Abstract
This chapter focuses on North American (NA) participatory health research (PHR), particularly with organizations. We begin by presenting the definition of PHR put forth by NA leaders in 1995 and, then, sketching the contributions of those who have led the field since, developing, promoting, and advocating for PHR in Canada and the United States. We then define PHR with health organizations, that is, organizational participatory research (OPR). The remainder of the chapter focuses on the results of a qualitative analysis of the 16 North American examples we identified in a previous systematic review of OPR, as well as on our own work. We use the sequence of a research study, from developing relationships with research partners to determining the focus of the study, analyzing the data, and examining the results, to illustrate how OPR has been conducted in North America. Subsequently, we describe the changes in knowledge, attitudes, and behaviors that have been linked to these processes. We conclude with a discussion on challenges of OPR that North Americans have faced and how they have dealt with them.
This is a preview of subscription content, log in via an institution.
Buying options
Tax calculation will be finalised at checkout
Purchases are for personal use only
Learn about institutional subscriptionsNotes
- 1.
- 2.
- 3.
- 4.
- 5.
http://www.pre.ethics.gc.ca/eng/index/).
- 6.
http://www.suckhoelavang.org/sklvweb/en/.
- 7.
https://www.ksdpp.org/index.php.
- 8.
http://www.imihale.org/.
- 9.
https://www.pcori.org/.
- 10.
http://www.cihr-irsc.gc.ca/e/41204.html.
- 11.
References
Allen, M. L., Salsberg, J., Knot, M., LeMaster, J. W., Felzien, M., Westfall, J. M., et al. (2017). Engaging with communities, engaging with patients: Amendment to the NAPCRG 1998 policy statement on responsible research with communities. Family Practice, 34(3), 313–321. https://doi.org/10.1093/fampra/cmw074.
Argyris, C., Putnam, R., & Smith, D. M. (1985). Action science: Concepts, methods, and skills for research and intervention. San Francisco, CA: Jossey-Bass.
Argyris, C. (1995). Action science and organizational learning. Journal of Managerial Psychology, 10(6), 20–26.
Argyris, C., & Schön, D. (1991). Participatory action research and action science compared. In W. F. Whyte (Ed.), Participatory action research (pp. 85–96). Newbury Park: Sage.
Barker, S. B., & Barker, R. T. (1994). Managing change in an interdisciplinary inpatient unit: An action research approach. Journal of Mental Health Administration, 21(1), 80–91.
Breda, K. L., Anderson, M. A., Hansen, L., Hayes, D., Pillion, C., & Lyon, P. (1997). Enhanced nursing autonomy through participatory action research. Nursing Outlook, 45(2), 76–81.
Bush, P. L. (2014). Building on a YMCA’s health and physical activity promotion capacities: A case study of a researcher-organization partnership to optimize adolescent programming. (PhD), McGill University, Montreal
Bush, P. L., & García Bengoechea, E. (2016). Building on a YMCA’s health and physical activity promotion capacities: A case study of a researcher-organization partnership to optimize adolescent programming. Evaluation and Program Planning, 57, 30–38. https://doi.org/10.1016/j.evalprogplan.2016.02.005.
Bush, P. L., Hamzeh, J., & Macaulay, A. C. (2018). Community-Based Participatory Research Oxford Bibliographies Online: Public Health (3rd ed.): Oxford University Press.
Bush, P. L., Hamzeh, J., & Macaulay, A. C. (2018). Community-based participatory research, Oxford Bibliographies Online: Public Health. Oxford: Oxford University Press. https://doi.org/10.1093/obo/9780199756797-0126.
Cargo, M., & Mercer, S. L. (2008). The value and challenges of participatory research: Strengthening its practice. Annual Review of Public Health, 29, 325–350. https://doi.org/10.1146/annurev.publhealth.29.091307.083824.
Carr, W., & Kemmis, S. (1986). Becoming critical: education, knowledge, and action research. Philadelphia (PA): Falmer Press.
Cashman, S. B., Flanagan, P., Silva, M. A., & Candib, L. M. (2012). Partnering for health: Collaborative leadership between a community health center and the YWCA central Massachusetts. Journal of Public Health Management and Practice: JPHMP, 18(3), 279–287.
Chen, J. C., Goetz, M. B., Feld, J. E., Taylor, A., Anaya, H., Burgess, J., et al. (2011). A provider participatory implementation model for HIV testing in an ED. American Journal of Emergency Medicine, 29(4), 418–426.
