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Translating the Quality of Life Concept into Practice

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Handbook of Positive Psychology in Intellectual and Developmental Disabilities

Part of the book series: Springer Series on Child and Family Studies ((SSCFS))

Abstract

This chapter discusses six factors that significantly influence the translation of the quality of life concept into practice. These factors are a validated quality of life conceptual model, quality enhancement strategies, application fidelity, research, evidence-based practices, and a systematic approach to translating evidence into practice. We also suggest that these are the same factors that significantly influence the translation of positive psychology into practice. Throughout the chapter, quality of life is defined as a multidimensional phenomenon composed of core domains that constitute personal well-being.

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References

  • Archibald, T. (2015). “They just know”: The epistemological politics of “evidence-based non-formal education. Evaluation and Program Planning, 48, 137–148.

    Article  PubMed  Google Scholar 

  • Baron, R. M., & Kenny, D. A. (1986). The moderator-mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology, 51, 1173–1182.

    Article  PubMed  Google Scholar 

  • Bigby, C., Knox, M., Beatle-Brown, J., & Bould, E. (2014). Identifying good group homes: Qualitative indicators using a quality of life framework. Intellectual and Developmental Disabilities, 52, 348–366.

    Article  PubMed  Google Scholar 

  • Biesta, C. J. J. (2010). What “what works” still won’t work: From evidence-based education to values-based education. Studies in Philosophy and Education, 29, 491–503.

    Article  Google Scholar 

  • Bouffard, M., & Reid, G. (2012). The good, the bad, and the ugly of evidence-based practice. Adapted Physical Activity Quarterly, 29, 1–24.

    Article  PubMed  Google Scholar 

  • Broekaert, E., Autrique, M., Vanderplasschen, W., & Colpaert, K. (2010). ‘The human prerogative:’ A critical analysis of evidence-based and other paradigms of care in substance abuse treatment. Psychiatric Quarterly, 81, 227–238.

    Article  PubMed  Google Scholar 

  • Brown, I., Hatton, C., & Emerson, E. (2013). Quality of life indicators for individuals with intellectual disabilities: Extending current practice. Intellectual and Developmental Disabilities, 51, 316–332.

    Article  PubMed  Google Scholar 

  • Burke, J. (2001). Toward a new classification of nonexperimental quantitative research. Educational Research, 30, 3–13.

    Google Scholar 

  • Chiu, C., Kyzar, K., Zuna, N., Turnbull, A., Summers, J. A., & Gomez, V. A. (2013). Family quality of life. In M. Wehmeyer (Ed.), The Oxford handbook of positive psychology and disability (pp. 365–392). New York: Oxford University Press.

    Google Scholar 

  • Claes, C., van Hove, G., Vandevelde, S., van Loon, J., & Schalock, R. L. (2012). The influence of support strategies, environmental factors, and client characteristics on quality of life-related outcomes. Research in Developmental Disabilities, 33, 96–103.

    Article  PubMed  Google Scholar 

  • Claes, C., van Loon, J., Vandevelde, S., & Schalock, R. L. (2015). An integrative approach to evidence-based practices. Evaluation and Program Planning, 48, 132–136.

    Article  PubMed  Google Scholar 

  • Creswell, J. W., Hanson, W. E., Plano, V. L., & Morales, A. (2007). Qualitative research designs: Selection and implementation. The Counseling Psychologist, 35, 236–264.

    Article  Google Scholar 

  • Cummins, R. A. (2005). Moving from the quality of life concept to a theory. Journal of Intellectual Disability Research, 49, 699–706.

    Article  PubMed  Google Scholar 

  • Daly, J., Willis, K., Small, R., Green, J., Welch, N., Keely, M., et al. (2007). A hierarchy of evidence for assessing qualitative health research. Journal of Epidemiology, 60, 43–49.

    Google Scholar 

  • Donaldson, S. I., Christie, C. A., & Mark, M. M. (2009). What counts as credible evidence, applied research, and evaluation practice?. Thousand Oaks, CA: SAGE Publications.

    Book  Google Scholar 

  • Farmer, C. (2012). Demystifying moderators and mediators in intellectual and developmental disabilities research: A primer and review of the literature. Journal of Intellectual Disability Research, 56, 1148–1160.

    Article  PubMed  Google Scholar 

  • Felce, D., & Perry, J. (1995). Quality of life: Its definition and measurement. Research in Developmental Disabilities, 16, 51–74.

    Article  PubMed  Google Scholar 

  • Frazier, P., Tix, A., & Barron, K. (2004). Testing moderator and mediator effects in counseling psychology research. Journal of Counseling Psychology, 51, 115–134.

