Skip to main content
SpringerLink
Log in

Stressbewältigung und Krankheitsmanagement bei chronischer Krankheit in Kindheit und Adoleszenz

  • Chapter
  • First Online:
Wenn Kinder und Jugendliche körperlich chronisch krank sind

Zusammenfassung

Der folgende Beitrag analysiert Forschung auf dem Gebiet chronischer Erkrankung von Kindern und Jugendlichen mit dem Schwerpunkt Bewältigungsverhalten und Krankheitsmanagement. Im Kontext von Familien mit chronisch kranken Kindern und Jugendlichen werden wir in diesem Kapitel die individuelle Bewältigung durch das Kind bzw. den Jugendlichen, die elterliche Bewältigung durch die Mutter und, seltener, den Vater sowie die familiäre Bewältigung, d. h. die vereinten Bewältigungsbemühungen einer Familie, betrachten.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 39.99
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD 49.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

Literatur

Weiterführende Literatur

  • Roberts, M. C. & Steele, R. G. (2009). Handbook of pediatric psychology (4. ed.). New York: Guilford.

    Google Scholar 

Zitierte Literatur

  • Abrams, A. N., Hazen, E. P. & Penson, R. T. (2007). Psychological issues in adolescents with cancer. Cancer Treatment Review, 33, 622–630.

    Google Scholar 

  • Anderson, B. J. (2010). Living with depression and type 1 or type 2 diabetes in late adolescence and young adulthood: Lessons learned from research. Diabetes Spectrum, 23, 32–37.

    Google Scholar 

  • Anderson, B., Brackett, J., Ho, J. & Laffel, L. M. B. (1999). An office-based intervention to maintain parent-adolescent teamwork in diabetic management. Impact on parent involvement, family conflict, and subsequent glycemic control. Diabetes Care, 22, 713–721.

    Google Scholar 

  • Barlow, J. H. & Ellard, D. R. (2006). The psychosocial well-being of children with chronic disease, their parents and siblings: An overview of the research evidence base. Child: Care, Health & Development, 32, 19–31.

    Google Scholar 

  • Bender, B., Milgrom, H. & Apter, A. (2003). Adherence intervention research: What have we learned and what do we do next? Journal of Allergy and Clinical Immunology, 112, 489–494.

    Google Scholar 

  • Berg, C. A., King, P. S., Butler, J., Pham, P., Palmer, D. & Wiebe, D. J. (2011). Parental involvement and adolescents’ diabetes management: the mediating role of self-efficacy and externalizing and internalizing behaviors. Journal of Pediatric Psychology, 36, 329–339.

    Google Scholar 

  • Berntsson, L., Berg, M., Brydolf, M. & Hellström, A. L. (2007). Adolescents experiences of well-being when living with Literatur a long-term illness or disability. Scandinavian Journal of Caring Science, 21, 419–425.

    Google Scholar 

  • Björk, M., Wiebe, T. & Hallström, I. (2005). Striving to survive: Families‘ lived experiences when a child is diagnosed with cancer. Journal of Pediatric Oncology Nursing, 22, 265–275.

    Google Scholar 

  • Boeger, A., Seiffge-Krenke, I. & Schmidt, C. (1995). »Ein Körper für zwei«: Chronisch kranke Jugendliche und ihre Mütter. Forum Psychoanalyse, 11, 150–159.

    Google Scholar 

  • Brown, R. T., Wiener, L., Kupst, M. J., Brennan, T., Behrman, R., Compas, B. E., et al. (2008). Single parents of children with chronic illness: An understudied phenomenon. Journal of Pediatric Psychology, 33, 408–421.

    Google Scholar 

  • Bucks, R. S., Hawkins, K., Skinner, T. C. & Horn, S. (2009). Adherence to treatment in adolescents with cystic fibrosis: The role of illness perceptions and treatment beliefs. Journal of Pediatric Psychology, 34, 893–902.

