Abstract
Research on older adults with intellectual disabilities often focuses on age-related losses in functioning and on ways to prevent decline. A positive psychology perspective on aging focuses on creating a positive and meaningful aging experience. It enables the formulation of supports and services informed by the life stories, experiences, and individual needs and preferences of these adults. This chapter discusses aging among people with intellectual disabilities from a life course perspective and focuses on the major transitions faced by this population: the transition to retirement, transitions in social networks, and the final transition of death and dying. Strengths-based interventions focused on future planning, social network interventions, and life story can support adults with intellectual disabilities through these transitions.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Abbott, S., & McConkey, R. (2006). The barriers to social inclusion as perceived by people with intellectual disabilities. Journal of intellectual disabilities, 10(3), 275–287.
Acharya, K., Schindler, A., & Heller, T. (2016). Aging: Demographics, trajectories and health system issues. In I. L. Rubin (Ed.), Health care for people with intellectual and developmental disabilities across the lifespan (pp. 1423–1432). Switzerland: Springer International Publishing.
Administration on Aging and Administration for Community Living. (2012). A profile of older Americans: 2012. Washington, DC: U.S. Department of Health and Human Services.
Almeida, D. M., & Wong, J. D. (2009). Life transitions and daily stress processes. In G. H. Elder Jr. & J. Z. Giele (Eds.), The craft of life course research (pp. 41–162). New York, NY: Guilford Press.
Ansello, E. F., & Janicki, M. P. (2000). The aging of nations: Impact on the community, the family and the individual. In M. P. Janicki & E. F. Ansello (Eds.), Community supports for aging adults with lifelong disabilities. Maryland, Baltimore: Paul H. Brookes Publishing Co., Inc.
Antonucci, T. C., Akiyama, H., & Sherman, A. M. (2007). Social networks, support, and integration. In J. E. Birren (Ed.), Encyclopedia of gerontology (2nd ed., pp. 531–541). Oxford, UK: Academic Press.
Antonucci, T. C., & Knipscheer, C. P. M. (1990). Social network research: Review and perspectives. In C. P. M. Knipscheer & T. C. Antonucci (Eds.), Social network research: substantive issues and methodological issues (pp. 161–173). Amsterdam/Lisse, The Netherlands: Swets & Zeitlinger, B.V.
Aspinall, A. (2010). Creativity, choice and control: The use of multimedia life story work as a tool to facilitate access. In J. Seale & M. Nind (Eds.), Understanding and promoting access for people with learning difficulties. Seeing the opportunities and challenges of risk. New York, NY: Routledge.
Atkinson, D., Doeser, M. C., & Varga, A. K. (Eds.). (2000). Good times, bad times: Women with learning difficulties telling their stories. Plymouth, UK: BILD Publications.
Atkinson, D., Jackson, M., & Walmsley, J. (1997). Forgotten lives: Exploring the history of learning disability. Kidderminster, UK: BILD Publications.
Atkinson, D., & Walmsley, J. (1999). Using autobiographical approaches with people with learning difficulties. Disability & Society, 14, 203–216.
Barrera, M. J. (2000). Social support research in community psychology. In J. Rappaport & E. Seidman (Eds.), Handbook of community psychology (pp. 215–245). New York, NY: Kluwer Academic/Plenum Publishers.
Baumeister, R. F., & Leary, M. R. (1995). The need to belong: Desire for interpersonal attachments as a fundamental human motivation. Psychological Bulletin, 117(3), 497–529.
Berkman, L. F., Ertel, K. A., & Glymour, M. M. (2011). Aging and social intervention: Life course perspectives. In R. H. Binstock & L. K. George (Eds.), Handbook of aging and the social sciences (pp. 337–351). San Diego, CA: Academic Press.
Bigby, C. (1997). When parents relinquish care: Informal support networks of older people with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 10(4), 333–344.
