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Health-Related Quality of Life: During and Following Critical Care

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Book cover Evaluating Critical Care

Part of the book series: Update in Intensive Care Medicine ((UICMSOFT,volume 35))

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A philosopher’s writings of 1843 conveyed the thought, “life can only be understood backwards, but it must be lived forwards” (Søren Kierkegaard). With this context applied to intensive care units (ICUs), we need to better understand the impact of critical care on patients who have lived through the experience and have survived. The nature and extent of that survival is, of course, of fundamental importance.

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References

  1. Heyland DK, Guyatt G, Cook Deborah J (1998) Frequency and méthodologie rigor of quality-of-life assessments in the critical care literature. Crit Care Med 26:592–598

    Article  Google Scholar 

  2. Clancy M, Eisenberg JM (1998) Outcomes research: Measuring the end results of health care. Science 282:245–246

    Article  PubMed  CAS  Google Scholar 

  3. McDowell I, Newll C (1996) The theoretical and technical foundations of health measurement. In: McDowell I, Newll C (eds) Measuring health: A guide to rating scales and questionnaires, 2nd edn. Oxford University Press, New York, pp 10–46

    Google Scholar 

  4. Juniper EF, Guyatt GH, Jaeschke R (1996) How to develop and validate a new health-related quality of life instrument. In: Spiker B (ed) Quality of life and pharmacoeconomics in clinical trials, 2nd edn. Lippincott-Raven Publishers, Philadelphia, pp 49–56

    Google Scholar 

  5. Feeny DH, Torrance GW, Furlong WJ (1996) Health utilities index. In: Spiker B (ed) Quality of life and pharmacoeconomics in clinical trials, 2nd edn. Lippincott-Raven Publishers, Philadelphia, pp 239–252

    Google Scholar 

  6. Guyatt GH, Feeny DH, Patrick DL (1993) Measuring health-related quality of life. Ann Intern Med 118:622–629

    PubMed  CAS  Google Scholar 

  7. Osoba D (1995) Measuring the effect of cancer on health-related quality of life. Pharmacoeconomics 7:308–319

    Article  PubMed  CAS  Google Scholar 

  8. Hillers TK, Guyatt GH, Oldridge N, et al (1994) Quality of life after myocardial infarction. J Clin Epidemiol 47:1287–1296

    Article  PubMed  CAS  Google Scholar 

  9. Feeny DH, Torrance GW (1989) Incorporating utility-based quality-of-life assessment measures in clinical trials: Two examples. Med Care 27:S190-S204

    Article  PubMed  CAS  Google Scholar 

  10. Guyatt G, Feeny D, Patrick D (1991) Issues in quality-of-life measurement in clinical trials. Control Clin Trials 12 (suppl 4):81S–90S

    PubMed  Google Scholar 

  11. Hays RD, Anderson R, Revicki D (1993) Psychometric considerations in evaluating health-realted quality of life measures. Qual Life Res 2:441–449

    CAS  Google Scholar 

  12. Deyo RA, Diehr P, Patrick D (1991) Reproducibility and responsiveness of health status measures. Control Clin Trials 12 (suppl 4):142S–158S

    Article  PubMed  CAS  Google Scholar 

  13. McCartney JR, Boland RJ (1994) Anxiety and delirium in the intensive care unit. Crit Care Clin 10:673–680

    PubMed  CAS  Google Scholar 

  14. Lloyd G (1993) Psychological problems and the intensive care unit. Br Med J 307:458–459

    Article  CAS  Google Scholar 

  15. Schwab RJ (1994) Disturbances of sleep in the intensive care unit. Crit Care Clin 10:681–695

    PubMed  CAS  Google Scholar 

  16. Griffin JP (1992) The impact of noise on critically ill people. Holistic Nurs Pract 6:53–56

    CAS  Google Scholar 

  17. Compton P (1991) Critical illness and intensive care: What it means to the client. Crit Care Nurs 11:50–56

    CAS  Google Scholar 

  18. Norrie P (1992) The intensive care experience. Nursing Times 88:40–42

    PubMed  CAS  Google Scholar 

  19. Hayden WR (1994) Life and near-death in the intensive care unit. Crit Care Clin 10:651–657

    PubMed  CAS  Google Scholar 

  20. Turner JS, Briggs S J, Springhorn HE, Potgieter PD (1990) Patients’ recollection of intensive care unit experience. Crit Care Med 18:966–968