    Article  Google Scholar 

  • Gardner, J. F., & Carran, D. (2005). Attainment of personal outcomes by people with developmental disabilities. Mental Retardation, 43, 157–174.

    Article  PubMed  Google Scholar 

  • Given, I. (2006). Qualitative research in evidence-based practice. A valuable partnership. Library HI Tech, 24, 376–386.

    Article  Google Scholar 

  • Gomez, L. E., Arias, B., Verdugo, M. A., & Navas, P. (2012). An outcomes-based assessment of quality of life in social services. Social Indicators Research. doi:10.1007/x11205-011-9794-9

    Google Scholar 

  • Gomez, L. E., Arias, B., Verdugo, M. A., Tasse, M. J., & Brown, I. (2015). Operationalization of quality of life for adults with severe disabilities. Journal of Intellectual Disability Research, 59, 925–941.

    Article  PubMed  Google Scholar 

  • Gomez, L. E., & Verdugo, M. A. (2017). Outcomes evaluation. In R. L. Schalock & K. D. Keith (Eds.), Cross-cultural quality of life: Enhancing the lives of persons with intellectual disability (2nd ed.) (pp. 71–81).  Washington, DC: American Association on Intellectual and Developmental Disabilities.

    Google Scholar 

  • Gomez, L. E., Arias, B., Verdugo, M. A., & Schalock, R. L. (in preparation). The role of moderator and mediator variables in an evaluation-focused program logic models.

    Google Scholar 

  • Gomez, L. E., Verdugo, M. A., Arias, B., & Arias, V. (2011). A comparison of alternative models of individual quality of life for social service recipients. Social Indicators Research, 101, 109–126. doi:10.1007/s/11205-010-9635-y

    Article  Google Scholar 

  • Grimshaw, J., Campbell, M., Eccles, M., & Steen, N. (2000). Experimental and quasi-experimental designs for evaluating guideline implementation strategies. Family Practice, 17, 11–16.

    Article  Google Scholar 

  • Gugiu, P. C. (2015). Hierarchy of evidence and appraisal limitations (HEAL) grading system. Evaluation and Program Planning, 48, 149–159.

    Article  PubMed  Google Scholar 

  • Hart, K. E., & Sasso, T. (2011). Mapping the contours of contemporary positive psychology. Canadian Psychology, 52, 82–92.

    Article  Google Scholar 

  • Hogue, A., & Dauber, S. (2013). Assessing fidelity to evidence-based practices in usual care: The example of family therapy for adolescent behavior problems. Evaluation and Program Planning, 37, 21–30.

    Article  PubMed  Google Scholar 

  • Jenaro, C., Verdugo, M. A., Caballo, C., Balboni, G., Lachapelle, Y., & Otrebski, W. (2005). Cross-cultural study of person-centered quality of life domains and indicators. Journal of Intellectual Disability Research, 49, 734–739.

    Article  PubMed  Google Scholar 

  • Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Thousand Oaks, CA: SAGE.

    Google Scholar 

  • McKinnon, D. P. (2008). Introduction to statistical mediation analysis. New York: Erlbaum.

    Google Scholar 

  • Mansell, J., & Beadle-Brown, J. (2012). Active support: Enabling and empowering people with intellectual disabilities. London, UK: Jessica Kingsley Publishers Ltd.

    Google Scholar 

  • Means, S. N., Magura, S., Burchardt, J. T., & Scheroter, D. C. (2015). Comparing rating paradigms for evidence-based program registers in behavioral health: Evidentiary criteria and implications for assessing programs. Evaluation and Program Planning, 48, 100–116.

    Article  PubMed  PubMed Central  Google Scholar 

  • Mihalic, S. F., & Elliott, D. S. (2015). Evidence-based program registry: Blueprint for healthy youth development. Evaluation and Program Planning, 48, 124–131.

    Article  PubMed  Google Scholar 

  • Morin, D., Crocker, A. G., Beaulieu, B., Bergeron, R., & Caron, J. (2013). Validation of the attitudes toward intellectual disability-ATTID Questionnaire. Journal of Intellectual Disability Research, 57, 268–278.

    Article  PubMed  Google Scholar 

  • Navas, P., Gomez, L. E., Verdugo, M. A., & Schalock, R. L. (2012). Rights of persons with intellectual disabilities: Implications of the UN Convention. Siglo Cero, 43, 7–28.

    Google Scholar 

  • Neutens, J. J., & Rubinson, L. (2010). Research techniques for the health sciences. San Francisco: Benjamin Cummings.

