Genforschung — Fluch oder Segen? Gentechnologie — Chancen und Risiken 3. J. Schweitzer Verlag, München

    Google Scholar 

  121. Fuhrmann W, Vogel F [1982] Genetische Familienberatung. Ein Leitfaden für Studenten und Ärzte. Heidelberger Taschenbücher 42. Springer-Verlag, Berlin, Heidelberg

    Google Scholar 

  122. Genetische Beratung [1979] Ein Modellversueh der Bundesregierung in Frankfurt und Marburg. Bundesministerium für Jugend, Familie und Gesundheit. Bonn-Bad Godesberg, p 53

    Google Scholar 

  123. Gentechnologie — Chancen und Risiken. (1988) Vol 1–16. J. Schweitzer Verlag, München

    Google Scholar 

  124. Gentechnologie und Recht. Symposium des Justizministeriums Baden-Württemberg [1984] Triberg

    Google Scholar 

  125. Goebel P [1984] Abbruch der ungewollten Schwangerschaft. Ein Konfliktlösungsversuch? Springer-Verlag, Berlin, Heidelberg

    Google Scholar 

  126. Gruendel J [1984] Ethik und Humangenetik. In: Schloot W (ed) Möglichkeiten und Grenzen der Humangenetik. Campus Forschung 408, pp 219–247

    Google Scholar 

  127. Hansen F, Kollek R (eds) [1985] Gen-Technologie — Die neue soziale Waffe. Konkret Verlag, Hamburg

    Google Scholar 

  128. Hartung K, Wendt GG (eds) [1986] Praxis der genetischen Beratung. Möglichkeiten und Ergebnisse. Ein Leitfaden der Stiftung für das behinderte Kind zur Förderung von Vorsorge und Friiherkennung. Umwelt & Medizin Verlagsgesellschaft, Frankfurt/M

    Google Scholar 

  129. Honecker M [1985] Verantwortung am Lebensbeginn. In: Flohl R (ed) Genforschung — Fluch oder Segen? Interdisziplinare Stellungnahmen. Gentechnologie — Chancen und Risiken 3. München, pp 144–160

    Google Scholar 

  130. Honecker M [1986] Humangenetik und Menschenwiirde. Gen-Technik aus der Sicht der evangelischen Ethik. Lutherische Monatshefte, pp 75–79

    Google Scholar 

  131. Huebner J [1981] Zur Ethik genetischer Beratung. Theologisch-ethische Aspekte technischer Möglichkeiten in der modernen Medizin. Ztsch f Evangelische Ethik 25: 102–108

    Google Scholar 

  132. Huebner J [1982] Die Welt als Gottes Schopfung ehren. Zum Verhaltnis von Theologie und Naturwissenschaft heute. Chr. Kaiser Verlag, München

    Google Scholar 

  133. Huebner J [1986] Die neue Verantwortung fur das Leben. Ethik im Zeitalter von Gentechnologie und Umweltkrise. Chr. Kaiser Verlag, München

    Google Scholar 

  134. Illhardt FJ [1985] Medizinische Ethik. Springer-Verlag, Heidelberg

    Google Scholar 

  135. In-vitro-Fertilisation, Genomanalyse und Gentherapie. Bericht der gemeinsamen Arbeitsgruppe des Bundesministers fur Forschung und Technologie und des Bundesministers der Justiz [1985] In: Gentechnologie — Chancen und Risiken, Vol. 6. J.Schweitzer Verlag, München

    Google Scholar 

  136. Jonas H [1984] Das Prinzip Verantwortung. Versuch einer Ethik für die technologische Zivilisation. Suhrkamp Taschenbuch 1085

    Google Scholar 

  137. Kuhn W (ed) [1983] 92.Tagung der Nordwestdeutschen Gesellschaft für Gynakologie und Geburtshilfe. Zusammenfassender Bericht. Bad Pyrmont, Alete Wissenschaftlicher Dienst 1/83

    Google Scholar 

  138. Kuhn W [1986] Schwangerschaftsabbriiche. Dtsch Ärzteblatt 83: 1604–1606

    Google Scholar 

  139. Kuhse H, Singer P [1985] Should the baby live? The problem of handicapped infants. Oxford University Press, London

    Google Scholar 

  140. Link Ch [1981] Die Herausforderung der Ethik durch die Humangenetik. Ztsch f Evangelische Ethik 25: 84–101

    Google Scholar 

  141. Löw R [1985] Leben aus dem Labor. Gentechnologie und Verantwortung Biologie und Moral. C Bertelsmann Verlag, München

    Google Scholar 

  142. Müller H, Olbing H (eds) [1982] Ethische Probleme in der Pädiatrie und ihren Grenzgebieten. Urban & Schwarzenberg, München

    Google Scholar 

  143. Perger C [1985] Genetische Beratung in Würzburg. Eine Analyse von 456 Beratungssituationen und 1655 zytogenetischen Untersuchungen aus den Jahren 1980–1983. Diss. Würzburg

    Google Scholar 

  144. Peters A [1983] Pranatale Diagnostik. Stand einer Diskussion. Diakonie 9: 125–131

    Google Scholar 

  145. Reif M, Baitsch H [1986] Genetische Beratung. Hilfestellung fur eine selbstverantwortliche Entscheidung? Springer-Verlag, Berlin, Heidelberg

    Google Scholar 

  146. Reiter J, Theile U (eds) [1985] Genetik und Moral. Beiträge zu einer Ethik des Ungeborenen. Grünewald Verlag, Mainz

    Google Scholar 

  147. Ritschl D [1981] Medizinische Ethik. Evangelische Theologie 41 [6]: 481–606

    Google Scholar 

  148. Ritschl D [1982] Das “story”–Konzept in der medizinischen Ethik. Ztsch f Allgemein Medizin 3: 121–126

    Google Scholar 

  149. Ritschl D [1986] Konzepte, Ökumene, Medizin, Ethik. Gesammelte Aufsatze. Chr. Kaiser Verlag, München

    Google Scholar 

  150. Sass HM [1985] Extrakorporale Fertilisation und Embryotransfer. Zukünftige Möglichkeiten und ihre ethische Bewertung. In: Flohl R (ed) Genforschung — Fluch oder Segen? Gentechnologie — Chancen und Risiken 3. Munchen, pp 30–58

    Google Scholar 

  151. Schenk W (ed) [1984] Helfen und Heilen. Auftrag und Angebot. Berieht zum Evangelischen Krankenhauskongrefi 1983. Deutscher Evangelischer Krankenhausverband e.V., Stuttgart

    Google Scholar 

  152. Schloot W (ed) [1984] Möglichkeiten und Grenzen der Humangenetik. Campus Verlag, Frankfurt

    Google Scholar 

  153. Schober T [1983] Auch vorgeburtliches Leben steht nicht einfach zur Disposition. Diakonie 9: 78–81

    Google Scholar 

  154. Schroeder-Kurth TM [1982] Ethische Probleme bei genetischer Beratung in der Schwangerschaft. Monatssch. f. Kinderheilkunde 130: 71–74

    Google Scholar 

  155. Schroeder-Kurth TM [1982] Schwangerschaftsabbruch - Ethische Probleme bei der genetischen Beratung. Geistige Behinderung VI: 224–236

    Google Scholar 

  156. Schroeder-Kurth TM [1985] Indikationen zur Pranatalen Diagnostik. Grundsatze und Konflikte. Zeitsch f Evangelische Ethik 29: 30–49

    Google Scholar 

  157. Schroeder-Kurth TM [1985] Die Bedeutung von Methoden, Risikoabwägung und Indikationsstellung für die Pranatale Diagnostik. In: Reiter J, Theile U (eds) Genetik und Moral. Grünewald Verlag, Mainz

    Google Scholar 

  158. Schroeder-Kurth TM [1985] Humangenetische Beratung. Evangelische Kommentare 18: 392–394

    Google Scholar 

  159. Sierck U, Radtke N (eds) [1984] Die Wohltäter-Mafia. Vom Erbgesundheitsgericht zur Humangenetischen Beratung. Hamburg

    Google Scholar 

  160. Sporken P [1981] Die Sorge um den kranken Menschen. Grundlagen einer neuen medizinischen Ethik. Patmos Verlag, Düsseldorf

    Google Scholar 

  161. Statistische Jahrbücher der Bundesrepublik Deutschland [1976] Kohlhammer Verlag, Stuttgart

    Google Scholar 

  162. Strauss J (ed) [1971] Biologisches Erbe und menschliche Zukunft. Tutzinger Texte 9. Claudius Verlag, München

    Google Scholar 

  163. Thielicke H [1986] Theologische Ethik II/1. J.C.B. Mohr/Paul Siebeck Verlag, Tübingen

    Google Scholar 

  164. von Troschke J, Schmidt H (eds) [1983] Ärtzliche Entscheidungskonflikte. Falldiskussionen aus rechtlicher, ethischer und medizinischer Sicht. Medizin in Recht und Ethik 12. Enke Verlag, Stuttgart

    Google Scholar 

  165. Vogel F [1982] Die Zukunft des Menschen aus dem Blickwinkel der Humangenetik. In: Kontroversen der Zukunft. Studium generale an der Universt Heidelberg, Heidelberg, pp 16–23

    Google Scholar 

  166. Vogel F, Motulsky A [1979] Human genetics. Approaches and problems. Springer-Verlag, Heidelberg

    Google Scholar 

  167. Wehowsky St (ed) [1985] Schöpfer Mensch? Gen-Technik, Verantwortung und unsere Zukunft. Giitersloher Taschenbücher/Siebenstern 574, Gütersloh

    Google Scholar 

  168. Wendt GG (ed) [1970] Genetik und Gesellschaft. Marburger Forum Philippinum. Wissenschaftliche Verlagsgesellschaft, Stuttgart

    Google Scholar 

  169. Wendt GG, Theile U (eds) [1975] Genetische Beratung ftir die Praxis. Enke Verlag, Stuttgart

    Google Scholar 

  170. Fardeau M, Garden H, Crost M, Derleau M, Goujard J [1983] Les aspects économiques du diagnostic prénatal par amniocentèse precoce. Rapport INSERM-CNAMTS, Laboratoire d’Economie Sotiale

    Google Scholar 

  171. Giraud F [1979] Les Centres de Génétique Médicale. Organisation et fonctionnement. Arch Franç Pediat 36: 221–224

    PubMed  CAS  Google Scholar 

  172. Giraud F [1986] La consultation de génétique en 1986. In: Journees Parisiennes de Pediatric. Flammarion editeur, Paris, pp 1–6

    Google Scholar 

  173. Goujard J, Gracco de Lay MO, Crost M, Maillard F [1984] Malformations congenitales et pathologie neonatale. In: Rumeau-Rouquette C, du Mazaubrun C, Rabarison Y (eds) Naitre ene France, 10 ans devolution, vol. I. INSERM-DOIN edit, Paris, pp 45–53

