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Transitioning Care of the Adolescent Patient with Chronic Kidney Disease to Adult Providers

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Adolescents with Chronic Kidney Disease

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Abstract

This chapter focuses on gaps in care as adolescents and young adults (AYA) with childhood-onset chronic kidney disease transition to adult care and how to address these gaps. There needs to be a transition plan that is designed to optimize the adolescent’s readiness for uninterrupted integration into an adult practice. Ideally, the exact timing of transfer would be determined by factors such as readiness, disease activity, and availability of adult specialty services and not just the chronologic age of the patient. A well-designed transition program would improve the health of AYA with chronic kidney disease and reduce or control the per capita healthcare cost.

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References

  1. Groothoff JW. Long-term outcomes of children with end-stage renal disease. Pediatr Nephrol. 2005;20(7):849–53.

    Article  CAS  Google Scholar 

  2. Ferris ME, et al. Self-management and transition among adolescents/young adults with chronic or end-stage kidney disease. Blood Purif. 2015;39(1–3):99–104.

    Article  Google Scholar 

  3. Aujoulat I, et al. Non-adherence in adolescent transplant recipients: the role of uncertainty in health care providers. Pediatr Transplant. 2011;15(2):148–56.

    PubMed  Google Scholar 

  4. Jarzembowski T, et al. Impact of non-compliance on outcome after pediatric kidney transplantation: an analysis in racial subgroups. Pediatr Transplant. 2004;8(4):367–71.

    Article  Google Scholar 

  5. Watson AR. Non-compliance and transfer from paediatric to adult transplant unit. Pediatr Nephrol. 2000;14(6):469–72.

    Article  CAS  Google Scholar 

  6. Fredericks EM, Dore-Stites D. Adherence to immunosuppressants: how can it be improved in adolescent organ transplant recipients? Curr Opin Organ Transplant. 2010;15(5):614–20.

    Article  Google Scholar 

  7. Samuel SM, et al. Avoidable hospitalizations in youth with kidney failure after transfer to or with only adult care. Pediatrics. 2014;133(4):e993–1000.

    Article  Google Scholar 

  8. Goudie A, Carle AC. Ohio study shows that insurance coverage is critical for children with special health care needs as they transition to adulthood. Health Aff (Millwood). 2011;30(12):2382–90.

    Article  Google Scholar 

  9. Foster BJ, et al. The TAKE-IT study: aims, design, and methods. BMC Nephrol. 2014;15:139.

    Article  Google Scholar 

  10. Prestidge C, et al. Utility and cost of a renal transplant transition clinic. Pediatr Nephrol. 2012;27(2):295–302.

    Article  Google Scholar 

  11. Harambat J, et al. Epidemiology of chronic kidney disease in children. Pediatr Nephrol. 2012;27(3):363–73.

    Article  Google Scholar 

  12. Hsieh MH, et al. Research needs for effective transition in lifelong care of congenital genitourinary conditions: a workshop sponsored by the National Institute of Diabetes and Digestive and Kidney Diseases. Urology. 2017;103:261–71.

    Article  Google Scholar 

  13. Nesterova G, Gahl WA. Cystinosis: the evolution of a treatable disease. Pediatr Nephrol. 2013;28(1):51–9.

    Article  Google Scholar 

  14. Emma F, et al. Nephropathic cystinosis: an international consensus document. Nephrol Dial Transplant. 2014;29(Suppl 4):iv87–94.

    Article  CAS  Google Scholar 

  15. Ariceta G, et al. A coordinated transition model for patients with cystinosis: from pediatrics to adult care. Nefrologia. 2016;36(6):616–30.

    Article  Google Scholar 

  16. American Academy of Pediatrics Committee on Children With, D. The role of the pediatrician in transitioning children and adolescents with developmental disabilities and chronic illnesses from school to work or college. American Academy of Pediatrics. Committee on Children With Disabilities. Pediatrics. 2000;106(4):854–6.

    Article  Google Scholar 

  17. Rosen DS. Transition from pediatric to adult-oriented health care for the adolescent with chronic illness or disability. Adolesc Med. 1994;5(2):241–8.

    CAS  PubMed  Google Scholar 

  18. Somerville LH, Jones RM, Casey BJ. A time of change: behavioral and neural correlates of adolescent sensitivity to appetitive and aversive environmental cues. Brain Cogn. 2010;72(1):124–33.

    Article  Google Scholar 

  19. Giedd JN, Rapoport JL. Structural MRI of pediatric brain development: what have we learned and where are we going? Neuron. 2010;67(5):728–34.

    Article  CAS  Google Scholar 

  20. Gipson DS, et al. Memory and executive functions in pediatric chronic kidney disease. Child Neuropsychol. 2006;12(6):391–405.

    Article  Google Scholar 

  21. Fennell RS, et al. A longitudinal study of the cognitive function of children with renal failure. Pediatr Nephrol. 1990;4(1):11–5.

    Article  CAS  Google Scholar 

  22. Warady BA, et al. Optimal care of the pediatric end-stage renal disease patient on dialysis. Am J Kidney Dis. 1999;33(3):567–83.

    Article  CAS  Google Scholar 

  23. Hooper SR, et al. Neurocognitive functioning of children and adolescents with mild-to-moderate chronic kidney disease. Clin J Am Soc Nephrol. 2011;6(8):1824–30.

    Article  Google Scholar 

  24. Moodalbail DG, et al. Systematic review of structural and functional neuroimaging findings in children and adults with CKD. Clin J Am Soc Nephrol. 2013;8(8):1429–48.

    Article  Google Scholar 

  25. Schnaper HW, et al. Cerebral cortical atrophy in pediatric patients with end-stage renal disease. Am J Kidney Dis. 1983;2(6):645–50.

