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Supporting Intervention Providers and Families in South Asia

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Handbook of Parent-Implemented Interventions for Very Young Children with Autism

Part of the book series: Autism and Child Psychopathology Series ((ACPS))

Abstract

South Asia is one of the most densely populated geographical regions in the world with a young and fast-growing population. The region is characterized by widespread poverty, poor health and social-care infrastructure, and high rates of illiteracy. In recent decades, parts of the region have shown rapid economic development, leading to urbanization and rising social inequality. It is estimated that the region has about 10 million children with autism spectrum disorder (ASD), and the majority have little or no access to any type of service. This chapter reviews existing practices of care for children with ASD in low-income settings in the region and describes some recent advances in supporting intervention providers and families caring for these children.

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References

  • Atif, N., Lovell, K., & Rahman, A. (2015). Maternal mental health: The missing “m” in the global maternal and child health agenda. Paper presented at the Seminars in perinatology.

    Google Scholar 

  • Chatterjee, S., Naik, S., John, S., Dabholkar, H., Balaji, M., Koschorke, M., … Williams, P. (2014). Effectiveness of a community-based intervention for people with schizophrenia and their caregivers in India (COPSI): A randomised controlled trial. The Lancet, 383(9926), 1385–1394.

    Article  Google Scholar 

  • Chatterjee, S., Patel, V., Chatterjee, A., & Weiss, H. A. (2003). Evaluation of a community-based rehabilitation model for chronic schizophrenia in rural India. The British Journal of Psychiatry, 182(1), 57–62.

    Article  Google Scholar 

  • CIA, U. (2013). The World Factbook 2013–14.

    Google Scholar 

  • Daley, T. C. (2004). From symptom recognition to diagnosis: Children with autism in urban India. Social Science & Medicine, 58(7), 1323–1335.

    Article  Google Scholar 

  • Desai, M. U., Divan, G., Wertz, F. J., & Patel, V. (2012). The discovery of autism: Indian parents’ experiences of caring for their child with an autism spectrum disorder. Transcultural Psychiatry, 49(3–4), 613–637.

    Article  Google Scholar 

  • Divan, G., Hamdani, S. U., Vajartkar, V., Minhas, A., Taylor, C., Aldred, C., … Patel, V. (2015). Adapting an evidence-based intervention for autism spectrum disorder for scaling up in resource-constrained settings: The development of the PASS intervention in South Asia. Global Health Action, 8.

    Google Scholar 

  • Divan, G., Vajaratkar, V., Desai, M. U., Strik-Lievers, L., & Patel, V. (2012). Challenges, coping strategies, and unmet needs of families with a child with autism spectrum disorder in Goa, India. Autism Research, 5(3), 190–200.

    Article  Google Scholar 

  • Dua, T., Barbui, C., Clark, N., Fleischmann, A., Poznyak, V., van Ommeren, M., … Drummond, C. (2011). Evidence-based guidelines for mental, neurological, and substance use disorders in low-and middle-income countries: Summary of WHO recommendations. PLoS Medicine, 8(11), e1001122. https://doi.org/10.1371/journal.pmed.1001122

    Article  PubMed  PubMed Central  Google Scholar 

  • Durkin, M., Hasan, Z., & Hasan, K. (1995). The ten questions screen for childhood disabilities: Its uses and limitations in Pakistan. Journal of Epidemiology and Community Health, 49(4), 431–436.

    Article  Google Scholar 

  • Elsabbagh, M., Divan, G., Koh, Y. J., Kim, Y. S., Kauchali, S., Marcín, C., … Wang, C. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research, 5(3), 160–179.

    Article  Google Scholar 

  • Gomes, P., Lima, L. H., Bueno, M. K., Araújo, L. A., & Souza, N. M. (2015). Autism in Brazil: A systematic review of family challenges and coping strategies. Jornal de Pediatria, 91(2), 111–121.

    Article  Google Scholar 

  • Green, J., Charman, T., McConachie, H., Aldred, C., Slonims, V., Howlin, P., … Byford, S. (2010). Parent-mediated communication-focused treatment in children with autism (PACT): A randomised controlled trial. The Lancet, 375(9732), 2152–2160.

    Article  Google Scholar 

  • Hamdani, S. U., Minhas, F. A., Iqbal, Z., & Rahman, A. (2015). Model for service delivery for developmental disorders in low-income countries. Pediatrics, 136(6), 1166–1172.

    Article  Google Scholar 

  • Hamdani, S. U., Atif, N., Tariq, M., Minhas, F. A., Iqbal, Z., & Rahman, A. (2014). Family networks to improve outcomes in children with intellectual and developmental disorders: a qualitative study. International journal of mental health systems, 8(1), 7.

    Google Scholar 

  • Kakuma, R., Minas, H., van Ginneken, N., Dal Poz, M. R., Desiraju, K., Morris, J. E., … Scheffler, R. M. (2011). Human resources for mental health care: Current situation and strategies for action. The Lancet, 378(9803), 1654–1663.

    Article  Google Scholar 

  • Karim, S., Saeed, K., Rana, M. H., Mubbashar, M. H., & Jenkins, R. (2004). Pakistan mental health country profile. International Review of Psychiatry, 16(1–2), 83–92.

    Article  Google Scholar 

  • Karst, J. S., & Van Hecke, A. V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review, 15(3), 247–277.

