Abstract
The German Childhood Cancer Registry (GCCR) annually registers approx. 1,800 children diagnosed with a malignant disease (completeness of registration >95%) (Kaatsch 2004). While most pediatric cancer patients are diagnosed and treated according to standardized cooperative protocols of the German Society for Pediatric Oncology and Hematology (GPOH), a significant proportion of patients with rare tumors do not fully benefit from the sophisticated network, including study and reference centers (Schneider and Brecht 2010).
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Brecht IB, Graf N et al (2009) Networking for children and adolescents with very rare tumors: foundation of the GPOH Pediatric Rare Tumor Group. Klin Pädiatr 221(3):181–185
Kaatsch P (2004) German Childhood Cancer Registry and its favorable setting. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz 47(5):437–443
Schneider DT, Brecht IB (2010) Care for rare cancers: improved care requires improved communication. Klin Pädiatr 222(3):124–126
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© 2012 Springer-Verlag Berlin Heidelberg
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Brecht, I.B., Schneider, D.T. (2012). Germany. In: Schneider, D., Brecht, I., Olson, T., Ferrari, A. (eds) Rare Tumors In Children and Adolescents. Pediatric Oncology. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-04197-6_8
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DOI: https://doi.org/10.1007/978-3-642-04197-6_8
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