    Google Scholar 

  • Norwood, S. L. (2010). Research essentials: Foundations of evidence-based practices. Boston: Pearson Electronic.

    Google Scholar 

  • Nussbaum, M. C. (2009). The capabilities of people with cognitive disabilities. Metaphilosophy, 40(3–4), 331–351.

    Article  Google Scholar 

  • Nussbaum, M. C. (2011). Creating capabilities: The human development approach. Cambridge, MA: Belknap Press of Harvard University Press.

    Book  Google Scholar 

  • Petry, K., Maes, B., & Vlaskamp, C. (2005). Domains of quality of life of people with profound multiple disabilities: The perspective of parents and direct support staff. Journal of Applied Research in Intellectual Disabilities, 18, 35–46.

    Article  Google Scholar 

  • Petry, K., Maes, B., & Vlaskamp, C. (2009). Psychometric evaluation of a questionnaire to measure the quality of life of people with profound multiple disabilities (QOL-PMD). Research in Developmental Disabilities, 30, 1326–1336.

    Article  PubMed  Google Scholar 

  • Pinker, D. (2005). A whole new mind: Moving from the information to the conceptual age. New York, NY: Riverhead Books.

    Google Scholar 

  • Pronovost, P., Berenholtz, S., & Needham, D. (2008). Translating evidence into practice: A model for large scale knowledge translation. British Medical Journal, 337, 76–90.

    Article  Google Scholar 

  • Reinders, H., & Schalock, R. L. (2014). How organizations can enhance the quality of life of their clients and assess their results: The concept of quality of life enhancement. American Journal of Intellectual and Developmental Disabilities, 119, 291–302.

    Article  Google Scholar 

  • Renwick, R., Brown, I., & Raphael, D. (2000). Person-centered quality of life: Contributions from Canada to an international understanding. In K. D. Keith & R. L. Schalock (Eds.), Cross-cultural perspectives on quality of life (pp. 5–21). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Sackett, D. L., Richardson, W. S., Rosenberg, W., & Haynes, R. B. (2005). Evidence-based medicine: How to practice and teach EBM. Philadelphia, PA: Churchill-Livingstone.

    Book  Google Scholar 

  • Schalock, R. L., Gardner, J. F., & Bradley, V. J. (2007). Quality of life for person with intellectual and other developmental disabilities: Applications across individuals, organizations, communities, and systems. Washington, DC: American Association on Intellectual and Developmental Disabilities.

    Google Scholar 

  • Schalock, R. L., Gomez, L. E., Verdugo, M. A., & Claes, C. (2015). A systematic approach to establishing evidence based practices in the field of intellectual disability. Manuscript submitted for publication.

    Google Scholar 

  • Schalock, R. L., Keith, K. D., Verdugo, M. A., & Gomez, L. E. (2010). Quality of life model development and use in the field of intellectual disability. In R. Kober (Ed.), Enhancing the quality of life of people with intellectual disabilities (pp. 17–32). New York: Springer Science and Business Media.

    Chapter  Google Scholar 

  • Schalock, R. L., & Luckasson, R. (2014). Clinical judgment (2nd ed.). Washington, DC: American Association on Intellectual and Developmental Disabilities.

    Google Scholar 

  • Schalock, R. L., & Verdugo, M. A. (2002). Handbook on quality of life for human service practitioners. Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Schalock, R. L., & Verdugo, M. A. (2008). Quality of life from concept to application in the field of intellectual disability. Evaluation and Program Planning, 31, 181–190.

    Article  PubMed  Google Scholar 

  • Schalock, R. L., & Verdugo, M. A. (2012). A leadership guide for today’s disabilities organizations: Overcoming challenges and making change happen. Baltimore: Brookes.

    Google Scholar 

  • Schalock, R. L., & Verdugo, M. A. (2013a). The impact of the quality of life concept on the field of intellectual disability. In M. L. Wehmeyer (Ed.), The Oxford handbook of positive psychology and disability (pp. 37–47). New York: Oxford University Press.

    Google Scholar 

  • Schalock, R. L., & Verdugo, M. A. (2013b). The transformation of disabilities organizations. Intellectual and Developmental Disabilities, 51, 273–286.

    Article  PubMed  Google Scholar 

  • Schalock, R. L., & Verdugo, M. A. (2014). Quality of life as a change agent. In R. I. Brown & R. Faragher (Eds.), Challenges for quality of life: Application in education and other social contexts (pp. 60–72). New York: Nova Science.

    Google Scholar 

  • Schalock, R. L., Verdugo, M. A., & Gomez, L. E. (2011). Evidence-based practices in the field of intellectual and developmental disabilities: An international consensus approach. Evaluation and Program Planning, 34, 273–282.