    Google Scholar 

  174. INSERM [1978] Malformations congenitales, Risques perinatals, Enquete prospective, vol. 1. Editions INSERM, Paris

    Google Scholar 

  175. International Clearinghouse for Birth Defects Monitoring Systems [1986] Annual Report, 1984. Government Printer, Wellington, New Zealand

    Google Scholar 

  176. Julian C [1986] Diffusion et adoption de nouvelles connaissances en matière de génétique médicale: une étude régionale du conseil génétique et du diagnostic prenatal. Mémoire DEA en Economie de Santé, Marseille

    Google Scholar 

  177. Mattei JF [1984] Expérience du diagnostic prénatal des anomalies chromosomiques et des maladies du métabolisme. In: Journées Parisiennes de Pediatric. Flammarion éditeur, Paris, pp 43–51

    Google Scholar 

  178. Pfeiffer RA, Frezal J, Giraud F, Anders G, Robert JM [1982] Le généticien confronté aux problemes d’éthique medicale. IXéme Journées Européennes de Conseil Génétique, Erlangen, September 1982. J Genet Hum 30 suppl: 447–466

    Google Scholar 

  179. Bach H [1983] Zur Entwicklung und gegenwärtigen Situation des Humangenetischen Beratungsdienstes in der DDR. Dt Gesundheits-Wesen 38: 51–54

    Google Scholar 

  180. Abel-Smith B [1966] Labour’s social plans. Fabian Tracts, London, p. 369

    Google Scholar 

  181. Anaplioti-Vazaiou I [1983] International acceptance of health and national health systems. Athens

    Google Scholar 

  182. Anderson OW [1978] Health policy in international perspective. In: Reich WT (ed) Encyclopedia of bioethics. Free Press, New York, p 653–654

    Google Scholar 

  183. Antsaklis A, Politis J, Karayannopoulos C, Kaskarelis D, Karabara PH, Panourgias J, Boussiou M, Loukopoulos D [1984] Selective survival of only the healthy fetus following prenatal diagnosis of thalassemia major in binovular twin gestation. Prenatal Diag 4: 289–296

    Article  PubMed  CAS  Google Scholar 

  184. Aristotle, Ewing AC, Edwards P, Baylis CA, Chisholm RM [1974] Responsibility and freedom of the will. In: Frankena WK, Granrose JT (eds). Introductory readings in ethics. Prentice Hall, Englewood Cliffs, pp 265–294

    Google Scholar 

  185. Bartsoca A, Giakoumaki E, Antsaklis A, Tzingounis V, Aravantinos D [1986] The impact of fetoscopy on Greek women. In: Psychosomatic medicine past and future, 16th European Conference on Psychosomatic Research, 6–11 Sept 1986. Psychico, Athens

    Google Scholar 

  186. Bartsocas CS [1984] Red-cell enzymopathies: Management and screening. In: Benson PF (ed) Screening and management of potentially treatable genetic metabolic disorders. M.T.P. Press Ltd, Lancaster, pp 79–114

    Chapter  Google Scholar 

  187. Beauchamp TL, Childress JF [1979] Principles of biomedical ethics. Oxford University Press, New York, pp 209–217

    Google Scholar 

  188. Blum R, Blum E (eds) [1965] Health and healing in rural Greece. Stanford University Press, Stanford CA

    Google Scholar 

  189. Capron AM [1976] Legal rights and moral rights. In: Humber JM, Almeder EF (eds) Biomedical ethics and the law. Plenum Press, New York, pp 387–388

    Google Scholar 

  190. Carter CO, Frazer Roberts J A, Evans KA et al [1971] Genetic clinic: a follow up. Lancet 55: 281–285

    Article  Google Scholar 

  191. Choremis C, Fessas P, Kattamis C, Stamatoyannopoulos G, Zannos-Mariolea L, Karaklis A, Bellos G [1963] Three inherited red cell abnormalities in a district of Greece: thalassemia, sickling and glucose-6-phosphate dehydrogenase deficiency. Lancet 55: 907–909

    Article  Google Scholar 

  192. David HP, Friedman HL, Van der Tak J, Sevilla MJ (eds) [1978] Abortion in psychological perspective: trends in transnational research. Springer, New York, pp 225–241

    Google Scholar 

  193. Fletcher JC [1972] Moral problems in genetic counseling. Pastoral Psych 23 [223]: 47–60

    Article  Google Scholar 

  194. Fletcher JC [1979] Prenatal diagnosis of the hemoglobinopathies: ethical issues. Am J Obstet Gynecol 135 [1]: 53–56

    PubMed  CAS  Google Scholar 

  195. Fletcher JC [1986] Moral problems and ethical guidance in prenatal diagnosis: past, present, future. In: Milunsky A (ed) Genetic disorders and the human fetus, 2nd ed pp 848–849

    Google Scholar 

  196. Fletcher JC, Robbins RO, Powledge TM [1974] Informed consent in genetic screening programs. In: Bergsma D (ed) Ethical, social and legal dimensions of screening for human genetic diseases. Birth defects series 6, Alan R Liss, New York, pp 137–144

    Google Scholar 

  197. Frankena WK [1973] Ethics. Prentice-Hall, Englewood Cliffs, pp 38–39

    Google Scholar 

  198. Fried C [1978] Equality and rights in medical care. In: Beauchamp TL, Walters L (eds) Contemporary issues in bioethics. Dickenson Publishing Co, Encino, CA, pp 366–370

    Google Scholar 

  199. Hare RM [1975] The language of morals. Oxford University Press, London

    Google Scholar 

  200. Iatridis SG [1987] Health care systems in Greece. Lancet 55: 792–794

    Article  Google Scholar 

  201. Kanavakis E, Tzotzos S, Liapaki A, Metaxotou Mavromati A, Kattamis C. [1986] Frequency of a-Thalassemia in Greece. Am J Haematol 22: 225–232

    Article  CAS  Google Scholar 

  202. Kenen RH, Schmidt RM [1978] Somatization of carrier status: social implications of heterozygote genetic screening programs. Am J Pub Hlth 68 [11]: 1116–1119

    Article  CAS  Google Scholar 

  203. Leonard CO, Chase GA, Childs B [1972] Genetic counseling: a consumer’s view. New Engl J Med 287 [9]: 433–439

    Article  PubMed  CAS  Google Scholar 

  204. Levin AA, Schoenbaum SC, Monson RR, Stubblefield PG, Ryan KJ [1980] Association of induced abortion with subsequent pregnancy loss. JAMA 243 [24]: 2495–2499

    Article  PubMed  CAS  Google Scholar 

  205. Loukopoulos D [1985] Prenatal diagnosis of thalassemia and of the hemoglobinopathies, a review. Hemoglobin 9 [5]: 435–459

    Article  PubMed  CAS  Google Scholar 

  206. Loukopoulos D, Kaltsoya-Tassiopoulou A, Fessas PH [1983] Prevention of thalassemia in Greece. Schweiz Med Wschr 113: 1419–1427

    PubMed  CAS  Google Scholar 

  207. Loukopoulos D, Karababa P, Antsaklis A, Panourgias J, Boussiou M, Karayannopoulos K, Politis J, Rombou D, Tassiopoulou-Kaltsoya A, Fessas P [1984] Prenatal diagnosis of Thalassemia and H S syndromes in Greece: an evaluation of 1500 cases. In: Fifth Cooley’s Anemia Symposium. Ann New York Acad Sci 445: 357–375

    Article  Google Scholar 

  208. Macri I, Houdoumadi A, Giakoumaki E [1982] Prospective mothers: anxiety, knowledge about health and acceptance of professionals. Iatriki 42: 378–388

    Google Scholar 

  209. Malamos B, Fessas P, Stamatoyannopoulos G [1962] Types of thalassemia trait carriers as revealed by a study of their incidence in Greece. Br J Haematol 8: 5–14

    Article  PubMed  CAS  Google Scholar 

  210. Manos N [1979] Brief communications, an outpatient psychotherapy group in Greece. Int J Group Psychother 29 [2] pp 251–255

    PubMed  CAS  Google Scholar 

  211. Manos N, Christakis J [1981] Attitudes of cancer specialists toward their patients in Greece. Int Psych Med 10 [4]: 305–313

    Article  CAS  Google Scholar 

  212. Margolin CR [1978] Attitudes toward control and elimination of genetic defects. Soc Biol 25 [1]: 33–37

    PubMed  CAS  Google Scholar 

  213. Markova I, Forbes CD, Aledort LM, Inwood M, Mandalaki T, Miller CH, Pittadaki J [1986] A Comparison of the availability and content of genetic counseling as perceived by hemophiliac men and carriers in the USA, Canada, Scotland and Greece. Am J Med Genet 24: 7–21

    Article  PubMed  CAS  Google Scholar 

  214. Milunsky A (ed) [1977] Prenatal diagnosis of hereditary disorders. CC Thomas, Springfield, IL, p 167

    Google Scholar 

  215. Modell B [1986] Some social implications of early fetal diagnosis. In: Brambati B, Simoni G, Fabro S (eds) Chorionic villus sampling. Marcel Dekker, New York, pp 259–274

    Google Scholar 

  216. Moutsopoulos L [1984] Truth telling to patients. Med Law 3: 237–251

    PubMed  CAS  Google Scholar 

  217. Murray RF [1978] Genetic counseling. In: Reich WT (ed) Encyclopedia of bioethics. Free Press, New York, pp 559–566

    Google Scholar 

  218. National Statistical Service of Greece, 1978

    Google Scholar 

  219. Pantelakis SN, Karageorga-Zagona M, Bartsocas CS [1973] Incidence of congenital malformations in Greece. Excerpta Medica ICS 297: 93

    Google Scholar 

  220. Pantelakis SN, Papadimitriou GC, Doxiades SA [1973] Influence of induced abortions on the outcome of subsequent pregnancies. Am J Obstet Gynecol 116 [6]: 799–805

    PubMed  CAS  Google Scholar 

  221. Powledge TM [1978] Genetic screening. In: Reich WT (ed) Encyclopedia of bioethics. Free Press, New York, pp 572

    Google Scholar 

  222. Ritsakis-Wood A [1970] (ed) An analysis of the health and welfare services in Greece. Center for Planning and Economic Research, Athens, pp 280

    Google Scholar 

  223. Samouilidis L [1978] Psychoanalytic vicissitudes in working with Greek patients. Am J Psychoanal 38: 223–233

    Article  PubMed  CAS  Google Scholar 

  224. Schizas N, Tegos K, Voutsadakis A, Arabatzis G, Angelopoulos P, Chrysanthopoulos K, Athanasiadou A, Rombos J, Skarlos D, Davakis M [1977] The frequency and distribution of betathalassemia and abnormal hemoglobins in Greece: a study of 15,500 recruits. Hellenic Armed Forces Med Rev 1 [11]: 197–209

