Skip to main content

Part of the book series: Springer Series on Child and Family Studies ((SSCFS))

Abstract

Research on older adults with intellectual disabilities often focuses on age-related losses in functioning and on ways to prevent decline. A positive psychology perspective on aging focuses on creating a positive and meaningful aging experience. It enables the formulation of supports and services informed by the life stories, experiences, and individual needs and preferences of these adults. This chapter discusses aging among people with intellectual disabilities from a life course perspective and focuses on the major transitions faced by this population: the transition to retirement, transitions in social networks, and the final transition of death and dying. Strengths-based interventions focused on future planning, social network interventions, and life story can support adults with intellectual disabilities through these transitions.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 349.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 449.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 449.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Abbott, S., & McConkey, R. (2006). The barriers to social inclusion as perceived by people with intellectual disabilities. Journal of intellectual disabilities, 10(3), 275–287.

    Article  PubMed  Google Scholar 

  • Acharya, K., Schindler, A., & Heller, T. (2016). Aging: Demographics, trajectories and health system issues. In I. L. Rubin (Ed.), Health care for people with intellectual and developmental disabilities across the lifespan (pp. 1423–1432). Switzerland: Springer International Publishing.

    Chapter  Google Scholar 

  • Administration on Aging and Administration for Community Living. (2012). A profile of older Americans: 2012. Washington, DC: U.S. Department of Health and Human Services.

    Google Scholar 

  • Almeida, D. M., & Wong, J. D. (2009). Life transitions and daily stress processes. In G. H. Elder Jr. & J. Z. Giele (Eds.), The craft of life course research (pp. 41–162). New York, NY: Guilford Press.

    Google Scholar 

  • Ansello, E. F., & Janicki, M. P. (2000). The aging of nations: Impact on the community, the family and the individual. In M. P. Janicki & E. F. Ansello (Eds.), Community supports for aging adults with lifelong disabilities. Maryland, Baltimore: Paul H. Brookes Publishing Co., Inc.

    Google Scholar 

  • Antonucci, T. C., Akiyama, H., & Sherman, A. M. (2007). Social networks, support, and integration. In J. E. Birren (Ed.), Encyclopedia of gerontology (2nd ed., pp. 531–541). Oxford, UK: Academic Press.

    Chapter  Google Scholar 

  • Antonucci, T. C., & Knipscheer, C. P. M. (1990). Social network research: Review and perspectives. In C. P. M. Knipscheer & T. C. Antonucci (Eds.), Social network research: substantive issues and methodological issues (pp. 161–173). Amsterdam/Lisse, The Netherlands: Swets & Zeitlinger, B.V.

    Google Scholar 

  • Aspinall, A. (2010). Creativity, choice and control: The use of multimedia life story work as a tool to facilitate access. In J. Seale & M. Nind (Eds.), Understanding and promoting access for people with learning difficulties. Seeing the opportunities and challenges of risk. New York, NY: Routledge.

    Google Scholar 

  • Atkinson, D., Doeser, M. C., & Varga, A. K. (Eds.). (2000). Good times, bad times: Women with learning difficulties telling their stories. Plymouth, UK: BILD Publications.

    Google Scholar 

  • Atkinson, D., Jackson, M., & Walmsley, J. (1997). Forgotten lives: Exploring the history of learning disability. Kidderminster, UK: BILD Publications.

    Google Scholar 

  • Atkinson, D., & Walmsley, J. (1999). Using autobiographical approaches with people with learning difficulties. Disability & Society, 14, 203–216.

    Article  Google Scholar 

  • Barrera, M. J. (2000). Social support research in community psychology. In J. Rappaport & E. Seidman (Eds.), Handbook of community psychology (pp. 215–245). New York, NY: Kluwer Academic/Plenum Publishers.

    Chapter  Google Scholar 

  • Baumeister, R. F., & Leary, M. R. (1995). The need to belong: Desire for interpersonal attachments as a fundamental human motivation. Psychological Bulletin, 117(3), 497–529.

    Article  PubMed  Google Scholar 

  • Berkman, L. F., Ertel, K. A., & Glymour, M. M. (2011). Aging and social intervention: Life course perspectives. In R. H. Binstock & L. K. George (Eds.), Handbook of aging and the social sciences (pp. 337–351). San Diego, CA: Academic Press.

    Chapter  Google Scholar 

  • Bigby, C. (1997). When parents relinquish care: Informal support networks of older people with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 10(4), 333–344.

