Advertisement

Geschwister chronisch kranker Kinder und Jugendlicher

Chapter

Zusammenfassung

Im ersten Teil des vorliegenden Kapitels wird analysiert, ob Geschwister chronisch kranker Kinder und Jugendlicher im Vergleich zu Geschwistern gesunder Kinder in ihrer Entwicklung gefährdet sind. Im zweiten Teil wird der Frage nachgegangen, wie die Erkrankung eines Kindes die Beziehung zwischen den Geschwistern beeinflusst. Abschließend erfolgt ein kurzer Überblick über Maßnahmen zur Förderung der Geschwister chronisch kranker Kinder und Jugendlicher.

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

Literatur

Weiterführende Literatur

  1. Vermaes, I. P., van Susante, A. M. & van Bakel, H. J. (2012). Psychological functioning of siblings in families of children with chronic health conditions: A meta-analysis. Journal of Pediatric Psychology, 37, 166–185.Google Scholar

Zitierte Literatur

  1. Abramovitch, R., Stanhope, L., Pepler, D. & Corter, C. (1987). The influence of Down’s syndrome in sibling interaction. Journal of Child Psychology and Psychiatry, 28, 865–879.Google Scholar
  2. Achenbach, T. M. & Edelbrock, C. S. (1983). Manual for the Child Behavior Checklist and revised Child Behavior Profile. Burlington: University of Vermont.Google Scholar
  3. Alderfer, M. A., Long, K. A., Lown, E. A., Marsland, A. L., Ostrowski, N. L., Hock, J. M. & Ewing, L. J. (2010). Psychosocial adjustment of siblings of children with cancer: A systematic review. Psycho-Oncology, 19, 789–805.Google Scholar
  4. Barlow, J. H. & Ellard. D. R. (2004). Psycho-educational interventions for children with chronic disease, parents and siblings: An overview of the research evidence base. Child: Care, Health and Development, 30 (6), 637–654.Google Scholar
  5. Barlow, J. H. & Ellard, D. R. (2006). The psychosocial well-being of children with chronic disease, their parents and siblings: An overview of the evidence base. Child: Care, Health and Development, 32, 19–31.Google Scholar
  6. Besier,T., Hölling, H., Schlack, R.,West, C. & Goldbeck, L. (2010). Impact of a family-oriented rehabilitation programme on behavioural and emotional problems in healthy siblings of chronically ill children. Child: Care, Health and Development, 36, 686–695.Google Scholar
  7. Biermann, G. & Biermann, R. (1988). Schattenkinder. Kinderarzt, 19, 1305–1310.Google Scholar
  8. Bischoff, L. G. & Tingstrom, D. H. (1991). Siblings of children with disabilities: Psychological and behavioural characteristics. Counseling Psychology Quarterly, 4, 311–321.Google Scholar
  9. Boyce, G. C. & Barnett, W. S. (1993). Siblings of persons with mental retardation. In Z. Stoneman & P. W. Waldman Berman (Eds.), The effects of mental retardation, disability, and illness on sibling relationships (pp. 145–184). Baltimore: Paul H. Brookes.Google Scholar
  10. Burke, J. P. (2004). Brothers and sisters with disabled children. London: Kingsley.Google Scholar
  11. Cadman, D., Boyle, M. & Offord, D. (1988). The Ontario child health study: Social adjustment and mental health of siblings of children with chronic health problems. Journal of Developmental and Behavioral Pediatrics, 9, 117–121.Google Scholar
  12. Caro, P. & Derevensky, J. L. (1997). An exploratory study using the Siblings Interaction Scale: Observing interactions between siblings with and without disabilities. Education and Treatment of Children, 20, 383–403.Google Scholar
  13. Dallas, E., Stevenson, J. & McGurk, H. (1993). Cerebral-palsied children’s interaction with siblings: 1. Influence of the severity of disability, age and birth order. Journal of Child Psychology and Psychiatry, 34, 621–647.Google Scholar
  14. Derouin, D. & Jessee, P. O. (1996). Impact of a chronic illness in childhood. Issues in Comprehensive Pediatric Nursing, 19, 135–147.Google Scholar
  15. Dolgin, M. J., Somer, E., Zaidel, N. & Zaizov, R. (1997). A structured group intervention for siblings of children with cancer. Journal of Child and Adolescent Group Therapy, 1, 3–18.Google Scholar
  16. Drotar, D. & Crawford, P. (1987). Psychological adaptation of siblings of chronically ill children: Research and practice implications. In S. Chess & A. Thomas (Eds.), Annual progress in child psychiatry and child development (pp. 649–666). Philadelphia, PA: Brunner/Mazel.Google Scholar
  17. Farber, B. (1960). Family organization and parent-child communication: Parent and siblings of retarded child. Monographs of the Society for Research in Child Development 24 (2), 1–95.Google Scholar
  18. Farber, B. & Jenné, W. C. (1963). Family organization and parent child communication: Parents and siblings of retarded child. Monographs of the Society for Research in Child Development 28 (7), 3–78.Google Scholar
