Abstract
Patient empowerment frameworks, including personal health records (PHR), actively engage technology empowered citizens in their healthcare. Particularly today, with the current increase of chronic diseases, the high growth rate of the elderly and disabled populations and at the same time the much higher cross-border patient mobility,such systems may prove to be lifesaving, cost effective and time saving. Currently, there are many different online applications promoted as being functional, user-friendly and detailed enough to provide a complete and accurate summary of an individual’s medical history. However, it seems that most of the Web services available do not fully adhere to well known accessibility standards, such as those promoted by the W3C, thus turning them away from people with disability and elderly people, who most probably need them most. Additionally, support for mobile devices introduces additional obstacles to users with disability when trying to operate such services. This paper presents fundamental (design for all) guidelines for the successful implementation of an accessible ePHR service that can be operated by any patient including people with disabilities irrespective of the device they use to access this service.
This is a preview of subscription content, log in via an institution to check access.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Preview
Unable to display preview. Download preview PDF.
References
Americans with Disabilities Act (ADA): ADA standards for accessible design, http://www.usdoj.gov/crt/ada/stdspdf.htm
Geven, A., Sefelin, R., Tscheligi, M.: Depth and breadth away from the desktop: the optimal information hierarchy for mobile use. In: Mobile HCI 2006, pp. 157–164 (2006)
Basdekis, I., Alexandraki, C., Mourouzis, A., Stephanidis, C.: Incorporating Accessibility in Web-Based Work Environments: Two Alternative Approaches and Issues Involved. In: Proceedings of the 11th HCI International 2005, Las Vegas, Nevada, USA (2005)
Basdekis, I., Karampelas, P., Doulgeraki, V., Stephanidis, C.: Designing Universally Accessible Networking Services for a Mobile Personal Assistant. In: Stephanidis, C. (ed.) UAHCI 2009, Part II. LNCS, vol. 5615, pp. 279–288. Springer, Heidelberg (2009)
Basdekis, I., Klironomos, I., Metaxas, I., Stephanidis, C.: An overview of web accessibility in Greece: a comparative study 2004-2008. Universal Access in the Information Society 9(2), 185–190 (2010)
Cabinet Office: eAccessibility of public sector services in the European Union (2005), http://webarchive.nationalarchives.gov.uk/20060925031332/cabinetoffice.gov.uk/e-government/resources/eaccessibility/
DeJong, G., Palsbo, S.E., Beatty, P.W., Jones, G.C., Knoll, T., Neri, M.T.: The organization and financing of health services for persons with disabilities. Milbank Quarterly 80, 261–301 (2002)
E.U. Communication COM/2004/0356 final, The eHealth action plan, http://eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=CELEX:52004DC0356:EN:HTML
Buchanan, G., Farrant, S., Jones, M., Thimbleby, H., Marsden, G., Pazzani, M.: Improving mobile internet usability. In: Proceedings of the 10th International Conference on World Wide Web, Hong Kong, May 1-5, pp. 673–680 (2001)
Government Accessibility Standards and WCAG 2.0, http://blog.powermapper.com/blog/post/Government-Accessibility-Standards.aspx
Karampelas, P., Basdekis, I., Stephanidis, C.: Web User Interface Design Strategy: Designing for Device Independence. In: Stephanidis, C. (ed.) UAHCI 2009, Part I. LNCS, vol. 5614, pp. 515–524. Springer, Heidelberg (2009)
Lober, W., Zierler, B., Herbaugh, A., Shinstrom, S., Stolyar, A., Kim, E., Kim, Y.: Barriers to the use of a Personal Health Record by an Elderly Population. In: AMIA Annu. Symp. Proc., pp. 514–518 (2006)
Neri, M.T., Kroll, T.: Understanding the Consequences of Access Barriers to Health Care: Experiences of Adults with Disabilities. Disability and Rehabilitation 25(2), 85–96 (2003)
Nomensa: United Nations global audit of web accessibility (2006), http://www.un.org/esa/socdev/enable/documents/fnomensarep.pdf
Stephanidis, C.: User Interfaces for All: New perspectives into Human-Computer Interaction. In: Stephanidis, C. (ed.) User Interfaces for All - Concepts, Methods, and Tools, pp. 3–17, 760 pages. Lawrence Erlbaum Associates, Mahwah (2001) ISBN 0-8058-2967-9
TAW tool, http://www.tawdis.net/taw3/cms/en
Taylor, D., Hoenig, H.: Access to health care services for the disabled elderly. Health Serv. Res. 41 (Pt 1), 743–758 (2006)
Total Validator, http://www.totalvalidator.com/
Tsiknakis, M., Spanakis, M.: Adoption of innovative eHealth services in prehospital emergency management: a case study. In: 10th IEEE International Conference on Information Technology and Applications in Biomedicine (ITAB), Corfu (November 2010)
UN - Convention on the Rights of Persons with Disabilities, http://www.un.org/disabilities/convention/conventionfull.shtml
U.S.Rehabilitation Act (1973). Section504 (1973), http://www.dol.gov/oasam/regs/statutes/sec504.htm
U.S.Rehabilitation Act (1973). Section 508 (1973), http://www.section508.gov/index.cfm?fuseAction=stdsdoc
W3C-WAI, Shared Web Experiences: Barriers Common to Mobile Device Users and People with Disabilities (2007), http://www.w3.org/WAI/mobile/experiences
W3C-WAI, Web Content Accessibility Guidelines 2.0, http://www.w3.org/TR/WCAG20/
W3C-WAI, Mobile Web Best Practices 1.0, http://www.w3.org/TR/mobile-bp/
W3C-ARIA Overview, http://www.w3.org/WAI/intro/aria
Web Portal of the Hellenic General Secretariat for Research and Technology, Ministry of Education and Lifelong Learning, http://www.gsrt.gr
Web portal Universally Accessible eServices for Disabled People, http://www.ameanet.gr
West, D.M., Miller, E.A.: The digital divide in public e-health: Barriers to accessibility and privacy in state health department websites. Journal of Health Care for the Poor and Underserved 17, 652–667 (2006)
Author information
Authors and Affiliations
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2012 ICST Institute for Computer Science, Social Informatics and Telecommunications Engineering
About this paper
Cite this paper
Basdekis, I., Sakkalis, V., Stephanidis, C. (2012). Towards an Accessible Personal Health Record. In: Nikita, K.S., Lin, J.C., Fotiadis, D.I., Arredondo Waldmeyer, MT. (eds) Wireless Mobile Communication and Healthcare. MobiHealth 2011. Lecture Notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering, vol 83. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-29734-2_9
Download citation
DOI: https://doi.org/10.1007/978-3-642-29734-2_9
Publisher Name: Springer, Berlin, Heidelberg
Print ISBN: 978-3-642-29733-5
Online ISBN: 978-3-642-29734-2
eBook Packages: Computer ScienceComputer Science (R0)