    Article  Google Scholar 

  • Bigby, C. (2000a). Informal support networks of older adults. In M. P. Janicki & E. F. Ansello (Eds.), Community supports for aging adults with lifelong disabilities (pp. 55–70). Baltimore, MD: Paul H. Brookes Publishing Company.

    Google Scholar 

  • Bigby, C. (2000b). Moving on without parents. Baltimore, MD: Paul H. Brookes Publishing Company.

    Google Scholar 

  • Bigby, C. (2002). Social roles and informal support networks in mid life and beyond. In P. Noonan Walsh & T. Heller (Eds.), Health of women with intellectual disabilities (pp. 121–136). Oxford, UK: Blackwell.

    Google Scholar 

  • Bigby, C. (2003). The evolving informal support networks of older adults with learning disability. In M. Nolan (Ed.), Partnerships in family care (pp. 167–182). Berkshire, UK: McGraw-Hill Education.

    Google Scholar 

  • Bigby, C. (2004). Ageing with a lifelong A guide to practice, program and policy issues for human services professionals. Philadelphia, PA: Jessica Kingsley.

    Google Scholar 

  • Bigby, C. (2005). Growing old. Adapting to change and realizing a sense of belonging, continuity and purpose. In G. Grant, P. Goward, M. Richardson, & P. Ramcharan (Eds.), Learning disability. A life cycle approach to valuing people (pp. 663–684). Maidenhead, NY: Open University Press.

    Google Scholar 

  • Bigby, C. (2008). Known well by no-one: Trends in the informal social networks of middle-aged and older people with intellectual disability five years after moving to the community. Journal of Intellectual & Developmental Disability, 33(2), 148–157.

    Article  Google Scholar 

  • Bittles, A. H., Petterson, B. A., Sullivan, S. G., Hussain, R., Glasson, E. J., & Montgomery, P. D. (2002). The influence of intellectual disability on life expectancy. The Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 57(7), M470–M472.

    Article  Google Scholar 

  • Blacher, J. (2001). Transition to adulthood: Mental retardation, families, and culture. American Journal on Mental Retardation, 106(2), 173–188.

    Article  PubMed  Google Scholar 

  • Blackman, T., Mitchell, L., Burton, E., Jenks, M., Parson, M., Raman, S., et al. (2003). The accessibility of public spaces for people with dementia: A new priority for the ‘open city’. Disability & Society, 18(3), 357–371.

    Article  Google Scholar 

  • Bonell-Pascual, E., Huline-Dickens, S., Hollins, S., Esterhuyzen, A., Sedgwick, P., Abdelnoor, A., et al. (1999). Bereavement and grief in adults with learning disabilities: A follow up study. British Journal of Psychiatry, 175(4), 348–350.

    Article  PubMed  Google Scholar 

  • Broese van Groenou, M., & van Tilburg, T. (2007). Network analysis. In J. E. Birren (Ed.), Encyclopedia of gerontology (pp. 242–250). Amsterdam, the Netherlands: Academic Press.

    Chapter  Google Scholar 

  • Brown, A. A., & Gill, C. (2009). New voices in women’s health: Perceptions of women with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 47(5), 337–347. doi: http://dx.doi.org/10.1352/1934-9556-47.5.337

  • Burke, E., McCarron, M., Carroll, R., McGlinchey, E., & McCallion, P. (2014). What it’s like to grow older: The aging perceptions of people with an intellectual disability in Ireland. Intellectual and developmental disabilities, 52(3), 205–219.

    Article  PubMed  Google Scholar 

  • Butler, R. N. (1963). The life review: An interpretation of reminiscence in the aged. Psychiatry, 26, 65–76.

    Google Scholar 

  • Buys, L., Aird, R., & Miller, E. (2012). Active ageing among older adults with lifelong intellectual disabilities: The role of familial and nonfamilial social networks. Families in Society: The Journal of Contemporary Social Services, 92(1), 55–64.

    Article  Google Scholar 

  • Buys, L., Boulton-Lewis, G. M., Tedman-Jones, J. S., Edwards, H. E., Knox, M. F., & Bigby, C. (2008). Issues of active ageing: Perceptions of older people with lifelong intellectual disability. Australasian Journal On Ageing, 27(2), 67–71.

    Article  PubMed  Google Scholar 

  • Cadbury, H., & Whitmore, M. (2010). Spending time in Normansfield: Changes in the day to day life of Patricia Collen. British Journal of Learning Disabilities, 38, 120–126.

