Untapped Markets in Cloud Computing: Perspectives and Profiles of Individuals with Intellectual and Developmental Disabilities and Their Families

  • Ann Cameron Caldwell
Part of the Lecture Notes in Computer Science book series (LNCS, volume 6766)


People with intellectual and developmental disabilities (I/DD) and their families represent an untapped market for the cloud computing industry. There is a great need to develop alternative cloud-based care supports as traditional methods of care become more difficult to obtain. Contrary to some perspectives, many people with I/DD are capable of using cloud computing technology; they and their families are a viable consumer market. Advances in civil rights and self-determination principles regarding people with I/DD have secured their acknowledged position as a natural constituency of society; however, too often they are left out of consideration of social design. Excluding the needs of people with I/DD in cloud computing consideration, design and structure may put them at risk for further marginalization in human society. This paper discusses the profile of the global I/DD population, self-determination principles, and family perspectives of technology.


disabilities intellectual universal access family perspectives underserved populations developmental disabilities 


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  1. 1.
    Caldwell, A., Larson, S., Lakin, C., Anderson, L.: The Arc Family and Individual Needs for Disability Supports Survey: Findings from a National Survey of Families Connected to Intellectual and Developmental Disabilities. The Arc of the United States, Washington, DC (in press)Google Scholar
  2. 2.
    Braddock, D., Rizzolo, M.C., Thompson, M., Bell, R.: Emerging technologies and cognitive disability. J. of Special Ed. Tech. 19(4), 49–56 (2004)CrossRefGoogle Scholar
  3. 3.
    American Association on Intellectual and Developmental Disabilities. Definition of Intellectual and Developmental Disabilities (2011) , (retrieved on line on January 15, 2011)
  4. 4.
    U.S. Public Law 111-256. Rosa’s Law Google Scholar
  5. 5.
    Fujiura, G.T., Park, H.J., Rutkowski-Kmitta, V.: Disability Statistics in the Developing World: A Reflection on the Meanings in our Numbers. J. of Appl. Res. in Int. Dis. 18, 295–304 (2005)CrossRefGoogle Scholar
  6. 6.
    Institute of Medicine Neurological, Psychiatric, and Developmental Disorders. National Academy Press, Washington, DC (2001)Google Scholar
  7. 7.
    McLaren, J., Bryson, S.E.: Review of recent epidemiological studies of mental retardation: prevalence, associated disorders, and etiology. Am. J. on Men. Ret. 92, 245–254 (1987)Google Scholar
  8. 8.
    Murray, C.J.L., Lopez, A.D.: Global and regional descriptive epidemiology of disability: incidence, prevalence, health expectancies and years lived with a disability. In: Murray, C.J.L., Lopez, A.D. (eds.) The Global Burden of Disease, vol. 1, pp. 201–246. Harvard University Press, Cambridge (1996)Google Scholar
  9. 9.
    Hetzel, B.S.: The control of iodine deficiency. Am. J. of Pub. Health 83, 494–495Google Scholar
  10. 10.
    World Health Organization.: Micronutrient Deficiency Information System Project. Global Prevalence of Iodine Deficiency Disorders (MDIS Working Paper, No. 1). WHO, Geneva (1993) Google Scholar
  11. 11.
    Fujiura, et al. (2005)Google Scholar
  12. 12.
    Marks, D.: Models of disability. Dis. & Rehab. 19(30), 85–91 (1997)CrossRefGoogle Scholar
  13. 13.
    Caldwell, J.: Experiences of families with relatives with intellectual and developmental disabilities in a consumer-directed support program. Dis. & Soc. 22(6), 549–562 (2007)CrossRefGoogle Scholar
  14. 14.
    Fujiura, et al. (2005)Google Scholar
  15. 15.
    The Developmental Disabilities Assistance and Bill of Rights Act of 2000. Print Version [pdf 251k]. PUBLIC LAW 106-402–October 30, 2000 114 STAT. 1677 (2000) Google Scholar
  16. 16.
    Braddock, D.: Washington Rises: Public Financial Support for intellectual Disability in the United States, 1995-2004. Men. Ret. and Dev. Dis. Res. Rev. 13, 169–177 (2007)CrossRefGoogle Scholar
  17. 17.
    Heller, T., Factor, A.: Aging family caregivers: support resources and changes in burden and placement desire. Am. J. of Men. Ret. 98, 417–426 (1993)Google Scholar
  18. 18.
    Braddock, D. (2007) Google Scholar
  19. 19.
    Pruchno, R., McMullen, A.: Patterns of service utilization by adults with a developmental disability: type of service makes a difference. Am. J. of Men. Ret. 9, 361–362 (2004)Google Scholar
  20. 20.
    Anderson, L., Prouty, R., Lakin, C.: People living in settings other than congregate care account for 44% of HCBS recipients. Men. Ret. 37(5), 428–429 (1999)CrossRefGoogle Scholar
  21. 21.
    Nirje, B.: The right to self- determination. In: Wolfensberger, W. (ed.) Normalization, pp. 177–193. National Institute on Mental Retardation, Ontario (1972)Google Scholar
  22. 22.
    Wehmeyer, M.L.: Beyond Self-Determination: Causal Agency Theory. Self-determination and individuals with significant disabilities: Examining meanings and misinterpretations. J. of Dev. and Phys. Dis. 16(4), 5–16 (2004)Google Scholar
  23. 23.
    Chambers, C., Wehmeyer, M., Saito, Y., Singh, V.: Self-determination: What do we know? Where do we go? Exceptionality 15(1), 3–15 (2007)CrossRefGoogle Scholar
  24. 24.
    Wehmeyer, M., Schwartz, M.: The relationship between self-determination, quality of life, and life satisfaction for adults with mental retardation. Ed. and Training in Men. Ret. and Dev. Dis. 33, 3–12 (1998)Google Scholar
  25. 25.
    United Nations.: UN Convention on the Rights of Persons with Disabilities. On line report, (retrieved January 12, 2011)
  26. 26.
    Technology Related Assistance for Individuals with Disabilities Act of 1988 (Pub. L. 100-407) Assistive Tech. Act of 1998 (Pub. L. 105-394), (Title 29, Chapter 31, § 3002(a)(3)) Google Scholar
  27. 27.
    Mirenda, P.: Autism, augmentative communication, and assistive technology.: What do we really know? Focus on Autism and Other Dev. Dis. 16(3), 141–151 (2001)CrossRefGoogle Scholar
  28. 28.
    Kurzweil, R.: The age of intelligent machines. MIT Press, Cambridge (1990)Google Scholar
  29. 29.
    Kurzweil, R.: The age of spiritual machines: When computers exceed human intelligence. Viking, New York (1999)Google Scholar
  30. 30.
    Kurzweil, R.: The intelligent universe. The Edge (November 7, 2002), Retrieved from
  31. 31.
    Braddock, et al. (2004)Google Scholar
  32. 32.
    Hammel, J., Lai, J.S., Heller, T.: The impact of assistive technology and environmental interventions on function and living situation status with people who are ageing with developmental disabilities. Dis. & Rehab. 24(1/2/3), 93–105 (2002)CrossRefGoogle Scholar

Copyright information

© Springer-Verlag Berlin Heidelberg 2011

Authors and Affiliations

  • Ann Cameron Caldwell
    • 1
  1. 1.The Arc of the United StatesUSA

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