Cornwall, A., & Jewkes, R. (1995). What is participatory research? Social Science & Medicine, 41(12), 1667–1676. https://doi.org/10.1016/0277-9536(95)00127-s.
Coughlin, D., & Brannick, T. (2001). Doing action research in your own organization. Thousand Oaks, CA: Sage.
Dobransky-Fasiska, D., Brown, C., Pincus, H. A., Nowalk, M. P., Wieland, M., Parker, L. S., et al. (2009). Developing a community-academic partnership to improve recognition and treatment of depression in underserved African American and white elders. American Journal of Geriatric Psychiatry, 17(11), 953–964. https://doi.org/10.1097/JGP.0b013e31818f3a7e.
Dobransky-Fasiska, D., Nowalk, M. P., Pincus, H. A., Castillo, E., Lee, B. E., Walnoha, A. L., et al. (2010). Public-academic partnerships: Improving depression care for disadvantaged adults by partnering with non-mental health agencies. Psychiatric Services, 61(2), 110–112. https://doi.org/10.1176/appi.ps.61.2.110.
Dobransky-Fasiska, D., Nowalk, M. P., Cruz, M., McMurray, M. L., Castillo, E., Begley, A. E., et al. (2012). A community-academic partnership develops a more responsive model to providing depression care to disadvantaged adults in the US. The International Journal of Social Psychiatry, 58(3), 295–305.
Eisenberg, E. M., Baglia, J., & Pynes, J. E. (2006). Transforming emergency medicine through narrative: Qualitative action research at a community hospital. Health Communication, 19(3), 197–208.
El Sherif, R., Roy, P., Tang, D. L., Pluye, P., Bush, P., Doray, G., et al. (2015). Toward an information management system for handling parenting information users’ comments. Proceedings of the Association for Information Science and Technology, 52(1), 1–3. https://doi.org/10.1002/pra2.2015.145052010076.
Elden, M., & Levin, M. (1991). Cogenerative learning: Bringing participation into action research. In W. F. Whyte (Ed.), Participatory action research (pp. 127–142). Newbury Park, CA: Sage.
French, W. (1969). Organization development objectives, assumptions, and strategies. California Management Review, 12(2), 23–34.
Freire, P. (1970). Pedagogy of the oppressed (M. B. Ramos, Trans.). New York: Herder and Herder.
Freire, P. (1996) Pedagogy of the opressed. NewYork: Continuum.
Green, L. W., George, M. A., Daniel, M., Frankish, C. J., Herbert, C. J., Bowie, W. R., et al. (1995). Study of participatory research in health promotion: Review and recommendations for the development of participatory research in health promotion in Canada. Ottawa: The Royal Society of Canada.
Greenwood, D., & Levin, M. (1998). Introduction to action research. Thousand Oaks, CA: Sage.
Grimshaw, J., Eccles, M., Lavis, J., Hill, S., Squires, J. (2012). Knowledge translation of research.
Hamelin Brabant, L., Lavoie-Tremblay, M., Viens, C., & Lefrancois, L. (2007). Engaging health care workers in improving their work environment. Journal of Nursing Management, 15(3), 313–320.
Hart, E. O., & Bond, M. (1995). Action research for health and social care: A guide to practice. Buckingham: Open University Press.
Holter, I. M., & Schwartz-Barcott, D. (1993). Action research: What is it? How has it been used and how can it be used in nursing? Journal of Advanced Aging, 18, 298–304.
International Collaboration for Participatory Health Research (ICPHR). (2013). 'Position Paper 1: What is Participatory Health Research?’ Version: May 2013. Berlin: International Collaboration for Participatory Health Research (Accessed: 2 Nov 2017).
International Collaboration for Participatory Health Research (ICPHR). (2013b). ‘Position Paper No. 2: Participatory Health Research: A Guide to Ethical Principles and Practice’ Version: October 2013. Berlin: International Collaboration for Participatory Health Research.
Israel, B. A. (2013). Methods for community-based participatory research for health. San Francisco: Jossey-Bass.
Israel, B. A., Schulz, A. J., Parker, E. A., & Becker, A. B. (1998). Review of community-based research: Assessing partnership approaches to improve public health. Annual Review of Public Health, 19, 173–202. https://doi.org/10.1146/annurev.publhealth.19.1.173.
Israel, B. A., Eng, E., Schulz, A. J., & Parker, E. A. (2005). Methods in community-based participatory research for health. San Francisco: Jossey-Bass.