  19. Furman, W. & Buhrmester, D. (1985). Children’s perception of the qualities of sibling relationships. Child Development, 56, 448–461.Google Scholar
  20. Gardner, E. (1998). Siblings of chronically ill children: Toward an understanding of process. Clinical Child Psychology and Psychiatry, 3, 213–227.Google Scholar
  21. Gallo, A. M. & Knafl, K. A. (1993). Siblings of children with chronic illness. In Z. Stoneman & P. W. Waldman Berman (Eds.), The effects of mental retardation, disability, and illness on sibling relationships (pp. 215–234). Baltimore, MD: Paul H. Brookes.Google Scholar
  22. Guite, J., Lobato, D., Kao, B. & Plante, W. (2004). Discordance between sibling and parent reports of the impact of illness and disability on siblings. Children’s Health Care, 33, 77–92.Google Scholar
  23. Hartling, L., Milne, A., Tjosvold, L., Wrightson, D., Gallivan, J. & Newton, A. S. (2010). A systematic review of interventions to support siblings of children with chronic illness or disability. Journal of Paediatrics and Child Health. DOI: 10.1111/j.1440-1754.2010.01771.x.Google Scholar
  24. Houtzager, B. A., Grootenhuis, M. A. & Last, B. F. (1999). Adjustment of siblings to childhood cancer: A literature review. Supportive Care in Cancer, 7, 302–320.Google Scholar
  25. Houtzager, B. A., Grootenhuis, M. A., Hoekstra-Weebers, J. E. H. M. & Last, B. F. (2005). One month after diagnosis: Quality of life, coping and previous functioning in siblings of children with cancer. Child: Care, Health and Development, 31, 75–87.Google Scholar
  26. Howe, G. W. (1993). Siblings of children with disabilities and chronic illnesses. In Z. Stoneman & P. W. Waldman Berman (Eds.), The effects of mental retardation, disability, and illness on sibling relationships (pp. 185–213). Baltimore, MD: Paul H. Brookes.Google Scholar
  27. Jessop, D. & Stein, R. (1985). Uncertainty and its relation to the psychological and social correlates of impact of the disease. Social Science and Medicine, 20, 993–999.Google Scholar
  28. Kao, B., Plante, W. & Lobato, D. (2009). The use of the Impact on Siblings scale with families of children with chronic illness and developmental disability. Child: Care, Health and Development, 35, 505–509.Google Scholar
  29. Knott, F., Lewis, C. & Williams, T. (1995). Siblings interaction of children with learning disabilities: A comparison of autism and Down’s syndrome. Journal of Child Psychology and Psychiatry, 36, 956–976.Google Scholar
  30. Lobato, D. J. & Kao, B. T. (2005). Brief report: Family-based group intervention for young siblings of children with chronic illness and developmental disability. Journal of Pediatric Psychology, 30, 678–682.Google Scholar
  31. Lobato, D., Barbour, L., Hall, L. J. & Miller & C. T. (1987). Psychosocial characteristics of preschool siblings of handicapped and nonhandicapped children. Journal of Abnormal Child Psychology, 15, 329–338.Google Scholar
  32. Lobato, D. J., Faust, D. & Spirito, A. (1989). Examining the effects of chronic disease and disability on children’s sibling relationships. Journal of Pediatric Psychology, 13, 329–338.Google Scholar
  33. Lobato, D. J., Miller, C. T., Barbour, L., Hall, L. J. & Pezullo, J. (1991). Preschool siblings of handicapped children: Interaction with mother, brothers and sisters. Research in Developmental Disabilities, 12, 387–399.Google Scholar
  34. Pless, I. & Perrin, J. (1985). Issues common to a variety of illnesses. In N. Hobbs & J. Perrin (Eds.), Issues in the care of children with chronic illness. London: Jossey-Bass.Google Scholar
  35. McHale, S. M. & Gamble, W. C. (1988). Sibling relationships of children with disabled and nondisabled brothers and sisters. Developmental Psychology, 25, 421–429.Google Scholar
  36. McHale, S. M. & Pawletko, T. M. (1992). Differential treatment of siblings in two family contexts. Developmental Psychology, 63, 68–81.Google Scholar
  37. Moore, J. & Gaffney, K. (1989). Development of an instrument to measure mother’s performance of self-care activities for children. Advances in Nursing Science, 12, 76–84.Google Scholar
  38. Perrin, E. C., Newacheck, P., Pless, B., Drotar, D., Gortmarker, S. L., Leventhal, J. et al. (1993). Issues involved in the definition and classification of chronic health condition. Pediatrics, 91, 787–793.Google Scholar
  39. Quittner, A. L. & Opipari, L. C. (1994). Different treatment of siblings: Interview and diary analysis comparing two family contexts. Child Development, 65, 800–814.Google Scholar