    Google Scholar 

  • Burlew, A. K., Evans, R. & Oler, C. (1989). The impact of a child with sickle cell disease on family dynamics. Annals of the New York Academy of Sciences, 565, 161–171.

    Google Scholar 

  • Butow, S., Palmer, S., Pai, A., Goodenough, B., Luckett, T. & King, M. (2010). Review of adherence-related issues in adolescents and young adults with cancer. Journal of Clinical Oncology, 28, 4800–4809.

    Google Scholar 

  • Dean, A., Walters, J. & Hall, A. (2010). A systematic review of interventions to enhance medication adherence in children and adolescents with chronic illness. Archives of Disease in Children, 95, 717–723.

    Google Scholar 

  • Degotardi, P. J., Revenson, T. A. & Ilowite, N. T. (1999). Family-level coping in juvenile rheumatoid arthritis: Assessing the utility of a quantitative family interview. Arthritis Care and Research, 12, 314–324.

    Google Scholar 

  • Eapen, V., Mabrouk, A. & Bin-Othman, S. (2008). Attitudes, perceptions and family coping in pediatric cancer and childhood diabetes. Annals of New York Academy of Sciences, 1138, 47–49.

    Google Scholar 

  • Ellis, J. A. (1991). Coping with adolescent cancer: It‘s a matter of adaptation. Journal of Pediatric Oncology Nursing, 8, 10–17.

    Google Scholar 

  • Fletcher, P. C., Schneider, M. A. & Harry, R. J. (2010). How do I cope? Factors affecting mothers’ abilities to cope with pediatric cancer. Journal of Pediatric Oncology Nursing, 27, 285–298.

    Google Scholar 

  • Goldbeck, L. (2001). Parental coping with the diagnosis of childhood cancer: Gender effects, dissimilarity within couples, and quality of life. Psycho-Oncology, 10, 325–335.

    Google Scholar 

  • Hölling, H., Schlack, R., Dippelhofer, A. & Kurth, B. M. (2008). Personale, familiäre und soziale Schutzfaktoren und gesundheitsbezogene Lebensqualität chronisch kranker Kinder und Jugendlicher. Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz, 51, 606–620.

    Google Scholar 

  • Kahana, S., Frazier, T. & Drotar, D. (2008). Meta-analysis of psychological interventions to promote adherence to treatment in pediatric chronic health conditions. Journal of Pediatric Psychology, 33, 590–611.

    Google Scholar 

  • Kashikar-Zuck, S., Lynch, A. M., Slater, S., Graham, T. B., Swain, N. F. & Noll, R. B. (2008). Family factors, emotional functioning, and functional impairment in juvenile fibromyalgia syndrome. Arthritis Care & Research, 59, 1392–1398.

    Google Scholar 

  • Kirchheim, C., Seiffge-Krenke, I. & Sonntag-Dillender, M. (2002). Wie aktiv sind Familien mit Söhnen im Vergleich zu Familien mit Töchtern? Eine Analyse von Family Coping Scores in Familien mit an Diabetes erkrankten Jugendlichen. Zeitschrift für Gesundheitspsychologie, 10, 171–183.

    Google Scholar 

  • Kupst, M., Natta, M., Richardson, C., Schulman, J., Lavigne, J. & Das, L. (1995). Family coping with pediatric leukemia: ten years after treatment. Journal of Pediatric Psychology, 20, 601–617.

    Google Scholar 

  • Kyngäs, H. & Rissanen, M. (2001). Support as a crucial predictor of good compliance of adolescents with a chronic disease. Journal of Clinical Nursing, 10, 767–774.

    Google Scholar 

  • Kyngäs, H., Hentinen, M. & Barlow, J. H. (1998). Adolescents‘ perceptions of physicians, nurses, parents and friends: help or hindrance in compliance with diabetes self-care? Journal of Advanced Nursing, 27, 760–769.

    Google Scholar 

  • Kyngäs, H. A., Kroll, T. & Duffy M. E. (2000). Compliance in adolescents with chronic diseases: a review. Journal of Adolescent Health, 26, 379–388.