    Article  PubMed  CAS  Google Scholar 

  21. Simpson TF, Armstrong S, Mitchell P (1989) Critical care management. Heart Lung 18:325–332

    PubMed  CAS  Google Scholar 

  22. Shih FJ, Chu SH (1999) Comparisons of American-Chinese and Taiwanese patients’ perceptions of dyspnea and helpful nursing actions during the intensive care unit transition from cardiac surgery. Heart Lung 28:41–54

    Article  PubMed  CAS  Google Scholar 

  23. Helpern EH, Patterson PA, Gloskey D, Bone RC (1992) Patients’ preferences for intensive care. Crit Care Med 20:43–47

    Article  Google Scholar 

  24. Holland C, Cason CL, Prater LR (1997) Patients’ recollections of critical care. Dimens Crit Care Nurs 16:132–141

    Article  PubMed  CAS  Google Scholar 

  25. Johnson MM, Sexton DL (1990) Distress during mechanical ventilation: patients’ perceptions. Crit Care Med 10:48–57

    CAS  Google Scholar 

  26. Green A (1996) An exploratory study of patients’ memory recall of their stay in an adult intensive therapy unit. Intensive Crit Care Nurs 12:131–137

    Article  PubMed  CAS  Google Scholar 

  27. Novaes M, Aronovich A, Ferraz MB, Knobel E (1997) Stressors in ICU: patients’ evaluation. Intensive Care Med 23:1282–1285

    Article  PubMed  CAS  Google Scholar 

  28. Valdix SW, Puntillo KA (1995) Pain, pain relief and accuracy of their recall after cardiac surgery. Prog Cardiovasc Nurs 10:3:3–11

    PubMed  CAS  Google Scholar 

  29. Puntillo KA (1990) Pain experiences of intensive care unit patients. Heart Lung 19:526–533

    PubMed  CAS  Google Scholar 

  30. Tittle M, McMillan SC (1994) Pain and pain-related side effects in an ICU and on a surgical unit: Nurses’s management. Am J Crit Care 3:25–30

    PubMed  CAS  Google Scholar 

  31. Ballard KS (1981) Identification of environmental stressors for patients in a surgical intensive care unit. Issues Ment Health Nurs 1:89–108

    Article  Google Scholar 

  32. Enastasy EL (1985) Identifying environmental stressors for cardiac surgery patients in a SICU. In: Proceedings of the 12th Annual National Teaching Institute of AACN. AACN, Newport Beach, p 357

    Google Scholar 

  33. Melzack R (1987) The short-form McGill pain questionnaire. Pain 30:191–197

    Article  PubMed  CAS  Google Scholar 

  34. Cleeland C (1985) Measurement and prevalence of pain in cancer. Semin Oncol Nurs 87–92

    Google Scholar 

  35. Falk S, Woods N (1973) Hospital noise levels and potential health hazards. N Engl J Med 289:774–781

    Article  PubMed  CAS  Google Scholar 

  36. King TA, Craddock J (1975) Measuring and reducing noise. Hospitals 49:85–90

    PubMed  Google Scholar 

  37. Topf M (1985) Noise induced stress in hospital patients: coping and nonauditory health outcomes. J Human Stress 11:3:125–134