    Article  Google Scholar 

  • Claes, C., Van Hove, G., Vandevelde, S., van Loon, J., & Schalock, R. L. (2010). Person-Centered planning: Analysis of research and effectiveness. Intellectual and developmental disabilities, 48(6), 432–453.

    Article  PubMed  Google Scholar 

  • Cohen, S., & Syme, S. L. (1985). Social support and health. New York, NY: Academic Press.

    Google Scholar 

  • David, N., Duvdevani, I., & Doron, I. (2015). Older women with intellectual disability and the meaning of aging. Journal of Women & Aging, 27(3), 216–236.

    Article  Google Scholar 

  • Department for Constitutional Affairs. (2007). Mental Capacity Act 2005. Code of practice. TSO: London.

    Google Scholar 

  • Due, P., Holstein, B., Lund, R., Modvig, J., & Avlund, K. (1999). Social relations: Network, support and relational strain. Social Science and Medicine, 48, 661–673.

    Article  PubMed  Google Scholar 

  • Elder, G. H., Jr. (1985). Perspectives on the life course. In G. H. Elder Jr. (Ed.), Life-course dynamics: Trajectories and transitions (pp. 23–49). Ithaca, NY: Cornell University Press.

    Google Scholar 

  • Elder, G. H., Jr., Kirkpatrick Johnson, M., & Crosnoe, R. (2004). The emergence and development of life course theory. In J. T. Mortimer & M. J. Shanahan (Eds.), Handbook of the life course (pp. 3–22). New York, NY: Springer.

    Google Scholar 

  • Erikson, E. (1997). The life cycle completed. New York, NY: W. W. Norton.

    Google Scholar 

  • Factor, A., Heller, T., & Janicki, M. (2012). Bridging the aging and developmental disabilities service networks: Challenges and best practices. Chicago, IL: Institute on Disability and Human Development, University of Illinois at Chicago.

    Google Scholar 

  • Freedman, R. I., Krauss, M. W., & Seltzer, M. M. (1997). Aging parents’ residential plans for adult children with mental retardation. Mental Retardation, 35(2), 114–123.

    Article  PubMed  Google Scholar 

  • Freedman, V. A. (2014). Research gaps in the demography of aging with disability. Disability and Health Journal, 7, S60–S63.

    Article  PubMed  PubMed Central  Google Scholar 

  • Goodley, D. (1996). Tales of hidden lives: A critical examination of life history research with people who have learning difficulties. Disability and Society, 11(3), 333–348.

    Article  Google Scholar 

  • Grant, G. (2005). Healthy and successful ageing. In G. Grant, P. Goward, M. Richardson, & P. Ramcharan (Eds.), Learning disability: A life cycle approach to valuing people (pp. 706–723). New York, NY: Open University Press.

    Google Scholar 

  • Gray, G. (1997). A long day at the seaside. Windsor, UK: Reedprint.

    Google Scholar 

  • Hahn, J. E., Gray, J., McCallion, P., Ronneberg, C., Stancliffe, R., Heller, T., … Janicki, M. (2016). Transitions in aging: Health, retirement and later life: Review of research, practice and policy. Critical issues in intellectual and developmental disabilities: Contemporary research, practice, and policy. Washington, DC: AAIDD.

    Google Scholar 

  • Haveman, M., Heller, T., Lee, L., Maaskant, M., Shooshtari, S., & Strydom, A. (2010). Major health risks in aging persons with intellectual disabilities: An overview of recent studies. Journal of Policy and Practice in Intellectual Disabilities, 7(1), 59–69.

    Article  Google Scholar 

  • Haveman, M., Heller, T., Lee, L. A., Maaskant, M. A., Shooshtari, S., & Strydom, A. (2009). Report on the state of science on health risks and ageing in people with intellectual disabilities. IASSID Special Interest Research Group on Ageing and Intellectual Disabilities/Faculty Rehabilitation Sciences, University of Dortmund.

    Google Scholar 

  • He, W., & Larsen, L. J. (2014). U.S. Census Bureau, American Community Survey Reports ACS-29, Older Americans With a Disability: 2008–2012. Washington DC: U.S. Government Printing Office.

    Google Scholar 

  • Heller, T. (1999). Emerging models. In S. S. Herr & G. Weber (Eds.), Aging, rights and quality of life. Prospects for older people with developmental disabilities (pp. 149–165). Baltimore, MD: Paul H. Brookes Publishing.

