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Researching Sexual Healthcare for Women with Problematic Drug Use: Returning to Ethical Principles in Study Processes

  • Natalie L. EdelmanEmail author
Chapter
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Abstract

This chapter illustrates how privileging of the ethical principle of non-maleficence may exclude the most vulnerable from research participation. ‘Patient and public involvement’ is presented as a powerful tool for developing ways of enabling participation, and the notion of ‘lay women’ as distinct from ‘researcher women’ is discussed. These issues are articulated through the example of a mixed-methods study in the UK. Women with problematic drug use were identified as study collaborators and consulted in meetings and via postal review of documents. The chapter also highlights ways of addressing ethical concerns that arise after approval and describes ethical subtleties involved in respecting the rights of participants and study collaborators to speak about painful subjects, whilst ensuring their well-being and maintaining boundaries.

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Copyright information

© The Author(s) 2018

Authors and Affiliations

  1. 1.University of BrightonBrightonUK

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