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Der Erwachsene mit infantiler Zerebralparese

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Infantile Zerebralparese

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Zusammenfassung

Jedes Kind und jeder Jugendliche mit Zerebralparese wird zum Erwachsenen mit Zerebralparese, der mit den lebenslang fortbestehenden Auswirkungen seines Gehirnschadens weiterleben muss. Angesichts der Tatsache, dass sich bisher fast ausschließlich Kinderorthopäden mit diesem Krankheitsbild beschäftigt haben und die Patienten damit jenseits des 16.–18. Lebensjahres aus dem Blickfeld verschwinden, erscheint es besonders dringlich, sich auch mit den Schwierigkeiten der erwachsenen Lähmungspatienten auseinanderzusetzen. Fast alle Probleme, denen der Jugendliche aufgrund seiner Behinderung ausgesetzt ist, pflegen im Erwachsenenalter kontinuierlich stärker zu werden. Neue Probleme gesellen sich hinzu, an deren vorderster Stelle die Schmerzen am Bewegungsapparat stehen. Internistische und psychische Diagnosen bilden einen weiteren erschwerenden Faktor bei der Rehabilitation. So erscheint es besonders wichtig, auf die Änderungen der Lebensumstände im Erwachsenenalter, die auch mit einer erheblichen Reduktion in den Therapieangeboten einhergehen, hinzuweisen. Die Indikation zur Therapie und die Behandlungsmöglichkeiten sind grundlegend anders als im Kindes- und Jugendalter. Die funktionelle Verbesserung durch Operationen ist ungleich aufwendiger zu erreichen als im Wachstumsalter. Und nicht zuletzt auch die schleppende Kostenübernahme der Behandlungen macht die Versorgung Erwachsener zu einem bisher immer noch sehr unbefriedigenden Unterfangen.

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Literatur

  • Andersson C, Mattson E (2001) Adults with cerebral palsy: a survey describing problems, needs and resources with special emphasis on locomotion. Dev Med Child Neurol 43:76–82

    Article  CAS  PubMed  Google Scholar 

  • Andersson C, Grooten W, Hellsten M et al (2003) Adults with cerebral palsy: walking ability after progressive strength training. Dev Med Child Neurol 45(4):220–228

    Article  CAS  PubMed  Google Scholar 

  • Bleck EE (1987) Orthopaedic management in cerebral palsy Clinics in developmental medicine, Bd. 99/10. Mac Keith Press, London

    Google Scholar 

  • Boldingh EJ, van der Jacobs Bruggen MA, Bos CF et al (2005) Determinants of hip pain in adult patients with severe cerebral palsy. J Pediatr Orthop 14(2):120–125

    Article  Google Scholar 

  • Boldingh EJ, van der Jacobs Bruggen MA, Bos CF et al (2007) Radiographic hip disorders and associated complications in severe cerebral palsy. J Pediatr Orthop 16(1):31–34

    Article  Google Scholar 

  • Bottos M, Feliciangeli A, Sciuto L et al (2001) Functional status of adults with cerebral palsy and implications for treatment of children. Dev Med Child Neurol 43:516–528

    Article  CAS  PubMed  Google Scholar 

  • Chambers H (2008) Life goes on: a call to action. Dev Med Child Neurol 50:643

    Article  PubMed  Google Scholar 

  • Christiansen CH, Ottenbacher KJ (1998) Evaluation and management of daily self-care requirements. In: DeLisa JA, Gans BM (Hrsg) Rehabilitation medicine: principles and practice. Lippincott-Raven, Philadelphia, S 137–165

    Google Scholar 

  • Cooperman DR, Bartucci E, Dietrick E et al (1987) Hip dislocation in spastic cerebral palsy: long term consequences. J Pediatr Orthop 7:268–276

    Article  CAS  PubMed  Google Scholar 

  • Darrah J, Wessel J, Nearingburg P (1999) Evaluation of a community fitness program for adolescents with cerebral palsy. Pediatr Phys Ther 11:18–23

    Article  Google Scholar 

  • Day SM, Strauss DJ, Vachon PJ et al (2007a) Growth patterns in a population of children and adolescents with cerebral palsy. Dev Med Child Neurol 49(3):167–171

    Article  PubMed  Google Scholar 

  • Day SM, Wu YW, Strauss DJ et al (2007b) Changes in ambulatory ability of adolescents and young adults with cerebral palsy. Dev Med Child Neurol 49(9):647–653