    Google Scholar 

  225. Stamatoyannopoulos G [1974] Problems of screening and counseling in the hemoglobinopathies. In: Birth Defects: Proceedings of the Fourth International Conference, Vienna, Austria, 1973. American Elsevier, New York, pp 268–276

    Google Scholar 

  226. Swanson TE [1970] Economics of mongolism. Ann NY Acad Sci 171: 679–682

    Article  Google Scholar 

  227. Swint MJ [1982] Antenatal diagnosis of genetic disease: economic considerations. In: McNeil JB, Cravalho EG (eds) Critical issues in medical technology. Auburn House, Boston, pp 327–342

    Google Scholar 

  228. Vasilopoulos D [1985] Genetic diseases and community. Medipress, Athens.

    Google Scholar 

  229. Velogiannis-Moutsopoulos L [1984] Ethics and public policy: ethical priorities for genetic services in Greece. University of Ioannina, Ioannina

    Google Scholar 

  230. Velogiannis-Moutsopoulos L, Fletcher JC, Koutselinis A [1985] Psychological approach of the terminal patient. Materia Medica Greca 13 [1]: 67–70

    Google Scholar 

  231. Woodhead WD (ed) [1978] Gorgias. In: Hamilton E, Cairns H (eds). The collected dialogues of Plato, 9th ed. Princeton University Press, Princeton, NJ, p 229

    Google Scholar 

  232. Carter CO, Fraser-Roberts JA, Evans KA, Buck AR [1971] Genetic clinic: A follow-up. Lancet 55: 281–285

    Article  Google Scholar 

  233. Czeizel A [1983] Evaluation of medical indications in induced abortions [Hungarian]. Orv Hetil (Medical Weekly) 124: 1297–1302

    CAS  Google Scholar 

  234. Czeizel A [1988] The right to be born healthy: the ethical problems of human genetics in Hungary. Alan R Liss, New York [Hungarian edition, 1983, Budapest]

    Google Scholar 

  235. Czeizel A, Bodnar Z, Rockenbauer M [1984] Some epidemiological data on spontaneous abortion in Hungary, 1980. J Epid Comm Health 38: 143–148

    Article  CAS  Google Scholar 

  236. Czeizel A, Klujber L [1978] A cost-benefit analysis of prevention of open neural tube defects based on maternal alpha-fetoprotein screening [Hungarian]. Transfusion 11: 41–48

    Google Scholar 

  237. Czeizel A, Metneki J, Osztovies M [1981] Evaluation of information guidance genetic counseling. J Med Genet 18: 91–98

    Article  PubMed  CAS  Google Scholar 

  238. Czeizel A, Sankaranarayanan K [1984] The load of genetic and partially genetic disorders in man. I. Congenital anomalies: estimates of detriment in terms of years of life lost and years of impaired life. Mut Res 128: 73–103

    Article  CAS  Google Scholar 

  239. Al Matwalli Al-Imam [1951] Elbabya fe Sharrh Altohfa (Text book on Islamic law). Vol 2,2nd ed, Egypt, p 379

    Google Scholar 

  240. Al-Shaikh Shaltut [1982] cited by Ghanem I: Abortion, gestation and viability. In: Probsthain A (ed) Islamic medical jurisprudence. London, pp 60–61

    Google Scholar 

  241. Aurobindo S [1976] Essays on the Gita. 10th ed. Sri Aurobindo Ashram, Pondicherry

    Google Scholar 

  242. Chaterjee JB [1966] Hemoglobinopathies, glucose-6-phosphate dehydrogenase and allied problems in the Indian subcontinent. Bull WHO 35: 837–856

    Google Scholar 

  243. Desai MP, Colaco MP, Ajgaonkar AR, Mahadik CV, Vas FE, Rege C, Shirodkar W, Bandivdekar A, and Sheth AR [1987] Neonatal screening for congenital hypothyroidism in a developing country — problems and strategies. Indian J Pediatr 54: 571–581

    Article  PubMed  CAS  Google Scholar 

  244. Elzouki AY [1986] Cytogenetic analysis of Down syndrome in Arab children and the problem of genetic counseling in the Islamic world. In: Neiermeyer H, Hicks E (eds) Bishop Bekkers Workshop on Genetics of Mental Retardation, Netherlands, D Reidel Publishing Co. Utrecht, Netherlands (in press)

    Google Scholar 

  245. Ghosh S [1986] Discrimination begins at birth. Indian Pediatr 23: 9–15

    PubMed  CAS  Google Scholar 

  246. Holla M [1985] Vital statistics system, a major source of information on infant and child mortality. Indian J Pediatr 52: 115–126

    Article  PubMed  CAS  Google Scholar 

  247. India, Central Bureau of Health Intelligence, Directorate General of Health Services [1986] Health Information of India. Nirman Bhavan, New Delhi

    Google Scholar 

  248. India, Ministry of Health and Family Welfare [1983] Family Welfare Programme in India. Year-book 1982–83. Department of Family Welfare, New Delhi, 1983, p 194

    Google Scholar 

  249. India, Ministry of Health and Family Welfare [1985] Family Welfare Programme in India. Year-book 1984–85. Department of Family Welfare, New Delhi

    Google Scholar 

  250. India, Ministry of Health and Family Welfare [1987] Annual Report, 1986, p 123

    Google Scholar 

  251. India, Ministry of Welfare [1985] Child in India — A statistical profile. Ministry of Welfare, New Delhi

    Google Scholar 

  252. India, Planning Commission [1984] Report of the Steering Group on Health and Family Welfare Programmes for Seventh Five Year Plan

    Google Scholar 

  253. India, Registrar-General [1987] Infant mortality rates, India 1985. Indian J Pediatr 53: 459

    Google Scholar 

  254. Indian Council of Medical Research, Director-General [1986] Annual Report 1985–86, pp 46, 113

    Google Scholar 

  255. Joseph DT [1986] Amniocentesis and fetal feticide in Bombay — a report presented to Government of Maharashtra.

    Google Scholar 

  256. Kochupillai N, Jaysuryan N, Godbole MM, Pandav CS [1984] Benefit and cost of application of radioimmunoassay in tuberculosis and iodine deficiency disorders: two major health problems of developing countries. In: Albertini A, Ekins EP, Galen RS (eds) Cost-Benefit and predictive value of radioimmunoassays. Elsevier Science Publishers, p 203

    Google Scholar 

  257. Kulkarni S [1986] Prenatal sex determination tests and female feticide in Bombay. Report commissioned by Secretary, Department of Public Health and Family Welfare, Maharashtra

    Google Scholar 

  258. Kumar V, Datta N [1988] Community based studies on infant mortality in Haryana — methodological issues relating to reporting and causation. In: Jain AK, Visaria P (eds) Infant mortality in India — differentials and determinants. Sage Publications, New Delhi and London, pp 185–202

    Google Scholar 

  259. Kuppuswamy B [1977] Dharma and society. MacMillan Co. of India, New Delhi

    Google Scholar 

  260. Malhotra KC [1978] Medicogenetic problems among Indian tribes, an overview. In: Verma IC (ed) Medical genetics in India Vol. 2. Auroma Enterprises, Pondicherry pp 81–88

    Google Scholar 

  261. Medical Council of India [1956] Code of medical ethics, MCI, Aiwan-e-Ghalib Marg, Kotla Road, New Delhi-110002

    Google Scholar 

  262. Menon PSN, Mathews AR, Verma IC [1986] Screening for neonatal hypothyroidism in AIIMS. In: Verma IC (ed) Genetic research in India. Sagar Printers & Publishers, New Delhi, p 171

    Google Scholar 

  263. Pandav CS, Kochupillai N [1985] Organisation and implementation of neonatal hypothyroid screening programme in India — a primary health care approach. Indian J Pediatr 52: 223–229

    Article  PubMed  CAS  Google Scholar 

  264. Radhakrishnan S [1960] The Hindu view of life. Unwin Books, London

    Google Scholar 

  265. Singh B [1984] Hindu ethics, an exposition of the concept of good. Arnold Heinemann, New Delhi

    Google Scholar 

  266. Sukumaran PK [1978] Hemoglobinopathies in scheduled castes and tribes of India. In: Verma IC (ed) Medical genetics in India. Vol. 2. Auroma Enterprises, Pondicherry, pp 81–88

    Google Scholar 

  267. Verma IC (ed) [1980] Directory of Human Genetic Services in India. 1st ed, All India Institute of Medical Sciences, New Delhi

    Google Scholar 

  268. Verma IC (1986a) Genetic counseling and control of genetic disease in India. In: Verma IC (ed) Genetic research in India. Sagar Printers and Publishers, New Delhi, pp 21–37

    Google Scholar 

  269. Verma IC (1986b) Genetic disorders need more attention in developing countries. World Health Forum 7: 69–70

    Google Scholar 

  270. Verma IC [1987] A new perspective for congenital malformations. In: Verma IC (ed) Genetic research in India. Sagar Printers and Publishers, New Delhi, pp 174–187

    Google Scholar 

  271. Visaria PM [1961] The sex ratio of the population of India. Census of India.

    Google Scholar 

  272. State of Israel, Ministry of Health, Commodities and Services (Control) ( Amniocentesis) Declaration, 1980: The National Program for the Detection and Prevention of Birth Defects.

    Google Scholar 

  273. Statistical Abstracts of Israel, Central Bureau of Statistics, Vols. 32, 1985.

    Google Scholar 

  274. Baget Bozzo G [1987] Prima del bene e del male. Rizzoli Ed., Milano

    Google Scholar 

  275. Bonaccorsi A, Fanelli R, Tognoni G [1978] In the wake of Seveso. AMBIO 7: 234–239

    Google Scholar 

  276. C.E.S.C.A. [1987] A proposal for the establishment of a permanent observatory on the technical and ethical problems of medical genetics. Milan

    Google Scholar 

  277. Collaborative European Study on CVS and Amniocentesis. Collaborative European Study — 1st Trimester Fetal Diagnoses of Genetic Disease by DNA analysis

    Google Scholar 

  278. Community control of Thalassaemia as a model of genetic disease: Experience in the Lombardy region of Italy. Annual Report, Thalassemia Information Centre, Clinica Pediatrica — Universita di Milano c/o Ospedale San Gerardo dei Tintori, Monza, Italy

    Google Scholar 

  279. Dionigi Tettamanzi PM [1985] Bambini fabbricati. Edizioni P.M., Milano

    Google Scholar 

  280. Durand P [1986] Chorion villus sampling in Europe. Human Reproduction, 1: 341–344

    PubMed  CAS  Google Scholar 

  281. Franzosi MG, Sartorio PL, Tognoni G [1981] Che cosa attendersi dalla sperimentazione clinica. L’esperienza della Commissione Tecnica Consultiva della Regione Lombardia. In: Colombo F, Franzosi MG, Tognoni G (a cura): Prontuari Terapeutici Ospedalieri. Risultati e prospettive. II Pensiero Scientiflco Editore, pp 45–60