    Article  PubMed  CAS  Google Scholar 

  38. Hilton A (1985) Noise in acute patient areas. Res Nurs Health 8:283–291

    Article  PubMed  CAS  Google Scholar 

  39. Snyder-Halpern R (1985) The effect of critical care unit noise on patient sleep cycles. CCQ 7:41–51

    PubMed  CAS  Google Scholar 

  40. Weber RJ, Soak MA, Bolender BJ, et al (1985) The intensive care unit syndrome: Causes, treatment and prevention. Drug Intell Clin Pharm 19:13–20

    CAS  Google Scholar 

  41. Suter P, Armaganidis A, Beaufils F, et al (1994) Predicting outcome in ICU patients. Intensive Care Med 20: 390–397

    Article  Google Scholar 

  42. Brooks R, Bauman A, Daffurn K, Hillman K (1995) Post-hospital outcome following intensive care. Clin Intensive Care 6: 127–135

    PubMed  CAS  Google Scholar 

  43. Sawdon V, Woods I, Proctor M (1995) Post-intensive care interviews: implications for future practice. Critl Care Nurs 11:329–332

    Article  CAS  Google Scholar 

  44. Daffurn K, Bishop GF, Hillman KM, Bauman A (1994) Problems following discharge after intensive care. Intensive Crit Care Nurs 10:244–251

    Article  PubMed  CAS  Google Scholar 

  45. Patrick DL, Danis M, Southerland LI, Hong G (1988) Quality of life following intensive care. J Gen Intern Med 3:218–223

    Article  PubMed  CAS  Google Scholar 

  46. Vazquez Mata G, Rivera Fernandez R, Gonzalez Carmona A, Delgado-Rodriguez M, Miguel Torres Ruiz J, Raya Pugnaire A, Aguayo De Hoyos E (1992) Factors related to quality of life 12 months after discharge from an intensive care unit. Crit Care Med 20:1257–1262

    Article  PubMed  CAS  Google Scholar 

  47. Rivera Fernandez R, Sanchez Cruz JJ, Vazquez Mata G (1996) Validation of a quality of life questionnaire for critically ill patients. Intensive Care Med 22:1034–1042

    Article  Google Scholar 

  48. Munn J, Willatts SM, Tooley MA (1995) Health and activity after intensive care. Anaesthesia 50:1017–1021

    Article  PubMed  CAS  Google Scholar 

  49. Brooks R, Kerridge R, Hillman K, Bauman A, Daffurn K (1997) Quality of life outcomes after intensive care: comparison with a community group. Intensive Care Med 23:581–586

    Article  PubMed  CAS  Google Scholar 

  50. Capuzzo M, Bianconi M, Contu P, Pavoni V, Gritti G (1996) Survival and quality of life after intensive care. Intensive Care Med 22:947–953

    Article  PubMed  CAS  Google Scholar 

  51. Rustom R, Daly K (1993) Quality of life after intensive care. Br J Nurs 2:316–320

    PubMed  CAS  Google Scholar 

  52. Tian ZM, Reis Miranda D (1995) Quality of life after intensive care with the sickness impact profile. Intensive Care Med 21:422–428

    Article  PubMed  CAS  Google Scholar 

  53. Short TG, Buckley TA, Rowbottom MY, Wong E, Oh TE (1999) Long-term outcome and functional health status following intensive care in Hong Kong. Crit Care Med 27:51–57

    Article  PubMed  CAS  Google Scholar 

  54. Hulsebos RG, Beltman FW, dos Reis Miranda D, Spangenberg JFA (1991) Measuring quality of life with the sickness impact profile: a pilot study. Intensive Care Med 17:285–288

    Article  PubMed  CAS  Google Scholar 

  55. Chrispin PS, Scotton H, Rogers J, Lloyd D, Ridley SA (1997) Short form 36 in the intensive care unit: assessment of acceptability, reliability and validity of the questionnaire. Anaesthesia 52:15–23

