Definition
Preparation for future care (PFC) is defined as the attitudes, thoughts, and actions that caregiving families and older adults undertake to develop plans for when the older adults are no longer able to independently carry out activities of daily living. They include the location and manner in which the older adult hopes to receive assistance and care, who will and can provide this care, and under what circumstances the care would be needed. PFC encompasses four measureable steps/dimensions (Sörensen et al. 2017): (1) an initial awareness of potential future needs, (2) gathering information about needs and resources that might address those needs, (3) making decisions about preferences, and (4) taking concrete actions to ensure those preferences are accessible when needed. A fifth dimension of PFC is (5)...
References
Aspinwall LG, Taylor SE (1997) A stitch in time: self-regulation and proactive coping. Psychol Bull 121:417–436. https://doi.org/10.1037/0033-2909.121.3.417
Bailey WA, Gordon SR (2016) Family caregiving amidst age-associated cognitive changes: implications for practice and future generations. Fam Relat 65(1): 225–238. https://doi.org/10.1111/fare.12176
Ball MM, Perkins MM, Whittington FJ et al (2005) Communities of care: assisted living for African American elders. The Johns Hopkins University Press, Baltimore
Bauer M, Fitzgerald L, Haesler E et al (2009) Hospital discharge planning for frail older people and their family. Are we delivering best practice? A review of the evidence. J Clin Nurs 18(18):2539–2546. https://doi.org/10.1111/j.1365-2702.2008.02685.x
Black BS, Johnston D, Rabins PV et al (2013) Unmet needs of community-residing persons with dementia and their informal caregivers: findings from the maximizing independence at home study. J Am Geriatr Soc 61(12):2087–2095. https://doi.org/10.1111/jgs.12549
Brodaty H, Thomson C, Thompson C et al (2005) Why caregivers of people with dementia and memory loss don’t use services. Int J Geriatr Psychiatry 20(6):537–546. https://doi.org/10.1002/gps.1322
Bromley MC, Blieszner R (1997) Planning for long-term care: Filial behavior and relationship quality of adult children with independent parents. Family Relations 155–162
Brown HW (2009) Boomer women’s long-term care planning: barriers and levers. AARP Knowledge Management, Washington, DC. https://www.aarp.org/relationships/caregiving/info-08-2009/boomer_women_ltc.html
Carrese JA, Mullaney JL, Faden R et al (2002) Planning for death but not serious future illness: qualitative study of housebound elderly patients. Br Med J 325(7356):125–127. https://doi.org/10.1136/bmj.325.7356.125
Casado BL, van Vulpen KS, Davis SL (2011) Unmet needs for home and community-based services among frail older Americans and their caregivers. J Aging Health 23(3):529–553. https://doi.org/10.1177/0898264310387132
Committee on Family Caregiving for Older Adults (2016) Older adults who need caregiving and the family caregivers who help them. In: Schulz R, Eden J (eds) Families caring for an aging America. National Academies Press (US), Washington, DC. https://doi.org/10.17226/23606
Corrêa MS, Vedovelli K, Giacobbo BL et al (2015) Psychophysiological correlates of cognitive deficits in family caregivers of patients with Alzheimer disease. Neuroscience 286:371–382. https://doi.org/10.1016/j.neuroscience.2014.11.052
Corsentino EA, Molinari V, Gum AM et al (2008) Family caregivers’ future planning for younger and older adults with serious mental illness (SMI). J Appl Gerontol 27(4):466–485. https://doi.org/10.1177/0733464808315290
Deimling GT, Smerglia VL, Schaefer ML (2001) The impact of family environment and decision-making satisfaction on caregiver depression: a path analytic model. J Aging Health 13(1):47–71. https://doi.org/10.1177/089826430101300103
Feast A, Orrell M, Russell I, Charlesworth G, Moniz-Cook E (2017) The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia. Int J Geriatr Psychiatry 32(1):76–85. https://doi.org/10.1002/gps.4447
Finucane ML, Slovic P, Hibbard JH et al (2002) Aging and decision-making competence: an analysis of comprehension and consistency skills in older versus younger adults considering health plan options. J Behav Decis Mak 15:141–164. https://doi.org/10.1002/bdm.407
Freedman VA, Spillman BC (2014) The residential continuum from home to nursing home: size, characteristics and unmet needs of older adults. J Gerontol B Psychol Sci Soc Sci 69(Suppl 1):S42–S50. https://doi.org/10.1093/geronb/gbu120
Garvelink MM, Ngangue PAG, Adekpedjou R et al (2016) A synthesis of knowledge about caregiver decision making finds gaps in support for those who care for aging loved ones. Health Aff 35(4):619–626. https://doi.org/10.1377/hlthaff.2015.1375
Hash KM, Netting FE (2007) Long-term planning and decision-making among midlife and older gay men and lesbians. J Soc Work End Life Palliat Care 3(2): 59–77. https://doi.org/10.1300/J457v03n02_05
Henning-Smith C, Shippee T (2015) Expectations about future use of long-term services and supports vary by current living arrangement. Health Aff 34:39–47. https://doi.org/10.1377/hlthaff.2014.0556
Kahana E, Kelley-Moore J, Kahana B (2012) Proactive aging: a longitudinal study of stress, resources, agency, and well-being in late life. Aging Ment Health 16(4):438–451. https://doi.org/10.1080/13607863.2011.644519
Koehn S (2009) Negotiating candidacy: ethnic minority seniors’ access to care. Ageing Soc 29(4):585–608. https://doi.org/10.1017/S0144686X08007952
