Skip to main content

Strengthening Participatory Action Research Approach to Develop a Personalized Mobile Application for Young Adults with Intellectual Disabilities

  • Conference paper
  • First Online:

Part of the book series: Lecture Notes in Computer Science ((LNISA,volume 10896))

Abstract

Participation in social inclusion activities has been reported to be an important determinant of health for people with disabilities and has a number of benefits particularly for young adults with intellectual disabilities (ID). However, young adults with ID often have difficulty making friends and are excluded from taking part in social activities in society, therefore they struggle to sustain friendships over time. This paper reports on a study that investigates how a mobile application can help young adults with ID make friends, build social relationships and participate successfully within their communities. Using a participatory research design, we developed a prototype of a mobile app to introduce social inclusion activities for young adults with ID. Parents, service providers, staff and young adults with ID provided input on features of the prototype. To evaluate the impact of the mobile app, pre- and post-intervention measures will be collected. This experiential opportunity will encourage young adults with ID with self-determination when they interact with others but more importantly, give a sense of independence when they engage in real-world social environments.

This is a preview of subscription content, log in via an institution.

Buying options

Chapter
USD   29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD   64.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD   84.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Learn about institutional subscriptions

References

  1. Bergold, J., Thomas, S.: Participatory research methods: a methodological approach in motion. Forum: Qual. Soc. Res. 13(1), 191–222 (2012)

    Google Scholar 

  2. Blackman, A., Fairey, T.: The PhotoVoice Manual: A Guide to Designing and Running Participatory Photographic Projects, London, United Kingdom (2007)

    Google Scholar 

  3. Cumming, T.M.I., Strnadova, J., Knox, M., Parmenter, T.: Mobile technology in inclusive research: tools of empowerment. Disabil. Soc. 29(7), 999–1012 (2014)

    Article  Google Scholar 

  4. Darcy, S., Maxwell, H., Green, J.: Disability citizenship and independence through mobile technology? A study exploring adoption and use of a mobile technology platform. Disabil. Soc. 31(4), 497–519 (2016)

    Article  Google Scholar 

  5. Dekelver, J., Kultsova, M., Shabalina, O., Borblik, J., Pidoprigora, A., Romanenko, R., et al.: Design of mobile applications for people with intellectual disabilities. In: Kravets, A., Shcherbakov, M., Kultsova, M., Shabalina, O. (eds.) Creativity in Intelligent Technologies and Data Science. CCIS, vol. 535, pp. 823–836. Springer, Cham (2015). https://doi.org/10.1007/978-3-319-23766-4_65

    Chapter  Google Scholar 

  6. Denzin, N., Lincoln, Y.: Introduction: The Discipline and Practice of Qualitative research. The Landscape of Qualitative Research. Theories and Issues, pp. 1–45 (2003)

    Google Scholar 

  7. Ellis, K., Goggin, G.: Disability, locative media, and complex ubiquity. In: Ekman, U., Bolter, J.D., Diaz, L., Sondergaard, M., Engberg, M. (eds.) Ubiquitous Computing, Complexity and Culture, pp. 272–287. Routledge, New York (2015)

    Google Scholar 

  8. Goggin, G.: Disability and mobile internet. First Monday, 20(9) (2015). http://firstmonday.org/ojs/index.php/fm/article/view/6171/4906. https://doi.org/10.5210/fm.v20i9.6171

  9. Jaeger, P.: Disability, human rights, and social justice: the ongoing struggle for online accessibility and equality. First Monday, 20(9) (2015). http://firstmonday.org/ojs/index.php/fm/article/view/6164/4898. https://doi.org/10.5210/fm.v20i9.6164

  10. Louw, J.S.: E-inclusion: social inclusion of young adults with intellectual disabilities-a participatory design. Stud. Health Technol. Inform. 242, 269–272 (2017)

    Google Scholar 

  11. Overmars-Marx, T., Thomése, F., Verdonschot, M., Meininger, H.: Advancing social inclusion in the neighbourhood for people with an intellectual disability: an exploration of the literature. Disabil. Soc. 29(2), 255–274 (2014)

    Article  Google Scholar 

  12. Parsons, S., Daniels, H., Porter, J., Robertson, C.: Resources, staff beliefs and organisational culture: factors in the use of information and communication technology for adults with intellectual disabilities. J. Appl. Res. Intellect. Disabil. 21(1), 19–33 (2008)

    Article  Google Scholar 

  13. Powers, M., Freedman, D., Pitner, R.: A Photovoice Facilitator’s Manual, South Carolina, United States (2012)

    Google Scholar 

  14. Schalock, R.L., Verdugo, M.A.: Handbook on Quality of Life for Human Service Practitioners. American Association on Mental Retardation, Washington, DC (2002)

    Google Scholar 

  15. Söderström, S., Ytterhus, B.: The use and non-use of assistive technologies from the world of information and communication technology by visually impaired young people: a walk on the tightrope of peer inclusion. Disabil. Soc. 25(3), 303–315 (2010)

    Article  Google Scholar 

  16. UNICEF: Children and Young People with Disabilities Fact Sheet (2013)

    Google Scholar 

  17. United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) (2006). http://www.un.org/disabilities/convention/conventionfull.shtml. Accessed 12 Jan 2018

  18. Verdugo, M.A., Gomez, L.E., Arias, B., Navas, P., Schalock, R.: Measuring quality of life in people with intellectual and multiple disabilities: validation of the San Martın scale. Res. Dev. Disabil. 35(2014), 75–86 (2013)

    Google Scholar 

  19. Whyte, W.: Participatory Action Research. Sage Publications Inc., Thousand Oaks (1991)

    Book  Google Scholar 

  20. World Health Organization (WHO): The GATE Initiative: Equipping, Enabling and Empowering. Improving Access to Assistive Technology for Everyone, Everywhere (2016)

    Google Scholar 

Download references

Acknowledgement

This research was supported by funding from the charity RESPECT and the People Programme (Marie Curie Actions) of the European Union’s Seventh Framework Programme (FP7/2007-2013) under REA grant agreement no. PCOFUND-GA-2013-608728

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Julia S. Louw .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2018 Springer International Publishing AG, part of Springer Nature

About this paper

Check for updates. Verify currency and authenticity via CrossMark

Cite this paper

Louw, J.S. (2018). Strengthening Participatory Action Research Approach to Develop a Personalized Mobile Application for Young Adults with Intellectual Disabilities. In: Miesenberger, K., Kouroupetroglou, G. (eds) Computers Helping People with Special Needs. ICCHP 2018. Lecture Notes in Computer Science(), vol 10896. Springer, Cham. https://doi.org/10.1007/978-3-319-94277-3_70

Download citation

  • DOI: https://doi.org/10.1007/978-3-319-94277-3_70

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-94276-6

  • Online ISBN: 978-3-319-94277-3

  • eBook Packages: Computer ScienceComputer Science (R0)

Publish with us

Policies and ethics