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Vignette: The Journey of a Lifetime

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Rare Diseases in the Age of Health 2.0

Part of the book series: Communications in Medical and Care Compunetics ((CMCC,volume 4))

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Abstract

Imagine the craziest roller coaster you’ve ever been on, from the very highest peak to the lowest valley. That roller coaster is what my life has felt like being a mom to a child with MPS II. Incredible highs and terrifying lows.

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Authors and Affiliations

  1. 1449 Chamberlain Dr, North Vancouver, BC, V7K 1P8, Canada

    Deb Purcell

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  1. Deb Purcell
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Correspondence to Deb Purcell .

Editor information

Editors and Affiliations

  1. Health Design and Technology Institute, Coventry University, Coventry, United Kingdom

    Rajeev K. Bali

  2. International Council on Medical & Care Compunetics (ICMCC), Utrecht, The Netherlands

    Lodewijk Bos

  3. Johns Hopkins Urban Health Institute, Baltimore, Maryland, USA

    Michael Christopher Gibbons

  4. iBellieve Foundation, Toronto, Canada

    Simon Ibell

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© 2014 Springer-Verlag Berlin Heidelberg

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Purcell, D. (2014). Vignette: The Journey of a Lifetime. In: Bali, R., Bos, L., Gibbons, M., Ibell, S. (eds) Rare Diseases in the Age of Health 2.0. Communications in Medical and Care Compunetics, vol 4. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-38643-5_21

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  • DOI: https://doi.org/10.1007/978-3-642-38643-5_21

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  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-642-38642-8

  • Online ISBN: 978-3-642-38643-5

  • eBook Packages: EngineeringEngineering (R0)

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