    Google Scholar 

  • Heller, T. (2004). Aging with developmental disabilities: Emerging models for promoting health, independence, and quality of life. In B. J. Kemp & L. Mosqueda (Eds.), Aging with a disability: What a clinician needs to know (pp. 213–233). Baltimore, MD: Johns Hopkins University Press.

    Google Scholar 

  • Heller, T., & Arnold, C. K. (2010). Siblings of adults with developmental disabilities: Psychosocial outcomes, relationships, and future planning. Journal of Policy and Practice in Intellectual Disabilities, 7(1), 16–25.

    Article  Google Scholar 

  • Heller, T., & Caldwell, J. (2006). Supporting aging caregivers and adults with developmental disabilities in future planning. Mental Retardation, 44(3), 189–202.

    Article  PubMed  Google Scholar 

  • Heller, T., & Marks, B. (2006). Aging. In G. L. Albrecht (Ed.), Encyclopedia of Disability (Vol. 1, pp. 67–78). Thousand Oaks, CA: Sage Publications Inc.

    Google Scholar 

  • Heller, T., Schindler, A., Palmer, S., Wehmeyer, M., Parent, W., Jenson, R., … O’Hara, D. (2010). Self-determination across the life span: Issues and gaps. Exceptionality, 19(1), 31–45.

    Google Scholar 

  • Heller, T., Sterns, H., Sutton, E., & Factor, A. (1996). Impact of person-centered later life planning training program for older adults with mental retardation. Journal of rehabilitation, 62(1), 77–83.

    Google Scholar 

  • Heller, T., & van Heumen, L. (2013). Aging with disability. In M. Wehmeyer (Ed.), Oxford handbook of positive psychology and disability (pp. 409–423). Oxford, UK: Oxford University Press.

    Google Scholar 

  • Hogan, B. E., Linden, W., & Najarian, B. (2002). Social support interventions. Do they work? Clinical Psychology Review, 22, 381–440.

    Article  Google Scholar 

  • Hogg, J., Moss, S., & Cooke, D. (1988). Ageing and mental handicap. Cambridge, MA: University Press.

    Google Scholar 

  • Hreinsdottir, E. E., Stefansdottir, G., Lewthwaite, A., Ledger, S., & Shufflebotham, L. (2006). Is my story so different from yours? Comparing life stories, experiences of institutionalization and selfadvocacy in England and Iceland. British Journal of Learning Disabilities, 34, 157–166.

    Article  Google Scholar 

  • Hsieh, K., Heller, T., & Freels, S. (2009). Residential characteristics, social factors, and mortality among adults with intellectual disabilities: Transitions out of nursing homes. Intellectual and developmental disabilities, 47(6), 447–465.

    Article  PubMed  Google Scholar 

  • Husain, F. (1997). Life story work for people with learning disabilities. British Journal of Learning Disabilities, 25, 73–76.

    Article  Google Scholar 

  • Irwin, S. (2001). Repositioning disability and the life course: A social claiming perspective. In M. Priestley (Ed.), Disability and the life course: Global perspectives (pp. 15–25). Cambridge, MA: University Press.

    Chapter  Google Scholar 

  • Jeppsson Grassman, E., Holme, L., Taghizadeh Larsson, A., & Whitaker, A. (2012). A long life with a particular signature: Life course and aging for people with disabilities. Journal of gerontological social work, 55, 95–111.

    Article  PubMed  Google Scholar 

  • Kapp, M. B. (1999). Health care decision making: Legal and financial donsiderations. In S. S. Herr & G. Weber (Eds.), Aging, rights, and quality of life (pp. 45–58). Baltimore, MD: Paul H. Brookes Publishing Co., Inc.

    Google Scholar 

  • Kapp, M. B. (2007). Ethics and medical decision-making. In J. E. Birren (Ed.), The encyclopedia of gerontology (2nd ed.). Oxford: Academic Press.

    Google Scholar 

  • Kelley-Moore, J. A. (2010). Disability and ageing: The social construction of causality. In D. Dannefer & C. Phillipson (Eds.), The SAGE handbook of social gerontology (pp. 96–110). London, UK: Sage.

    Chapter  Google Scholar 

  • Kemp, B. J., & Mosqueda, L. (2004). Introduction. In B. J. Kemp & L. Mosqueda (Eds.), Aging with a disability: What the clinician needs to know (pp. 1–5). Baltimore, MD: John Hopkins University Press.

    Google Scholar 

  • Kennedy, C. H. (2004). Research on social relationships. In E. Emerson, C. Hatton, T. Thompson, & T. R. Parmenter (Eds.), The international handbook of applied research in intellectual disabilities (pp. 297–310). Sussex, UK: Wiley.