    Google Scholar 

  282. Franzosi MG, Tognoni G [1986] Italy. In: Inman WHW (ed) Monitoring for drug safety. MTP Press Limited, Lancaster, pp 93–99

    Google Scholar 

  283. Goffi T, Piana G (eds) [1983] Corso di morale. II-Diakonia (etica della persona). Queriniana, Brescia

    Google Scholar 

  284. Privitera S, Cirotto C [1985] La sfida dell’ingegneria genetica. In: Tra scienza e morale. Le Edizioni Cittadella, Assisi

    Google Scholar 

  285. Sirchia G, Zanella A, Parravicini A, Morelati F, Rebulla P, Masera G [1985] Red cell alloanti-bodies in thalassemia major. Transfusion 25: 110–112

    Article  PubMed  CAS  Google Scholar 

  286. Terzian E, Tognoni G [1987] II ritorno della creazione. The Practitioner 100: 30–47

    Google Scholar 

  287. Tognoni G [1985] Sperimentare nell’uomo. A proposito di un disegno di legge. Ricerca & Pratica 2: 59–64

    Google Scholar 

  288. Arditti R et al. (eds) [1984] Test-tube women. What future for motherhood. [Japanese ed.: Jansson Y [1986] Kyodo Tsushin-sha, Tokyo]

    Google Scholar 

  289. Gomibuchi M [1986] A consideration of the Eugenic Protection Law and fetal indication. Medical Way 3 [12]: 159–164

    Google Scholar 

  290. Health and Welfare Statistics Association [1986] Annual statistical report of national health conditions 1986. Health and Welfare Statistics Association, Tokyo

    Google Scholar 

  291. Imaizumi Y [1986] A recent survey of consanguineous marriages in Japan. Clin Genet 30: 230–233

    Article  PubMed  CAS  Google Scholar 

  292. Kamiya S et al. [1985] A field study on the occurrence of congenital malformations (Tottori area). Report of research group on the monitoring of congenital malformations. The Ministry of Health and Welfare

    Google Scholar 

  293. Kessler S (ed) [1979] Genetic counseling. Psychological Dimensions. Academic Press, New York

    Google Scholar 

  294. Kimura R [1984] The meaning of gene therapy. Japanese Journal of Nursing. 48 [9]: 1061–1064

    PubMed  CAS  Google Scholar 

  295. Kondo K et al. [1982] Monitoring of birth defects at the Tokyo Metropolitan hospitals and lying-ins. Tokyo General Institute for Neurosciences.

    Google Scholar 

  296. Konishi H et al. [1986] A field study of monitoring of congenital malformations (Osaka area). Report of research group on monitoring of congenital malformations. The Ministry of Health and Welfare

    Google Scholar 

  297. Kurachi K et al. [1986] A field study on the monitoring of congenital malformations (Kanagawa area). Report of research group on monitoring of congenital malformations. The Ministry of Health and Welfare

    Google Scholar 

  298. Kuroki Y et al. [1978] Pilot study for estimation of chromosome aberration and monitoring by postnatal chromosome analysis for all newborn babies in one hospital. Report of research group on prevention of disordered and handicapped children. The Ministry of Health and Welfare

    Google Scholar 

  299. Maeda T et al. [1978] A cytogenetic survey of consecutive liveborn infants — incidence and type of chromosome abnormalities. Jap J Human Genet 23: 217–224

    Article  CAS  Google Scholar 

  300. Matsuda T, Yoshioka A and Ohkura K [1985] Proceedings of Symposium on Application of the Knowledge of Human Genetics including Genetic Counseling for Clinical Medicine - Ethical and Psychological Dimensions. Rinsho iden kenkyu (Med Genet Res). 7: 55–155

    Google Scholar 

  301. Ohkura K [1981] Diseases of the Japanese. In: Rothschild HR (ed) Biocultural aspects of disease. Academic Press, Orlando, FL, USA, pp 295–325

    Google Scholar 

  302. Ohkura K, Handa Y, Handa T [1981] Present and future of genetic counseling. Rinsho iden kenkyu (Med Genet Res). 2: 60–138

    Google Scholar 

  303. Ohkura K, Jikuhara T [1979] Evaluation of genetic counseling. Rinsho iden kenkyu (Med Genet Res) 1: 41–47

    Google Scholar 

  304. Ohkura K, Kimura R [1987] Genetic diagnosis and therapy in bioethics — comparison between U.S. and Japan. Medical Way 4 [1]: 51–60

    Google Scholar 

  305. Sugawa T et al. Study on quality control of prenatal diagnosis. From the follow-up study of 1,641 cases. Report of research group on monitoring of congenital malformations. The Ministry of Health and Welfare

    Google Scholar 

  306. Sumiyoshi Y et al. [1985] Statistical report on the survey of external malformations by Japan Association for Maternal Welfare. Japan Association for Maternal Welfare.

    Google Scholar 

  307. Yezzi R [1980] Medical ethics: Thinking about unavoidable questions. Holt, Rinehart & Winston, New York

    Google Scholar 

  308. Berg K [1973] Lecture. Yearbook of the Norwegian Academy of Science and Letters, Oslo

    Google Scholar 

  309. Berg K (1979) Den prenatale diagnostikk. Medisinsk egenlovmessighet eller etisk styring? Kirke og Kultur, 58–62

    Google Scholar 

  310. Berg K (1979) Prenatal diagnostikk: praktiske og etiske aspekter. Kirke og Kultur, 476–488

    Google Scholar 

  311. Berg K (1985) Etiske problemer i forbindelse med genetisk veiledning. Medicinsk Arbog, Munksgaard, København, pp 19–28

    Google Scholar 

  312. Berg K (1985) Etiske sider ved gendiagnostikk. Forskningsnytt 29: 51–55

    Google Scholar 

  313. Berg K (1985) Etikk og medisinsk genetikk. In: Neegaard G (ed) Moderne Medisin og Etikk, NKS Forlaget, Oslo, pp 87–104

    Google Scholar 

  314. Berg K (1985) Hva blir engstelsens pris? Nord. Med. 100: 134–135

    Google Scholar 

  315. Fletcher JC, Berg K, Tranoy KE [1985] Ethical aspects of medical genetics: A proposal for guidelines in genetic counseling, prenatal diagnosis and screening. Clin Genet 27: 199–205

    Article  PubMed  CAS  Google Scholar 

  316. Medical Research Council, Committee on Research Ethics [1981] Etiske problemer vedrorende genetisk veiledning (Ethical problems in genetic counseling). [English summary] Oslo

    Google Scholar 

  317. Stortingsmelding 73 (1981) Report to parliament from the Ministry of Social Affairs on the organization of medical genetics services in Norway. Oslo

    Google Scholar 

  318. Alm J, Larsson A, Rosenqvist U [1982] Health Economic Analysis of the Swedish Neonatal Metabolic Screening Programme. A method of optimizing routines. J Med Decision Making 2: 33–45

    Article  CAS  Google Scholar 

  319. Bischofberger E, Seiler H (eds) [1986] Etiska riktmarken vid livets gränser II. Katolska bokförlaget, Uppsala

    Google Scholar 

  320. Ds U 1978: 11 Hybrid-DNA tekniken under kontroll. Liber förlag, Stockholm

    Google Scholar 

  321. Ericsson A, Källén B, Winberg J [1977] Surveillance of Malformations at Birth: A Comparison of Two Record Systems Run in Parallel. Int J Epidemiol 5 [1]: 35–41

    Article  Google Scholar 

  322. Fagerberg H (ed) [1980] Foster Familj Samhalle. Liber läromedel, Lund

    Google Scholar 

  323. Fagerberg H, Bischofberger E, Jacobsson L, Lindmark G [1985] Medicinsk etik och manniskosyn, 2nd ed. Liber fdrlag, Stockholm

    Google Scholar 

  324. Giertz G [1984] Etik i lakarens vardag. Svenska Lakaresallskapets forlag, band 93, häfte 1

    Google Scholar 

  325. Giertz G (ed) [1976] Etiska varderingar — medicinskt handlande. Svenska Läkaresällskapets handlingar, Band 85, häfte 1

    Google Scholar 

  326. Gustafson S [1980] Fosterdiagnostik — för vem? LTs förlag, Stockholm

    Google Scholar 

  327. Gustafson S [1984] Vem har ratt att fodas? LTs forlag, Stockholm

    Google Scholar 

  328. Gustafson S [1986] Kunskapens frukter och livets trad. Verbum forlag, Stockholm

    Google Scholar 

  329. Jonsson M [1980] Fosterdiagnostik inom Stockholmsregionen. En kartlaggning av patientinformationen. Rapport fran projektet for patientinformation Karolinska sjukhuset, Stockholm

    Google Scholar 

  330. Kallen B [1987] Search for Teratogenic Risks with Aid of Malformation Registries Teratol 35: 47

    CAS  Google Scholar 

  331. Schnittger A [1983] Alpha-fetoprotein screening in obstetric practice. Thesis, Linköping University, Linkoping

    Google Scholar 

  332. Socialstyrelsen Hälso — och sjukvard infor 80-talet [1976] Klinisk genetik. Supplement till Medicinsk service. Stockholm.

    Google Scholar 

  333. Socialstyrelsen [1982] Fosterdiagnostik. Stockholm

    Google Scholar 

  334. SOU 1983: 42 Barn genom insemination. Liber förlag, Stockholm

    Google Scholar 

  335. SOU 1984: 88 Genetisk integritet. Liber förlag, Stockholm

    Google Scholar 

  336. SOU 1984: 5 Befruktning utanför kroppen mm. Liber förlag, Stockholm

    Google Scholar 

  337. Svenska Läkaresällskapets Delegation for medicinsk etik [1979] Etiska synpunkter pa fosterdiagnostik. Läkartidningen 76: 2540–2542

    Google Scholar 

  338. Cerletti A, Courvoisier B [1985] Directives médico-éthiques pour le traitement de la stérilité par fécondation in vitro et transfert d’embryons. Acad Suisse Sci Méd, Basle

    Google Scholar 

  339. Crusi A [1987] Revue de 1700 amniocenteses de dépistage prénatal à Genève (1979-1984): analyse des cas, commentaires des femmes testees. These, Universite de Geneve, Geneve

    Google Scholar 

  340. DeLozier-Blanchet CD, Engel E, Extermann Ph, Pastori B [1988] Trisomy 7 in chorionic villi: Follow-up studies of pregnancy, normal child, and placental clonal anomalies. Prenat Diagn 8, 281–286

    Article  PubMed  CAS  Google Scholar 

  341. De Wals PH, Weatherall J AC, Leehat MF (eds) [1985] Registration of congenital anomalies in Eurocat centres (1979–1983). Cabay, Louvain-la-Neuve

    Google Scholar 

  342. Engel E [1980] Essai de definition d’un code ethique a Fusage du diagnostic prenatal. Bull Schweiz Akad Med Wiss 36: 381–388