Bigby, C. (2000a). Informal support networks of older adults. In M. P. Janicki & E. F. Ansello (Eds.), Community supports for aging adults with lifelong disabilities (pp. 55–70). Baltimore, MD: Paul H. Brookes Publishing Company.
Bigby, C. (2000b). Moving on without parents. Baltimore, MD: Paul H. Brookes Publishing Company.
Bigby, C. (2002). Social roles and informal support networks in mid life and beyond. In P. Noonan Walsh & T. Heller (Eds.), Health of women with intellectual disabilities (pp. 121–136). Oxford, UK: Blackwell.
Bigby, C. (2003). The evolving informal support networks of older adults with learning disability. In M. Nolan (Ed.), Partnerships in family care (pp. 167–182). Berkshire, UK: McGraw-Hill Education.
Bigby, C. (2004). Ageing with a lifelong A guide to practice, program and policy issues for human services professionals. Philadelphia, PA: Jessica Kingsley.
Bigby, C. (2005). Growing old. Adapting to change and realizing a sense of belonging, continuity and purpose. In G. Grant, P. Goward, M. Richardson, & P. Ramcharan (Eds.), Learning disability. A life cycle approach to valuing people (pp. 663–684). Maidenhead, NY: Open University Press.
Bigby, C. (2008). Known well by no-one: Trends in the informal social networks of middle-aged and older people with intellectual disability five years after moving to the community. Journal of Intellectual & Developmental Disability, 33(2), 148–157.
Bittles, A. H., Petterson, B. A., Sullivan, S. G., Hussain, R., Glasson, E. J., & Montgomery, P. D. (2002). The influence of intellectual disability on life expectancy. The Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 57(7), M470–M472.
Blacher, J. (2001). Transition to adulthood: Mental retardation, families, and culture. American Journal on Mental Retardation, 106(2), 173–188.
Blackman, T., Mitchell, L., Burton, E., Jenks, M., Parson, M., Raman, S., et al. (2003). The accessibility of public spaces for people with dementia: A new priority for the ‘open city’. Disability & Society, 18(3), 357–371.
Bonell-Pascual, E., Huline-Dickens, S., Hollins, S., Esterhuyzen, A., Sedgwick, P., Abdelnoor, A., et al. (1999). Bereavement and grief in adults with learning disabilities: A follow up study. British Journal of Psychiatry, 175(4), 348–350.
Broese van Groenou, M., & van Tilburg, T. (2007). Network analysis. In J. E. Birren (Ed.), Encyclopedia of gerontology (pp. 242–250). Amsterdam, the Netherlands: Academic Press.
Brown, A. A., & Gill, C. (2009). New voices in women’s health: Perceptions of women with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 47(5), 337–347. doi: http://dx.doi.org/10.1352/1934-9556-47.5.337
Burke, E., McCarron, M., Carroll, R., McGlinchey, E., & McCallion, P. (2014). What it’s like to grow older: The aging perceptions of people with an intellectual disability in Ireland. Intellectual and developmental disabilities, 52(3), 205–219.
Butler, R. N. (1963). The life review: An interpretation of reminiscence in the aged. Psychiatry, 26, 65–76.
Buys, L., Aird, R., & Miller, E. (2012). Active ageing among older adults with lifelong intellectual disabilities: The role of familial and nonfamilial social networks. Families in Society: The Journal of Contemporary Social Services, 92(1), 55–64.
Buys, L., Boulton-Lewis, G. M., Tedman-Jones, J. S., Edwards, H. E., Knox, M. F., & Bigby, C. (2008). Issues of active ageing: Perceptions of older people with lifelong intellectual disability. Australasian Journal On Ageing, 27(2), 67–71.
Cadbury, H., & Whitmore, M. (2010). Spending time in Normansfield: Changes in the day to day life of Patricia Collen. British Journal of Learning Disabilities, 38, 120–126.