    Article  PubMed  CAS  Google Scholar 

  56. Ridley SA, Chrispin PS, Scotton H, Rogers J, Lloyd (1997) Changes in quality of life after intensive care: comparison with normal data. Anesthesia 52: 195–202

    Article  CAS  Google Scholar 

  57. Ridley SA, Wallace PGM (1990) Quality of life after intensive care. Anaesthesia 45:808–813

    Article  PubMed  CAS  Google Scholar 

  58. Hurel D, Loirat P, Saulnier F, Nicolas F, Brivet F (1997) Quality of life 6 months after intensive care: results of a prospective multicenter study using a generic health status scale and a satisfaction scale. Intensive Care Med 23:331–337

    Article  PubMed  CAS  Google Scholar 

  59. Perrins J, King N, Collings J (1998) Assessment of long-term psychological well-being following intensive care. Intensive Crit Care Nurs 14:108–116

    Article  PubMed  CAS  Google Scholar 

  60. Ridley S, Biggam M, Stone P (1994) A cost-utility analysis of intensive therapy. Anesthesia 49:192–196

    Article  CAS  Google Scholar 

  61. Konopad E, Noseworthy TW, Johnston R, Shustack A, Grace M (1995) Quality of life measures before and one year after admission to an intensive care unit. Crit Care Med 23:1653–1659.

    Article  PubMed  CAS  Google Scholar 

  62. Ware JE (1993) SF–36 Health Survey Manual and Interpretation Guide. The Medical Outcomes Trust, Boston

    Google Scholar 

  63. Bergner M, Bobbitt RA, Kressel S, Pollard WE, Gibson BS, Morris JR (1981) The sickness impact profile: development and final revision of a health status measure. Med Care 19: 787–805

    Article  PubMed  CAS  Google Scholar 

  64. Kind P, Rosser RM, Williams A (1982) Valuation of quality of life: some psychometric evidence. In: Jones-Lee MW (ed). The value of life and safety. North Holland Publishing Co, Amsterdam, pp 159–170

    Google Scholar 

  65. Katz S (1983) Assessing self-maintenance: activities of daily living, mobility, and instrumental activities of daily living. J Am Geriatr Soc 31:721–727

    PubMed  CAS  Google Scholar 

  66. Goldberg DP, Hillier VF (1979) A scaled version of the General Health Questionnaire. Psychol Med 9:139–145

    Article  PubMed  CAS  Google Scholar 

  67. Rosenberg M (1965) Society and the adolescent self-image. Princeton University Press, New Jersey

    Google Scholar 

  68. Horowitz M, Wilner N (1979) The impact of event scale: a measure of subjective stress. Psy-chosom Med 41: 209–218

    CAS  Google Scholar 

  69. Dupuy H. The Psychological General Well-being (PGWB) Index (1984) In: Wenger NK, Mattson ME, Furberg CD, Elinson (eds). Assessment of quality of life in clinical trials of cardiovascular therapies. Lejacq, New York.

    Google Scholar 

  70. Hunt SM, McKenna SP, McEwen J, Williams J, Rapp E (1981) The Nottingham Health Profile: subjective health status and medical consultations. Soc Sei Med 15A: 221–229

    Google Scholar 

  71. Spitzer WO, Dobson AJ, Hall J, et al (1981) Measuring the quality of life of cancer patients: A concise Quality of Life Index for use by physicians. J Chronic Dis 34:585–597

    Article  PubMed  CAS  Google Scholar 

  72. Rivera Fernandez R, Vazquez Mata G, Gonzalez Carmona A, et. al. (1991) Descripcion de una encuesta de calidad de vida en medicina intensive. Medica Intensiva 15:313–318

    Google Scholar 

  73. Rockwood K, Noseworthy TW, Gibney RTN, et al. (1993) One-year outcome of elderly and young patients admitted to intensive care units. Crit Care Med 21:687–691

