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Defining Successful Transition: Pediatric Provider Perspective

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Health Care Transition

Abstract

Adolescents and young adults with special health-care needs often interface with both primary care providers and specialists. It is important for all pediatric providers to communicate during the transition to adult-oriented health care in order to promote optimal patient health outcomes. This chapter explores the unique perspectives each provider offers and suggests strategies to attain a successful health-care transition.

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References

  1. Oswald DP, Gilles DL, Cannady MS, Wenzel DB, Willis JH, Bodurtha JN. Youth with special health care needs: transition to adult health care services. Matern Child Health J. 2013;17(10):1744–52. https://doi.org/10.1007/s10995-012-1192-7.

    Article  PubMed  PubMed Central  Google Scholar 

  2. Cooley WC, Sagerman PJ, American College of Physicians, Transitions Clinical Report Authoring Group. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2011;128(1):182–200. https://doi.org/10.1542/peds.2011-0969.

    Article  PubMed  Google Scholar 

  3. Sable C, Foster E, Uzark K, Bjornsen K, Canobbio MM, Connolly HM, et al. Best practices in managing transition to adulthood for adolescents with congenital heart disease: the transition process and medical and psychosocial issues. Circulation. 2011;123(13):1454–85. https://doi.org/10.1161/CIR.0b013e3182107c56.

    Article  PubMed  Google Scholar 

  4. Jalkut MK, Allen PJ. Transition from pediatric to adult health care for adolescents with congenital heart disease: a review of the literature and clinical implications. Pediatr Nurs. 2009;35(6):381–7.

    PubMed  Google Scholar 

  5. Sawyer SM, Macnee S. Transition to adult health care for adolescents with spina bifida: research issues. Dev Disabil Res Rev. 2010;16(1):60–5. https://doi.org/10.1002/ddrr.98/.

    Article  PubMed  Google Scholar 

  6. Fredericks EM, Dore-Stites D, Well A, Magee JC, Freed GL, Shieck V, et al. Assessment of transition readiness skills and adherence in pediatric liver transplant recipients. Pediatr Transplant. 2010;14(8):944–53. https://doi.org/10.1111/j.1399-3046.2010.01349.x.

    Article  PubMed  PubMed Central  Google Scholar 

  7. Pai A, Ingerski L, Perazzo L, Ramey C, Bonner M, Goebel J. Preparing for transition? The allocation of oral medication regimen tasks in adolescents with renal transplants. Pediatr Transplant. 2011;15(1):9–16. https://doi.org/10.1111/j.1399-3046.2010.01369.x.

    Article  PubMed  Google Scholar 

  8. Fair C, Cuttance J, Sharma N, Maslow G, Wiener L, Betz C, et al. International and interdisciplinary identification of health care transition outcomes. JAMA Pediatr. 2016;170(3):205–11. https://doi.org/10.1001/jamapediatrics.2015.3168.

    Article  PubMed  PubMed Central  Google Scholar 

  9. Suris JC, Akre C. Key elements for, and indicators of, a successful transition: an international Delphi study. J Adolesc Health. 2015;56(6):612–8. https://doi.org/10.1016/j.jadohealth.2015.02.007.

    Article  PubMed  Google Scholar 

  10. Olsson CA, Bond L, Johnson MW, Forer DL, Boyce MF, Sawyer SM. Adolescent chronic illness: a qualitative study of psychosocial adjustment. Ann Acad Med Singap. 2003;32(1):43–50.

    CAS  PubMed  Google Scholar 

  11. Rapley P, Davidson P. Enough of the problem: a review of time for health care transition solutions for young adults with a chronic illness. J Clin Nurs. 2010;19(3–4):313–23. https://doi.org/10.1111/j.1365-2702.2009.03027.x.

    Article  CAS  PubMed  Google Scholar 

  12. Reiss JG, Gibson RW, Walker LR. Health care transition: youth, family, and provider perspectives. Pediatrics. 2005;115(1):112–20. https://doi.org/10.1542/peds.2004-1321.