Claes, C., Van Hove, G., Vandevelde, S., van Loon, J., & Schalock, R. L. (2010). Person-Centered planning: Analysis of research and effectiveness. Intellectual and developmental disabilities, 48(6), 432–453.
Cohen, S., & Syme, S. L. (1985). Social support and health. New York, NY: Academic Press.
David, N., Duvdevani, I., & Doron, I. (2015). Older women with intellectual disability and the meaning of aging. Journal of Women & Aging, 27(3), 216–236.
Department for Constitutional Affairs. (2007). Mental Capacity Act 2005. Code of practice. TSO: London.
Due, P., Holstein, B., Lund, R., Modvig, J., & Avlund, K. (1999). Social relations: Network, support and relational strain. Social Science and Medicine, 48, 661–673.
Elder, G. H., Jr. (1985). Perspectives on the life course. In G. H. Elder Jr. (Ed.), Life-course dynamics: Trajectories and transitions (pp. 23–49). Ithaca, NY: Cornell University Press.
Elder, G. H., Jr., Kirkpatrick Johnson, M., & Crosnoe, R. (2004). The emergence and development of life course theory. In J. T. Mortimer & M. J. Shanahan (Eds.), Handbook of the life course (pp. 3–22). New York, NY: Springer.
Erikson, E. (1997). The life cycle completed. New York, NY: W. W. Norton.
Factor, A., Heller, T., & Janicki, M. (2012). Bridging the aging and developmental disabilities service networks: Challenges and best practices. Chicago, IL: Institute on Disability and Human Development, University of Illinois at Chicago.
Freedman, R. I., Krauss, M. W., & Seltzer, M. M. (1997). Aging parents’ residential plans for adult children with mental retardation. Mental Retardation, 35(2), 114–123.
Freedman, V. A. (2014). Research gaps in the demography of aging with disability. Disability and Health Journal, 7, S60–S63.
Goodley, D. (1996). Tales of hidden lives: A critical examination of life history research with people who have learning difficulties. Disability and Society, 11(3), 333–348.
Grant, G. (2005). Healthy and successful ageing. In G. Grant, P. Goward, M. Richardson, & P. Ramcharan (Eds.), Learning disability: A life cycle approach to valuing people (pp. 706–723). New York, NY: Open University Press.
Gray, G. (1997). A long day at the seaside. Windsor, UK: Reedprint.
Hahn, J. E., Gray, J., McCallion, P., Ronneberg, C., Stancliffe, R., Heller, T., … Janicki, M. (2016). Transitions in aging: Health, retirement and later life: Review of research, practice and policy. Critical issues in intellectual and developmental disabilities: Contemporary research, practice, and policy. Washington, DC: AAIDD.
Haveman, M., Heller, T., Lee, L., Maaskant, M., Shooshtari, S., & Strydom, A. (2010). Major health risks in aging persons with intellectual disabilities: An overview of recent studies. Journal of Policy and Practice in Intellectual Disabilities, 7(1), 59–69.
Haveman, M., Heller, T., Lee, L. A., Maaskant, M. A., Shooshtari, S., & Strydom, A. (2009). Report on the state of science on health risks and ageing in people with intellectual disabilities. IASSID Special Interest Research Group on Ageing and Intellectual Disabilities/Faculty Rehabilitation Sciences, University of Dortmund.
He, W., & Larsen, L. J. (2014). U.S. Census Bureau, American Community Survey Reports ACS-29, Older Americans With a Disability: 2008–2012. Washington DC: U.S. Government Printing Office.
Heller, T. (1999). Emerging models. In S. S. Herr & G. Weber (Eds.), Aging, rights and quality of life. Prospects for older people with developmental disabilities (pp. 149–165). Baltimore, MD: Paul H. Brookes Publishing.
Heller, T. (2004). Aging with developmental disabilities: Emerging models for promoting health, independence, and quality of life. In B. J. Kemp & L. Mosqueda (Eds.), Aging with a disability: What a clinician needs to know (pp. 213–233). Baltimore, MD: Johns Hopkins University Press.
