Abstract
The purpose of this chapter is to examine the implications of the US Affordable Care Act (ACA) for rural residents with disabilities. Special attention is given to rural health disparities, challenges of health-care services, availability of medical providers, and the confluence of poverty. Barriers to health care and health delivery that significantly impact health outcomes for rural residents are highlighted. Most importantly, it suggests that the Affordable Care Act has substantially decreased the number of uninsured individuals and established a number of provisions to impact the quality of health care in rural communities. However, even after the Affordable Care Act, health inequities remain. Further, this chapter explores proposals to improve rural health services and presents initiatives to “tweak,” replace, and expand the Affordable Care Act.
References
American Academy of Nurse Practitioners. (2012). Fact sheet: Accountable care or organizations. Retrieved from https://www.aanp.org/component/content/article/68-articles/343-%20accountable-care-organizations
American Public Health Association [APHA]. (2014). Advocacy & policy. Medicaid expansion. Retrieved from http://www.apha.org/advocacy/Health Reform/ACAbasics/medicaid.htm
Annie E. Casey Foundation (2016). Kids count special report: City and rural kids. Retrieved from http://datacenter.kidscount.org/
Assistant Secretary for Planning and Evaluation. (2012). 2012 HHS poverty guidelines. US Department of Health and Human Services. Retrieved from http://aspe.hhs.gov/
Auerbach, D. I., Staiger, D. O., Muench, U., & Buerhaus, P. I. (2013). The nursing workforce I in an era of health care reform. The New England Journal of Medicine, 368(16), 1470–1472. doi:10.1056/NEJMp1301694.
Bagley, N., & Levy, H. (2014). Essential health benefits and the Affordable Care Act: Law and process. Journal of Health Politics, Policy and Law, 39(2), 441–465.
Becker Herbst, R., & Gonzalez-Guarda, R. M. (2016). Exploring perspectives of well-being in Latina/o migrant workers. Counselling Psychology Quarterly, 4, 1–25.
Beronio, K., Glied, S., & Frank, R. (2014). How the Affordable Care Act and mental health parity and addiction equity act greatly expand coverage of behavioral health care. The Journal of Behavioral Health Services & Research, 41(4), 410–428.
Berthold, S. M., & Libal, K. (2016). Migrant children’s rights to health and rehabilitation: A primer for U.S social workers. Journal of Human Rights and Social Work, 1(2), 85–95.
Billings, D. B., & Blee, K. M. (2000). The road to poverty: The making of wealth and hardship in Appalachia. Cambridge, UK: Cambridge University Press.
Blendon, R. J., Benson, J. M., & Brulé, A. (2012). Understanding health care in the 2012 election. New England Journal of Medicine, 367(17), 1658–1661.
Blumenthal, D., Abrams, M., & Nuzum, R. (2015). The affordable care act at 5 years. New England Journal of Medicine, 372(25), 2451–2458. doi:10.1056/NEJMhpr1503614.
Blumenthal, D., & Collins, S. R. (2014). Health care coverage under the Affordable Care Act—A progress report. New England Journal of Medicine, 371(3), 275–281.
Buck, J. A. (2011). The looming expansion and transformation of public substance abuse treatment under the Affordable Care Act. Health Affairs, 30(8), 1402–1410.
Bulger, R. J. (2010). Healing America: Hope, mercy, justice and autonomy in the American health care system. Westport, CT: Prospecta Press.
Centers for Disease Control and Prevention [CDC]. (2016). Fact stats disabilities and limitations. Retrieved from hppt://www.cdc.gov
Chronic Care Center | Summit Medical Group (2016). Retrieved from https://www.summitmedicalgroup.com/service/chronic-care-center/Livingston=chronic Care Center Opens in Livingston/Summit Medical Group
Cohn, J. (2010). How they did it: The inside account of health care reform’s triumph. New Republic, 10, 14–25.
Collins, S. R., Rasmussen, P. W., Beutel, S., & Doty, M. M. (2015). The problem of underinsurance and rising deductibles will make it worse. Issue brief. New York, NY: The Commonwealth Fund.
Collins, S. R., Rasmussen, P. W., Doty, M. M., & Beutel, S. (2015). The rise in health care coverage and affordability since health reform took effect. Washington, DC: Commonwealth Fund.
Collins, S. R., Rasmussen, P. W., Garber, T., & Doty, M. M. (2013). Covering young adults under the Affordable Care Act: The importance of outreach and Medicaid expansion: Findings from the commonwealth fund health insurance tracking survey of young adults. The Commonwealth Fund Brief, 21, 1–15.
Devers, K., & Berenson, R. (2009). Can accountable care organizations improve the value of health care? By solving the cost and quality quandaries? Washington, DC: Robert Wood Johnson Foundation and The Urban Institute.