    Article  PubMed  CAS  Google Scholar 

  74. Broslawski GE, Elkins M, Aigus M (1995) Functional abilities of elderly survivors of intensive care. J Am Osteopath Assoc 92:12:712–717

    Google Scholar 

  75. Chelluri L, Pinsky MR, Donahoe MP, Grenvik A (1993) Long-term outcome of critically ill elderly patients requiring intensive care. JAMA 269:3119–3123

    Article  PubMed  CAS  Google Scholar 

  76. Mahul Ph, Perrot D, Tempelhoff G, et al. (1991) Short- and long-term prognosis, functional outcome following ICU for elderly. Intensive Care Med 17:7–10

    Article  PubMed  CAS  Google Scholar 

  77. Chelluri L, Pinsky MR, Grenvik ANA (1992) Outcomes of intensive care of the “oldest-old” critically ill patients. Crit Care Med 20:757–761

    Article  PubMed  CAS  Google Scholar 

  78. Kass JE, Castriotta RJ, Malakoff F (1992) Intensive care unit outcome in the very elderly. Crit Care Med 20:1666–1671

    Article  PubMed  CAS  Google Scholar 

  79. Chelluri L, Grenvik A (1995) Intensive care for critically ill elderly: mortality, costs, and quality of life. Arch Intern Med 155:1013–1022

    Article  PubMed  CAS  Google Scholar 

  80. Rubins HB (1989) Intensive care and the elderly. Hospital Practice. January 30:9–12

    Google Scholar 

  81. Katz S, Downs TD, Cash HR, et al. (1970) Progress in development of the index of ADL. Gerontologist 10:20–30

    Article  PubMed  CAS  Google Scholar 

  82. Lawton MP (1971) The functional assessment of elderly people. J Am Geriatr Soc 19:465–481

    PubMed  CAS  Google Scholar 

  83. Lawton MP (1969) Assessment of older people: Self-maintaining and instrumental activities of daily living. Gerontologist 9:179–186

    Article  PubMed  CAS  Google Scholar 

  84. Sheikh JI, Yesavage JA (1986) Geriatric depression scale (GDS): Recent evidence and development of a shorter version. Clin Gerontol 4:165–173

    Google Scholar 

  85. Folstein MF, Folsttein SE, McHugh PR (1975) “Mini-mental state”: a practical method for grading the cognitive state of patients for the clinician. J Psychiat Res 12:189–198

    Article  PubMed  CAS  Google Scholar 

  86. Weissman MM, Sholomskas D, Pottenger M Prusoff BA, Locke B (1977) Assessing depressive symptoms in five psychiatric populations: a validation study. Am J Epidemiol 106: 203–214

    PubMed  CAS  Google Scholar 

  87. Fakhry SM, Kercher KW, Rutledge R (1996) Survival, quality of life, and charges in critically ill surgical patients requiring prolonged ICU stays. J Trauma 41:999–1007

    Article  PubMed  CAS  Google Scholar 

  88. Trouillet JL, Scheimberg A, Vuagnat A, Fagon JY, Chastre J, Gibert C (1996) Long-term outcome and quality of life of patients requiring multidisciplinary intensive care unit admission after cardiac operations. J Thorac Cardiovasc Surg 112:926–934

    Article  PubMed  CAS  Google Scholar 

  89. Heyland DK, Konopad E, Noseworthy TW, Johnston R, Gafni A (1998) Is it ‘worthwhile’ to continue treating patients with a prolonged stay (>14 days) in the ICU? An economic evaluation. Chest 114:192–198

    Article  PubMed  CAS  Google Scholar 

  90. Soderlind K, Rutberg H, Olin C (1997) Late outcome and quality of life after complicated heart operations. Ann Thorac Surg 63:124–128

    Article  PubMed  CAS  Google Scholar 

  91. McHugh GJ, Havill JH, Armistead SH, Ullal RR, Fayers TM (1997) Follow up of elderly patients after cardiac surgery and intensive care unit admission, 1991 to 1995. N Z Med J 110:432–435