Jagosh, J., Macaulay, A. C., Pluye, P., Salsberg, J., Bush, P. L., Henderson, J., et al. (2012). Uncovering the benefits of participatory research: Implications of a realist review for health research and practice. The Milbank Quarterly, 90(2), 311–346. https://doi.org/10.1111/j.1468-0009.2012.00665.x.
Jones, D. J., Bush, P. L. and Macaulay, A. C. (2014). Beyond Consent: Respect for Community in Genetic Research. In eLS, John Wiley & Sons, Ltd (Ed.). https://doi.org/10.1002/9780470015902.a0005179.pub2
Jones-Baucke, D. L. (1997). A qualitative study of the implementation of a system to increase nurses’ use of standardized nursing languages. (Ph.D.), UNIVERSITY OF WASHINGTON, Seattle (WA).
Jones, L. and Wells, K. (2007) ‘Strategies for Academic and Cli- nician Engagement in Community–Participatory Partnered Research.’ Journal of the American Medical Association 297: 407–410.
Labonte, R. (1997). Community, community development, and the forming of authentic partnerships: Some critical reflections. In: M. Minkler (Ed.), Community organizing and community building for health. New Brunswick: Rutgers University Press.
Lam, A. (2000). Tacit knowledge, organizational learning and societal institutions: An integrated framework. Organization Studies, 21(3), 487–513. https://doi.org/10.1177/0170840600213001.
Lausten, G. R. (2005). Promoting ecological behavior in nurses through action research. Denver: Univesity of Colorado.
Lavis, J., Robertson, D., Woodside, J., McLeod, C. B., & Abelson, J. (2003). How can research organizations more effectively transfer research knowledge to decision-makers. The Millbank Quarterly, 8(2), 221–248.
Lewin, K. (1946). Action research and minority problems. Journal of Social Issues, 2, 34–46.
Macaulay, A. C., Commanda, L. E., Freeman, W. L., Gibson, N., McCabe, M. L., Robbins, C. M., et al. (1999). Participatory research maximises community and lay involvement (Research Support, Non-U.S. Gov’t Review). British Medical Journal, 319(7212), 774–778. http://www.bmj.com/cgi/reprint/319/7212/774.pdf; expanded version at http://www.napcrg.org/responsibleresearch.pdf.
Macaulay, A. C., Sirett, E., Bush, P. L. (2011). Community-based participatory research. Oxford Bibliographies Online: Public Health. Oxford University Press. https://doi.org/10.1093/obo/9780199756797-0126.
Macaulay, A., Jagosh, J., Pluye, P., Bush, P. L., & Salsberg, J. (2013). Quantitative methods in participatory research: Being sensitive to issues of scientific validity, community safety, and the academic-community relationship. Revue Nouvelle Practiques Society, 25, 159–172.
Macaulay, A. C., Sirett, E., Bush, P. L., (2015). Community-based participatory research. Oxford Bibliographies Online: Public Health (2nd edition): Oxford University Press. https://doi.org/10.1093/obo/9780199756797-0126.
Malus, M., Shulha, M., Granikov, V., Johnson-Lafleur, J., d’Souza, V., Knot, M., et al. (2011). A participatory approach to understanding and measuring patient satisfaction in a primary care teaching setting. Progress in Community Health Partnerships: Research, Education, and Action, 5(4), 417–424.
Mason, R. A. (2003). Action research: A hospital responds to domestic violence. Healthcare Management Forum/Canadian College of Health Service Executives Forum Gestion des soins de sante/College Canadien des directeurs de services de sante, 16(3), 18–22.
Minkler, M. (2004). Ethical challenges for the “Outside” researcher in community-based participatory research. Health Education & Behavior, 31(6), 684–697. https://doi.org/10.1177/1090198104269566.
Minkler, M., & Wallerstein, N. (Eds.). (2003). Community-based participatory research for health. San Francisco: Jossey-Bass.
Minkler, M., & Wallerstein, N. (2008). Community-based participatory research for health: From process to outcomes. San Francisco: Jossey-Bass.
Mirza, M., Gossett, A., Chan, N. K. C., Burford, L., & Hammel, J. (2008). Community reintegration for people with psychiatric disabilities: Challenging systemic barriers to service provision and public policy through participatory action research. Disability & Society, 23(4), 323–336.
Munn-Giddings, C., McVicar, A., & Smith, L. (2008). Systematic review of the uptake and design of action research in published nursing research, 2000–2005. Journal of Research in Nursing, 13(6), 465–477. https://doi.org/10.1177/1744987108090297.