    Chapter  Google Scholar 

  • Kersh, J., Corona, L., & Siperstein, G. (2013). Social well-being and friendship of people with intellectual disability. In M. L. Wehmeyer (Ed.), The Oxford handbook of positive psychology and disability (pp. 60–81). New York, NY: Oxford University Press.

    Google Scholar 

  • Knipscheer, C. P. M., & Antonucci, T. C. (Eds.). (1990). Social network research: Substantive issues and methodological issues. Amsterdam/Lisse, the Netherlands: Swets & Zeitlinger, B.V.

    Google Scholar 

  • Krauss, M. W., & Erickson, M. (1988). Informal support networks among aging persons with mental retardation: A pilot study. Mental Retardation, 26(4), 197–201.

    PubMed  Google Scholar 

  • Larson, S. A., Lakin, K. C., Anderson, L., Nohoon, K., Lee, J. H., & Anderson, D. (2001). Prevalence of mental retardation and developmental disabilities: Estimates from the 1994/1995 National Health Interview Survey Disability Supplements. American Journal on Mental Retardation, 106(3), 231–252.

    Article  Google Scholar 

  • Lightfoot, E. (2007). Disability. In J. A. Blackburn & C. N. Dulmus (Eds.), Handbook of gerontology: Evidence-based approaches to theory, practice, and policy (pp. 201–229). Hoboken, NJ: Wiley.

    Google Scholar 

  • Lippold, T., & Burns, J. (2009). Social support and intellectual disabilities: A comparison between social networks of adults with intellectual disability and those with physical disability. Journal of Intellectual Disability Research, 53(5), 463–473.

    Article  PubMed  Google Scholar 

  • Ludlow, B. L. (1999). Life after loss. Legal, ethical and practical issues. In S. S. Herr & G. Weber (Eds.), Aging, rights and quality of life: Prospects for older people with developmental disabilities (pp. 189–221). Baltimore, MD: Paul H. Brookes.

    Google Scholar 

  • Lunsky, Y. (2006). Individual differences in interpersonal relationships for persons with mental retardation. International Review of Research in Mental Retardation, 31, 117–160.

    Article  Google Scholar 

  • Maaskant, M. (1999). Epidemiologie en classificatie van verstandelijke handicap. [Epidemiology and classification of intellectual disability] Vademecum Zorg voor Verstandelijk Gehandicapten. [Vade mecum support for people with intellectual disabilities]. Houten, the Netherlands: Bohn Stafleu van Loghum.

    Google Scholar 

  • Maaskant, M. (2007). Ouderen met een verstandelijke handicap. [Older adults with intellectual disabilities]. In A. M. Pot, Y. Kuin, & M. Vink (Eds.), Handboek Ouderenpsychologie [Handbook gerontology]. Utrecht, the Netherlands: De Tijdstroom.

    Google Scholar 

  • Mactavish, J. B., Mahon, M. J., & Lutfiyya, Z. M. (2000). ’I can speak for myself’: Involving individuals with intellectual disabilities as research participants. Mental Retardation, 38(3), 216–227.

    Article  PubMed  Google Scholar 

  • Marshall, V. W. (1996). The state of theory in aging and the social sciences. In R. H. Binstock & L. K. George (Eds.), Handbook of aging and the social sciences (Vol (4th ed., pp. 12–30). San Diego, CA: Academic Press.

    Google Scholar 

  • McConkey, R. (2005). Promoting friendships and developing social networks. In G. Grant, P. Goward, M. Richardson, & P. Ramcharan (Eds.), Learning disability. A life cycle approach to valuing people (pp. 469–490). New York: Open University Press.

    Google Scholar 

  • McVilly, K. R., Stancliffe, R. J., Parmenter, T. R., & Burton-Smith, R. M. (2006). ‘I get by with a little help from my friends’’: Adults with intellectual disability discuss loneliness. Journal of Applied Research in Intellectual Disabilities, 19, 191–203.

    Google Scholar 

  • Mee, S. (2010). You’re not to dance with the girls: Oral history, changing perception and practice. Journal of intellectual disabilities, 14(1), 33–42.

    Article  PubMed  Google Scholar 

  • Meeusen, R., & Maaskant, M. (2004). Levensloop en veroudering [Life course and aging]. In M. Kersten & D. Flikweert (Eds.), Onderzoek over grenzen [Research across borders] (pp. 64–76). Utrecht, the Netherlands: NGBZ & LKNG/NIZW.

