Skip to main content

Understanding Quality of Life Through the Experiences of Dancers with Parkinson’s

  • Chapter
  • First Online:
Book cover Dance and the Quality of Life

Part of the book series: Social Indicators Research Series ((SINS,volume 73))

Abstract

Parkinson’s is a common neurodegenerative, chronic disease, typically striking after 50. It is a condition that affects body functioning, as well as emotional and social aspects of life. Many people living with Parkinson’s struggle to maintain or develop their quality of life. As a means to improve quality of life and health, there is much interest in dancing. Enjoyment and help with some symptoms of Parkinson’s are two primary reasons for dancing, and some participants also feel that it gives them a sense of control over their life. The chapter discusses two questions: (1) Can we talk about quality of life as something influenced by dance in a context where there are multiple variables? (2) What does it mean to have quality of life through dance when one has a chronic degenerative disease? The chapter examines the methods used to claim quality of life or the lack of it in the context of researching a dance project and uses our own research project with English National Ballet Dance for Parkinson’s programme as an example to tease out the issues.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 109.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD 139.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Beck, A. T., Steer, R. A., & Brown, G. K. (1996). Manual for the Beck Depression Inventory-II. San Antonio, TX: Psychological Corporation.

    Google Scholar 

  • BUPA. (2011). Keep dancing: The health and wellbeing benefits of dance for older people. London: BUPA.

    Google Scholar 

  • Chiong-Rivero, H., Ryan, G. W., Flippen, C., Bordelon, Y., Szumski, N. R., Zesiewicz, T. A., Vassar, S., Weidmer, B., García, R. E., Bradley, M., & Vickrey, B. G. (2011). Patients’ and caregivers’ experiences of the impact of Parkinson’s disease on health status. Patient Related Outcome Measures, 2, 57–70.

    Article  Google Scholar 

  • Dance Factor Lincolnshire. (2015). Dance Factor Lincolnshire project report. Sleaford: Dance Factor Lincolnshire.

    Google Scholar 

  • Den Oudsten, B. L., Lucas-Carrasco, R., Green, A. M., & Whoqol-Dis Group. (2011). Perceptions of persons with Parkinson’s disease, family and professionals on quality of life: A focus group study. Disability & Rehabilitation, 33(25–26), 2490–2508.

    Article  Google Scholar 

  • Duncan, R. P., & Earhart, G. M. (2011). Measuring participation in individuals with Parkinson disease: Relationships with disease severity, quality of life, and mobility. Disability & Rehabilitation, 33(15–16), 1440–1446.

    Article  Google Scholar 

  • Everard, K. M., Lach, H. W., Fisher, E. B., & Baum, C. M. (2000). Relationship of activity and social support to the functional health of older adults. Journal of Gerontology Series B – Psychological Sciences & Social Sciences, 55(4), S208–S212.

    Article  Google Scholar 

  • Foddy, W. (1993). Constructing questions for interviews and questionnaires. Theory and practice in social research. Cambridge, UK: Cambridge University Press.

    Book  Google Scholar 

  • Foster, E. R., Golden, L., Duncan, R. P., & Earhart, G. M. (2013). A community-based Argentine tango dance program is associated with increased activity participation among individuals with Parkinson disease. Archives of Physical Medicine & Rehabilitation, 94(2), 240–249.

    Article  Google Scholar 

  • Foster, E. R., & Hershey, T. (2011). Everyday executive function is associated with activity participation in Parkinson disease without dementia. OTJR: Occupation, Participation and Health, 31(1), 16–22.

    Google Scholar 

  • Gardner, S., Komesaroff, P., & Fensham, R. (2008). Dancing beyond exercise: Young people’s experiences in dance classes. Journal of Youth Studies, 11(6), 701–709.

    Article  Google Scholar 

  • Harris, A. D., McGregor, J. C., Perencevich, E. N., Furuno, J. P., Zhu, J., Peterson, D. E., & Finkelstein, J. (2006). The use and interpretation of quasi-experimental studies in medical informatics. Journal of the American Medical Informatics Association, 13(1), 16–23.

    Article  Google Scholar 

  • Houston, S. (2011). The methodological challenges of researching dance for people living with Parkinson’s. Dance Research, 29(2), 329–351.

    Article  Google Scholar 

  • Houston, S. (2015). Feeling lovely: An examination of the value of beauty for people living with Parkinson’s. Dance Research Journal, 47(1), 27–43.

    Google Scholar 

  • Houston, S., & McGill, A. (2011). English National Ballet Dance for Parkinson’s: An investigative study. London: University of Roehampton Retrieved from https://www.roehamptondance.com/parkinsons/articles/.

    Google Scholar 

  • Houston, S., & McGill, A. (2013). A mixed-methods study into ballet for people living with Parkinson’s. Arts & Health: An International Journal for Research, Policy and Practice, 5(2), 103–119.