    Article  PubMed  Google Scholar 

  13. American Academy of Pediatrics, Clinical Report. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2011;128(1):182–200.

    Article  Google Scholar 

  14. Burke R, Spoerri M, Price A, Cardosi A, Flanagan P. Survey of primary care pediatricians on the transition and transfer of adolescents to adult health care. Clin Pediatr (Phila). 2008;47(4):347–54.

    Article  Google Scholar 

  15. Fair CD, Sullivan K, Gatto A. Best practices in transitioning youth with HIV: perspectives of pediatric and adult infectious disease care providers. Psychol Health Med. 2010;15(5):515–27. https://doi.org/10.1080/13548506.2010.493944.

    Article  PubMed  Google Scholar 

  16. Paine CW, Stollon NB, Lucas MS, Brumley LD, Poole ES, Peyton T, et al. Barriers and facilitators to successful transition from pediatric to adult inflammatory bowel disease care from the perspectives of providers. Inflamm Bowel Dis. 2014;20(11):2083. https://doi.org/10.1097/MIB.0000000000000136.

    Article  PubMed  Google Scholar 

  17. Lotstein DS, McPherson M, Strickland B, Newacheck PW. Transition planning for youth with special health care needs: results from the National Survey of Children with Special Health Care Needs. Pediatrics. 2005;115(6):1562–8. https://doi.org/10.1542/peds.2004-1262.

    Article  PubMed  Google Scholar 

  18. Betz CL, Ferris ME, Woodward JF, Okumura MJ, Jan S, Wood DL. The health care transition research consortium health care transition model: a framework for research and practice. J Pediatr Rehabil Med. 2014;7(1):3–15. https://doi.org/10.3233/PRM-140277.

    Article  PubMed  Google Scholar 

  19. Bloom SR, Kuhlthau K, Van Cleave J, Knapp AA, Newacheck P, Perrin JM. Health care transition for youth with special health care needs. J Adolesc Health. 2012;51(3):213–9. https://doi.org/10.1016/j.jadohealth.2012.01.007.

    Article  PubMed  Google Scholar 

  20. Fair CD, Sullivan K, Gatto A. Indicators of transition success for youth living with HIV: perspectives of pediatric and adult infectious disease care providers. AIDS Care. 2011;23(8):965–70. https://doi.org/10.1080/09540121.2010.542449.

    Article  PubMed  Google Scholar 

  21. Sawicki GS, Lukens-Bull K, Yin X, Demars N, Huang IC, Livingood W, et al. Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ—Transition Readiness Assessment Questionnaire. J Pediatr Psychol. 2009;36(2):160–71. https://doi.org/10.1093/jpepsy/jsp128.

    Article  PubMed  PubMed Central  Google Scholar 

  22. Cantú-Quintanilla G, Ferris M, Otero A, Gutiérrez-Almaraz A, Valverde-Rosas S, Velázquez-Jones L, et al. Validation of the UNC TR x ANSITION scale™ version 3 among Mexican adolescents with chronic kidney disease. J Pediatr Nurs. 2015;30(5):e71–81. https://doi.org/10.1016/j.pedn.2015.06.011.

    Article  PubMed  Google Scholar 

  23. Ferris ME, Harward DH, Bickford K, Layton JB, Ferris MT, Hogan SL, et al. A clinical tool to measure the components of health-care transition from pediatric care to adult care: the UNC TRxANSITION scale. Ren Fail. 2012;34(6):744–53.

    Article  PubMed  Google Scholar 

  24. Ferris M, Cohen S, Haberman C, Javalkar K, Massengill S, Mahan JD, Bickford K, Cantu G, Medeiros M, Phillips A, Ferris MT, Hooper SR. Self-management and transition-readiness assessment: development, reliability, and factor structure of the STARx questionnaire. J Pediatr Nurs. 2015;30(5):691–699. pii: S0882-5963(15)00153-0. https://doi.org/10.1016/j.pedn.2015.05.009.