    Article  PubMed  Google Scholar 

  • Schalock, R. L., Verdugo, M. A., Gomez, L. E., & Reinders, H. (2016). Moving us toward a theory of individual quality of life. American Journal of Intellectual and Developmental Disabilities, 12, 1–12.

    Article  Google Scholar 

  • Schalock, R. L., Verdugo, M. A., Jenaro, C., Wang, M., Wehmeyer, M., Xu, J., et al. (2005). Cross-cultural study of quality of life indicators. American Journal on Mental Retardation, 110, 298–311.

    Article  PubMed  Google Scholar 

  • Sen, A. (1999). Development as freedom. New York: Anchor Books.

    Google Scholar 

  • Shogren, K. A., Luckasson, R., & Schalock, R. L. (2014). The definition of “context” and its application in the field of intellectual disability. Journal of Policy and Practice in Intellectual Disabilities, 11, 109–116.

    Article  Google Scholar 

  • Shogren, K. A., Luckasson, R., & Schalock, R. L. (2015). Using context as an integrative framework to align policy goals, supports, and outcomes in intellectual disability. Intellectual and Developmental Disabilities, 53, 367–376.

    Article  PubMed  Google Scholar 

  • Thompson, J. R., Schalock, R. L., Agosta, J., Teninty, L., & Fortune, J. (2014). How the supports paradigm is transforming service systems for persons with intellectual disability and related developmental disabilities. Inclusion, 2, 86–99.

    Article  Google Scholar 

  • Turnbull, H. R., & Stowe, M. J. (2014). Elaborating on the AAIDD public policy framework. Intellectual and Developmental Disabilities, 52, 1–12.

    Article  PubMed  Google Scholar 

  • United Nations (2006). Convention on the rights of persons with disabilities. Retrieved from: www.un.org/disabilities/convention

  • Verdugo, M. A., Navas, P. A., Gomez, L. E., & Schalock, R. L. (2012). The concept of quality of life and its role in enhancing human rights in the field of intellectual disability. Journal of Intellectual Disability Research, 56, 1036–1045.

    Article  PubMed  Google Scholar 

  • Verdugo, M. A., Schalock, R. L., Keith, K. D., & Stancliffe, R. (2005). Quality of life and its measurement: Important principles and guidelines. Journal of Intellectual Disability Research, 49, 707–717.

    Article  PubMed  Google Scholar 

  • Wang, M., Schalock, R. L., Verdugo, M. A., & Jenaro, C. (2010). Examining the factor structure and hierarchical nature of the quality of life construct. American Journal on Intellectual and Developmental Disabilities, 115, 218–233.

    Article  PubMed  Google Scholar 

  • Wehmeyer, M. L. (Ed.). (2013). The Oxford handbook of positive psychology and disability. New York: Oxford University Press.

    Google Scholar 

  • Zuna, N., Summers, J. A., Turnbull, A. P., Hu, X., & Xu, S. (2010). Theorizing about family quality of life. In R. Kober (Ed.), Enhancing the quality of life of people with intellectual disability: From theory to practice (pp. 241–278). Dordrecht: Springer.

    Chapter  Google Scholar 

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Author information

Authors and Affiliations

  1. Hastings College, PO Box 285, Chewelah, 99109, WA, USA

    Robert L. Schalock

  2. University of Salamanca, Salamanca, Spain

    Miguel A. Verdugo

  3. University of Oviedo, Oviedo, Spain

    Laura E. Gomez

Authors
  1. Robert L. Schalock
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  2. Miguel A. Verdugo
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  3. Laura E. Gomez
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Corresponding author

Correspondence to Robert L. Schalock .

Editor information

Editors and Affiliations

  1. Department of Special Education, Kansas University Center on Developmental Disabilities, University of Kansas, Lawrence, Kansas, USA

    Karrie A. Shogren

  2. Department of Special Education, Beach Center on Disability, University of Kansas, Lawrence, Kansas, USA

    Michael L. Wehmeyer

  3. Department of Psychiatry and Health Behavior, Medical College of Georgia, Augusta University, Augusta, Georgia, USA

    Nirbhay N. Singh

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Schalock, R.L., Verdugo, M.A., Gomez, L.E. (2017). Translating the Quality of Life Concept into Practice. In: Shogren, K., Wehmeyer, M., Singh, N. (eds) Handbook of Positive Psychology in Intellectual and Developmental Disabilities. Springer Series on Child and Family Studies. Springer, Cham. https://doi.org/10.1007/978-3-319-59066-0_9

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