    PubMed  CAS  Google Scholar 

  92. Nielsen D, Seligren J, Ricksten SE (1997) Quality of life after cardiac surgery complicated by multiple organ failure. Crit Care Med 25:52–57

    Article  PubMed  CAS  Google Scholar 

  93. Mata GV, Fernandez RR, Aragon AP, Carmona AG, Mondejar EF, Navarro PN (1996) Analysis of quality of life in polytraumatized patients two years after discharge from an Intensive Care Unit. J Trauma 41:326–332

    Article  Google Scholar 

  94. Thiagarajan J, Taylor P, Hogbin E, Ridley S (1994) Quality of life after multiple trauma requiring intensive care. Anaesthesia 49:211–218

    Article  PubMed  CAS  Google Scholar 

  95. McHugh LG, Milberg JA, Whitcomb ME et al. (1994) Recovery of function in survivors of the acute respiratory distress syndrome. Am J Respir Crit Care Med 150:90–94

    PubMed  CAS  Google Scholar 

  96. Schelling G, Stoll C, Haller M, et al. (1998) Health-related quality of life and posttraumatic stress disorder in survivors of the acute respiratory distress syndrome. Crit Care Med 26:651–659

    Article  PubMed  CAS  Google Scholar 

  97. McLauchlan GH, Anderson ID, Grant IS, Fearon KCH (1995) Outcome of patients with abdominal sepsis treated in an intensive care unit. Br J Surg 82:524–529

    Article  PubMed  CAS  Google Scholar 

  98. Yau E, Rohatiner AZS, Lister TA, Hinds CJ (1991) Long-term prognosis and quality of life following intensive care for life-threatening complications of haematological malignancy. Br J Cancer 64:938–942

    Article  PubMed  CAS  Google Scholar 

  99. Singh N, Gayowski T, Wagener MM (1997) Intensive care unit management in liver transplant recipients: beneficial effect on survival and preservation of quality of life. Clin Transplant 11:113–120

    PubMed  CAS  Google Scholar 

  100. Kivioja AH, Myllynen PJ, Rokkanen PU (1990) Is the treatment of the most severe multiply injured patients worth the effort? J Trauma 30:480–483

    PubMed  CAS  Google Scholar 

  101. Benzer H, Mutz N, Pauser G (1983) Psychological sequelae of intensive care. Int Anesthesi-ol Clin 21:1659–1678

    Google Scholar 

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Authors
  1. D. J. Kutsogiannis
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  2. T. Noseworthy
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Editor information

Editors and Affiliations

  1. Critical Care, University of Toronto, Canada

    William J. Sibbald MD, FRCPC, FCCHSE (Professor of Medicine, Physician-in-Chief) (Professor of Medicine, Physician-in-Chief)

  2. Department of Medicine, Sunnybrook and Women’s College, Health Sciences Centre, M4N 3M5, Toronto, Ontario, Canada

    William J. Sibbald MD, FRCPC, FCCHSE (Professor of Medicine, Physician-in-Chief) (Professor of Medicine, Physician-in-Chief)

  3. Department of Anesthesia and Intensive Care Medicine, University of Birmingham, Queen Elizabeth Hospital, B15 27H, Birmingham, UK

    Julian F. Bion FRCP, FRCA, MD (Reader and Regional Advisor in Intensive Care Medicine) (Reader and Regional Advisor in Intensive Care Medicine)

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Kutsogiannis, D.J., Noseworthy, T. (2002). Health-Related Quality of Life: During and Following Critical Care. In: Sibbald, W.J., Bion, J.F. (eds) Evaluating Critical Care. Update in Intensive Care Medicine, vol 35. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-56719-3_7

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  • DOI: https://doi.org/10.1007/978-3-642-56719-3_7

  • Publisher Name: Springer, Berlin, Heidelberg

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