Abstract
The emotional impact of researching sensitive topics is under-reported. This chapter explores researcher positionality in a study of people’s management of risk in sexual activity where there is a high prevalence of HIV infection. Living in a rural community raised insider/outsider issues as the researchers participated in broader social life, adding relational and emotional dimensions to the process. Exploring the sensitive topic of HIV and AIDS in a resource-constrained context led to blurred boundaries as researchers also became confidante, counsellor or development worker. They were challenged by the emotional intensity of the research and related responsibilities, illustrating the need for enhanced ethical awareness that could not be pre-determined and highlighting the need for ongoing risk assessment for both participants and researchers.
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References
Anderson, K. G., Beutel, A. M., & Maughan-Brown, B. (2007). HIV risk perceptions and first sexual intercourse among youth in Cape Town, South Africa. International Family Planning Perspectives, 33(3), 98–105.
Cloete, A., Strebel, A., Simbayi, L., van Wyk, B., Henda, N., & Nqeketa, A. (2010). Challenges faced by people living with HIV/AIDS in Cape Town, South Africa: Issues for group risk reduction interventions. AIDS Research and Treatment, 420270. https://doi.org/10.1155/2010/420270
Ellen, R. F. (1984). Ethnographic research: A guide to general conduct. London: Academic Press.
Emanuel, E. J., Wendler, D., & Grady, C. (2008). An ethical framework for biomedical research. In E. J. Emanuel, C. Grady, R. A. Crouch, R. K. Lie, F. G. Miller, & D. Wendler (Eds.), The oxford textbook of clinical research ethics (pp. 123–135). New York: Oxford University Press.
Fine, G. A. (1993). Ten lies of ethnography: Moral dilemmas of field research. Journal of Contemporary Ethnography, 22, 267–294.
Hewitt, J. (2007). Ethical components of researcher-researched relationships in qualitative interviewing. Qualitative Health Research, 17(8), 1149–1159.
Jama, N. (2016). Naming and labelling HIV and AIDS in a rural setting in the Eastern Cape. Unpublished Master’s thesis, University of KwaZulu-Natal, South Africa.
Jewkes, R., & Morrell, R. (2012). Sexuality and the limits of agency among South African teenage women: Theorising femininities and their connections to HIV risk practices. Social Science & Medicine, 74(11), 1729–1737.
Kidd, J., & Finlayson, M. (2006). Navigating uncharted water: research ethics and emotional engagement in human inquiry. Journal of Psychiatric Mental Health Nursing, 13(4), 23–28.
Malacrida, C. (2007). Reflexive journaling on emotional research topics: Ethical issues for team researchers. Qualitative Health Research, 17(10), 1329–1339.
Molyneux, C., Goudge, J., Russell, S., Chuma, J., Gumede, T., & Gilson, L. (2009). Conducting health related social science research in low income settings: Ethical dilemmas faced in Kenya and South Africa. Journal of International Development, 21, 309–326.
Mosavel, M., Ahmed, R., Daniels, D., & Simon, C. (2011). Community researchers conducting health disparities research: Ethical and other insights from fieldwork journaling. Social Science & Medicine, 73(1), 145–152. https://doi.org/10.1016/j.socscimed.2011.04.029
Mqedlana, N. (2016). Dealing with a positive HIV diagnosis: A qualitative study exploring the lives of five people living with HIV in a rural Eastern Cape setting. Unpublished Master’s thesis, University of KwaZulu-Natal, South Africa.
Nyambedha, E. O. (2008). Ethical dilemmas of social science research on AIDS and orphanhood in Western Kenya. Social Science and Medicine, 67, 771–779.
Rager, K. B. (2005). Compassion stress and the qualitative researcher. Qualitative Health Research, 5(3), 423–430.
Råheim, M., Magnussen, L. H., Sekse, R. J. T., Lunde, A., Jacobsen, T., & Blystad, A. (2016). Researcher-researched relationship in qualitative research: Shifts in positions and researcher vulnerability. International Journal of Qualitative Studies in Health and Well-being. https://doi.org/10.3402/qhw.v11.30996
Shisana, O., Rehle, T., Simbayi, L. C., Zuma, K., Jooste, S., Zungu, N., et al. (2014). South African national HIV prevalence, incidence and behaviour survey, 2012. Cape Town: HSRC Press.
Skinner, D., & Mfecane, S. (2004). Stigma, discrimination and the implications for people living with HIV/AIDS in South Africa. Journal of Social Aspects of HIV/AIDS, 1(3), 157–164.
Spradley, J. C. (1980). Participant observation. New York: Holt, Reinhart & Winston.
StatsSA. (2011). Census 2011 statistical release. Retrieved December 13, 2016, from http://www.statssa.gov.za/publications/P03014/P030142011.pdf
Wassenaar, D., & Mamotte, N. (2012). Ethical issues and ethics review in social science research. In A. Ferrero, Y. Korkut, M. M. Leach, G. Lindsay, & M. J. Stevens (Eds.), The Oxford handbook of international psychological ethics (pp. 268–282). New York and Oxford: Oxford University Press.
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We appreciate the commitment of the community members, without whom this work would not have been possible. We are grateful for the support of funding by the National Research Foundation (NRF)-Thuthuka mechanism which enabled many of the costs of this research to be covered.
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Akhurst, J., van der Riet, M., Sofika, D. (2018). Living in a Rural Community and Researching HIV and AIDS: Positionality and Ethics. In: Macleod, C., Marx, J., Mnyaka, P., Treharne, G. (eds) The Palgrave Handbook of Ethics in Critical Research. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-319-74721-7_14
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DOI: https://doi.org/10.1007/978-3-319-74721-7_14
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