Abstract
Despite the progress made in early detection and treatment of cancer resulting in 5-year survival rates of 66%, cancer relapse may occur, even years later. The fear of recurrence is a persistent reality among both survivors and their caregivers. This chapter examines the needs of caregivers and the importance of the family system perspective in navigating cancer care for survivors across a long trajectory of survivorship and uncertainty, including cancer relapse or recurrence and end-of-life care.
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References
American Cancer Society (2015). Survivorship care plans. Atlanta, GA: American Cancer Society Information Center.
Barry, D. B. (2006). Statistical Issues: Barr et al. Respond. In Environmental Health Perspectives. National Institute of Environmental Health Services, 114(12), A689–A690.
Barry, L. C., & Prigerson, H. G. (2002). Perspectives on preparedness for death among bereaved persons. Conn Med, 66, 691–696.
Beckman, S. (2016). Alongside: A Practical guide for loving your neighbor in their time of trial. New York, NY: Morgan James Faith.
Bishop, M. M., Curbow, B. A., Springert, S. H., Lee, J. A., & Wingard, J. R. (2011). Comparison of lasting life changes after cancer and bone marrow transplant: Perspectives of long-term survivors and spouses. Psycho-Oncology, 20(9), 926–934.
Bushfield, S. (2016). Survivorship issues among Muslim women with cancer, Ch. 4 (pp. 55–65). In T. Fitzpatrick (Ed.), Treating vulnerable populations of cancer survivors: A biopsychosocial approach. New York, NY: Springer Co.
Bushfield, S., & DeFord, B. (2010). End of life care and addiction: A family systems approach. New York, NY: Springer.
Cacciatore, J. (2017). Bearing the unbearable: Love, loss, and the heartbreaking pain of grief. Summerville, MA: Wisdom Publications.
Cedolini, C., Bertozzi, S., Londero, A. P., & Bernardi, S. (2014). Type of breast cancer diagnosis, screening, and survival. Clinical Breast Cancer, 14(4), 235–240.
Centers for Disease Control (CDC) and Prevention, Cancer Screening. (2012). Morbidity and Mortality Report, 61(3), 41–45.
Centers for Disease Control and Prevention (CDC) (2015). Cancer screening United States. Atlanta, GA: U.S. Department of Human Services Centers for Disease Control and Prevention and National Cancer Institute.
Dasgupta, P. (2012). Multilevel determinants of breast cancer survival: Association with geographic remoteness and area-level socioeconomic disadvantage. Breast Cancer Research and Treatment, 132(2), 701–710.
DeBoer, M. F., Ryckman, R. M., Pruyn, J. F., & Van den Borne, W. H. (1999). Psychosocial correlates of cancer relapse and survival: A literature review. Patient Education and Counseling, 37, 215–230.
Declerck, C. H., DeBrabander, B., Boone, C., & Gerits, P. (2002). Locus of control, marital status and predictors of early relapse in primary breast cancer patients. Psychology and Health, 17(1), 63–76.
Garofalo, J. (2009). Uncertainty during the transition from cancer patient to survivor. Cancer Nursing, 32(4), E8–E14.
Grabler, P., Dupuy, D., Raj, J., Bernstein, S., & Ansell, D. (2012). Regular screening mammography before the diagnosis of breast cancer reduces black/white breast cancer differences and modifies negative prognostic factors. Breast Cancer Research and Treatment, 135, 549–553.
Gustavson, K., & Dal Santo, T. (2008). Caregiver service use: A complex story of care at the end of life. Journal of Social Work in End-of-Life & Palliative Care, 4(4), 286–311.
Hebdon, M., Foli, K., & McComb, S. (2015). Survivor in the cancer context. Journal of Advanced Nursing, 71(8), 1774–1786.
Hebert, R., Copeland, V. C., Schulz, R., Amato, C. A., & Arnold, R. M. (2008). Preparing family caregivers for the death of a loved one: Implications for hospital social workers. Journal of Social Work & Palliative Care, 4(4), 269–285.
Hebert, R. S., Dang, Q., & Schulz, R. (2006). Caring for caregivers: the essence of palliative care. Journal of Palliative Medicine, 9, 1188–1203.
Helgeson, V. (2011). Survivor centrality among breast cancer survivors: Implications for well being. Psycho-Oncology, 20(5), 517–524.
Hodge, D. (2004). Spirituality and people with mental illness: Developing spiritual competency in assessment and intervention. Families in Society, 85(1), 348–358.
Hodge, D. R., & Bushfield, S. Y. (2006). Developing spiritual competence in practice. Journal of Ethnic and Cultural Diversity in Social Work, 15(3/4), 101–127.
Jo, S., Brazil, K., Lohfeld, L, & Willison, K. (2007). Caregiveing at the end of life: Perspectives from spousal caregivers and care recipients. Palliative & Supportive Care, 5(1), 11–17.
Jones, B. A., Dailey, A., & Calvocoressi, L. (2005). Inadequate follow-up of abnormal screening mammograms: Findings from the race differences in screening mammography process study. Cancer Causes & Control, 16, 809–821.
Kerr, M. E., & Bowen, M. (1988). Family evaluation. New York, NY: W.W. Norton.
Kim, Y., Carver, C., Spillers, R., Love-Ghaffari, M., & Kaw, C.-K. (2012). Dyadic effects of fear of recurrence on the quality of life of cancer survivors and their caregivers. Quality of Life Research, 21(3), 515–525.