    Article  CAS  PubMed  Google Scholar 

  25. Cohen SE, Hooper SR, Javalkar K, Haberman C, Fenton N, Lai H, Mahan JD, Massengill S, Kelly M, Cantú G, Medeiros M. Self-management and transition readiness assessment: concurrent, predictive and discriminant validation of the STAR x questionnaire. J Pediatr Nurs. 2015;30(5):668–76. https://doi.org/10.1016/j.pedn.2015.05.006.

    Article  PubMed  Google Scholar 

  26. Wood DL, Sawicki GS, Miller MD, Smotherman C, Lukens-Bull K, Livingood WC, et al. The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity. Acad Pediatr. 2014;14(4):415–22. https://doi.org/10.1016/j.acap.2014.03.008.

    Article  PubMed  Google Scholar 

  27. Rehm RS, Fuentes-Afflick E, Fisher LT, Chesla CA. Parent and youth priorities during the transition to adulthood for youth with special health care needs and developmental disability. ANS Adv Nurs Sci. 2012;35(3):E57. https://doi.org/10.1097/ANS.0b013e3182626180.

    Article  PubMed  PubMed Central  Google Scholar 

  28. Cheak-Zamora NC, Farmer JE, Mayfield WA, Clark MJ, Marvin AR, Law JK, et al. Health care transition services for youth with autism spectrum disorders. Rehabil Psychol. 2014;59(3):340. https://doi.org/10.1037/a0036725.

    Article  PubMed  Google Scholar 

  29. van Staa A, van der Stege HA, Jedeloo S, Moll HA, Hilberink SR. Readiness to transfer to adult care of adolescents with chronic conditions: exploration of associated factors. J Adolesc Health. 2011;48(3):295–302. https://doi.org/10.1016/j.jadohealth.2010.07.009.

    Article  PubMed  Google Scholar 

  30. Soanes C, Timmons S. Improving transition: a qualitative study examining the attitudes of young people with chronic illness transferring to adult care. J Child Health Care. 2004;8(2):102–12. https://doi.org/10.1177/1367493504041868.

    Article  PubMed  Google Scholar 

  31. Peter NG, Forke CM, Ginsburg KR, Schwarz DF. Transition from pediatric to adult care: internists’ perspectives. Pediatrics. 2009;123(2):417–23. https://doi.org/10.1542/peds.2008-0740.

    Article  PubMed  Google Scholar 

  32. Goldenring JM, Cohen E. Getting into adolescents’ heads. Contemp Pediatr. 1988;5:75–90.

    Google Scholar 

  33. Scal P. Improving health care transition services: just grow up, will you please. JAMA Pediatr. 2016;170(3):197–9. https://doi.org/10.1001/jamapediatrics.2015.3268.

    Article  PubMed  Google Scholar 

  34. Taddeo D, Egedy M, Frappier JY. Adherence to treatment in adolescents. Paediatr Child Health. 2008;13(1):19–24. https://doi.org/10.1093/pch/13.1.19.

    Article  PubMed  PubMed Central  Google Scholar 

  35. Kipps S, Bahu T, Ong K, Ackland FM, Brown RS, Fox CT, et al. Current methods of transfer of young people with type 1 diabetes to adult services. Diabet Med. 2002;19(8):649–54. https://doi.org/10.1046/j.1464-5491.2002.00757.x.

    Article  CAS  PubMed  Google Scholar 

  36. Richardson LP, McCauley E, Grossman DC, McCarty CA, Richards J, Russo JE, Rockhill C, Katon W. Evaluation of the patient health Questionnaire-9 item for detecting major depression among adolescents. Pediatrics. 2010;126(6):1117–23. https://doi.org/10.1542/peds.2010-0852.

    Article  PubMed  Google Scholar 

  37. Hyams JS, Ferry GD, Mandel FS, Gryboski JD, Kibort PM, Kirschner BS, et al. Development and validation of a pediatric Crohn’s disease activity index. J Pediatr Gastroenterol Nutr. 1991;12(4):449.

    Article  Google Scholar 

  38. Consolaro A, Ruperto N, Bazso A, Pistorio A, Magni-Manzoni S, Filocamo G, Malattia C, Viola S, Martini A, Ravelli A, Paediatric Rheumatology International Trials Organisation. Development and validation of a composite disease activity score for juvenile idiopathic arthritis. Arthritis Rheum. 2009;61(5):658–66. https://doi.org/10.1002/art.24516.

