Abstract
This chapter is a commentary on “Autism Policy in Brazil and the USA” and “Psychiatric Reform and Autism Services in Italy and Brazil.” It examines a range of views on autism theory and practice, policies relating to autism, and options for treatments in the United States, Italy, and Brazil. These pieces offer insightful perspectives on how global issues and controversies around ASD take local form. The chapter argues that the notorious polarizations around autism might hide important negotiations and spaces beyond such antagonism. Examining systems of care delivery for individuals living with autism in their historical and social context enables us to see how binaries and polarizations (global/local, organicism/anti-organicsm, biological/relational, mental suffering/disability) are challenged and transcended through the pragmatic negotiation and integration of those binaries in the everyday work of those affected by the condition.
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References
Anand, Sudhir, and Kara Hanson. 1997. “Disability Adjusted Life Years: A Critical Perspective.” Journal of Health Economics 16: 685–702.
Anderson, George M. 2015. “Autism Biomarkers: Challenges, Pitfalls, and Possibilities.” Journal of Autism and Developmental Disorders 45 (4): 1103–1113.
Bagatell, Nancy. 2007. “Orchestrating Voices: Autism, Identity, and the Power of Discourse.” Disability & Society 22: 413–426.
Baron-Cohen, Simon. 1995. Mindblindness: An Essay on Autism and Theory of Mind. Cambridge, MA: MIT Press and Bradford Books.
Becker, Anne, Anjali Motgi, Jonathan Weigel, Guiseppe Raviola, Salmaan Keshavjee, and Arthur Kleinman. 2013. “The Unique Challenges of Mental Health and MDRTB: Critical Perspectives on Metrics of Disease Burden.” In Reimagining Global Health: An Introduction, edited by Paul Farmer, Jim Yong Kim, Arthur Kleinman, and Matthew Basilico, 209–241. Berkeley: University of California Press.
Bemme, Doerte, and Nicole A. D’souza. 2014. “Global Mental Health and Its Discontents: An Inquiry into the Making of Global and Local Scale.” Transcultural Psychiatry 51 (6): 850–874.
Brasil. 2012. Lei n8 12.764, de 27 de dezembro de 2012, Institui a política nacional de proteção dos direitos da pessoa com transtorno do espectro autista e altera o §38 do art. 98 da Lei n8 8.112, de 11 de dezembro de 1990. Brasília: Diário Oficial da União, 27 de dezembro de 2012.
Brown, Phil, Rachel Morello-Frosch, and Stephen Zavestoski, eds. 2011. Contested Illnesses: Citizens, Science, and Health Social Movements. Berkeley: University of California Press.
Collier, Stephen J., and Aihwa Ong. 2005. “Global Assemblages, Anthropological Problems.” In Global assemblages: Technology, Politics, and Ethics as Anthropological Problems, edited by Stephen Collier and Aihwa Ong, 3–21. Malden, MA: Wiley-Blackwell.
Costa Andrada, Barbara. 2017. “Sentidos e desafios do autism para o território: um estudo etnográfico.” PhD thesis, State University of Rio de Janeiro.
Elia, Luciano. 2013. “Psicanalise, ciencia e universidade.” In Psicanalise, autismo e saúde pública. Available at http://psicanaliseautismoesaudepublica.wordpress.com/2013/04/14/psicanalise-ciencia-e-universidade. Accessed on 6 November 2015.
Escobar, Arturo. 2001. “Culture Sits in Places: Reflections on Globalism and Subaltern Strategies of Localization.” Political Geography 20 (2): 139–174.
Feinberg, Edward, and John Vacca. 2000. “The Drama and Trauma of Creating Policies on Autism: Critical Issues to Consider in the New Millennium.” Focus on Autism and Other Developmental Disabilities 15 (3): 130–137.
Feldman, Clara. 2017. “Autismo e rede de atenção psicossocial: Caminhos e desafios de uma rede em construção.” PhD dissertation, State University of Rio de Janeiro.
Frith, Uta, and Francesca Happé. 1994. “Autism: Beyond ‘Theory of Mind.’” Cognition 50 (1–3): 115–132.
Ingleby, David. 2014. “How ‘Evidence-Based’ Is the Movement for Global Mental Health?” Disability and the Global South 1 (2): 203–226.
Jain, Sumeet, and David M.R. Orr 2016. “Ethnographic Perspectives on Global Mental Health.” Transcultural Psychiatry 53 (6): 685–695.
Khan, Naila Z., Lilia Albores Gallo, Aurora Arghir, Bogdan Budisteanu, Magdalena Budisteanu, Iuliana Dobrescu, Kirsty Donald, et al. 2012. “Autism and the Grand Challenges in Global Mental Health.” Autism Research 5: 156–159.
Kienzler, Hanna, and Peter Locke. 2017. “The Effects of Societal Violence in War and Post-war Contexts.” In The Palgrave Handbook of Sociocultural Perspectives on Global Mental Health, edited by Ross G. White, Sumeet Jain, David M.R. Orr, and Ursula M. Read, 285–305. London: Palgrave Macmillan.
Lord, and Jones. 2012. “Annual Research Review: Re-thinking the Classification of Autism Spectrum Disorders.” Journal of Child Psychology and Psychiatry 53: 490–509.
McGuire, Anne. 2016. War on Autism. On the Cultural Logic of Normative Violence. Ann Arbor: University of Michigan Press.
Nadesan, Majia Holmer. 2005. Constructing Autism: Unravelling the ‘Truth’ and Understanding the Social. London and New York: Routledge.