  40. Roeyers, H. & Mycke, K. (1995). Siblings of a child with autism, with mental retardation and with normal development. Child: Care, Health and Development, 21, 305–319.Google Scholar
  41. Sharpe, D. & Rossiter, L. (2002). Siblings of children with chronic illness: A meta-analysis. Journal of Pediatric Psychology, 27, 699–710.Google Scholar
  42. Sidhu, R., Passmore, A. & Baker, D. (2006). The effectiveness of a peer support camp for siblings with cancer. Pediatric Blood & Cancer, 47, 580–588.Google Scholar
  43. Simeonsson, R. J. & McHale, S. M. (1981). Review: Research on handicapped children: Sibling relationships. Child: Care, Health and Development, 7, 153–171.Google Scholar
  44. Stein, R. E. K. & Jessop, D. J. (1982). A noncategorial approach to chronic childhood illness. Public Health Report, 97, 354–362.Google Scholar
  45. Stoneman, Z. & Brody, G. H. (1993). Sibling relations in the family context. In Z. Stoneman & P. Waldman Berman (Eds.), The effects of mental retardation, disability, and illness on sibling relationships (pp. 3–30). Baltimore, MD: Paul H. Brookes.Google Scholar
  46. Stoneman, Z., Brody, G. H., Davis, C. H. & Crapps, J. M. (1987). Mentally retarded children and their older same sex siblings: Naturalistic in-hone-observations. American Journal of Mental Retardation, 92, 290–298.Google Scholar
  47. Stoneman, Z., Brody, G. H., Davis, C. H. & Crapps, J. M. (1988). Childcare responsibilities, peer relations, and sibling conflict: Older siblings of mentally retarded children. American Journal of Mental Retardation, 93, 174–183.Google Scholar
  48. Summers, C. R., White, K. R. & Summers, M. (1994). Siblings of children with a disability: A review and analysis of empirical literature. Journal of Social Behavior and Personality, 9, 169–184.Google Scholar
  49. Thompson, A. B., Curtner, M. E. & O’Rear, M. R. (1994). The psychological adjustment of well siblings of chronically ill children. Children’s Health Care, 23, 211–226.Google Scholar
  50. Tröster, H. (1997). Disclose or conceal? Strategies of information management in persons with epilepsy. Epilepsia, 38, 1227–1237.Google Scholar
  51. Tröster, H. (1998). Coping with the stigma of epilepsy. Psychology, Health and Medicine, 3, 149–161.Google Scholar
  52. Tröster, H. (1999). Sind Geschwister behinderter oder chronisch kranker Kinder in ihrer Entwicklung gefährdet? Ein Überblick über den Stand der Forschung. Zeitschrift für Klinische Psychologie und Psychotherapie, 28, 160–176.Google Scholar
  53. Tröster, H. (2000a). Erhalten Geschwister behinderter oder chronisch kranker Kinder zu wenig elterliche Aufmerksamkeit? Heilpädagogische Forschung, 26, 26–35.Google Scholar
  54. Tröster, H. (2000b). Die Belastung der Geschwister behinderter Kinder durch Betreuungsaufgaben und Hausarbeit. Heilpädagogische Forschung, 26, 80–92.Google Scholar
  55. Tröster, H. (2001). Die Beziehung zwischen behinderten und nichtbehinderten Geschwistern. Ein Überblick über den Forschungsstand. Zeitschrift für Entwicklungspsychologie und Pädagogische Psychologie, 33, 2–19.Google Scholar
  56. Tröster, H. (2009). Stigma. In J. Bengel & M. Jerusalem (Hrsg.), Handbuch der Gesundheitspsychologie und Medizinischen Psychologie (S. 147–166). Göttingen: Hogrefe.Google Scholar
  57. Vermaes, I. P., van Susante, A. M. & van Bakel, H. J. (2012). Psychological functioning of siblings in families of children with chronic health conditions: A meta-analysis. Journal of Pediatric Psychology, 37, 166–185.Google Scholar
  58. Williams, P. D., Ridder, E. L., Setter, R. K., Liebergen, A., Curry, H., Piamjariyakul, U. & Williams, A. R. (2009). Pediatric chronic illness (cancer, cystic fibrosis) effects on well siblings: Parents’ voices. Issues in Comprehensive Pediatric Nursing, 32, 94–113.Google Scholar
  59. Williams, P. D. (1997). Siblings and pediatric chronic illness: A review of literature. International Journal of Nursing Studies, 34, 312–323.Google Scholar
  60. Wolf, L., Fisman, S., Ellison, D. & Freeman, T. (1998). Effects of sibling perception of differential treatment in sibling dyads with one disabled child. Journal of the American Academy of Child and Adolescent Psychology, 37, 1317–1325.Google Scholar
  61. Wood, L. J., Sherman, E., Hamiwka, L., Blackman, M. & Wirrel, E. (2008). Depression, anxiety, and quality of life in siblings of children with intractable epilepsy. Epilepsy & Bahavior, 13, 144–148.Google Scholar

Copyright information

© Springer-Verlag Berlin Heidelberg 2013

Authors and Affiliations

  1. 1.Fakultät Rehabilitationswissenschaften RehabilitationspsychologieTechnische Universität DortmundDortmundDeutschland

Personalised recommendations