    PubMed  CAS  Google Scholar 

  343. Engel E [1987] Amniocentese ou choriocentese? Avantages, inconvenients, perspectives. Med et Hyg 45: 1346–1350

    Google Scholar 

  344. Engel E, Tran TN [1981] Resultats et perspectives de Tamniocentese et du foeto-diagnostic preventifs. In: Feingold J (ed) Genetique medicale. Acquisitions et perspectives. INSERM/ Flammarion Medecine, Paris, pp 237–282

    Google Scholar 

  345. Engel P [1985] Le juge et le genie genetique. Communication, Association Suisse des Magistrats de l’Ordre Judiciaire, Morges, 5. 10. 1985

    Google Scholar 

  346. Fédération des Médecins Suisses (ed) [1986] Vademecum du medecin suisse. Secrétariat général des Institutions du Corps Medical Suisse, Berne

    Google Scholar 

  347. Fletcher J [1979] Prenatal diagnosis, selective abortion, and the ethics of withholding treatment from the defective newborn. Birth Defects: Original Article Series 2: 239–254

    Google Scholar 

  348. Franceschetti A, Klein D [1951] Au sujet de la creation, a Geneve, d’un service de Genetique Humaine rattache a la Clinique Ophtalmologique. Bull Schweiz Akad Med Wiss 7: 351–357

    PubMed  CAS  Google Scholar 

  349. Goodfellow PN [1987] Classical and reverse genetics. Nature 326: 824

    Article  PubMed  CAS  Google Scholar 

  350. Mathon G (ed) [1987] Le don de la vie. Le respect de la vie humaine naissante et la dignite de la procreation. Reponses a quelques questions d’actualite (Instructions de la Congregation pour la Doctrine de la Foi, 22. 2. 1987 ) Editions du Cerf, Paris

    Google Scholar 

  351. Swiss Society for Medical Genetics (ed) (1987) Genetique Medicale. Feuille d’Information, No. 1–18

    Google Scholar 

  352. Swiss Society for Medical Genetics (ed) [1984] Le diagnostic genetique prenatal. Tableau des resultats des examens effectues en Suisse de 1981 a 1983. Genetique Medicale 12: 9–12

    Google Scholar 

  353. Swiss Society for Medical Genetics (ed) [1987] Le diagnostic genetique prenatal. Tableaux des résultats des examens effectués en Suisse de 1984 à 1986, inclus biopsies choriales du placenta. Génétique Medicale 19: 15–20

    Google Scholar 

  354. Aksit MA, Sönmez B, Ba§aran N, Solak M [1986] The results of chromosome analysis selected from 1229 live-born newborn infants that showed multiple and major abnormalities. In: Vogel F, Sperling K (eds) Human Genetics: Proceedings of the 7th International Congress of Human Genetics. Springer-Verlag, Heidelberg, 1988

    Google Scholar 

  355. Bökesoy I, Karaman B, Özcengiz D [1986] Chromosome analysis in parents with reproductive failures. Proceedings of 8 th pediatrics days. University of Istanbul (Turkish)

    Google Scholar 

  356. Fifth program of progress for five years 1985–1989 [1985] Planning organization of the state (DPT) no 1974 (Turkish)

    Google Scholar 

  357. Kocaman T, Özaltin I [1986] Trends of popluation growth in Turkey and comparison with other countries. DPT yayin no DPT 2054-SPD 396-Nisan

    Google Scholar 

  358. Say B, Tunçbilek E, Balci S, Yalçin Z [1971] Incidences of congenital malformations in the Turkish population. Hacettepe Universitesi yayinlan. No C-12

    Google Scholar 

  359. Yener S [1981] Causes of deaths in Turkey. DPT yayin no DPT 1751-SPD 330-Mart

    Google Scholar 

  360. Anonymous [1982] Directive counselling. Lancet 55: 368–369

    Google Scholar 

  361. Association of Clinical Cytogeneticists [1986] Review of clinical cytogenetics services 1984: England, Scotland, and Wales

    Google Scholar 

  362. Beeson D, Golbus MS [1985] Decision making: whether or not to have prenatal diagnosis and abortion for X-linked conditions. Am J Med Genet 20: 107–114

    Article  PubMed  CAS  Google Scholar 

  363. Brooks H [1973] The physical sciences: bellweather of science policy. In: Shannon JA (ed) Science and the evolution of public policy. Rockefeller University Press, New York

    Google Scholar 

  364. Carter CO, Fraser Roberts JA, Evans KA, Buck AR [1971] Genetic clinic: a follow-up. Lancet 55: 281–285

    Article  Google Scholar 

  365. Cooper DN, Schmidtke J [1987] Human gene cloning and disease analysis. Lancet 55: 273

    Article  Google Scholar 

  366. Craufurd DIO, Harris R [1986] Ethics of predictive testing for Huntington’s chorea: the need for more information. Br Med J 293: 249–251

    Article  CAS  Google Scholar 

  367. Crawfurd M d’A [1983] Ethical and legal aspects of early prenatal diagnosis. Br Med Bull 39 [4]: 310–314

    Google Scholar 

  368. Cuckle HS, Wald NJ [1984] Principles of screening. In: Wald NJ (ed) Antenatal and neonatal screening. Oxford University Press, Oxford

    Google Scholar 

  369. Cuckle HS, Wald NJ [1987] Impact of screening for open neural tube defects in England and Wales. Prenat Diagn 7: 91–99

    Article  PubMed  CAS  Google Scholar 

  370. Cuckle HS, Wald NJ, Thompson SG [1987] Estimating a woman’s risk of having a pregnancy associated with Down’s syndrome using her age and serum alpha-fetoprotein level. Br J Obstet Gyn 94: 387–402

    Article  CAS  Google Scholar 

  371. Donnai P, Charles N, Harris R [1981] Attitudes of patients after “genetic” termination of pregnancy. Br Med J 282: 621–622

    Article  CAS  Google Scholar 

  372. Emery AEH, Pullen I (eds) [1984] Psychological aspects of genetic counselling. Academic Press, London

    Google Scholar 

  373. Evers-Kiebooms G, van den Berghe H [1979] Impact of genetic counselling: a review of published follow-up studies. Clin Genet 15: 465–474

    Article  PubMed  CAS  Google Scholar 

  374. Ferguson-Smith MA (1983 a) Prenatal chromosome analysis and its impact on the birth incidence of chromosome disorders. Br Med Bull 39 [4]: 355–364

    CAS  Google Scholar 

  375. Ferguson-Smith MA (1983 b) The reduction of anencephalic and spina bifida births by Maternal Serum Alpha-fetoprotein screening. Br Med Bull 39 [4]: 365–372

    PubMed  CAS  Google Scholar 

  376. Forrest GC, Standish E, Baum JD [1982] Support after perinatal death: a study of support and counselling after perinatal bereavement. Br Med J 285: 1475–1479

    Article  CAS  Google Scholar 

  377. Fraser FC [1979] The development of genetic counselling. In: Capron AM, Lappe M, Murray RF, Powledge TM, Twiss SB, Bergsma D (eds) Birth defects: Original article series XV: 5–15. Alan R Liss for the National Foundation — March of Dimes, New York

    Google Scholar 

  378. Fraser Roberts JA [1940] An introduction to medical genetics. Oxford University Press, London Glass NJ, Cove AR [1978] Cost effectiveness of screening for neural tube defects. In: Scrimgoeur JB (ed) Towards the prevention of fetal malformation. Edinburgh University Press, Edinburgh

    Google Scholar 

  379. Great Britain, Department of Health and Social Security [1984] Report of the Committee of Enquiry into Human Fertilisation and Embryology. HMSO (Cmnd 9314 ). Chair: Dame Mary Warnock, London

    Google Scholar 

  380. Great Britain, Department of Health and Social Security [1986] Legislation on human infertility services and embryo research: a consultation paper. HMSO (Cmnd46), London

    Google Scholar 

  381. Great Britain, Department of Health and Social Security [1987] On the state of the public health for the year 1986. HMSO, London

    Google Scholar 

  382. Great Britain, Department of Health and Social Security, Medical Division CDPNM [1987] Special Medical Development in Clinical Genetics; Interim Report: Clinical Effectiveness in the Service Context. HMSO, London

    Google Scholar 

  383. Great Britain, Office of Population Censuses and Surveys [1987] Monitor AB 87/3

    Google Scholar 

  384. Great Britain, Parliamentary Papers (Commons) [1980] Second report from the Social Services Committee, Session 1979–80: Perinatal and neonatal mortality. HMSO, London

    Google Scholar 

  385. Great Britain, Parliamentary Papers (Commons) [1984] Third report from the Social Services Committee, Session 1983–84: Perinatal and neonatal mortality report: follow-up. HMSO, London

    Google Scholar 

  386. Great Britain, Parliamentary Papers (Lords) [1988] Report of the Select Committee on the Infant Life (Preservation) Bill, Session 1987–88. HMSO, London

    Google Scholar 

  387. Haggard S, Carter FA [1976] Preventing the births of infants with Down’s syndrome: cost-benefit analysis. Br Med J 55: 735–736

    Google Scholar 

  388. Haggard S, Carter FA, Milne RG [1976] Screening for spina bifida cystica. Br J Prevent Soc Med 30: 40–53

    Google Scholar 

  389. Ham C [1985] Health policy in Britain: the politics and organisation of the National Health Service, second edition. Macmillan Publishers, London

    Google Scholar 

  390. Harper PS [1983] Genetic counselling and prenatal diagnosis. Br Med Bull 39 [4]: 302–309

    PubMed  CAS  Google Scholar 

  391. Harris R (1987) Make way for the new genetics. Br Med J 295: 349–350

    Article  CAS  Google Scholar 

  392. Harris R (1987) Royal College of Physicians Conference on Medical Ethics, 23 Oct 1986. J Med Genet 24: 251–253

    Google Scholar 

  393. Harris R [1988] Genetic counselling and the new genetics. Trends in Genetics, 4: 52–56

    Article  PubMed  CAS  Google Scholar 

  394. Harris R, Emery AEH, Johnston AW, Pembrey ME, Winter R, Insley J [1983] Role and training of clinical geneticists. Report of the Clinical Genetics Society Working Party. Eugenics Society, London

    Google Scholar 

  395. Hibbard BM, Roberts CJ, Elder GH, Evans KT, Laurence KM [1985] Can we afford screening for neural tube defects? The South Wales experience. Br Med J Clin Res 290 [6464]: 293–295

    Article  CAS  Google Scholar 

  396. Hollingsworth JR [1986] A political economy of medicine: Great Britain and the United States. Johns Hopkins University Press, Baltimore and London

    Google Scholar 

  397. Kevles DJ [1986] In the name of eugenics: genetics and the uses of human heredity. Penguin, New York

    Google Scholar 

  398. King’s Fund Forum [1987] King’s Fund Forum consensus statement: screening for fetal and genetic abnormality. Br Med J 295: 1551–1553

