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Childhood Leukemia pp 285–301Cite as

Appreciation and the Interdisciplinary Management of the Psychosocial Impact of Leukemia on Children and Their Families

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Part of the book series: Pediatric Oncology ((PEDIATRICO))

Abstract

Because of the life-altering and potentially lingering psychosocial effects of leukemia on children and families, pediatric health professionals have developed a variety of interventions to mitigate family distress. Psychosocial health services are psychological and social services and interventions that enable patients, their families, and health care providers to optimize biomedical health care and to manage the psychological/behavioral and social aspects of illness and its consequences so as to promote better health (IOM 2008). Interventions are shaped by, informed by, and/or delivered by psychologists, psychiatrists, social workers, nurses, and chaplains, as well as by oncology subspecialists, ethicists, patients and their families, and advocacy organizations (Holland 2003). These interventions vary in their target population (patients, siblings, and/or parents and other family caregivers), settings, and characteristics. For example, a recent review of psychosocial health services for cancer patients and their families by the United States Institute of Medicine (IOM) found some interventions that were derived from a theoretical framework, some that were based on research evidence, and some that had undergone empirical testing; few evidenced all three characteristics (IOM 2008). Nevertheless, the IOM identified five common elements of models for the effective delivery of psychosocial health services: (1) identifying psychosocial health needs, (2) connecting patients and families to needed services, (3) supporting them in managing the illness, (4) coordinating psychosocial care with biomedical care, and (5) following up on care delivery to evaluate the effectiveness of these services (Fineberg 2008).

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Authors and Affiliations

  1. Division of Oncology, Center for Cancer and Blood Disorders, Children’s National Medical Center, Washington, DC, USA

    Anne L. Angiolillo

  2. Department of Pediatrics, University of Milano-Bicocca, San Gerardo Hospital, Monza, Italy

    Momcilo Jankovic

  3. Epidemiology and Biostatistics Section, Scientific Directorate & Department of Hematology/Oncology, Gaslini Children’s Hospital, Genova, Italy

    Riccardo Haupt

  4. Children’s Hospital, Los Angeles, CA, USA

    Kathleen Ruccione

  5. Alcohol Research Group, Emeryville, CA, USA

    E. Anne Lown

  6. Developmental and Behavioral Pediatrics, Department of Pediatrics, Children’s Hospital of Pittsburgh, Pittsburgh, PA, USA

    Robert B. Noll

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  1. Anne L. Angiolillo
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  4. Kathleen Ruccione
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  5. E. Anne Lown
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  6. Robert B. Noll
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Correspondence to Anne L. Angiolillo .

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Editors and Affiliations

  1. School of Medicine & Health Sciences, George Washington University, EW. Highway 4600, Bethesda, 20814, Maryland, USA

    Gregory H. Reaman

  2. Cincinnati Children's Hospital, Medical Center (CCHMC), University of Cincinnati, Burnett Avenue 3333, Cincinnati, 45229, Ohio, USA

    Franklin O. Smith

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Angiolillo, A.L., Jankovic, M., Haupt, R., Ruccione, K., Lown, E.A., Noll, R.B. (2011). Appreciation and the Interdisciplinary Management of the Psychosocial Impact of Leukemia on Children and Their Families. In: Reaman, G., Smith, F. (eds) Childhood Leukemia. Pediatric Oncology. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-13781-5_11

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  • DOI: https://doi.org/10.1007/978-3-642-13781-5_11

  • Published:

  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-642-13780-8

  • Online ISBN: 978-3-642-13781-5

  • eBook Packages: MedicineMedicine (R0)

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