Lageman SK, Mickens MN, Cash TV (2015) Caregiver-identified needs and barriers to care in Parkinson’s disease. Geriatr Nurs 36(3):197–201. https://doi.org/10.1016/j.gerinurse.2015.01.002
Mak W, Sörensen S (2011) Trajectories of preparation for future care among first-degree relatives of Alzheimer’s disease patients: an ancillary study of ADAPT. Gerontologist 52(4):531–540. https://doi.org/10.1093/geront/gnr119
Miller LM, Whitlatch CJ, Lyons KS (2016) Shared decision-making in dementia: a review of patient and family carer involvement. Dementia 15(5):1141–1157. https://doi.org/10.1177/1471301214555542
Ouwehand C, de Ridder DTD, Bensing JM (2007) A review of successful aging models: proposing proactive coping as an important additional strategy. Clin Psychol Rev 27(8):873–884. https://doi.org/10.1016/j.cpr.2006.11.003
Pecchioni LL, Nussbaum JF (2001) Mother-adult daughter discussions of caregiving prior to dependency: exploring conflicts among European-American women. J Fam Commun 1(2):133–150. https://doi.org/10.1207/S15327698JFC0102_0
Schumacher KL, Stewart BJ, Archbold PG (2007) Mutuality and preparedness moderate the effects of caregiving demand on cancer family caregiver outcomes. Nurs Res 56(6):425–433. https://doi.org/10.1097/01.NNR.0000299852.75300.03
Shelton EG, Orsulic-Jeras S, Whitlatch CJ et al (2017) Does it matter if we disagree? The impact of incongruent care preferences on persons with dementia and their care partners. Gerontologist 58(3):556–566. https://doi.org/10.1093/geront/gnw202
Smith GC, Smith MF, Toseland RW (1991) Problems identified by family caregivers in counseling. Gerontologist 31(1):15–22. https://doi.org/10.1093/geront/31.1.15
Sörensen S, Pinquart M (2000a) Preparation for future care needs by West and East German older adults. J Gerontol B 55(6):S357–S367. https://doi.org/10.1093/geronb/55.6.S357
Sörensen S, Pinquart M (2000b) Preparation for future care needs: styles of preparation used by older Eastern German, United States, and Canadian women. J Cross Cult Gerontol 15(4):349–381. https://doi.org/10.2190/A8H1-W8BD-W6XL-2V2E
Sörensen S, Pinquart M (2000c) Vulnerability and access to resources as predictors of preparation for future care needs in the elderly. J Aging Health 12(3):275–300. https://doi.org/10.1177/089826430001200301
Sörensen S, Webster JD, Roggman LA (2002) Adult attachment and preparing to provide care for older relatives. Attach Hum Dev 4(1):84–106. https://doi.org/10.1080/14616730210123102
Sörensen S, Duberstein PR, Chapman BP et al (2008) How is personality related to preparation for future care needs? J Gerontol B Psychol Sci Soc Sci 63(6):P328–P336. https://doi.org/10.1093/geronb/63.6.P328
Sörensen S, Mak W, Chapman BP et al (2012) The relationship of preparation for future care and depression and anxiety in primary care patients: a two-year follow-up. Am J Geriatr Psychiatry 20(10):887–894. https://doi.org/10.1097/JGP.0b013e31822ccd8c. PMC3458161
Sörensen S, Hirsch JK, Lyness LM (2014) Optimism and planning for future care needs among older adults. GeroPsych 27(1):5–22. https://doi.org/10.1024/1662-9647/a000099
Sörensen S, White K, Mak W et al (2015) The Macular Degeneration and Aging Study: design and research protocol of a randomized trial for a psychosocial intervention with macular degeneration patients. Contemp Clin Trials 42:68–77. https://doi.org/10.1016/j.cct.2015.03.007
Sörensen S, Chapman BJ, Duberstein PR et al (2017) Assessing future care preparation in late life: two short measures. Psychol Assess 29(12): 1480–1495. https://doi.org/10.1037/pas0000446
Southerland J, Slawson DL, Pack R et al (2016) Trait hope and preparation for future care needs among older adult primary care patients. Clin Gerontol 39(2):117–126. https://doi.org/10.1080/07317115.2015.1120254
Suitor JJ, Gilligan M, Rurka M et al (2017) Conflict with mothers and siblings during caregiving: differential costs for black and white adult children. J Gerontol B 73(7):e86–e97. https://doi.org/10.1093/geronb/gbx149
Vitaliano PP, Ustundag O, Borson S (2016) Objective and subjective cognitive problems among caregivers and matched non-caregivers. Gerontologist 57(4): 637–647. https://doi.org/10.1093/geront/gnv690
Whitlatch CJ, Heid AR, Femia EE et al (2017) The Support, Health, Activities, Resources, and Education program for early stage dementia: results from a randomized controlled trial. Dementia. https://doi.org/10.1177/1471301217743033
Winter L, Moss MS, Hoffman C (2009) Affective forecasting and advance care planning: anticipating quality of life in future health statuses. J Health Psychol 14(3):447–456. https://doi.org/10.1177/1359105309102201
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Sörensen, S. (2021). Preparation for Future Care: The Role of Family Caregivers. In: Gu, D., Dupre, M.E. (eds) Encyclopedia of Gerontology and Population Aging. Springer, Cham. https://doi.org/10.1007/978-3-319-69892-2_25-2
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Preparation for Future Care: The Role of Family Caregivers- Published:
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DOI: https://doi.org/10.1007/978-3-319-69892-2_25-2
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Preparation for Future Care: The Role of Family Caregivers- Published:
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DOI: https://doi.org/10.1007/978-3-319-69892-2_25-1