    Google Scholar 

  • Meijer, M., Carpenter, S., & Scholte, F. A. (2004). European manifesto on basic standards of health care for people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 1(1), 10–15.

    Article  Google Scholar 

  • Meininger, H. P. (2003). Werken met levensverhalen: Een narratief-ethische verkenning. [Work with lifestories: A narrative-ethical exploration]. Nederlands Tijdschrift voor de Zorg aan Verstandelijk Gehandicapten. [Dutch Journal on Support for People with Intellectual Disabilities], 29(2), 102–119.

    Google Scholar 

  • Meininger, H. P. (2005). Narrative ethics in nursing for persons with intellectual disabilities. Nursing Philosophy, 6, 106–118.

    Article  PubMed  Google Scholar 

  • Mitchell, A., & Clegg, J. (2005). Is post-traumatic stress disorder a helpful concept for adults with intellectual disability? Journal of Intellectual Disability Research, 49(7), 552–559.

    Article  PubMed  Google Scholar 

  • Mosqueda, L. (2004). Psychological changes and secondary conditions. In B. J. Kemp & L. Mosqueda (Eds.), Aging with a disability (pp. 35–47). Baltimore, MD: Johns Hopkins University Press.

    Google Scholar 

  • Newton, J. S., Olson, D., Horner, R. H., & Ard, W. R. J. (1996). Social skills and the stability of social relationships between individuals with intellectual disabilities and other community members. Research in Developmental Disabilities, 17(1), 15–26.

    Article  PubMed  Google Scholar 

  • Noonan Walsh, P. (2002). Ageing and mental retardation. Current Opinion in Psychiatry, 15, 509–514.

    Article  Google Scholar 

  • O’Rand, A. M. (2009). Cumulative processes in the life course. In G. H. Elder Jr. & J. Z. Giele (Eds.), The craft of life course research (pp. 121–140). New York, NY: The Guilford Press.

    Google Scholar 

  • Parker Harris, S., Heller, T., & Schindler, A. (2012). Introduction, background and history. In T. Heller & S. P. Harris (Eds.), Disability through the life course (pp. 1–38). Thousand Oaks, CA: Sage Publications, Inc.

    Google Scholar 

  • Parker Harris, S., Heller, T., Schindler, A., & van Heumen, L. (2012). Current issues, controversies and solutions. In T. Heller & S. Parker Harris (Eds.), Disability through the life course (pp. 39–102). Thousand Oaks, CA: Sage.

    Google Scholar 

  • Passuth, P. M., & Bengtson, V. L. (1988). Sociological theories of aging: Current perspectives and future directions. In J. E. Birren & V. L. Bengtson (Eds.), Emergent theories of aging (pp. 333–355). New York, NY: Springer.

    Google Scholar 

  • Population Division U.S. Census Bureau. (2008). Table 2. Projections of the population by age and sex for the United States: 2010 to 2050.

    Google Scholar 

  • Power, A. (2010). The geographies of interdependence in the lives of people with intellectual disabilities. In V. Chouinard, E. Hall, & R. Wilton (Eds.), Towards enabling geographies: ‘Disabled’ bodies and minds in society and space (pp. 107–122). Farnham, UK: Ashgate Publishing Group.

    Google Scholar 

  • Priestley, M. (2003). Disability. A life course approach. Cambridge, UK: Polity press.

    Google Scholar 

  • Putnam, M. (Ed.). (2007). Aging and disability. Crossing network lines. New York, NY: Springer.

    Google Scholar 

  • Robertson, J., Emerson, E., Gregory, N., Hatton, C., Kessissoglou, S., Hallam, A., et al. (2001). Social networks of people with mental retardation in residential settings. Mental Retardation, 39(3), 201–214.

    Article  PubMed  Google Scholar 

  • Roets, G., Goodley, D., & van Hove, G. (2007). Narrative in a nutshell: Sharing hopes, fears, and dreams with self-advocates. Intellectual and developmental disabilities, 45(5), 323–334.

    Article  PubMed  Google Scholar 

  • Roets, G., Reinaart, R., & Van Hove, G. (2008). Living between borderlands: Discovering a sense of nomadic subjectivity throughout Rosa’s life story. Journal of Gender Studies, 17(2), 99–115.

    Article  Google Scholar 

  • Roets, G., & Van Hove, G. (2003). The story of Belle, Minnie, Louise and the Sovjets. Throwing light on the dark side of an institution. Disability & Society, 18(5), 599–624.