    Google Scholar 

  • Lazarus, R. S. & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.

    Google Scholar 

  • Lindström, C., Aman, J. & Norberg, A. L. (2010). Increased prevalence of burnout symptoms in parents of chronically ill children. Acta Paediatrica, 99, 427–432.

    Google Scholar 

  • Logan, D. E. & Scharff, L. (2005). Relationships between family and parent characteristics and functional abilities in children with recurrent pain syndromes: an investigation of moderating effects on the pathway from pain to disability. Journal of Pediatric Psychology, 30, 698–707.

    Google Scholar 

  • Luyckx, K. & Seiffge-Krenke, I. (2009). Continuity and change in glycemic control trajectories from adolescence to emerging adulthood: Relationships with family climate and self-concept in type 1 diabetes. Diabetes Care, 32, 797–801.

    Google Scholar 

  • Luyckx, K., Seiffge-Krenke, I., Schwartz, S. J., Goossens, L., Weets, I., Hendrieckx, C. & Groven, C. (2008). Identity development, coping, and adjustment in emerging adults with a chronic illness: The sample case of type 1 diabetes. Journal of Adolescent Health, 43, 451–458.

    Google Scholar 

  • Mitchell, M. J., Lemanek, K., Palermo, T. M. et al. (2007). Parent perspectives on pain management, coping, and family functioning in pediatric sickle cell disease. Clinical Pediatrics, 46, 311–319.

    Google Scholar 

  • Palmer, D. L., Osborn, P., King, P. S., Berg, C. A., Butler, J., Butner, J. & Wiebe, D. J. (2011). The structure of parental involvement and relations to disease management for youth with type 1 diabetes. Journal of Pediatric Psychology, 36, 596–695.

    Google Scholar 

  • Pereira, M. G., Berg-Cross, L., Almeida, P. & Machado, J. C. (2008). Impact of family environment and support on adherence, metabolic control, and quality of life in adolescents with diabetes. International Journal of Behavioral Medicine, 15, 187–193.

    Google Scholar 

  • Pinquart, M. & Shen, Y. (2011). Behavior problems in children and adolescents with chronic physical illness: A metaanalysis. Journal of Pediatric Psychology, 36, 1003–1016.

    Google Scholar 

  • Pletsch, P. K. & Stevens, P. E. (2001). Inclusion of children in clinical research: Lessons learned from mothers of diabetic children. Clinical Nursing Research, 10, 140–162.

    Google Scholar 

  • Preechawong, S., Zauszniewski, J. A., Heinzer, M. M., Musil, C. M., Kercsmar, C. & Aswinanonh, R. (2007). Relationships of family functioning, self-esteem and resourceful coping of Thai adolescents with asthma. Issues in Mental Health Nursing, 28, 21–36.

    Google Scholar 

  • Ravens-Sieberer, U., Wille, N., Nickel, J., Otto, V. & Erhart, M. (2009). Wohlbefinden und gesundheitsbezogene Lebensqualität aus einer bevölkerungsbezogenen Perspektive. Zeitschrift für Gesundheitspsychologie, 17, 56–68.

    Google Scholar 

  • Schmidt, S., Petersen, C. & Bullinger, M. (2003). Coping with chronic disease from the perspective of children and adolescents –a conceptual framework and its implications for participation. Child: Care, Health & Development, 29, 63–75.

    Google Scholar 

  • Seiffge-Krenke, I. (1998). Chronic disease and perceived developmental progression in adolescence. Developmental Psychology, 34, 1073–1084.

    Google Scholar 

  • Seiffge-Krenke, I. (2000). Zwischen Krankheitsanpassung und Entwicklungsprogression: Diabetische Jugendliche im Entwicklungsdilemma. In M. Bullinger, J. Siegrist & U. Ravens-Sieberer (Hrsg.), Jahrbuch der Medizinischen Psychologie (S. 273–288). Göttingen: Hogrefe.

