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A mHealth Patient Passport for Adult Cystic Fibrosis Patients

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Wireless Mobile Communication and Healthcare (MobiHealth 2017)

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Abstract

Life expectancy for some Cystic Fibrosis (CF) patients is rising and new complications and procedures are predicted. Subsequently there is need for education and management interventions that can benefit CF adults. This paper proposes a CF patient passport to record basic medical information through a smartphone application (app), giving the patient access to their own data. It is anticipated that such an app will be beneficial to patients when travelling abroad and between CF centres. This app is designed by a CF multidisciplinary team to be a lightweight reflection of a current patient file. The passport app is created using PhoneGap so that is can be deployed for both Android and iOS devices. The app is introduced to seven participants as part of a stress test. The app is found to be usable and accessible. The app is now being prepared for a pilot study with adult CF patients.

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Acknowledgements

We would like to acknowledge funding from the European Commission for CFMATTERS, Grant agreement 603038.

Author information

Authors and Affiliations

  1. Department of Computer Science, University College Cork, Cork, Ireland

    Tamara Vagg & Sabin Tabirca

  2. Cork CF Centre, Cork University Hospital, University College Cork, Cork, Ireland

    Cathy Shortt, Claire Hickey & Barry J. Plant

  3. HRB CRF, University College Cork, Cork, Ireland

    Joseph A. Eustace

Authors
  1. Tamara Vagg
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  2. Cathy Shortt
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  3. Claire Hickey
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  4. Joseph A. Eustace
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  5. Barry J. Plant
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  6. Sabin Tabirca
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Corresponding author

Correspondence to Tamara Vagg .

Editor information

Editors and Affiliations

  1. Polytechnic University of Milan, Milan, Italy

    Paolo Perego

  2. University of California, Irvine, California, USA

    Amir M. Rahmani

  3. ICT, Institute of Computer Technology, Vienna University of Technology, Vienna, Austria

    Nima TaheriNejad

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© 2018 ICST Institute for Computer Sciences, Social Informatics and Telecommunications Engineering

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Vagg, T., Shortt, C., Hickey, C., Eustace, J.A., Plant, B.J., Tabirca, S. (2018). A mHealth Patient Passport for Adult Cystic Fibrosis Patients. In: Perego, P., Rahmani, A., TaheriNejad, N. (eds) Wireless Mobile Communication and Healthcare. MobiHealth 2017. Lecture Notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering, vol 247. Springer, Cham. https://doi.org/10.1007/978-3-319-98551-0_18

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  • DOI: https://doi.org/10.1007/978-3-319-98551-0_18

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-98550-3

  • Online ISBN: 978-3-319-98551-0

  • eBook Packages: Computer ScienceComputer Science (R0)

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