Doty, M. M., Blumenthal, D., & Collins, S. R. (2014). The affordable care act and health insurance for Latinos. Journal American Medical Association, 312(17), 1735–1736.
Downey, L. H. (2013). Rural populations and health: Determinants, disparities, and solutions. Preventing Chronic Disease, 10, 130097.
Drew, E. (2011). Is there life in health care reform? The New York Review of Books, 49.
Eberhardt, M. S., & Pamuk, E. R. (2004). The importance of place of residence: Examining health in rural and nonrural areas. American Journal of Public Health, 94(10), 1682–1686.
Eckersley, R. (2006). Is modern western culture a health hazard? International Journal of Epidemiology, 35(2), 252–258.
Emanuel, E., Tanden, N., Altman, S., Armstrong, S., Berwick, D., de Brantes, F., & Daschle, T. (2012). A systemic approach to containing health care spending. New England Journal of Medicine, 367(10), 949–954.
Ewoldt, L. L. (2014). Healthcare reform: Resolve to increase your knowledge in 2014. American Nurse Today, 9, 89–11.
Farley, M. R. (2010). Challenging supremacy: Virginia’s response to the patient protection and affordable care act. University Richmond Law Review, 45, 37.
Finley, C., & Stewart, A. (2013). Working with rural teens: Adolescent reproductive health in rural America. Retrieved from https://www.hhs.gov/ash/oah/oah-initiatives/teen_pregnancy/training?Assets/adolescent_reproductive_ruralam.pdf
Fisher, E. S., & Shortell, S. M. (2010). Accountable care organizations: Accountable for what, to whom, and how. Journal of American Medical Association, 304(15), 1715–1716.
Foulkes, M., & Newbold, K. B. (2008). Poverty catchments: Migration, residential mobility, and population turnover in impoverished rural Illinois communities. Rural Sociology, 73(3), 440–462.
French, M. T., Homer, J., Gumus, G., & Hickling, L. (2016). Key provisions of the patient protection and Affordable Care Act (ACA): A systematic review and presentation of early research findings. Health Services Research, 51(5), 1735–1771.
Graham, M. C. (2011). Accountable care organizations: The future of healthcare? The Nurse Practitioner, 36(8), 11–21.
Hartley, D. (2004). Rural health disparities, population health, and rural culture. American Journal of Public Health, 94(10), 1675–1678.
Hansen, E., & Donohoe, M. (2003). Health issues of migrant and seasonal farmworkers. Journal of Health care for the Poor and Underserved, 14(2), 153–164.
Hamel, M. B., Blumenthal, D., Adams, M., & Nuzun, R. (2015). The Affordable Care Act at 5 years. The New England Journal of Medicine, 372, 2451–2458.
Haeder, S. F., & Weimer, D. L. (2013). “You can’t make me do it:” State implementation of insurance exchanges under the “Affordable Care Act”. Public Administration Review, 73(s1), S34–S47.
Hill, B. G., Moloney, A., Mize, T., Himelick, T., & Guest, J. (2011). Prevalence and predictors of food insecurity in migrant farmworkers in Georgia. American Journal of Public Health., 1(5), 831–835.
Hill, M. A. (2013). Evaluating the affordable care act: The eye of the beholder. Houston Law Review, 51, 1029.
Huntington, W. V., Covington, L. A., Center, P. P., Covington, L. A., & Manchikanti, L. (2011). Patient protection and Affordable Care Act of 2010: Reforming the health care reform for the new decade. Pain Physician, 14(1), E35–E67.
Iezzoni, L. I., Killeen, M. B., & O’Day, B. L. (2006). Rural residents with disabilities confront substantial barriers to obtaining primary care. Health Services Research, 41(4 Pt. 1), 1258–1275.
Institute for Healthcare Improvement. (2016). Office practices: Case for improvement. Retrieved from http://www.ihi.org/IHI/Topics/OfficePractices/
Institute of Medicine. (2011). U.S. Committee on the Robert Wood Johnson foundation initiative on the future of nursing. The future of nursing: Leading change, advancing health. Washington, DC: National Academies Press.
Jost, T. (2014). Implementing health reform: A January exchange enrollment update. Health affairs web first. Retrieved from http://Healthaffairs.org/blog./
Kaiser Commission on Medicaid and the Uninsured. (2013). The uninsured: A primer. The Henry J. Kaiser Family Foundation. Retrieved from http://www.kff.org
Kaiser Family Foundation. (2014). Status of state action on the medicaid expansion decision, 2014. State health facts. Retrieved from http:kff.orghealthreform-activity-around-expanding-Medicaid-under-the-affordable-care-act/
Keeling, A., & Lewenson, S. B. (2013). A nursing historical perspective on the medical home: Impact on health care policy. Nursing Outlook, 61(5), 360–366.
