Abstract
Since the beginning of this century, the view has developed that high quality health care can be delivered only when all the pertinent data about the health of a patient is available to the clinician. This viewpoint brings forth the notion of a lifelong health record. Various types of health records have emerged to serve the needs of healthcare providers and more recently, patients or consumers. The purpose of this paper is to present a set of characteristics or best practices for lifelong health records which are seen independently from implementation constraints such as technology and operational context. The characteristics, comprised by four core characteristics and nine dimensions, are synthesized from the characteristics of various types of health records used by healthcare providers and consumers. Examples are provided of evaluation measures that give an indication of compliance to the broadly stated characteristics of lifelong health records.
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Christopher, J., Feahr, O.D.: The Electronic Health Record – A Fresh Perspective. OptiServ Consulting (2003)
The American Heritage® Medical Dictionary. Health Record - Definition of Health Record in Medical Dictionary (January 1, 2007), The Free Dictionary’s Medical dictionary, http://medical-dictionary.thefreedictionary.com/Health+record (retrieved January 18, 2010)
Wainer, J.: Security Requirements for a Lifelong Electronic Health Record System: An Opinion. The Open Medical Informatics Journal, 160–165 (2008)
BIBLIOGRAPHY \l 7177 Answer My Health Question, Medical Error Statistics. Answer my Health Question (2006), http://www.answer-my-health-question.info/medical-error-statistics.html (retrieved January 5, 2010)
Kahn, J.S., Aulakh, V., Bosworth, A.: What It Takes: Characteristics of The Ideal Personal Health Record. Health Affairs, 369–376 (2009)
BMC Medical Informatics and Decision Making. Integrated personal health records: Transformative tools for consumer-centric care. BioMed. Central, 8–45 (2008)
Heinold, J., Stone, D., MacClary, M.: PHR Consumer Guide (May 14, 2009), http://www.stoneandheinold.com/consumers/consumers2.pdf (retrieved November 12, 2009)
Early experiences with Personal Health Records. JAMIA Journal of the American Medical Informatics Association, 1–7 (2008)
van der Linden, H.: Inter-organizational future proof EHR systems - A review of the security and privacy related issues. International Journal of Medical Informatics, 141–160 (2009)
Brailer, D.J.: Interoperability: The Key To The Future Health Care System (January 19, 2005), Healt Affairs from, http://content.healthaffairs.org/cgi/content/full/hlthaff.w5.19/DC1 (retrieved January 31, 2010)
Health Informatics. Health Informatics TC215 (2009), Transforming Healthcare Through IT from, http://www.himss.org/ASP/topics_ISO.asp (retrieved January 3, 2010)
Groen, P.J.: Personal Health Record (PHR) Systems: An Evolving Challenge to EHR Systems (July 22, 2007), Virtual Medical Worlds from, http://www.hoise.com/vmw/07/articles/vmw/LV-VM-08-07-26.html (retrieved February 4, 2010)
P2PFoundation. Apomediation (August 30, 2008), P2PFoundation from, http://p2pfoundation.net/Apomediation (retrieved November 16, 2009)
Zacharias, E.: Penalties for HIPAA Violations Increase Significantly (November 23, 2009), Health Care Law Reform from, http://www.healthcarelawreform.com/articles/health-it/ (retrieved February 9, 2010)
A Research Agenda for Personal Health Records (PHRs). JAMIA Journal of the American Medical Informatics Association, 729–736 (2008)
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van der Westhuizen, E., Pottas, D. (2010). Towards Characteristics of Lifelong Health Records. In: Takeda, H. (eds) E-Health. E-Health 2010. IFIP Advances in Information and Communication Technology, vol 335. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-15515-4_7
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DOI: https://doi.org/10.1007/978-3-642-15515-4_7
Publisher Name: Springer, Berlin, Heidelberg
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