    Article  Google Scholar 

  399. Klein R [1983] The politics of the National Health Service. Longman, London

    Google Scholar 

  400. Lavery C [1987] Impact on the family. Paper presented at King’s Fund Forum, London, Nov 30-Dec 1, 1987, and personal communication

    Google Scholar 

  401. Lloyd J, Laurence KM [1985] Sequelae and support after termination of pregnancy for fetal malformation. Br Med J 290: 967–969

    Article  Google Scholar 

  402. Markova I, Forbes CD, Inwood M [1984] The consumers’ views of genetic counseling of hemophilia. Am J Med Genet 17: 741–752

    Article  PubMed  CAS  Google Scholar 

  403. Mastromauro C, Myers RH, Berkman B [1986] Letter to the editor: change in attitudes toward presymptomatic testing in Huntington disease. Am J Med Genet 24: 369–371

    Article  PubMed  CAS  Google Scholar 

  404. Oakley A [1984] The captured womb: a history of the medical care of pregnant women. Basil Blackwell, Oxford

    Google Scholar 

  405. Old JM, Heath C, Fitches A, Thein SL, Weatherall DJ, Warren R, McKenzie C, Rodeck CH, Modell B, Petrou M, Ward RHT [1986] First-trimester fetal diagnosis for haemoglobinopathies: report on 200 cases, Lancet 55: 763–769

    Article  Google Scholar 

  406. Pembrey ME [1987] Obituary for Dr. John Alexander Fraser Roberts. J Med Genet 24: 442–444

    Article  Google Scholar 

  407. Rotter JI, Diamond JM [1987] What maintains the frequency of human genetic diseases? Nature 329: 289–290

    Article  PubMed  CAS  Google Scholar 

  408. Royal College of Obstetricians and Gynaecologists [1984] Report of the RCOG Working Party on routine ultrasound in pregnancy. RCOG, London

    Google Scholar 

  409. Royal College of Obstetricians and Gynaecologists [1985] Report on fetal viability and clinical practise. RCOG, London

    Google Scholar 

  410. Royal College of Obstetricians and Gynaecologists [1987] Fetal viability; a report by a committee representing medical bodies as listed below (RCOG, Royal College of Midwives, Royal College of General Practitioners, British Medical Association, British Paediatric Association, Clinical Genetics Society) RCOG, London

    Google Scholar 

  411. Sorenson JR, Swazey JP, Scotch NA [1981] Reproductive pasts, reproductive futures: genetic counselling and its effectiveness. Alan R Liss, New York

    Google Scholar 

  412. Super M, Schwarz M, Elles RG, Harris R, I Vinson A, Giles L, Read AP [1987] Clinic experience of prenatal diagnosis of cystic fibrosis by use of linked DNA probes. Lancet 55: 782–784

    Article  Google Scholar 

  413. Turnbull AC, MacKenzie IZ [1983] Second-trimester amniocentesis and termination of pregnancy. Br Med Bull 39: 315–321

    PubMed  CAS  Google Scholar 

  414. Tyler A, Harper PS [1983] Attitudes of subjects at risk and their relatives towards genetic counselling in Huntingon’s chorea. J Med Genet 20: 179–188

    Article  PubMed  CAS  Google Scholar 

  415. Wald NJ [1984] Antenatal and neonatal screening. Oxford University Press, Oxford

    Google Scholar 

  416. Tyler A, Harper PS [1983] Attitudes of subjects at risk and their relatives towards genetic counselling in Huntingon’s chorea. J Med Genet 20: 179–188

    Article  PubMed  CAS  Google Scholar 

  417. Wexler N [1984] Huntington’s disease and other late-onset genetic disorders. In Emery AEH, Pullen I (eds) Psychological aspects of genetic counselling. Academic Press, London, pp 125–146

    Google Scholar 

  418. Andrews LB [1987] Medical genetics: a legal frontier. American Bar Foundation, Chicago

    Google Scholar 

  419. Andrews LB (comp) [1985] State laws and regulations governing newborn screening. American Bar Foundation, Chicago

    Google Scholar 

  420. Antley M, Antley RM, Hartlage LC [1973] Effects of genetic counseling on parental self-concepts. J Psychol 83: 335–338

    Article  PubMed  CAS  Google Scholar 

  421. Baron CH [1985] Legislative regulation of fetal experimentation. In: Milunsky A, Annas G (eds) Genetics and the law III. Plenum Press, New York, pp 431–435

    Google Scholar 

  422. Beeson D, Golbus MS [1979] Anxiety engendered by amniocentesis. In: Epstein CJ, Curry CJR, Packman S, Sherman S, Hall BD (eds) Risk, communication, and decision making in genetic counseling. Ann Rev Birth Defects C. Alan R Liss, New York, pp 191–198

    Google Scholar 

  423. Benn PA, Hsu LYF, Carlson A, Tannenbaum HL [1985] The centralized prenatal genetics screening program of New York City III: the first 7,000 cases. Am J Med Genet 20 [2]: 369–384

    Article  PubMed  CAS  Google Scholar 

  424. Bernhardt BA, Bannerman RM [1984] The influence of obstetricians on the utilization of amniocentesis. Prenat Diagn 4: 43–49

    Article  Google Scholar 

  425. Black RB [1979] Effects of diagnostic uncertainty and available options on perceptions of risk. In: Epstein CJ, Curry CJR, Packman S, Sherman S, Hall BD (eds) Risk, communication, and decision making in genetic counseling. Ann Rev Birth Defects C. Alan R Liss, New York, pp 341–354

    Google Scholar 

  426. Bobrow M (1977) Genetic counseling: a tool for the prevention of some abnormal pregnancies. J Clin Pathol 20 (Suppl 10): 145 Boston Women’s Health Book Collective [1985] The new our bodies, ourselves. Simon & Schuster, New York

    Google Scholar 

  427. Chorover SL [1979] From genesis to genocide: the meaning of human nature and the power of behavior control. Massachusetts Institute of Technology Press, Cambridge, MA and London, pp 57–76

    Google Scholar 

  428. Conley R, Milunsky A [1975] The economics of prenatal genetic diagnosis. In: Milunsky A (ed) The prevention of genetic disease and mental retardation. WB Saunders, Philadelphia

    Google Scholar 

  429. Corgan RL [1979] Genetic counseling and parental self-concept change. In: Epstein CJ, Curry CJR, Packman S, Sherman S, Hall BD (eds) Risk, communication, and decision making in genetic counseling. Ann Rev Birth Defects C. Alan R Liss, New York, pp 233–244

    Google Scholar 

  430. Cowart V [1984] NIH considers large-scale study to evaluate chorionic villi sampling. JAMA 252: 11–15

    Article  PubMed  CAS  Google Scholar 

  431. Davis K, Rowland D [1983] Uninsured and underserved: inequities in health care in the United States. Milbank Mem Fund Q/Health and Society 61: 149–176

    Article  CAS  Google Scholar 

  432. Edmonds LD, Layde PM, James LM, Flynt JW Jr, Erickson JD, Oakley GP Jr [1981] Congenital malformations surveillance: two American systems. Int J Epidemiol 10: 247–252

    Article  PubMed  CAS  Google Scholar 

  433. Ethics Advisory Board of the U.S. Department of Health, Education, and Welfare [1979] Report and conclusions: DHEW support of research involving in vitro fertilization and embryo transfer. May 4, 1979; also Federal Register 1979, 44: 35.

    Google Scholar 

  434. Ethics Committee of the American Fertility Society [1986] Ethical consideration of the new reproductive technologies. Fert & Steril 46 (Suppl): 74

    Google Scholar 

  435. Evers-Kieboom G, Van den Berghe L [1979] Impact of genetic counseling: a review of published follow-up studies. Clin Genet 15: 465–474

    Article  Google Scholar 

  436. Faden R, Chwalow J A, Quaid K, Chase GA, Lopes C, Leonard CO, Holtzman NA [1987] Prenatal screening and pregnant women’s attitudes toward the abortion of defective fetuses. Am J Publ Hlth 77 [3]: 288–290

    Article  CAS  Google Scholar 

  437. Fletcher JC, Ryan KJ [1987] Federal regulations for fetal research: a case for reform. Law, Medicine & Health Care 15 [3]: 126–138

    CAS  Google Scholar 

  438. Foreman I [1983] Clinical genetics: an overview. Occ Hlth Nurs, Oct: 11–13

    Google Scholar 

  439. Fraser FC [1974] Genetic counseling. Am J Hum Genet 26: 636–659

    PubMed  CAS  Google Scholar 

  440. Freedman L [1988] Health and social consequences of the uninsured: a challenge to third party payment systems. In: Greenstein RM, Gardiner GB, Young DL (eds) The challenge to provide genetics services: reimbursement for medical genetics services. Division of Human Genetics, University of Connecticut School of Medicine, Farmington CT, pp 190–194

    Google Scholar 

  441. Golbus MS, Loughman WD, Epstein CJ, Halbasch G, Stephens JD, Hall BD [1979] Prenatal diagnosis in 3,000 amniocenteses. N Engl J Med 300 [4]: 157–163

    Article  PubMed  CAS  Google Scholar 

  442. Goldberg MF, Oakley GP [1979] Prenatal screening for anencephaly — spina bifida: some epidemiological projections for a national program. In: Porter IH, Hook EB (eds) Service and education in medical genetics. New York, Academic Press

    Google Scholar 

  443. Green JE, Dorfmann A, Jones SL, Bender S, Patton L, Schulman JD [1988] Chorionic villus sampling: Experience with an initial 940 cases. Obstet Gynecol 71: 208–212

    PubMed  CAS  Google Scholar 

  444. Greenstein RM, Gardiner GB [1988] Assessment of reimbursement for genetic diseases. In: Greenstein RM, Gardiner GB, Young DL (eds) The challenge to provide genetics services: reimbursement for medical genetics services. Division of Human Genetics, University of Connecticut School of Medicine, Farmington CT, pp 36–48

    Google Scholar 

  445. Greenstein RM, Gardiner GB, Young DL [1988] A fifty-state analysis of Medicaid reimbursement for genetics services. In: Greenstein RM, Gardiner GB, Young DL (eds) The challenge to provide genetics services: reimbursement for medical genetics services. Division of Human Genetics, University of Connecticut School of Medicine, Farmington CT, pp 175–189

    Google Scholar 

  446. Henshaw SK, Forrest JD, Van Vort J [1987] Abortion services in the United States, 1984 and 1985. Family Planning Perspectives 19 [2]. Alan Guttmacher Institute, New York

    Google Scholar 

  447. Hirschfield DS [1970] The lost reform: the campaign for compulsory health insurance in the United States from 1932 to 1943. Harvard University Press, Cambridge, MA