    Article  PubMed  Google Scholar 

  • Edwards S (2004) Cerebral palsy in adult life. In: Scrutton D, Damiano D, Mayston M (Hrsg) Management of the motor disorders of children with cerebral palsy. Clinics in developmental medicin, Bd. 161. Mac Keith Press, London, S 170–182

    Google Scholar 

  • Engel JM, Kartin D, Jensen MP (2002) Pain treatment in persons with cerebral palsy: frequency and helpfulness. Am J Phys Med Rehabil 81:291–296

    Article  PubMed  Google Scholar 

  • Fernandes JE, Pitetti KH (1993) Training of ambulatory individuals with cerebral palsy. Arch Phys Med Rehab 74:468–472

    Article  Google Scholar 

  • Gajdosik CG, Cicirello N (2001) Secondary conditions of the musculoskeletal system in adolescents and adults with cerebral palsy. Phys Occup Ther Pediatr 21(4):49–68

    Article  CAS  PubMed  Google Scholar 

  • Haglund P (1923) Über die spastischen Zustände von orthopädischen Gesichtspunkten. In: Haglund P, Popper R (Hrsg) Die Prinzipien der Orthopädie: Versuch zu einem Lehrbuch der funktionellen Orthopädie. G. Fischer, Jena, S 629–670

    Google Scholar 

  • Hallum A, Krumboltz JD (1993) Parents caring for young adults with severe physical disabilities: psychological issues. Dev Med Child Neurol 35:24–32

    Article  CAS  PubMed  Google Scholar 

  • Hanna SE, Rosenbaum PL, Bartlett DJ et al (2009) Stability and decline in gross motor function among children and youth with cerebral palsy aged 2 to 21 years. Dev Med Child Neurol 51(4):295–302

    Article  PubMed  Google Scholar 

  • Hemming K, Hutton JL, Pharoah PO (2006) Long-term survival for a cohort of adults with cerebral palsy. Dev Med Child Neurol 48(2):90–95

    Article  PubMed  Google Scholar 

  • Hodgkinson I, Jindrich ML, Duhaut P (2001) Hip pain in 234 nonambulatory adolescents and young adults with cerebral palsy. Dev Med Child Neurol 43:806–808

    Article  CAS  PubMed  Google Scholar 

  • Hurvitz EA, Marciniak CM, Daunter AK et al (2013) Functional outcomes of childhood dorsal rhizotomy in adults and adolescents with cerebral palsy. J Neurosurg Pediatr 11(4):380–388

    Article  PubMed  Google Scholar 

  • Jahnsen R, Villien L, Stranghelle JK et al (2003) Fatigue in adults with cerebral palsy in Norway compared with the general population. Dev Med Child Neurol 45:296–303

    Article  PubMed  Google Scholar 

  • Koop SE (2009a) Muskuloskeletal growth and development. In: Gage JR, Schwartz MH, Koop SE, Novacheck TF (Hrsg) The identification and treatment of gait problems in cerebral palsy. Clinics in developmental medicine, Bd. 180/181. Mac Keith Press, London, S 21–30

    Google Scholar 

  • Koop SE et al (2009b) Postoperative care and rehabilitation. In: Gage JR, Schwartz MH, Koop SE (Hrsg) The identification and treatment of gait problems in cerebral palsy, 2. Aufl. Clinics in developmental medicine, Bd. 180/181. Mac Keith Press, London, S 534–545

    Google Scholar 

  • Liptak GS (2008) Health and well-being of adults with cerebral palsy. Curr Opin Neurol 21:136–142

    Article  PubMed  Google Scholar 

  • Mahoney FI, Barthel DW (1965) Functional evaluation: the Barthel-index. Md State Med J 14:61–65

    CAS  PubMed  Google Scholar 

  • Michelsen SI, Uldall P, Hansen T et al (2006) Social integration of adults with cerebral palsy. Dev Med Child Neurol 48(8):643–649

    Article  PubMed  Google Scholar 

  • Murphy KP (2009) Cerebral palsy lifetime care – four muskuloskeletal conditions. Dev Med Child Neurol 51(4):30–37

    Article  PubMed  Google Scholar 

  • Murphy KP, Molnar GE, Lankasky K (1995) Medical and functional status of adults with cerebral palsy. Dev Med Child Neurol 37:1075–1084