Heller, T., & Arnold, C. K. (2010). Siblings of adults with developmental disabilities: Psychosocial outcomes, relationships, and future planning. Journal of Policy and Practice in Intellectual Disabilities, 7(1), 16–25.
Heller, T., & Caldwell, J. (2006). Supporting aging caregivers and adults with developmental disabilities in future planning. Mental Retardation, 44(3), 189–202.
Heller, T., & Marks, B. (2006). Aging. In G. L. Albrecht (Ed.), Encyclopedia of Disability (Vol. 1, pp. 67–78). Thousand Oaks, CA: Sage Publications Inc.
Heller, T., Schindler, A., Palmer, S., Wehmeyer, M., Parent, W., Jenson, R., … O’Hara, D. (2010). Self-determination across the life span: Issues and gaps. Exceptionality, 19(1), 31–45.
Heller, T., Sterns, H., Sutton, E., & Factor, A. (1996). Impact of person-centered later life planning training program for older adults with mental retardation. Journal of rehabilitation, 62(1), 77–83.
Heller, T., & van Heumen, L. (2013). Aging with disability. In M. Wehmeyer (Ed.), Oxford handbook of positive psychology and disability (pp. 409–423). Oxford, UK: Oxford University Press.
Hogan, B. E., Linden, W., & Najarian, B. (2002). Social support interventions. Do they work? Clinical Psychology Review, 22, 381–440.
Hogg, J., Moss, S., & Cooke, D. (1988). Ageing and mental handicap. Cambridge, MA: University Press.
Hreinsdottir, E. E., Stefansdottir, G., Lewthwaite, A., Ledger, S., & Shufflebotham, L. (2006). Is my story so different from yours? Comparing life stories, experiences of institutionalization and selfadvocacy in England and Iceland. British Journal of Learning Disabilities, 34, 157–166.
Hsieh, K., Heller, T., & Freels, S. (2009). Residential characteristics, social factors, and mortality among adults with intellectual disabilities: Transitions out of nursing homes. Intellectual and developmental disabilities, 47(6), 447–465.
Husain, F. (1997). Life story work for people with learning disabilities. British Journal of Learning Disabilities, 25, 73–76.
Irwin, S. (2001). Repositioning disability and the life course: A social claiming perspective. In M. Priestley (Ed.), Disability and the life course: Global perspectives (pp. 15–25). Cambridge, MA: University Press.
Jeppsson Grassman, E., Holme, L., Taghizadeh Larsson, A., & Whitaker, A. (2012). A long life with a particular signature: Life course and aging for people with disabilities. Journal of gerontological social work, 55, 95–111.
Kapp, M. B. (1999). Health care decision making: Legal and financial donsiderations. In S. S. Herr & G. Weber (Eds.), Aging, rights, and quality of life (pp. 45–58). Baltimore, MD: Paul H. Brookes Publishing Co., Inc.
Kapp, M. B. (2007). Ethics and medical decision-making. In J. E. Birren (Ed.), The encyclopedia of gerontology (2nd ed.). Oxford: Academic Press.
Kelley-Moore, J. A. (2010). Disability and ageing: The social construction of causality. In D. Dannefer & C. Phillipson (Eds.), The SAGE handbook of social gerontology (pp. 96–110). London, UK: Sage.
Kemp, B. J., & Mosqueda, L. (2004). Introduction. In B. J. Kemp & L. Mosqueda (Eds.), Aging with a disability: What the clinician needs to know (pp. 1–5). Baltimore, MD: John Hopkins University Press.
Kennedy, C. H. (2004). Research on social relationships. In E. Emerson, C. Hatton, T. Thompson, & T. R. Parmenter (Eds.), The international handbook of applied research in intellectual disabilities (pp. 297–310). Sussex, UK: Wiley.