    Article  Google Scholar 

  • Houston, S., & McGill, A. (2015). English National Ballet Dance for Parkinson’s: An investigative study, part 2. London: University of Roehampton Retrieved from https://www.roehamptondance.com/parkinsons/articles/.

    Google Scholar 

  • Jenkinson, C., Fitzpatrick, R., Peto, V., Greenhall, R., & Hyman, N. (1997). The Parkinson’s disease questionnaire (PDQ-39): Development and validation of a Parkinson’s disease summary index score. Age and Ageing, 26(5), 353–357.

    Article  Google Scholar 

  • Jones, D., & Houston, S. (2011). Researching dance for Parkinson’s. Animated, autumn (pp. 23–25).

    Google Scholar 

  • Laws, J. (2004). After method: Mess in social science research. Abingdon: Routledge.

    Google Scholar 

  • Levasseur, M., Desrosiers, J., & St-Cyr Tribble, D. (2008). Subjective quality-of-life predictors for older adults with physical disabilities. American Journal of Physical & Medical Rehabilitation, 87(10), 830–841.

    Article  Google Scholar 

  • Mason, L., Bone, N., & Cameron, K. (2013). Dance and older people evaluation report. Creative Scotland. Retrieved from http://www.creativescotland.com/__data/assets/pdf_file/0018/26172/Dance_and_Older_People_-_Evaluation_Report.pdf

  • McGill, A., Houston, S., & Lee, R. Y. (2014). Dance for Parkinson’s: A new framework for research on its physical, mental, emotional, and social benefits. Complementary Therapies in Medicine, 22(3), 426–432.

    Article  Google Scholar 

  • McRae, C., Cherin, E., Yamazaki, T. G., Diem, G., Vo, A. H., Russell, D., Ellgring, J. H., Fahn, S., Greene, P., Dillon, S., Winfield, H., Bjugstad, K. B., & Freed, C. R. (2004). Effects of perceived treatment on quality of life and medical outcomes in a double-blind placebo surgery trial. Archives of General Psychiatry, 61(April), 412–627.

    Google Scholar 

  • Nussbaum, M., & Sen, A. (Eds.). (1993). The quality of life. Oxford, UK: Clarendon.

    Google Scholar 

  • Quiroga Murcia, C., Kreutz, G., Clift, S., & Bongard, S. (2010). Shall we dance? An exploration of the perceived benefits of dancing on well-being. Arts and Health: An International Journal for Research, Policy and Practice, 2(2), 149–163.

    Article  Google Scholar 

  • Schensul, S. L., Schensul, J. J., & LeCompte, M. D. (1999). Essential ethnographic methods: Observations, interviews, and questionnaires. Oxford, UK: AltaMira.

    Google Scholar 

  • Schrag, A., Jahanshahi, M., & Quinn, N. (2000). What contributes to quality of life in patients with Parkinson’s disease? Journal of Neurological Neurosurgical Psychiatry, 69(3), 308–312.

    Article  Google Scholar 

  • Solimeo, S. (2009). With shaking hands: Aging with Parkinson’s disease in America’s heartland. New Brunswick, NJ: Rutgers University Press.

    Google Scholar 

  • Urmston, E. (2012). Go dance research report. Ipswich, UK: East Youth Dance.

    Google Scholar 

  • Watts, V. (Ed.). (2013). Dance for lifelong wellbeing: Project report 2013. London: Royal Academy of Dance.

    Google Scholar 

  • Westheimer, O., McRae, C., Henchcliffe, C., Fesharaki, A., Glazman, S., Ene, H., & Bodis-Wollner, I. (2015). Dance for PD: A preliminary investigation of effects on motor function and quality of life among persons with Parkinson’s disease (PD). Journal of Neural Transmission, 122(9), 1263–1270.

    Article  Google Scholar 

  • World Health Organization. (2001). The international classification of functioning, disability and health (ICF). Geneva, Switzerland. Retrieved from http://www.who.int/classifications/icf/en/

  • Yeung, P., & Towers, A. (2014). An exploratory study examining the relationships between the personal, environmental and activity participation variables and quality of life among young adults with disabilities. Disability & Rehabilitation, 36(1), 63–73.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Sara Houston .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2019 Springer International Publishing AG, part of Springer Nature

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Houston, S., McGill, A. (2019). Understanding Quality of Life Through the Experiences of Dancers with Parkinson’s. In: Bond, K. (eds) Dance and the Quality of Life. Social Indicators Research Series, vol 73. Springer, Cham. https://doi.org/10.1007/978-3-319-95699-2_16

Download citation

  • DOI: https://doi.org/10.1007/978-3-319-95699-2_16

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-95698-5

  • Online ISBN: 978-3-319-95699-2

  • eBook Packages: Social SciencesSocial Sciences (R0)

Publish with us

Policies and ethics