    Article  Google Scholar 

  • Kendall, T., Megnin-Viggars, O., Gould, N., Taylor, C., Burt, L. R., & Baird, G. (2013). Management of autism in children and young people: Summary of NICE and SCIE guidance. British Medical Journal, 347, f4865.

    Google Scholar 

  • Krishnamurthy, V. (2008). A clinical experience of autism in India. Journal of Developmental & Behavioral Pediatrics, 29(4), 331–333.

    Article  Google Scholar 

  • Minhas, A., Vajaratkar, V., Divan, G., Hamdani, S. U., Leadbitter, K., Taylor, C., … Cardoza, P. (2015). Parents’ perspectives on care of children with autistic spectrum disorder in South Asia–Views from Pakistan and India. International Review of Psychiatry, 27(3), 247–256.

    Article  Google Scholar 

  • Mirza, I., Tareen, A., Davidson, L. L., & Rahman, A. (2009). Community management of intellectual disabilities in Pakistan: A mixed methods study. Journal of Intellectual Disability Research, 53(6), 559–570.

    Google Scholar 

  • Patel, V., Weiss, H. A., Chowdhary, N., Naik, S., Pednekar, S., Chatterjee, S., … King, M. (2010). Effectiveness of an intervention led by lay health counsellors for depressive and anxiety disorders in primary care in Goa, India (MANAS): A cluster randomised controlled trial. The Lancet, 376(9758), 2086–2095.

    Article  Google Scholar 

  • Pickles, A., Harris, V., Green, J., Aldred, C., McConachie, H., Slonims, V., … Charman, T. (2015). Treatment mechanism in the MRC preschool autism communication trial: Implications for study design and parent-focussed therapy for children. Journal of Child Psychology and Psychiatry, 56(2), 162–170.

    Article  Google Scholar 

  • Rahman, A., Divan, G., Hamdani, S. U., Vajaratkar, V., Taylor, C., Leadbitter, K., … Emsley, R. (2016). Effectiveness of the parent-mediated intervention for children with autism spectrum disorder in south Asia in India and Pakistan (PASS): A randomised controlled trial. The Lancet Psychiatry, 3(2), 128–136.

    Article  Google Scholar 

  • Rahman, A., Malik, A., Sikander, S., Roberts, C., & Creed, F. (2008). Cognitive behaviour therapy-based intervention by community health workers for mothers with depression and their infants in rural Pakistan: A cluster-randomised controlled trial. The Lancet, 372(9642), 902–909.

    Article  Google Scholar 

  • Rahman, A., Patel, V., Maselko, J., & Kirkwood, B. (2008). The neglected ‘m’in MCH programmes–why mental health of mothers is important for child nutrition. Tropical Medicine & International Health, 13(4), 579–583.

    Article  Google Scholar 

  • Sarkar, S. (2014). Ethical issues relating to faith healing practices in South Asia: A medical perspective. Journal of Clinical Research & Bioethics, 2014.

    Google Scholar 

  • The World Bank. (2015). Retrieved 28 September, 2015, from http://data.worldbank.org/

  • Trivedi, J. K., Sareen, H., & Dhyani, M. (2008). Rapid urbanization-Its impact on mental health: A South Asian perspective. Indian Journal of Psychiatry, 50(3), 161.

    Article  Google Scholar 

  • Twoy, R., Connolly, P. M., & Novak, J. M. (2007). Coping strategies used by parents of children with autism. Journal of the American Academy of Nurse Practitioners, 19(5), 251–260.

    Article  Google Scholar 

  • UNICEF. (2014). Retrieved 20 May, 2018, from https://www.unicef.org/publications/files/UNICEF_Annual_Report_2014_Web_07June15.pdf

    Google Scholar 

  • Vaidya, S., & Ignou, M. (2009). A Sociological Study of Families of Children with Autism in Delhi: Issues and Challenges. Paper presented at the Asian Pacific Autism Conference. Retrieved from http://www.autism-india.org/india_research.html

  • Van Ginneken, N., Tharyan, P., Lewin, S., Rao, G. N., Romeo, R., & Patel, V. (2011). Non-specialist health worker interventions for mental health care in low-and middle-income countries. The Cochrane Library.

    Google Scholar 

  • Wachs, T. D., Black, M. M., & Engle, P. L. (2009). Maternal depression: A global threat to children’s health, development, and behavior and to human rights. Child Development Perspectives, 3(1), 51–59.

    Article  Google Scholar 

  • World Health Organization. (2010). Mental Health Gap Action Programme (mhGAP) intervention guide for mental, neurological and substance use disorders in non-specialized health settings. Geneva, Switzerland: World Health Organization.

    Google Scholar 

  • Zafar, S., Sikander, S., Haq, Z., Hill, Z., Lingam, R., Skordis-Worrall, J., … Rahman, A. (2014). Integrating maternal psychosocial well-being into a child-development intervention: The five-pillars approach. Annals of the New York Academy of Sciences, 1308(1), 107–117.

    Article  Google Scholar 

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Correspondence to Atif Rahman .

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Rahman, A., Hamdani, S.U. (2018). Supporting Intervention Providers and Families in South Asia. In: Siller, M., Morgan, L. (eds) Handbook of Parent-Implemented Interventions for Very Young Children with Autism. Autism and Child Psychopathology Series. Springer, Cham. https://doi.org/10.1007/978-3-319-90994-3_24

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