Kersh, J., Corona, L., & Siperstein, G. (2013). Social well-being and friendship of people with intellectual disability. In M. L. Wehmeyer (Ed.), The Oxford handbook of positive psychology and disability (pp. 60–81). New York, NY: Oxford University Press.
Knipscheer, C. P. M., & Antonucci, T. C. (Eds.). (1990). Social network research: Substantive issues and methodological issues. Amsterdam/Lisse, the Netherlands: Swets & Zeitlinger, B.V.
Krauss, M. W., & Erickson, M. (1988). Informal support networks among aging persons with mental retardation: A pilot study. Mental Retardation, 26(4), 197–201.
Larson, S. A., Lakin, K. C., Anderson, L., Nohoon, K., Lee, J. H., & Anderson, D. (2001). Prevalence of mental retardation and developmental disabilities: Estimates from the 1994/1995 National Health Interview Survey Disability Supplements. American Journal on Mental Retardation, 106(3), 231–252.
Lightfoot, E. (2007). Disability. In J. A. Blackburn & C. N. Dulmus (Eds.), Handbook of gerontology: Evidence-based approaches to theory, practice, and policy (pp. 201–229). Hoboken, NJ: Wiley.
Lippold, T., & Burns, J. (2009). Social support and intellectual disabilities: A comparison between social networks of adults with intellectual disability and those with physical disability. Journal of Intellectual Disability Research, 53(5), 463–473.
Ludlow, B. L. (1999). Life after loss. Legal, ethical and practical issues. In S. S. Herr & G. Weber (Eds.), Aging, rights and quality of life: Prospects for older people with developmental disabilities (pp. 189–221). Baltimore, MD: Paul H. Brookes.
Lunsky, Y. (2006). Individual differences in interpersonal relationships for persons with mental retardation. International Review of Research in Mental Retardation, 31, 117–160.
Maaskant, M. (1999). Epidemiologie en classificatie van verstandelijke handicap. [Epidemiology and classification of intellectual disability] Vademecum Zorg voor Verstandelijk Gehandicapten. [Vade mecum support for people with intellectual disabilities]. Houten, the Netherlands: Bohn Stafleu van Loghum.
Maaskant, M. (2007). Ouderen met een verstandelijke handicap. [Older adults with intellectual disabilities]. In A. M. Pot, Y. Kuin, & M. Vink (Eds.), Handboek Ouderenpsychologie [Handbook gerontology]. Utrecht, the Netherlands: De Tijdstroom.
Mactavish, J. B., Mahon, M. J., & Lutfiyya, Z. M. (2000). ’I can speak for myself’: Involving individuals with intellectual disabilities as research participants. Mental Retardation, 38(3), 216–227.
Marshall, V. W. (1996). The state of theory in aging and the social sciences. In R. H. Binstock & L. K. George (Eds.), Handbook of aging and the social sciences (Vol (4th ed., pp. 12–30). San Diego, CA: Academic Press.
McConkey, R. (2005). Promoting friendships and developing social networks. In G. Grant, P. Goward, M. Richardson, & P. Ramcharan (Eds.), Learning disability. A life cycle approach to valuing people (pp. 469–490). New York: Open University Press.
McVilly, K. R., Stancliffe, R. J., Parmenter, T. R., & Burton-Smith, R. M. (2006). ‘I get by with a little help from my friends’’: Adults with intellectual disability discuss loneliness. Journal of Applied Research in Intellectual Disabilities, 19, 191–203.
Mee, S. (2010). You’re not to dance with the girls: Oral history, changing perception and practice. Journal of intellectual disabilities, 14(1), 33–42.
Meeusen, R., & Maaskant, M. (2004). Levensloop en veroudering [Life course and aging]. In M. Kersten & D. Flikweert (Eds.), Onderzoek over grenzen [Research across borders] (pp. 64–76). Utrecht, the Netherlands: NGBZ & LKNG/NIZW.