    Google Scholar 

  448. Holtzman NA [1988] Recombinant DNA technology, genetic tests, and public policy. Am J Hum Genet 42 [4]: 624–630

    PubMed  CAS  Google Scholar 

  449. Holtzman NA [1989] Proceed with caution: predicting genetic risks in the recombinant DNA era. Johns Hopkins University Press, Baltimore

    Google Scholar 

  450. Hook EB, Chambers GM [1977] Estimated rates of Down syndrome in live births by one year maternal age intervals for mothers aged 20–49 in a New York State study — implications of the risk figures for genetic counseling and cost benefit analysis of prenatal diagnosis programs. In: Bergsma D, Lowry RB (eds) Numerical taxonomy of birth defects and polygenic disorders. Alan R Liss, New York

    Google Scholar 

  451. Hook EB, Schreinemachers DM [1983] Trends in utilization of prenatal cytogenetic diagnosis by New York State residents in 1979 and 1980. Am J Publ Hlth 73 [2]: 198–202

    Article  CAS  Google Scholar 

  452. Kennedy DM [1970] Birth control in America: the career of Margaret Sanger. Yale University Press, New Haven

    Google Scholar 

  453. Kevles DJ [1985] In the name of eugenics: genetics and the uses of human heredity. Knopf, New York

    Google Scholar 

  454. Layde PM, von Allmen SD, Oakley GP [1979] Maternal serum alpha-fetoprotein screening: a cost-benefit analysis. Am J Publ Hlth 69: 566–573

    Article  CAS  Google Scholar 

  455. Leonard CO, Chase G, Childs B [1972] Genetic counseling: a consumer’s view. N Engl J Med 287: 433–439

    Article  PubMed  CAS  Google Scholar 

  456. Lippman-Hand A, Fraser FC [1979] Genetic counseling — the postcounseling period. I. Parents’ perceptions of uncertainty. Am J Med Genet 4: 51–71

    Article  PubMed  CAS  Google Scholar 

  457. Lubs ML [1979] Does genetic counseling influence risk attitudes and decision making? In: Epstein CJ, Curry CJR, Packman S, Sherman S, Hall BD (eds) Risk, communication, and decision making in genetic counseling. Ann Rev Birth Defects C. Alan R Liss, New York, pp 355–366

    Google Scholar 

  458. Ludmerer KM [1972] Genetics and American society. Johns Hopkins University Press, Baltimore March of Dimes Birth Defects Foundation [1986] International Directory of Genetic Services, Eighth Edition. March of Dimes, White Plains, NY

    Google Scholar 

  459. McGovern MM, Goldberg JD, and Disnick RJ [1986] Acceptability of chorionic villi sampling for prenatal diagnosis. Am J Obstet Gyn 155 [1]: 25–29

    CAS  Google Scholar 

  460. Meister SB, Shepard D, Zeckhauser R [1987] cost-effectiveness of prenatal screening for neural tube defects. In: Nightingale EO, Meister SB (eds) Prenatal screening, policies, and values: the example of neural tube defects. Division of Health Policy Research and Education, Harvard University, Cambridge, MA

    Google Scholar 

  461. Milunsky A, Atkins L [1975] Prenatal diagnosis of genetic disorders. In: Milunsky A (ed) The prevention of genetic diseases and mental retardation. Saunders, Philadelphia, pp 221–263

    Google Scholar 

  462. Naber JM, Huether CA, Goodwin BA [1987] Temporal changes in Ohio amniocentesis utilization during the first twelve years (1972–1983), and frequency of chromosome abnormalities observed. Prenat Diagn 7: 51–65

    Article  PubMed  CAS  Google Scholar 

  463. Naranjo MSF, Lockhart LH [1979] Quantitative analysis and discussion of Mexican- and Anglo-Americans’ response to intervention in genetic disease. In: Epstein CJ, Curry CJR, Packman S, Sherman S, Hall BD (eds) Risk, communication, and decision making in genetic counseling. Ann Rev Birth Defects C. Alan R Liss, New York, pp 267–280

    Google Scholar 

  464. National Academy of Sciences, Committee for the Study of Inborn Errors of Metabolism [1975] Genetic screening: programs, principles, and research. National Academy of Sciences, Washington, D.C.

    Google Scholar 

  465. National Center for Education in Maternal and Child Health [1985] Comprehensive clinical genetic services centers: a national directory. DHHS Pub. No. HRS-D-MC 86 - 1. U.S. Government Printing Office, Washington, DC

    Google Scholar 

  466. National Center for Education in Maternal and Child Health [1987] A guide to selected national genetic voluntary organizations. NCEMCH, 3520 Prospect St. NW, Washington DC

    Google Scholar 

  467. National Center for Education in Maternal and Child Health [1988] Reaching out — a directory of voluntary organizations in maternal and child health. NCEMCH, 3520 Prospect St. NW, Washington DC

    Google Scholar 

  468. National Institute of Child Health and Development National Registry for Amniocentesis Study Group [1976] Midtrimester amniocentesis for prenatal diagnosis: safety and accuracy. JAMA 236: 1471–1476

    Article  Google Scholar 

  469. National Opinion Research Center (University of Chicago) [1987] General social surveys, 1972–1987: cumulative codebook. National Opinion Research Center, Chicago, July

    Google Scholar 

  470. Nightingale EO, Meister SB (eds) [1987] Prenatal screening, policies, and values: the example of neural tube defects. Division of Health Policy Research and Education, Harvard University, Cambridge, MA

    Google Scholar 

  471. Pauker SG, Pauker SP, McNeil BJ [1981] The effect of private attitudes on public policy: prenatal screening for neural tube defects as a prototype. Medical Decision Making 1: 103 — 114

    Article  PubMed  CAS  Google Scholar 

  472. Pauker SP, Pauker SG [1979] The amniocentesis decision: an explicit guide for parents. In: Epstein CJ, Curry CJR, Packman S, Sherman S, Hall BD (eds) Risk, communication, and decision making in genetic counseling. Ann Rev Birth Defects C. Alan R Liss, New York, pp 289–324

    Google Scholar 

  473. Rapp R [1988] Chromosomes and communication: the discourse of genetic counseling. Med Anthropology 2 [2]: 143–157

    Article  Google Scholar 

  474. Reed J [1978] From private vice to public virtue: the birth control movement and American society, 1830–1975. Basic Books, New York

    Google Scholar 

  475. Reed S [1974] A short history of genetic counseling. Soc Biol 21: 332–339

    PubMed  CAS  Google Scholar 

  476. Reilly P [1977] Genetics, law and social policy. Harvard University Press, Cambridge, MA

    Google Scholar 

  477. Rothstein WG [1987] American medical schools and the practice of medicine: a history. Oxford University Press, New York and Oxford

    Google Scholar 

  478. Saxton M [1984] Born and unborn: the implications of reproductive technologies for people with disabilities. In: Arditti R, Klein RD, Minden S (eds) Test-tube women: what future motherhood? Methuen, New York, pp 298–312

    Google Scholar 

  479. Schleifer JT [1980] The making of Tocqueville’s Democracy in America. University of North Carolina Press, Chapel Hill, NC

    Google Scholar 

  480. Schreinemachers DM, Hook EB [1984] Prenatal cytogenetic utilization in New York State, 1979–82 by county and HSA region. Report from the New York State Chromosome Registry, Albany, NY

    Google Scholar 

  481. Shryock RH [1962] Medicine and society in America: 1660–1860. Cornell University Press, Ithaca, NY

    Google Scholar 

  482. Sokal DC, Byrd JR, Chen ATL, Goldberg MF, Oakley GP [1980] Prenatal chromosome diagnosis: racial and geographic variation for older women in Georgia. JAMA 244 [12]: 1355–1357

    Article  PubMed  CAS  Google Scholar 

  483. Sorenson JR, Scotch NA, Swazey JP, Wertz DC, Heeren TC [1987] Reproductive plans of genetic counseling clients not eligible for prenatal diagnosis. Am J Med Genet 28: 345–352

    Article  PubMed  CAS  Google Scholar 

  484. Sorenson JR, Swazey JP, Scotch NA [1981] Reproductive pasts, reproductive futures: genetic counselling and its effectiveness. Alan R Liss, New York

    Google Scholar 

  485. Sorenson JR, Wertz DC [1986] Couple agreement before and after genetic counseling. Am J Med Genet 25 [3]: 549–555

    Article  PubMed  CAS  Google Scholar 

  486. Stein Z, Susser M [1978] Epidemiologic and genetic issues in mental retardation. In: Morton N (ed) Genetic epidemiology. Academic Press, New York

    Google Scholar 

  487. Steinbrook R [1986] In California, voluntary mass prenatal screening. Hastings Center Rep 16 (Oct): 5–7

    Article  CAS  Google Scholar 

  488. Tocqueville A de (1951; orig ed 1835 ) Democracy in America, vol I. Bradley P (ed) Alfred A Knopf, New York

    Google Scholar 

  489. U.S. Congress (1985) Health Research Extension Act of 1985, Legislative History, Public Law 99–158, pp 718–719

    Google Scholar 

  490. U.S. Congress, Office of Technology Assessment [1983] The role of genetic testing in the prevention of occupational disease. OTA-BA-194. U.S. Government Printing Office, Washington, DC

    Google Scholar 

  491. U.S. Congress, Office of Technology Assessment [1987] New developments in biotechnology 2: public perceptions of biotechnology.