Munten, G., Van Den Bogaard, J., Cox, K., Garretsen, H., & Bongers, I. (2010). Implementation of evidence-based practice in nursing using action research: A review. Worldviews on Evidence-Based Nursing, 7(3), 135–157. https://doi.org/10.1111/j.1741-6787.2009.00168.x.
Oetzel, J., Zhou, C., Duran, B., Pearson, C., Magarati, M., Lucero, J., et al. (2015). Establishing the psychometric properties of constructs in a community-based participatory research conceptual model. American Journal of Health Promotion, 29(5), e188–e202. https://doi.org/10.4278/ajhp.130731-QUAN-398.
Reason, P. (1994). Three approaches to Participative Inquiry. In N. Denzin & Y. Lincoln (Eds.), Handbook of Qualitative Research (pp. 324–329). Thousand Oaks (CA): Sage.
Salsberg, J., Parry, D., Pluye, P., Macridis, S., Herbert, C. P., & Macaulay, A. C. (2015). Successful strategies to engage research partners for translating evidence into action in community health: A critical review. Journal of Environmental and Public Health, 2015, 191856. https://doi.org/10.1155/2015/191856.
Senesac, P. M. (2004). The roy adaptation model: An action research approach to the implementation of a pain management organizational change project. (Ph.D.), Boston College, William F. Connell Graduate School of Nursing. Chestnut Hill, MA
Selener, D. (1997). Participatory action research and social change. Ithaca, NY: Cornell Participatory Action Research Network.
Smith, S. E. (1995). Dancing with conflict: Public health nurses in participatory action-research. Canada: University of Calgary.
Soh, K. L. (2011). Action research studies in the intensive care setting: A systematic review. International Journal of Nursing Studies, 48, 258–268. https://doi.org/10.1016/j.ijnurstu.2010.09.014.
Soh, K. L., Davidson, P. M., Leslie, G., & Rahman, A. B. A. (2011). Action research studies in the intensive care setting: A systematic review. International Journal of Nursing Studies, 48(2), 258–268. https://doi.org/10.1016/j.ijnurstu.2010.09.014.
Stein, B. D., Jaycox, L. H., Kataoka, S. H., et al. (2003). A mental health intervention for schoolchildren exposed to violence: A randomized controlled trial. JAMA, 290(5), 603–611. https://doi.org/10.1001/jama.290.5.603.
Straus, S. E., Tetroe, J., & Graham, I. D. (Eds.). (2009). Knowledge translation in health care: Moving from evidence to practice. Oxford: Wiley-Blackwell.
Stringer, E. T. (1999). Action research. 2nd ed., Thousand Oaks, CA: Sage.
Wallerstein, N. (2000). A participatory evaluation model for healthier communities: Developing indicators for New Mexico. Public Health Report. US Department of Health and Human Services, 115, 199–204.
Wallerstein, N., Oetzel, J., Duran, B., Tafoya, G., Belone, L., & Rae, R. (2008). What predicts outcomes in CBPR? In M. Minkler & N. Wallerstein (Eds.), Community-based participatory research for health: From process to outcomes (pp. 371–392). San Francisco: Jossey-Bass.
Waterman, H., Tillen, D., Dickson, R., & de Koning, K. (2001). Action research: A systematic review and guidance for assessment. Health Technology Assessment, 5(23), 1–166 http://www.hta.ac.uk/execsumm/summ523.shtml.
Williams, A. S. (2005). Using participatory action research to make diabetes education accessible for people with visual impairment. San Francisco: Saybrook Graduate School and Research Center.
Williams, A. S. (2009). Making Diabetes Education Accessible For People With Visual Impairment. The Diabetes Educator, 34(4), 612–621. https://doi.org/10.1177/0145721709335005.
Williams, A. L., Selwyn, P. A., McCorkle, R., Molde, S., Liberti, L., & Katz, D. L. (2005). Application of community-based participatory research methods to a study of complementary medicine interventions at end of life. Complementary Health Practice Review, 10(2), 91–104.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2018 Springer International Publishing AG, part of Springer Nature
About this chapter
Cite this chapter
Bush, P.L. et al. (2018). Organizational Participatory Research in North America. In: Wright, M., Kongats, K. (eds) Participatory Health Research. Springer, Cham. https://doi.org/10.1007/978-3-319-92177-8_12
Download citation
DOI: https://doi.org/10.1007/978-3-319-92177-8_12
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-319-92176-1
Online ISBN: 978-3-319-92177-8
eBook Packages: MedicineMedicine (R0)