    Article  CAS  PubMed  Google Scholar 

  • Noonan KJ, Jones J, Pierson J et al (2004) Hip function in adults with severe cerebral palsy. J Bone Joint Surg 86:2607–2613

    PubMed  Google Scholar 

  • Olney SJ, Wright MJ (2006) Cerebral palsy. In: Campbell SK, Vanderlinden DW, Palisano RJ (Hrsg) Physical therapy for children, 3. Aufl. Saunders, St. Louis, S 625–664

    Google Scholar 

  • Opheim A, Jahnsen R, Olsson E et al (2009) Walking function, pain, and fatigue in adults with cerebral palsy: a 7-year follow-up study. Dev Med Child Neurol 51(5):381–388

    Article  PubMed  Google Scholar 

  • Pous JG, Cahuzac JP (1989) Physiopathologie des déformations orthopédiques chez l‘IMOC. In: LeBarbier P, Cahuzac JP (Hrsg) Infirmité motrice d‘origine cérébrale. Expansion scientifique française, Paris, S 19–21

    Google Scholar 

  • Schörle CM, Manolikakis G (2004) Die operative Behandlung der sekundären Hüftluxation bei der infantilen Zerebralparese. Orthopäde 33(10):1129–1137

    Article  PubMed  Google Scholar 

  • Shortland A (2009) Muscle deficits in cerebral palsy and early loss of mobility: can we learn something from our elders? Dev Med Child Neurol 51(4):59–63

    Article  PubMed  Google Scholar 

  • Spector RC (1990) Functional disability scales. In: Spilker B (Hrsg) Quality of life assessments in clinical trials. Raven Press, NewYork, S 115–129

    Google Scholar 

  • Steel HH (1980) Gluteus medius and minimus insertion advancement for correction of internal rotation gait in spastic cerebral palsy. J Bone Joint Surg Am 62(6):919–927

    CAS  PubMed  Google Scholar 

  • Strauss D, Brooks J, Rosenbloom L et al (2008) Life expectancy in cerebral palsy: an update. Dev Med Child Neurol 50:487–493

    Article  PubMed  Google Scholar 

  • Taylor NF, Dodd KJ, Graham HK (2004a) Test-retest reliability of hand-held dynamometric strength testing in young people with cerebral palsy. Arch Phys Med Rehabil 85(1):77–80

    Article  PubMed  Google Scholar 

  • Taylor NF, Dodd KJ, Larkin H (2004b) Adults with cerebral palsy benefit from participating in a strength training programme at a community gymnasium. Disabil Rehabil 26:1128–1134

    Article  PubMed  Google Scholar 

  • Thometz JG, Simon SR (1988) Progression of scoliosis after skeletal maturity in institutionalized adults who have cerebral palsy. J Bone Joint Surg Am 70(9):1290–1296

    CAS  PubMed  Google Scholar 

  • Tosi LL, Maher N, Moore DW et al (2009) Adults with cerebral palsy: a workshop to define the challenges of treating and preventing secondary musculoskeletal and neuromuscular complications in this rapidly growing population. Dev Med Child Neurol (Suppl 4) 51:2–11

    Article  Google Scholar 

  • Tubby AH, Jones R (1903) Modern methods of the surgery of paralyses. Macmillan, London

    Google Scholar 

  • Van der Slot WM, Nieuwenhuijsen C, Van den Berg-Emons RJ et al (2012) Chronic pain, fatigue and depressive symptoms in adults with spastic bilateral cerebral palsy. Dev Med Child Neurol 54(9):836–842

    Article  Google Scholar 

  • Zaffuto-Sforza CD (2005) Aging with cerebral palsy. Phys Med Rehabil Clin N Am 16:235–249

    Article  PubMed  Google Scholar 

Download references

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Authors and Affiliations

  1. Orthopädische Kinderklinik, Behandlungszentrum Aschau GmbH, Orthopädische Kinderklinik, Aschau im Chiemgau, Deutschland

    Leonhard Döderlein

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  1. Leonhard Döderlein
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Correspondence to Leonhard Döderlein .

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Döderlein, L. (2015). Der Erwachsene mit infantiler Zerebralparese. In: Infantile Zerebralparese. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-35319-2_16

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  • DOI: https://doi.org/10.1007/978-3-642-35319-2_16

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  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-642-35318-5

  • Online ISBN: 978-3-642-35319-2

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