    Article  CAS  Google Scholar 

  26. Steinberg A, et al. Computerized tomography of the brain in children with chronic renal failure. Int J Pediatr Nephrol. 1985;6(2):121–6.

    CAS  PubMed  Google Scholar 

  27. Trompeter RS, et al. Neurological complications of arterial hypertension. Arch Dis Child. 1982;57(12):913–7.

    Article  CAS  Google Scholar 

  28. Warady BA, Neu AM, Schaefer F. Optimal care of the infant, child, and adolescent on dialysis: 2014 update. Am J Kidney Dis. 2014;64(1):128–42.

    Article  Google Scholar 

  29. Gipson DS, et al. The nervous system and chronic kidney disease in children. Pediatr Nephrol. 2004;19(8):832–9.

    Article  Google Scholar 

  30. Gerson AC, et al. Neurocognitive outcomes in children with chronic kidney disease: current findings and contemporary endeavors. Ment Retard Dev Disabil Res Rev. 2006;12(3):208–15.

    Article  Google Scholar 

  31. Gipson DS, et al. The central nervous system in childhood chronic kidney disease. Pediatr Nephrol. 2007;22(10):1703–10.

    Article  Google Scholar 

  32. Qvist E, et al. Neurodevelopmental outcome in high-risk patients after renal transplantation in early childhood. Pediatr Transplant. 2002;6(1):53–62.

    Article  Google Scholar 

  33. Valanne L, et al. Neuroradiologic findings in children with renal transplantation under 5 years of age. Pediatr Transplant. 2004;8(1):44–51.

    Article  Google Scholar 

  34. Blum RW, et al. Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health. 1993;14(7):570–6.

    Article  CAS  Google Scholar 

  35. Callahan ST, Winitzer RF, Keenan P. Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease. Curr Opin Pediatr. 2001;13(4):310–6.

    Article  CAS  Google Scholar 

  36. Institute for Healthcare, I. The triple aim. Optimizing health, care and cost. Healthc Exec. 2009;24(1):64–6.

    Google Scholar 

  37. Prior M, et al. Measuring the “triple aim” in transition care: a systematic review. Pediatrics. 2014;134(6):e1648–61.

    Article  Google Scholar 

  38. Vaks Y, et al. Better health, less spending: redesigning the transition from pediatric to adult healthcare for youth with chronic illness. Healthc (Amst). 2016;4(1):57–68.

    Article  Google Scholar 

  39. Bell LE, Sawyer SM. Transition of care to adult services for pediatric solid-organ transplant recipients. Pediatr Clin N Am. 2010;57(2):593–610. table of contents

    Article  Google Scholar 

  40. Wood DL, et al. The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity. Acad Pediatr. 2014;14(4):415–22.

    Article  Google Scholar 

  41. Javalkar K, et al. Socioecologic factors as predictors of readiness for self-management and transition, medication adherence, and health care utilization among adolescents and young adults with chronic kidney disease. Prev Chronic Dis. 2014;11:E117.

    Article  Google Scholar 

  42. Javalkar K, et al. Ecological factors predict transition readiness/self-management in youth with chronic conditions. J Adolesc Health. 2016;58(1):40–6.

    Article  Google Scholar 

  43. Watson AR, et al. Transition from pediatric to adult renal services: a consensus statement by the International Society of Nephrology (ISN) and the International Pediatric Nephrology Association (IPNA). Pediatr Nephrol. 2011;26(10):1753–7.

    Article  Google Scholar 

  44. Forbes TA, et al. Adherence to transition guidelines in European paediatric nephrology units. Pediatr Nephrol. 2014;29(9):1617–24.

    Article  Google Scholar 

  45. Ingelfinger JR, Kalantar-Zadeh K, Schaefer F. World kidney day 2016: averting the legacy of kidney disease – focus on childhood. Am J Kidney Dis. 2016;67(3):349–54.

    Article  Google Scholar 

  46. Paone MC, Wigle M, Saewyc E. The ON TRAC model for transitional care of adolescents. Prog Transplant. 2006;16(4):291–302.

    Article  Google Scholar 

  47. Harden PN, et al. Bridging the gap: an integrated paediatric to adult clinical service for young adults with kidney failure. BMJ. 2012;344:e3718.

    Article  CAS  Google Scholar 

  48. Mina Matsuda-Abedini, et al. Brain abnormalities in children and adolescents with chronic kidney disease. Pediatric Research 2018. http://doi.org/10.1038/s41390-018-0037-5. [Epub ahead of print]

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Author information

Authors and Affiliations

  1. Hospital for Sick Children, Toronto, ON, Canada

    Mina Matsuda-Abedini

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  1. Mina Matsuda-Abedini
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Correspondence to Mina Matsuda-Abedini .

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Editors and Affiliations

  1. Department of Pediatric Nephrology, UC Davis Medical Center, Sacramento, CA, USA

    Maha N. Haddad

  2. Department of Pediatrics, Division of Nephrology, University of California San Francisco, San Francisco, CA, USA

    Erica Winnicki

  3. Department of Pediatrics, UC Davis Children’s Hospital, Sacramento, CA, USA

    Stephanie Nguyen

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Matsuda-Abedini, M. (2019). Transitioning Care of the Adolescent Patient with Chronic Kidney Disease to Adult Providers. In: Haddad, M., Winnicki, E., Nguyen, S. (eds) Adolescents with Chronic Kidney Disease. Springer, Cham. https://doi.org/10.1007/978-3-319-97220-6_16

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  • DOI: https://doi.org/10.1007/978-3-319-97220-6_16

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-97219-0

  • Online ISBN: 978-3-319-97220-6

  • eBook Packages: MedicineMedicine (R0)

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