    Google Scholar 

  492. U. S. Government Printing Office, Washington, DC U.S. Congress, Office of Technology Assessment (1988) The commercial development of tests for human genetic disorders, prepared by Hewitt M, Holtzman NA. OTA, Washington DC

    Google Scholar 

  493. U.S. Congress, Office of Technology Assessment (1988) Mapping our genes: genome projects: how big, how fast? Office of Technology Assessment, Washington DC, April

    Google Scholar 

  494. U.S., Department of Commerce, Bureau of the Census (1988) Statistical Abstract of the United States 1987. U.S. Government Printing Office, Washington, DC

    Google Scholar 

  495. U.S. Department of Commerce, Bureau of the Census (1988) Current population reports, series P-25, No. 1022, United States population estimates, by age, sex, and race: 1980 to 1987. U.S. Government Printing Office, Washington, DC

    Google Scholar 

  496. U. S. Department of Health, Education, and Welfare, Public Health Service, National Institutes of Health [1979] Antenatal diagnosis: report of a consensus conference. NIH Publication No. 79–1973, Bethesda, MD

    Google Scholar 

  497. U.S., National Center for Health Statistics: Advance report of final mortality statistics, 1985 [1987] Monthly Vital Statistics Report Vol.36, No.5, Suppl. DHHS Pub. No. (PHS) 87–1120.Public Health Service, Hyattsville, MD, August U. S., President’s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research [1982] Splicing life. U.S. Government Printing Office, Washington, DC, November

    Google Scholar 

  498. U. S., President’s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research [1983] Screening and counseling for genetic conditions. U. S. Government Printing Office, Washington, DC, February

    Google Scholar 

  499. University of Colorado School of Nursing [1987] Genetics applications for health professionals (prepared by Forsman I ) Lerner Managed Designs, Lawrence, KS

    Google Scholar 

  500. Walters L [1986] The ethics of human gene therapy. Nature 320: 225–227

    Article  PubMed  CAS  Google Scholar 

  501. Weigle G [1988] Are the medically uninsurable really uninsurable? In: Greenstein RM, Gardiner GB, Young DL (eds) The challenge to provide genetics services. Division of Human Genetics. University of Connecticut School of Medicine, Farmington, CT pp 148–154

    Google Scholar 

  502. Wertz DC, Fletcher JC [1988] Ethics and medical genetics in the United States: a national survey. Am J Med Genet 29: 815–827

    Article  PubMed  CAS  Google Scholar 

  503. Wertz DC, Sorenson JR [1983] Contraceptive use and efficacy in a genetically counseled population. Soc Biol 30 [3]: 328–334

    PubMed  CAS  Google Scholar 

  504. Wertz DC, Sorenson JR [1986] Client reactions to genetic counseling: self-reports of influence. Clin Genet 30: 494–502

    Article  PubMed  CAS  Google Scholar 

  505. Wertz DC, Sorenson JR [1989] Sociologic implications. In: Evans MI, Fletcher JC, Dixler AO, Schulman JD (eds) Fetal diagnosis and therapy: science, ethics, and the law. JB Lippincott, Philadelphia, pp 554–565

    Google Scholar 

  506. Wertz DC, Sorenson JR, Heeren TC [1984] Genetic counseling and reproductive uncertainty. Am J Med Genet 18 [1]: 79–88

    Article  PubMed  CAS  Google Scholar 

  507. Wertz DC, Sorenson JR, Heeren TC [1986] Clients’ interpretations of risks provided in genetic counseling. Am J Hum Genet 39: 253–264

    PubMed  CAS  Google Scholar 

  508. Wertz DC, Sorenson JR, Heeren TC (1988) Communication in health professional-lay encounters. In Ruben BD (ed) Information and Behavior 2. Transaction Books, New Brunswick, NJ, pp 329–342

    Google Scholar 

  509. Wertz DC, Sorenson JR, Heeren TC (1988 b) ‘Can’t get no (dis)satisfaction’: professional satisfaction with professional-client encounters.Work and Occupations 15 [1]: 36–54

    Article  Google Scholar 

  510. Wertz RW, Wertz DC [1989] Lying-in: a history of childbirth in America, enlarged edition. Yale University Press, New Haven [First ed 1977, Free Press, New York]

    Google Scholar 

  511. Zare N, Sorenson JR, Heeren TC [1984] Sex of provider as a variable in effective genetic counseling. Soc Sci Med 19: 671–675

    Article  PubMed  CAS  Google Scholar 

  512. Zelizer VA [1985] Pricing the priceless child: the changing social value of children. Basic Books, New York

    Google Scholar 

A Selected Bibliography of Bioethics in Australia: IVF and Human Embryo Research

  • Brumby M, Kasimba P [1987] When is cloning lawful? Journal of In Vitro Fertilization and Embryo Transfer, 4: 198–204

    Article  PubMed  CAS  Google Scholar 

  • Committee to consider the social, ethical, and legal issues arising from in vitro fertilization [1984] Report on the disposition of embryos produced by in vitro fertilization. Victorian Government Publishing Service, Melbourne

    Google Scholar 

  • Dawson K [1987] In vitro fertilisation: Legislation and problems of research. British Medical Journal, 295: 1184–1186

    Article  PubMed  CAS  Google Scholar 

  • Dawson K [1987] Fertilisation and moral status: A scientific perspective. Journal of Medical Ethics, 13: 173–178

    Article  PubMed  CAS  Google Scholar 

  • Dawson K, Hudson J (eds) [1987] IVF: The current debate. Centre for Human Bieothics, Clayton, Victoria

    Google Scholar 

  • Senate Select Committee on the Human Embryo Experimentation Bill 1985 [1986] Human embryo experimentation in Australia. Australian Government Publishing Service, Canberra

    Google Scholar 

  • Singer P, Kuhse H [1986] The ethics of embryo research. Law, Medicine and Health Care, 14: 133–137

    CAS  Google Scholar 

  • Singer P, Wells D [1984] The reproductive revolution. Oxford University Press, Oxford

    Google Scholar 

  • Unlacke S [1987] In vitro fertilization and the right to reproduce. Bioethics 1: 240–254

    Google Scholar 

Books on Ethics and Medical Genetics Published in Brazil

  • Fernandes PSL [1972] Aborto e infanticídio. Sugestões literarias, São Paulo

    Google Scholar 

  • Landmann J [1985] A ética médica sem máscara. Editora Guanabara, Rio de Janeiro

    Google Scholar 

  • Opitz, JM [1984] Tópicos recentes de Genética Clínica. Sociedade Brasileira de Genética, Ribeirão Preto

    Google Scholar 

  • Rocha E Jr [1985] Ética médica. Fórum nacional. Academia Nacional de Medicina, Rio de Janeiro

    Google Scholar 

  • Salzano FM [1979] Voce e sua heranca. Civilizacâo Brasileira, Rio de Janeiro

    Google Scholar 

  • Salzano FM [1983] A Genética e a Lei. Apliçagoes à Medicina Legal e à Biologia Social. TA Queiroz, Editor e Editora da Universidade de São Paulo, São Paulo

    Google Scholar 

  • Vieira S, Hossne WS [1987] Experimentaçao com seres humanos. Editora Moderna, São Paulo

    Google Scholar 

Bibliography on Ethics and Human Genetics in the GDR

  • Dietl HM (Hrg.): Eugenik. Entstehung und gesellschaftliche Bedingtheit. Medizin und Gesellschaft Bd. 22. VEB Gustav Fischer Verlag, Jena 1984

    Google Scholar 

  • Dietl HM, Gahse H, Kranhold H-G: Humangenetik in der sozialistischen Gesellschaft. VEB Gustav Fischer Verlag, Jena 1977

    Google Scholar 

  • Geissler E, Kosing A, Ley H, Scheler W (Hrg.): Philosophische und ethische Probleme in der Molekularbiologie. Akademie-Verlag, Berlin 1974

    Google Scholar 

  • Geissler E, Scheler W (Hrg.): Genetik engineering und der Mensch. Akademie-Verlag, Berlin 1981.

    Google Scholar 

  • Henning G: Kinderwunsch-Wunschkind? Weltanschaulich-ethische Aspekte der Geburtenregelung in der DDR. Dietz-Verlag, Berlin 1984

    Google Scholar 

  • Henning G, Reinhardt M, Knappe M, Wolf H-J: Gedanken und Vorschläge zur weiteren Optimierung der Familienplanung Dt. Gesundheitswesen 39 [1984] 12, 465–468

    Google Scholar 

  • Körner H, Körner U: Medizinische und ethische Probleme in der humangenetischen Beratung und pränatalen Diagnostik. In: Korner U, Seidel K, Thom A: Grenzsituationen arztlichen Handelns. Medizin und Gesellschaft Bdl3. VEB Gustav Fischer Verlag, Jena 1981 (1983 2.Aufl., 1984 3. Aufl.), 80–93

    Google Scholar 

  • Körner U: Vom Sinn und Wert des menschlichen Lebens. Dietz-Verlag, Berlin 1986

    Google Scholar 

  • Körner U, Seidel K, Thom A: Grenzsituationen arztlichen Handelns. In: Baust G, et al: Medizin und Gesellschaft Bd 13. VEB Gustav Fischer Verlag, Jena, 3. Aufl 1984

    Google Scholar 

  • Luther E (Hrg.): Beitrage zur Ethik in der Medizin. Medizin und Gesellschaft Bd. 19. VEB Gustav Fischer Verlag, Jena 1983

    Google Scholar 

  • Luther E (Hrg.): Ethik in der Medizin. VEB Verlag Volk und Gesundheit, Berlin 1986

    Google Scholar 

  • Presber W, Löther R (Hrg.): Sozialistischer Humanismus und Betreuung Geschädigter. Medizin und Gesellschaft Bd 14. VEB Gustav Fischer Verlag, Jena 1981

    Google Scholar 

  • Witkowski R, Prokop O: Genetik erblicher Syndrome und Mißbildungen. Wörterbuch für die Familienberatung. Akademie-Verlag Berlin, 1. Aufl. 1976

    Google Scholar 

Additional Bibliography on Ethics and Genetics

  • Arai K [1985] Examination of ethical and psychological issues in cases of genetic counseling. Rinsho iden kenkyu (Med Genet Res) 7: 68–72

    Google Scholar 

  • Higashi K [1985] Ethical views in genetic counseling — from a survey of parents with handicapped children, through a questionnaire. Rinsho iden kenkyu (Med Genet Res) 7: 75–79

    Google Scholar 

  • Ohkura K [1985] Application of human genetics including genetic counseling in clinical medicine — psychological and ethical view. Rinsho iden kenkyu (Med Genet Res) 6: 71–90

    Google Scholar 

  • Ohkura K [1985] Ethical and psychological issues in application of human genetics in clinical medicine. Rinsho iden kenkyu (Med Genet Res) 7: 57–66

    Google Scholar 

  • Ohkura K, Kimura R [1987] DNA diagnosis, gene therapy and bioethics. Medical Way 4: 51–60

    Google Scholar 

  • Tanaka A [1985] Medical ethics in case of chromosome aberration. Rinsho iden kenkyu (Med Genet Res) 7: 81–83

    Google Scholar 

Important Publications on Ethics and Human Genetics in Britain

  • Brazier M [1987] Medicine, patients and the law. Penguin Books, Harmondsworth

    Google Scholar 

  • Byrne P (ed) [1986] Rights and wrongs in medicine. King’s College Studies 1985–1986, King Edward’s Hospital Fund for London

    Google Scholar 

  • Campbell AV [1975] Moral dilemmas in medicine. Churchill Livingstone, Edinburgh

    Google Scholar 

  • Downie RS, Caiman KC [1987] Healthy respect: ethics in health care. Faber & Faber, London

    Google Scholar 

  • Gillon R [1986] Philosophical medical ethics. John Wiley & Sons for British Medical Journal, London

    Google Scholar 

  • Harris J [1985] The value of life: an introduction to medical ethics. Routledge & Kegan Paul, London

    Google Scholar 

  • Kennedy I [1983] The unmasking of medicine. Paladin, London

    Google Scholar 

  • Lockwood M (ed) [1985] Moral dilemmas in modern medicine. Oxford University Press, London

    Google Scholar 

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Rogers, J.G. et al. (1989). Standard Outline for Each Nation (2.1–2.19). In: Wertz, D.C., Fletcher, J.C. (eds) Ethics and Human Genetics. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-73656-8_3

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