    Google Scholar 

  • Seiffge-Krenke, I. (2001a). Diabetic adolescents and their families: Stress, coping an adaptation. Cambridge, UK: Cambridge University Press.

    Google Scholar 

  • Seiffge-Krenke, I. (2001b). »Am liebsten würde ich fliegen...«: Kindheitserfahrungen chronisch kranker Jugendlicher. In I. Behnken & J. Zinnecker (Hrsg.), Kinder. Kindheit. Lebensgeschichte. Ein Handbuch (S. 536–546). Kempten: Kösel.

    Google Scholar 

  • Seiffge-Krenke, I. (2002). »Come on, say something, Dad!«: Communication and coping in fathers of diabetic adolescents. Journal of Pediatric Psychology, 27, 439–450.

    Google Scholar 

  • Seiffge-Krenke, I. & Kirchheim, C. (2003). Differenzielle Unterschiede in der Krankheitsbewältigung in Familien mit chronisch kranken Jugendlichen. Zeitschrift für Medizinische Psychologie, 12, 133–143.

    Google Scholar 

  • Seiffge-Krenke, I. & Knebel, A. (2008). Veränderungen in der Stresswahrnehmungund-bewältigungbeiJugendlichen mit Diabetes im Vergleich zu gesunden Jugendlichen. Zeitschrift für Gesundheitspsychologie, 16, 171–182.

    Google Scholar 

  • Seiffge-Krenke, I. & Kollmar, F. (1996). Der jugendliche Diabetiker und sein Arzt: Diskrepanzen in der Einschätzung der Arzt-Patienten-Beziehung und der Compliance. Kindheit und Entwicklung, 5, 240–248.

    Google Scholar 

  • Seiffge-Krenke, I. & Nieder, T. (2001). Stress, Krankheit und Bewältigung: Bewältigen Jugendliche mit Diabetes Alltagsstressoren weniger kompetent als gesunde Jugendliche? Kindheit und Entwicklung, 10, 206–215.

    Google Scholar 

  • Seiffge-Krenke, I. & Schmidt, C. (1999). Das leistungsorientierte Familienklima in Familien mit chronisch kranken Jugendlichen: Funktional oder dysfunktional für die medizinische Adaptation? Zeitschrift für Klinische Psychologie, 28, 1–8.

    Google Scholar 

  • Seiffge-Krenke, I. & Skaletz, C. (2006). Chronisch krank und auch noch psychisch beeinträchtigt? Die Ergebnisse einer neuen Literaturrecherche. Praxis der Kinderpsychologie und Kinderpsychiatrie, 55, 73–90.

    Google Scholar 

  • Seiffge-Krenke, I. & Steinhausen, H. C. (1999). Chronische Erkrankungen im Jugendalter. In D. Palitzsch (Hrsg.), Jugendmedizin (S. 100–108). München: Urban & Fischer.

    Google Scholar 

  • Seiffge-Krenke, I. & Stemmler, M. (2003). Coping with everyday stress and links to medical and psychosocial adaptation in diabetic adolescents. Journal of Adolescent Health, 33, 180–188.

    Google Scholar 

  • Seiffge-Krenke, I., Nieder, T. & Hertel, M. (2001). Kommunikation und Coping von Vätern diabetischer Jugendlicher. Kindheit und Entwicklung, 10, 3–12.

    Google Scholar 

  • Simons, L. E., Claar, R. L. & Logan, D. E. (2008). Chronic pain in adolescence: Parental responses, adolescent coping, and their impact on adolescent’s pain behaviors. Journal of Pediatric Psychology, 33, 894–904.

    Google Scholar 

  • Stein, R. E. & Jessop, D. J. (1982). A noncategorical approach to chronic childhood illness. Public Health Reports, 97, 354–362.