    Article  Google Scholar 

  • Schippers, A., & van Boheemen, M. (2009). Family quality of life empowered by family-oriented support. Journal of Policy and Practice in Intellectual Disabilities, 6(1), 19–24.

    Article  Google Scholar 

  • Seltzer, M. M. (1985). Informal supports for aging mentally retarded persons. American Journal of Mental Deficiency, 90(3), 259–265.

    PubMed  Google Scholar 

  • Sheets, D. (2005). Aging with disabilities: Ageism and more. Generations, 29(3), 37–41.

    Google Scholar 

  • Sheets, D. (2011). Aging with physical disability. In J. H. Stone & M. Blouin (Eds.), International encyclopedia of rehabilitation (pp. 1–6). Buffalo, NY: Center for International Rehabilitation Research Information and Exchange.

    Google Scholar 

  • Stancliffe, R. J., Bigby, C., Balandin, S., Wilson, N. J., & Craig, D. (2015). Transition to retirement and participation in mainstream community groups using active mentoring: A feasibility and outcomes evaluation with a matched comparison group. Journal of Intellectual Disability Research, 59(8), 703–718.

    Article  PubMed  Google Scholar 

  • Stancliffe, R. J., Lakin, K. C., Doljanac, R., Byun, S., Taub, S., & Chiri, G. (2007). Loneliness and living arrangements. Intellectual and Developmental Disabilities, 45(6), 380–390.

    Article  PubMed  Google Scholar 

  • Sterns, H. L., Kennedy, E. A., Sed, C. M., & Heller, T. (2000). Later-life planning and retirement. In M. P. Janicki & E. F. Ansello (Eds.), Community supports for aging adults with lifelong disabilities (pp. 179–191). Baltimore, MD: Paul H. Brookes.

    Google Scholar 

  • Stevens, N. L., Martina, C. M. S., & Westerhof, G. J. (2006). Meeting the need to belong: Predicting effects of a friendship enrichment program for older women. The Gerontologist, 46(40), 495–502.

    Article  PubMed  Google Scholar 

  • Todd, S. (2004). Death counts: The challenge of death and dying in learning disability services. Learning Disability Practice, 7(10), 12–15.

    Article  Google Scholar 

  • Todd, S. (2005). Surprised endings: The dying of people with learning disabilities in residential services. International Journal of Palliative Nursing, 11(2), 80–82.

    Article  PubMed  Google Scholar 

  • Tomasa, L. (2014). My life, my wishes. Sharing my journey. Tuscon, AZ: The University of Arizona.

    Google Scholar 

  • Tuffrey-Wijne, I. (2003). The palliative care needs of people with intellectual disabilities: A literature review. Palliative Medicine, 17(1), 55–62.

    Article  PubMed  Google Scholar 

  • Tuffrey-Wijne, I. (2013). How to break bad news to people with intellectual disabilities: A guide for carers and professionals. London, UK: Jessica Kingsley Publishers.

    Google Scholar 

  • Tuffrey-Wijne, I., Hogg, J., & Curfs, L. (2007). End-of-life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: A review of the literature and available resources. Journal of Applied Research in Intellectual Disabilities, 20, 331–334.

    Article  Google Scholar 

  • Urlings, H. F. J., Claessens, M. J. J. T., Bernard, S., & Vos, A. W. (1993). De beleving van het ouder worden bij verstandelijk gehandicapten. NTZ, 2, 69–84.

    Google Scholar 

  • U.S. Census Bureau. (2010). DP-1—United States: Profile of general population and housing characteristics: 2010, 2010 Demographic profile data.

    Google Scholar 

  • van Asselt-Goverts, A. E., Embregts, P. J. C. M., Hendriks, A. H. C., & Frielink, N. (2014). Experiences of support staff with expanding and strengthening social networks of people with mild intellectual disabilities. Journal of Community & Applied Social Psychology, 24, 111–124.

    Article  Google Scholar 

  • van den Brandt-van Heek, M. (2011). Asking the right questions: Enabling persons with dementia to speak for themselves. In G. Kenyon, E. Bohlmeijer, & W. L. Randall (Eds.), Storying later life. Issues, investigations and interventions in narrative gerontology (pp. 338–353). Oxford, UK: Oxford University Press.