Keith, K., Lucia, K. W., Corlette, S. (2014). Realizing health reform’s potential. Implementing the Affordable Care Act: state action on the 2014 market reforms. Retrieved from http://www.commonwealthfund.org
Klein, D., Laugesen, M., & Liu, N. (2013). The patient-centered medical home: A future standard for American healthcare? Public Administration Review, 73(s1), S82–S92.
Kocher, R., Emanuel, E. J., & DeParle, N. A. M. (2010). The Affordable Care Act and the future of clinical medicine: The opportunities and challenges. Annals of Internal Medicine, 153(8), 536–539.
Lee, M. J., Collinson, S., & Murray, S. (2017). GOP healthcare plan clears first hurdle, debate continues in committee. Retrieved from hppt://www.CNN Politics.
Levit, K., Smith, C., Cowan, C., Lazenby, H., Sensenig, A., & Catlin, A. (2003). Trends in US health care spending, 2001. Health Affairs, 22(1), 154–164.
Long, S. K., Karpman, M., Kenney, G. M., Zuckerman, S., Wissoker, D., Shartzer, A., … Hempstead, K. (2014). Taking stock: Health insurance coverage under the ACA as of September 2014. Washington, DC: Urban Institute. Retrieved from http://hrms.urban.org/briefs/health-insuranceCoverage-under-theACA-asofSeptember2014
Mechanic, D. (2012). Seizing opportunities under the Affordable Care Act for transforming the mental and behavioral health system. Health Affairs, 31(2), 376–382.
MHPAEA (2008). The Mental Health Parity and Addiction Equity Act (MHPAEA) of 2008 requires health insurers and group health plans to provide the same level of benefits for mental and/or substance use treatment and services that they do for medical/surgical care. Retrieved from: https://www.cms.gov/cciio/programs-and-initiatives/other.../mhpaea_factsheet.htm
Minkler, M. (2000). Using participatory action research to build healthy communities. Public Health Reports, 115(2–3), 191.
Minow, M. (2012). Affordable convergence: “reasonable interpretation” and the Affordable Care Act. Harvard Law Review, 126(1), 117–149.
Murguia, A., Peterson, R., & Zea, M. (2003). Use and implications of ethnomedical health care approaches among Central American immigrants. Health and Social Work, 28, 43–51.
Murray, S. (2008). Consumer health information services in public libraries in Canada and the US. Journal of the Canadian Health Libraries Association, 29(4), 141–143.
National Center for Health Statistics. Health, United States, (2011). With special feature on socioeconomic status and health. Hyattsville, MD: National Center for Health Statistics Retrieved from http://www.cdc.gov/.
National Rural Health Association. (2005). Providing hospice and palliative care in rural and frontier areas. Kansas City, MO: National Rural Health Association.
National Rural Health Association. (2007). Rural health disparities collaboratives: Benefits, barriers and adaptations for the future. Retrieved from http://www.ruralhealthweb.org
Newkirk, V., & Damico, A. (2014). The affordable care act and insurance coverage in rural areas. Retrieved from http://kff.org/other/kaiser-commission-on-medicaid-and-the-uninsured
O’hare, A. M., Johansen, K. L., & Rodriguez, R. A. (2006). Dialysis and kidney transplantation among patients living in rural areas of the United States. Kidney International, 69(2), 343–349.
Ogden, C., Carroll, M., Kit, B., & Flegal, K. M. (2014). Prevalence of childhood and adult obesity in the United States, 2011–2012. JAMA, 311(8), 806–814.
Ogundipe, B., Alam, F., Gazula, L., Olagbemiro, Y., Osiezagha, K., Bailey, R. K., & Richie, W. D. (2015). Remaking the American Health Care System: A positive reflection on the Affordable Care Act with emphasis on Mental Health Care. Journal of Health Care for the Poor and Underserved, 26(1), 49–61.
Olds, D. (2002). Prenatal and infancy home visiting by nurses: From randomized trials, to community replication. Prevention Science, 3(3), 153–172.
Orszag, P., & Emanuel, E. (2010). Health care reform and cost control. New England Journal of Medicine, 363(7), 601–603.
Palmer, A. (2016). Health reform and the ACA triple gap: Failing low-income young adults with mental health needs. Social Work in Mental Health, 14(4), 327–341.
Plough, A. (2014). Building a culture of health: Challenges for the public health workforcee. American Journal of Preventive Medicine, 47(5 Suppl. 3), S388–S390. Robert Wood Johnson Foundation.
Porter, M. (2009). A strategy for health care reform—Toward a value-based system. New England Journal of Medicine, 361(2), 109–112.
Rickerts, T., & Fraher, E. (2013). Reconfiguring health workforce policy so that education, training, and actual delivery of health care are closely connected. Health Affairs, 31(11), 1874–1880.