    Google Scholar 

  • Sullivan-Bolyai, S., Deatrick, J., Gruppuso, P., Tamborlane, W. V. & Grey, M. (2002). Mother’s experiences raising young children with Type 1 diabetes. Journal for Specialists in Pediatric Nursing, 7, 93–103.

    Google Scholar 

  • Taylor, R. M., Gibson, F. & Franck, L. S. (2008). The experience of living with a chronic illness during adolescence: A critical review of the literature. Journal of Clinical Nursing, 17, 3083–3091.

    Google Scholar 

  • Tong, A., Lowe, A., Sainsbury, P. & Craig, J. C. (2010). Parental perspectives on caring for a child with chronic kidney disease: an in-depth interview study. Child: Care, Health and Development, 36, 549–557.

    Google Scholar 

  • Wennick A. & Hallstrom I. (2006). Swedish families’ lived experience when a child is first diagnosed as having insulin-dependent diabetes mellitus: An ongoing learning process. Journal of Family Nursing, 12, 368–389.

    Google Scholar 

  • White, T., Miller, J., Smith, G. L. & McMahon, W. M. (2009). Adherence and psychopathology in children and adolescents with cystic fibrosis. European Child and Adolescent Psychiatry, 18, 96–104.

    Google Scholar 

  • Wiebe, D. J., Berg, C. A., Korbel, C., Palmer, D. L., Beveridge, R. M., Beveridge, R. M. et al. (2005). Children’s appraisals of maternal involvement in coping with diabetes: Enhancing our understanding of adherence, metabolic control, and quality of life across adolescence. Journal of Pediatric Psychology, 30, 167–178.

    Google Scholar 

  • Wiehe, K. (2005). Zwischen Schicksalsschlag und Lebensaufgabe: Die Rolle subjektiver Krankheitstheorien bei der familiären Bewältigung chronischer Erkrankungen im Kindesalter. Unveröffentlichte Dissertation, Johannes Gutenberg-Universität Mainz.

    Google Scholar 

  • Wirlach-Bartosik, S., Schubert, M., Freilinger, M. & Schober, E. (2005). Familiendynamik bei chronischer Krankheit: Das diabeteskranke Kind im Kontext der Familie. Klinische Pädiatrie, 217, 253–258.

    Google Scholar 

  • Wong, M. G. & Heriot, S. A. (2008). Parents of children with cystic fibrosis: How they hope, cope and despair. Child: Care, Health and Development, 34, 344–354.

    Google Scholar 

Download references

Author information

Author notes

  1. Inge Seiffge-Krenke Prof. Dr.

    Present address: Fachbereich Psychologie, Philipps-Universität Marburg, Gutenbergstraße 18, 35032, Marburg, Deutschland

Authors and Affiliations

    Authors
    1. Inge Seiffge-Krenke Prof. Dr.
      View author publications

      You can also search for this author in PubMed Google Scholar

    Corresponding author

    Correspondence to Inge Seiffge-Krenke Prof. Dr. .

    Editor information

    Editors and Affiliations

    1. , Fachbereich Psychologie, Philipps-Universität Marburg, Gutenbergstraße 18, Marburg, 35032, Germany

      Martin Pinquart

    Rights and permissions

    Reprints and permissions

    Copyright information

    © 2013 Springer-Verlag Berlin Heidelberg

    About this chapter

    Cite this chapter

    Seiffge-Krenke, I. (2013). Stressbewältigung und Krankheitsmanagement bei chronischer Krankheit in Kindheit und Adoleszenz. In: Pinquart, M. (eds) Wenn Kinder und Jugendliche körperlich chronisch krank sind. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-31277-9_3

    Download citation

    • DOI: https://doi.org/10.1007/978-3-642-31277-9_3

    • Published:

    • Publisher Name: Springer, Berlin, Heidelberg

    • Print ISBN: 978-3-642-31276-2

    • Online ISBN: 978-3-642-31277-9

    • eBook Packages: Humanities, Social Science (German Language)

    Publish with us

    Policies and ethics

    Search

    Navigation