    Google Scholar 

  • Van Puyenbroeck, J., & Maes, B. (2004). De betekenis van reminiscentie in de begeleiding van ouder wordende mensen met verstandelijke beperkingen. Een kwalitatieve verkenning. [The meaning of reminiscence in the support of aging people with intellectual disabilities. A qualitative exploration]. Nederlands Tijdschrift voor de Zorg aan Mensen met Verstandelijke Beperkingen. [Dutch Journal on Support for People with Intellectual Disabilities], 30, 146–165.

    Google Scholar 

  • Van Puyenbroeck, J., & Maes, B. (2008). A review of critical, person-centred and clinical approaches to reminiscence work for people with intellectual disabilities. International Journal of Disability, Development and Education, 55(1), 43–60.

    Article  Google Scholar 

  • van Schrojenstein Lantman-de Valk, H. M. J. (2005). Health in People with Intellectual Disabilities: Current Knowledge and Gaps in Knowledge. Journal of Applied Research in Intellectual Disabilities, 18, 325–333.

    Google Scholar 

  • van Schrojenstein Lantman-de Valk, H. M. J. (2009). Healthy persons with intellectual disabilities in an inclusive society. Journal of Policy and Practice in Intellectual Disabilities, 6(2), 77–80.

    Google Scholar 

  • van Schrojenstein Lantman de-Valk, H. M. J., & Noonan-Walsh, P. (2008). Managing health problems in people with intellectual disabilities. British Medical Journal, 337, 1408–1412.

    Google Scholar 

  • Verbrugge, L. M., & Yang, L. (2002). Aging with disability and disability with aging. Journal of Disability Policy Studies, 12(4), 253–267.

    Article  Google Scholar 

  • Verdonschot, M. M. L., Witte, L. P. D., Reichrath, E., Buntinx, W. H. E., & Curfs, L. M. G. (2009). Community participation of people with an intellectual disability: A review of empirical findings. Journal of Intellectual Disability Research, 53(4), 303–318.

    Google Scholar 

  • Victor, C. (2010). The demography of aging. In D. Dannefer & C. Phillipson (Eds.), The SAGE handbook of social gerontology (pp. 61–74). London: Sage Publications.

    Chapter  Google Scholar 

  • Watchman, K., Tuffrey-Wijne, I., & Quinn, S. (2015). Jenny’s Diary. A resource to support conversations about dementia with people who have a learning disability. Hove, UK: Pavilion Publishing and Media Ltd.

    Google Scholar 

  • Wehmeyer, M. L., & Schwartz, M. (1998). The relationship between self-determination, quality of life, and life satisfaction for adults with mental retardation. Education and Training in Mental Retardation and Developmental Disabilities, 33, 3–12.

    Google Scholar 

  • Westerhof, G. J., Dittman-Kohli, F., & Thissen, T. (2001). Beyond life satisfaction: Lay conceptions of well-being among middle-aged and elderly adults. Social Indicators Research, 56(2), 179–203.

    Article  Google Scholar 

  • Wetherow, D., & Wetherow, F. (1998). Community-building & commitment-building with PATH. In J. O’Brien & C. L. O’Brien (Eds.), Implementing person-centered planning voices of experience (pp. 65–76). Toronto, Canada: Inclusion Press.

    Google Scholar 

  • Wills, T. A., & Shinar, O. (2000). Measuring perceived and received social support. In S. Cohen, L. G. Underwood, & B. H. Gottlieb (Eds.), Social support measurement and intervention: A guide for health and social scientists (pp. 86–135). New York, NY: Oxford University Press.

    Chapter  Google Scholar 

  • Yorkston, K. M., McMullan, K. A., Molton, I., & Jensen, M. P. (2010). Pathways of change experience by people aging with disability: A focus group study. Disability and Rehabilitation, 32(20), 1697–1704.

    Article  PubMed  Google Scholar 

Download references

Acknowledgements

The contents of this article were developed with funding from the United States Department of Health and Human Services, Administration for Community Living (ACL), and National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Grants # 90RT5020-01-00 and # 90AR5007-02-00. However, those contents do not necessarily represent the policy of the Department of Health and Human Services (DHHS), and you should not assume endorsement by the Federal Government.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Lieke van Heumen .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2017 Springer International Publishing AG

About this chapter

Cite this chapter

van Heumen, L., Heller, T. (2017). Aging. In: Shogren, K., Wehmeyer, M., Singh, N. (eds) Handbook of Positive Psychology in Intellectual and Developmental Disabilities. Springer Series on Child and Family Studies. Springer, Cham. https://doi.org/10.1007/978-3-319-59066-0_24

Download citation

Publish with us

Policies and ethics