Kim, Y., Carver, C. S., Spillers, R. L., Crammer, C., & Zhou, E. S. (2011). Individual and dyadic relations between spiritual well-being and quality of life among cancer survivors and their spousal caregivers. Psycho-Oncology, 20(7), 62–770.
Kim, Y., Kashy, D. A., Spillers, R. L., & Eans, T. V. (2010). Needs assessment of family caregivers of cancer survivors: Three cohorts comparison. Psycho-Oncology, 19(6), p573–p582.
Koenig, H. G., & Bussing, A. (2010). The Duke University Religion Index (DUREL): A five-item measure for use in epidemiological studies. Religion, 2010(I), 78–85.
Lambert, S., Jones, B., Girgis, A., & Lecathelinais, C. (2012). Distressed partners and caregivers do not recover easily: Adjustment trajectories among partners an caregivers of cancer survivors. Annals of Behavioral Medicine, 44(2), 225–235.
Maxwell, T., & Aldredge-Clanton, J. (1994). Survivor guilt in cancer patients: A pastoral perspective. Journal of Pastoral Care, 48(1), 25–31.
Miller, W. R., & Thoreson, C. E. (2003). Spirituality, religion, and health: An emerging research field. American Psychologist, 58(1), 24–35.
Mollica, M., & Nemeth, L. (2015). Transition from patient to survivor in African American breast cancer survivors. Cancer Nursing, 38(1), 16–22.
Montesinos, F., & Luciano, C. (2016). Acceptance of relapse fears in breast cancer patients: Effects of an ACT-based abridged intervention. Psicooncologia, 13(1), 7–21.
Morris, B., Leporte, S., Wilson, B., Lieberman, M., Dunn, J., & Chambers, S. (2014). Journal of Cancer Survivorship, 8(3), 427–436.
Morrow, E. M., & Nicholson, C. (2016). Carer engagement in the hospital care of older people: An integrative literature review. International Journal of Older People, 11(4), 298–314. Also in Wiley Editing Services & Wiley Online Library, https://dol.org/10.1111/opn.12117.
Natarajan, L., Minya Pu, B. A., Parker, C. A., Thomson, B. J., Caan, S. W., Flatt, L. M., … Wael, K. L. (2009). Time-varying effects of prognostic factors associated with disease-free survival in breast cancer. American Journal of Epidemiology, 169(12), 1463–1470.
National Alliance for Family Caregiving. (2007). Resources for caregivers. New York, NY: Metropolitan Life Insurance Company. Retrieved March 7, 2007, from http:ww.caregiving.org/pubs/brochures
National Cancer Center Institute (2014). Cancer screening overview for health professionals. Bethesda, MD: National Institute of Health.
Naus, M., Ishler, M., Parrott, C., & Kovacs, S. (2009). Cancer survivor adaptation. Journal of Clinical Psychology, 65(12), 1350–1359.
Olivetto, I., Gomi, A., & Bancej, C. (2002). Influence of delay to diagnosis on prognostic indicators of screen-detected breast carcinoma. Cancer, 94, 2143–2150.
Park, C., Zlateva, I., & Blank, T. (2009). Self identity after cancer: “Survivor”, “victim”, “patient”, and “person with cancer”. Journal of General Internal Medicine, 24(Supp 2), S430–S435.
Peek, M. E., & Han, J. H. (2004). Disparities in screening mammography: Current status, interventions and implications. Journal of General Internal Medicine, 19(2), 184–194.
Rabow, M. W., Hauser, J. M., & Adams, J. (2004). Supporting family caregivers at the end of life: “They don’t know what they don’t know”. Journal of the American Medical Association, 291(4), 483–491.
Rosedale, M. (2009). Survivor loneliness of women following breast cancer. Oncology Nursing Forum, 36(2), 175–183.
Skalla, K. A., Smith, E. M. L., Li, Z., & Gates, C. (2013). Multidimensional needs of caregivers for patients with cancer. Clinical Journal of Oncology Nursing, 17(5), 500–506.
Sklenarova, H., Krumpelmann, A., & Haun, M. W. (2015). When do we need to care about the caregiver? Cancer, 121(9), p1513–p1519.
Spiegel, D., Sephton, S. F., Terr, A. I., & Stites, D. P. (1998). Effects of psychosocial treatment in prolonging cancer survival may be mediated by neuroimmune pathways. Neuroimmunomodulation, 840, 674–686.
Taplin, S. H., Clauser, S., Rodgers, A., Breslau, E., & Rayson, D. (2010). Interfaces across the cancer continuum offer opportunities to improve the process of care. Journal of the National Cancer Institute, 2010, 104–110.
Teno, J. M., Clarridge, B. R., Casey, V., Welch, L. C., & Wetle, T. (2004). Family perspectives, on end of life care at the last place of care. JAMA, 291(1), 88–93.
Van Hook, M., Hugen, B., & Aguilar, M. A. (Eds.). (2001). Spirituality within religious traditions in social work practice. Pacific Grove, CA: Books/Cole.
Zeilani, R., & Seymour, J. E. (2012). Muslim women’s narratives about body change and care during critical illness: A qualitative study. Journal of Nursing Scholarship, 44(1), 99–107.
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Bushfield, S.Y. (2018). When Cancer Returns: Survivors, Caregivers, and the Family System. In: Fitzpatrick, T. (eds) Quality of Life Among Cancer Survivors . Springer, Cham. https://doi.org/10.1007/978-3-319-75223-5_12
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DOI: https://doi.org/10.1007/978-3-319-75223-5_12
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