Robert Wood Johnson Foundation. (2015). From vision to action: Measures to mobilize a culture of health. Princeton, NJ: Robert Wood Johnson Foundation. Retrieved from www.rwjf.org/en/how-we-work/building-a-culture-of-health.htm.
Saloner, B., Bloner, B., & Le Cook, B. (2014). An ACA provision increased treatment for young adults with possible mental illnesses relative to comparison group. Health Affairs, 33(8), 1425–1434.
Smith, K., Humphreys, J. S., & Wilson, M. G. (2008). Addressing the health disadvantage of rural populations: how does epidemiological evidence inform rural health policies and research? Australian Journal of Rural Health, 16(2), 56–66.
Smith, K., & Tickamyer, A. (2011). Economic restructuring and family well-being in rural America. University Park, PA: Penn State Press.
Sommers, B., Buchmueller, T., Decker, S., Carey, C., & Kronick, R. (2013). The Affordable Care Act has led to significant gains in health insurance and access to care for young adults. Health Affairs, 32(1), 165–174.
Sommers, B. D., Gunja, M. Z., Finegold, K., & Musco, T. (2015). Changes in self-reported insurance coverage, access to care, and health under the Affordable Care Act. Journal American Medical Association, 314(4), 366–374.
Sorrell, J. M. (2012). The patient protection and Affordable Care Act: What does it mean for mental health services for older adults? Journal of Psychosocial Nursing and Mental Health Services, 50(11), 14–18.
Spoerry, S. (2011). Obama drops long-term health plan. Retrieved from http://CNN.com
Strasser, R. (2003). Rural health around the world: Challenges and solutions. Family Practice, 20(4), 457–463.
U.S. Department of Health and Human Services (USDHHS). (2014). Key features of the Affordable Care Act. Retrieved from of the Affordable Care Act by year. Retrieved from http://www.hhs.gov/healthcare/facts/timeline/timeline
Vincent, D., & Reed, P. G. (2014). Affordable Care Act: Overview and implications for advancing nursing. Nursing Science Quarterly, 27(3), 254–259.
Virnig, B., Moscovice, I. S., Durham, S., & Casey, M. (2004). Do rural elders have limited access to Medicare hospice services? Journal of the American Geriatrics Society, 52(5), 731–735.
Weitz, R. (2000). The Sociology of Health and Illness. Wadsworth/Thompson Learning. Belmont, CA.
White House Fact Sheet. (2012). Creating health care jobs by addressing primary care workforce needs. Office of the Press Secretary. Retrieved from www.Whitehouse.gov
Wilkinson, D., & Blue, I. (2002). The new rural health. Oxford, UK: Oxford University Press.
Woolhandler, S., Campbell, T., & Himmelstein, D. U. (2003). Costs of health care administration in the United States and Canada. New England Journal of Medicine, 349(8), 768–775.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Learning Activities
Learning Activities
Self-Check Questions
-
1.
What are the major service delivery and insurance reform provisions in the Affordable Care Act?
-
2.
What social conditions were prevalent during the creation of the ACA?
-
3.
What are the challenges of the ACA to improve the health of rural, frontier, and territory residents living with disabilities?
-
4.
What are the limitations of the ACA?
Experiential Exercises
-
1.
Interview a young (between the ages of 30 and 40) and an older recipient (aged 50 and older) of the ACA in a rural, frontier, or territory community to determine their experiences and perceptions of the ACA. Determine the evaluation of the ACA as it relates to service delivery, quality of care, as well as access to care. Compare their views of ACA.
-
2.
Visit a Medicaid/Medicare office to interview a human service provider in a rural, frontier, or territory community to determine their experiences with ACA. Determine the person’s evaluation, challenges, and limitations of ACA. In conducting the interview, use open-ended questions, such as the following:
-
(a)
Tell me about your experiences with Medicaid/Medicare clients before ACA.
-
(b)
Discuss your experiences with Medicaid/Medicare clients after ACA.
-
(c)
If you could change ACA, what changes would you make?
-
(d)
Tell me your thoughts regarding the ACA.
Be sure to thank the interviewee for his/her time.
Write a paper on the results of your interview.
-
(a)
Rights and permissions
Copyright information
© 2018 Springer International Publishing AG
About this chapter
Cite this chapter
Lawson, E.J. (2018). Health-Care Initiatives, Strategies, and Challenges for People with Disabilities in Rural, Frontier, and Territory Settings. In: Harley, D., Ysasi, N., Bishop, M., Fleming, A. (eds) Disability and Vocational Rehabilitation in Rural Settings. Springer, Cham. https://doi.org/10.1007/978-3-319-64786-9_5
Download citation
DOI: https://doi.org/10.1007/978-3-319-64786-9_5
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-319-64785-2
Online ISBN: 978-3-319-64786-9
eBook Packages: Social SciencesSocial Sciences (R0)