Meijer, M., Carpenter, S., & Scholte, F. A. (2004). European manifesto on basic standards of health care for people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 1(1), 10–15.
Meininger, H. P. (2003). Werken met levensverhalen: Een narratief-ethische verkenning. [Work with lifestories: A narrative-ethical exploration]. Nederlands Tijdschrift voor de Zorg aan Verstandelijk Gehandicapten. [Dutch Journal on Support for People with Intellectual Disabilities], 29(2), 102–119.
Meininger, H. P. (2005). Narrative ethics in nursing for persons with intellectual disabilities. Nursing Philosophy, 6, 106–118.
Mitchell, A., & Clegg, J. (2005). Is post-traumatic stress disorder a helpful concept for adults with intellectual disability? Journal of Intellectual Disability Research, 49(7), 552–559.
Mosqueda, L. (2004). Psychological changes and secondary conditions. In B. J. Kemp & L. Mosqueda (Eds.), Aging with a disability (pp. 35–47). Baltimore, MD: Johns Hopkins University Press.
Newton, J. S., Olson, D., Horner, R. H., & Ard, W. R. J. (1996). Social skills and the stability of social relationships between individuals with intellectual disabilities and other community members. Research in Developmental Disabilities, 17(1), 15–26.
Noonan Walsh, P. (2002). Ageing and mental retardation. Current Opinion in Psychiatry, 15, 509–514.
O’Rand, A. M. (2009). Cumulative processes in the life course. In G. H. Elder Jr. & J. Z. Giele (Eds.), The craft of life course research (pp. 121–140). New York, NY: The Guilford Press.
Parker Harris, S., Heller, T., & Schindler, A. (2012). Introduction, background and history. In T. Heller & S. P. Harris (Eds.), Disability through the life course (pp. 1–38). Thousand Oaks, CA: Sage Publications, Inc.
Parker Harris, S., Heller, T., Schindler, A., & van Heumen, L. (2012). Current issues, controversies and solutions. In T. Heller & S. Parker Harris (Eds.), Disability through the life course (pp. 39–102). Thousand Oaks, CA: Sage.
Passuth, P. M., & Bengtson, V. L. (1988). Sociological theories of aging: Current perspectives and future directions. In J. E. Birren & V. L. Bengtson (Eds.), Emergent theories of aging (pp. 333–355). New York, NY: Springer.
Population Division U.S. Census Bureau. (2008). Table 2. Projections of the population by age and sex for the United States: 2010 to 2050.
Power, A. (2010). The geographies of interdependence in the lives of people with intellectual disabilities. In V. Chouinard, E. Hall, & R. Wilton (Eds.), Towards enabling geographies: ‘Disabled’ bodies and minds in society and space (pp. 107–122). Farnham, UK: Ashgate Publishing Group.
Priestley, M. (2003). Disability. A life course approach. Cambridge, UK: Polity press.
Putnam, M. (Ed.). (2007). Aging and disability. Crossing network lines. New York, NY: Springer.
Robertson, J., Emerson, E., Gregory, N., Hatton, C., Kessissoglou, S., Hallam, A., et al. (2001). Social networks of people with mental retardation in residential settings. Mental Retardation, 39(3), 201–214.
Roets, G., Goodley, D., & van Hove, G. (2007). Narrative in a nutshell: Sharing hopes, fears, and dreams with self-advocates. Intellectual and developmental disabilities, 45(5), 323–334.
Roets, G., Reinaart, R., & Van Hove, G. (2008). Living between borderlands: Discovering a sense of nomadic subjectivity throughout Rosa’s life story. Journal of Gender Studies, 17(2), 99–115.
Roets, G., & Van Hove, G. (2003). The story of Belle, Minnie, Louise and the Sovjets. Throwing light on the dark side of an institution. Disability & Society, 18(5), 599–624.
Schippers, A., & van Boheemen, M. (2009). Family quality of life empowered by family-oriented support. Journal of Policy and Practice in Intellectual Disabilities, 6(1), 19–24.