Newschaffer, Craig J., and Laura Kresch Curran. 2003. “Autism: An Emerging Public Health Problem.” Public Health Reports 118 (5): 393–399.
O’Dell, Lindsay, Hanna Bertilsdotter Rosqvist, Francisco Ortega, Charlotte Brownlow, and Michael Orsini. 2016. “Critical Autism Studies: Exploring Epistemic Dialogues and Intersections, Challenging Dominant Understandings of Autism.” Disability & Society 31 (2): 166–179.
Ortega, Francisco. 2009. “The Cerebral Subject and the Challenge of Neurodiversity.” Biosocieties 4 (4): 425–445.
———. 2013. “Cerebralizing Autism Within the Neurodiversity Movement.” In Worlds of Autism: Across the Spectrum of Neurological Difference, edited by Joyce Davidson and Michael Orsini, 73–95. Minneapolis: University of Minnesota Press.
Ortega, Francisco, and Suparna Choudhury. 2011. “‘Wired Up Differently’: Autism, Adolescence, and the Politics of Neurological Identities.” Subjectivity 4 (3): 323–345.
Ortega, Francisco, Rafaela Zorzanelli, and Clarice Rios. 2016. “The Biopolitics of Autism in Brazil.” In Re-thinking Autism: Diagnosis, Identity and Equality, edited by Katherine Runswick-Cole, Rebecca Mallett, and Sami Timimi, 67–89. London and Philadelphia: Jessica Kingsley.
Ozonoff, Sally, Bruce F. Pennington, and Sally J. Rogers. 1991. “Executive Function Deficits in High-Functioning Autistic Individuals: Relationship to Theory of Mind.” Journal of Child Psychology and Psychiatry 32 (7): 1081–1105.
Parks, Rachel. 2014. “The Rise, Critique and Persistence of the DALY in Global Health.” The Journal of Global Health. http://www.ghjournal.org/the-rise-critique-and-persistence-of-the-daly-in-global-health/.
Rios, Clarice, and Barbara Costa Andrada. 2015. “The Changing Face of Autism in Brazil.” Culture, Medicine, and Psychiatry 39 (2): 213–234.
Rosanoff, Michael J., Amy M. Daniels, and Andy Shih. 2015. “Autism: A (Key) Piece of the Global Mental Health Puzzle.” Global Mental Health 2 (2): 1–3. https://doi.org/10.1017/gmh.2014.7.
Rosenberg, Charles E. 2006. “Contested Boundaries: Psychiatry, Disease, and Diagnosis.” Perspectives in Biology and Medicine 49: 407–424.
Rubin, Sue. 2005. “Acceptance Versus Cure.” CNN.com. http://www.cnn.com/CNN/Programs/presents/shows/autism.world/notebooks/sue/notebook.html.
Silverman, Chloe. 2012. Understanding Autism: Parents, Doctors, and the History of a Disorder. Princeton: Princeton University Press.
Singer, Judy. 1999. “Why Can’t You Be Normal For Once In Your Life? From a ‘Problem with No Name’ to the Emergence of a New Category of Difference.” In Disability Discourse, edited by Mairian Corker and Sally French, 59–67. Buckingham: Open University Press.
Singh, Jenifer S. 2016. Multiple Autisms: Spectrums of Advocacy and Genomic Science. Minneapolis and London: University of Minnesota Press.
Souza Lima, Philipe. 2017. “O autismo como deficiência: impacto sobre o trabalho das equipes dos Centros de Atenção Psicossocial Infanto-Juvenil.” MS dissertation, State University of Rio de Janeiro.
Tsing, Anna Lowenhaupt. 2005. Friction: An Ethnography of Global Connection. Princeton, NJ: Princeton University Press.
Vidal, Fernando, and Francisco Ortega. 2017. Being Brains: Making the Cerebral Subject. New York: Fordham University Press.
Wallace, Simon, Deborah Fein, Michael Rosanoff, Geraldine Dawson, Saima Hossain, Lynn Brennan, Ariel Como, and Andy Shih. 2012. “A Global Public Health Strategy for Autism Spectrum Disorders.” Autism Research 5 (3): 211–217. https://doi.org/10.1002/aur.1236.
Walsh, Pat, Mayada Elsabbagh, Patrick Bolton, and Ilina Singh. 2011. “In Search of Biomarkers for Autism: Scientific, Social, and Ethical Challenges.” Nature Reviews Neuroscience 12: 603–612.
White, Ross G., David M.R. Orr, Ursula M. Read, and Sumeet Jain. 2017. “Situating Global Mental Health: Sociocultural Perspectives.” In The Palgrave Handbook of Sociocultural Perspectives on Global Mental Health, edited by Ross G. White, Sumeet Jain, David M.R. Orr, and Ursula M. Read. London: Palgrave Macmillan.
Wikler, Daniel. 2010. “Cognitive Disability, Paternalism, and the Global Burden of Disease.” In Cognitive Disability and Its Challenge to Moral Philosophy, edited by Eva. F. Kittay and Licia Carlson. London: Wiley-Blackwell.
Williams, Justin HG, Andrew Whiten, Thomas Suddendorf, and David I. Perrett. 2001. “Imitation, Mirror Neurons, and Autism.” Neuroscience & Biobehavioral Reviews 25 (4): 287–295.
World Health Organization. 2016. International Statistical Classification of Diseases and Related Health Problems. 10th Revision (ICD-10).
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Ortega, F. (2018). Commentary: “Why Not Both?” Negotiating Ideas About Autism in Italy, Brazil, and the US. In: Fein, E., Rios, C. (eds) Autism in Translation. Culture, Mind, and Society. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-319-93293-4_4
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