    Article  PubMed  Google Scholar 

  39. Lugasi T, Achille M, Stevenson M. Patients’ perspective on factors that facilitate transition from child-centered to adult-centered health care: a theory integrated metasummary of quantitative and qualitative studies. J Adolesc Health. 2011;48(5):429–40. https://doi.org/10.1016/j.jadohealth.2010.10.016.

    Article  PubMed  Google Scholar 

  40. Fair CD, Goldstein B, Dizney R. Congruence of transition perspectives between adolescents with perinatally-acquired HIV and their guardians: an exploratory qualitative study. J Pediatr Nurs. 2015;30(5):684–90. https://doi.org/10.1016/j.pedn.2015.06.001.

    Article  PubMed  Google Scholar 

  41. Schwartz LA, Daniel LC, Brumley LD, Barakat LP, Wesley KM, Tuchman LK. Measures of readiness to transition to adult health care for youth with chronic physical health conditions: a systematic review and recommendations for measurement testing and development. J Pediatr Psychol. 2014;39(6):588–601. https://doi.org/10.1093/jpepsy/jsu028.

    Article  PubMed  PubMed Central  Google Scholar 

  42. Hagan JF, Shaw JS, Duncan PM. Bright futures: guidelines. 3rd ed. Elk Grove Village: American Academy of Pediatrics; 2007.

    Google Scholar 

  43. Katzenellenbogen R. HEADSS: the ‘Review of Systems’ for adolescents. Virtual Mentor. 2005;7(3):1–2.

    Google Scholar 

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Author information

Authors and Affiliations

  1. Department of Public Health Studies, Elon University, Elon, NC, USA

    Cynthia Fair L.C.S.W., M.P.H., Dr.P.H. & Sophie Rupp B.A.

  2. Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA

    Laura C. Hart M.D., M.P.H.

  3. Hospital Infantil de Mexico Federico Gomez, Universidad Nacional Autonoma de Mexico, Mexico City, Mexico

    Ana Catalina Alvarez-Elias M.D., M.Sc.

  4. Sick Kids, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada

    Ana Catalina Alvarez-Elias M.D., M.Sc.

  5. General Pediatrics and Adolescent Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA

    Martha Perry M.D.

  6. Healthcare Transition Program, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA

    Maria Ferris M.D., M.P.H., Ph.D.

Authors
  1. Cynthia Fair L.C.S.W., M.P.H., Dr.P.H.
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  2. Sophie Rupp B.A.
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  3. Laura C. Hart M.D., M.P.H.
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  4. Ana Catalina Alvarez-Elias M.D., M.Sc.
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  5. Martha Perry M.D.
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  6. Maria Ferris M.D., M.P.H., Ph.D.
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Corresponding author

Correspondence to Cynthia Fair L.C.S.W., M.P.H., Dr.P.H. .

Editor information

Editors and Affiliations

  1. Associate Professor, Director of Research, Section of Adolescent Medicine and Sports Medicine, Department of Pediatrics, Baylor College of Medicine, Texas Children’s Hospital, Houston, Texas, USA

    Albert C. Hergenroeder

  2. Professor, Chief of Adolescent Medicine, Section of Adolescent Medicine and Sports Medicine, Department of Pediatrics, Baylor College of Medicine, Texas Children’s Hospital, Houston, Texas, USA

    Constance M. Wiemann

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Fair, C., Rupp, S., Hart, L.C., Alvarez-Elias, A.C., Perry, M., Ferris, M. (2018). Defining Successful Transition: Pediatric Provider Perspective. In: Hergenroeder, A., Wiemann, C. (eds) Health Care Transition. Springer, Cham. https://doi.org/10.1007/978-3-319-72868-1_21

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  • DOI: https://doi.org/10.1007/978-3-319-72868-1_21

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-72867-4

  • Online ISBN: 978-3-319-72868-1

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