Seltzer, M. M. (1985). Informal supports for aging mentally retarded persons. American Journal of Mental Deficiency, 90(3), 259–265.
Sheets, D. (2005). Aging with disabilities: Ageism and more. Generations, 29(3), 37–41.
Sheets, D. (2011). Aging with physical disability. In J. H. Stone & M. Blouin (Eds.), International encyclopedia of rehabilitation (pp. 1–6). Buffalo, NY: Center for International Rehabilitation Research Information and Exchange.
Stancliffe, R. J., Bigby, C., Balandin, S., Wilson, N. J., & Craig, D. (2015). Transition to retirement and participation in mainstream community groups using active mentoring: A feasibility and outcomes evaluation with a matched comparison group. Journal of Intellectual Disability Research, 59(8), 703–718.
Stancliffe, R. J., Lakin, K. C., Doljanac, R., Byun, S., Taub, S., & Chiri, G. (2007). Loneliness and living arrangements. Intellectual and Developmental Disabilities, 45(6), 380–390.
Sterns, H. L., Kennedy, E. A., Sed, C. M., & Heller, T. (2000). Later-life planning and retirement. In M. P. Janicki & E. F. Ansello (Eds.), Community supports for aging adults with lifelong disabilities (pp. 179–191). Baltimore, MD: Paul H. Brookes.
Stevens, N. L., Martina, C. M. S., & Westerhof, G. J. (2006). Meeting the need to belong: Predicting effects of a friendship enrichment program for older women. The Gerontologist, 46(40), 495–502.
Todd, S. (2004). Death counts: The challenge of death and dying in learning disability services. Learning Disability Practice, 7(10), 12–15.
Todd, S. (2005). Surprised endings: The dying of people with learning disabilities in residential services. International Journal of Palliative Nursing, 11(2), 80–82.
Tomasa, L. (2014). My life, my wishes. Sharing my journey. Tuscon, AZ: The University of Arizona.
Tuffrey-Wijne, I. (2003). The palliative care needs of people with intellectual disabilities: A literature review. Palliative Medicine, 17(1), 55–62.
Tuffrey-Wijne, I. (2013). How to break bad news to people with intellectual disabilities: A guide for carers and professionals. London, UK: Jessica Kingsley Publishers.
Tuffrey-Wijne, I., Hogg, J., & Curfs, L. (2007). End-of-life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: A review of the literature and available resources. Journal of Applied Research in Intellectual Disabilities, 20, 331–334.
Urlings, H. F. J., Claessens, M. J. J. T., Bernard, S., & Vos, A. W. (1993). De beleving van het ouder worden bij verstandelijk gehandicapten. NTZ, 2, 69–84.
U.S. Census Bureau. (2010). DP-1—United States: Profile of general population and housing characteristics: 2010, 2010 Demographic profile data.
van Asselt-Goverts, A. E., Embregts, P. J. C. M., Hendriks, A. H. C., & Frielink, N. (2014). Experiences of support staff with expanding and strengthening social networks of people with mild intellectual disabilities. Journal of Community & Applied Social Psychology, 24, 111–124.
van den Brandt-van Heek, M. (2011). Asking the right questions: Enabling persons with dementia to speak for themselves. In G. Kenyon, E. Bohlmeijer, & W. L. Randall (Eds.), Storying later life. Issues, investigations and interventions in narrative gerontology (pp. 338–353). Oxford, UK: Oxford University Press.
Van Puyenbroeck, J., & Maes, B. (2004). De betekenis van reminiscentie in de begeleiding van ouder wordende mensen met verstandelijke beperkingen. Een kwalitatieve verkenning. [The meaning of reminiscence in the support of aging people with intellectual disabilities. A qualitative exploration]. Nederlands Tijdschrift voor de Zorg aan Mensen met Verstandelijke Beperkingen. [Dutch Journal on Support for People with Intellectual Disabilities], 30, 146–165.
Van Puyenbroeck, J., & Maes, B. (2008). A review of critical, person-centred and clinical approaches to reminiscence work for people with intellectual disabilities. International Journal of Disability, Development and Education, 55(1), 43–60.
van Schrojenstein Lantman-de Valk, H. M. J. (2005). Health in People with Intellectual Disabilities: Current Knowledge and Gaps in Knowledge. Journal of Applied Research in Intellectual Disabilities, 18, 325–333.
van Schrojenstein Lantman-de Valk, H. M. J. (2009). Healthy persons with intellectual disabilities in an inclusive society. Journal of Policy and Practice in Intellectual Disabilities, 6(2), 77–80.
van Schrojenstein Lantman de-Valk, H. M. J., & Noonan-Walsh, P. (2008). Managing health problems in people with intellectual disabilities. British Medical Journal, 337, 1408–1412.
Verbrugge, L. M., & Yang, L. (2002). Aging with disability and disability with aging. Journal of Disability Policy Studies, 12(4), 253–267.
Verdonschot, M. M. L., Witte, L. P. D., Reichrath, E., Buntinx, W. H. E., & Curfs, L. M. G. (2009). Community participation of people with an intellectual disability: A review of empirical findings. Journal of Intellectual Disability Research, 53(4), 303–318.
Victor, C. (2010). The demography of aging. In D. Dannefer & C. Phillipson (Eds.), The SAGE handbook of social gerontology (pp. 61–74). London: Sage Publications.
Watchman, K., Tuffrey-Wijne, I., & Quinn, S. (2015). Jenny’s Diary. A resource to support conversations about dementia with people who have a learning disability. Hove, UK: Pavilion Publishing and Media Ltd.
Wehmeyer, M. L., & Schwartz, M. (1998). The relationship between self-determination, quality of life, and life satisfaction for adults with mental retardation. Education and Training in Mental Retardation and Developmental Disabilities, 33, 3–12.
Westerhof, G. J., Dittman-Kohli, F., & Thissen, T. (2001). Beyond life satisfaction: Lay conceptions of well-being among middle-aged and elderly adults. Social Indicators Research, 56(2), 179–203.
Wetherow, D., & Wetherow, F. (1998). Community-building & commitment-building with PATH. In J. O’Brien & C. L. O’Brien (Eds.), Implementing person-centered planning voices of experience (pp. 65–76). Toronto, Canada: Inclusion Press.
Wills, T. A., & Shinar, O. (2000). Measuring perceived and received social support. In S. Cohen, L. G. Underwood, & B. H. Gottlieb (Eds.), Social support measurement and intervention: A guide for health and social scientists (pp. 86–135). New York, NY: Oxford University Press.
Yorkston, K. M., McMullan, K. A., Molton, I., & Jensen, M. P. (2010). Pathways of change experience by people aging with disability: A focus group study. Disability and Rehabilitation, 32(20), 1697–1704.
Acknowledgements
The contents of this article were developed with funding from the United States Department of Health and Human Services, Administration for Community Living (ACL), and National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Grants # 90RT5020-01-00 and # 90AR5007-02-00. However, those contents do not necessarily represent the policy of the Department of Health and Human Services (DHHS), and you should not assume endorsement by the Federal Government.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2017 Springer International Publishing AG
About this chapter
Cite this chapter
van Heumen, L., Heller, T. (2017). Aging. In: Shogren, K., Wehmeyer, M., Singh, N. (eds) Handbook of Positive Psychology in Intellectual and Developmental Disabilities. Springer Series on Child and Family Studies. Springer, Cham. https://doi.org/10.1007/978-3-319-59066-0_24
Download citation
DOI: https://doi.org/10.1007/978-3-319-59066-0_24
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-319-59065-3
Online ISBN: 978-3-319-59066-0
eBook Packages: Behavioral Science and PsychologyBehavioral Science and Psychology (R0)