Abstract
Generating ‘robust evidence’ on the effectiveness of DBS in paediatric neurology is challenging. In order to overcome this, the team has adopted a patient-centred assessment tool from occupational therapy. This chapter argues that clinical assessment tools can be seen as constructed perceptual systems that create useful clinical knowledge by rendering patients intelligible according to differences in degree. Drawing on ethnographic data, the chapter follows team members as they construct a ‘domestic’ assessment space and deploy the patient-centred tool that directs the clinician’s gaze to the patient’s domestic body technique. The team’s adoption of such tools – which are important elements of the patient-centred proto-platform – reflects a general shift in many areas of clinical practice towards the measurement of the ‘social’ aspects of illness.
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Notes
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This is what Jesperson and colleagues (2014) have referred to as the care work that is required to produce objective facts; the emotional labour required to ensure the compliance of patients, so that data can be extracted from their bodies.
Bibliography
Armstrong, D., R. Lilford, J. Ogden, and S. Wessely. 2007. “Health-Related Quality of Life and the Transformation of Symptoms.” Sociol Health Illn 29(4): 570–583. doi: 10.1111/j.1467-9566.2007.01006.x.
Bell, K. 2013. “Biomarkers, the Molecular Gaze and the Transformation of Cancer Survivorship.” Biosocieties 8(2): 124–143. doi: 10.1057/biosoc.2013.6.
Burke, R. E., S. Fahn, C. D. Marsden, S. B. Bressman, C. Moskowitz, and J. Friedman. 1985. “Validity and Reliability of a Rating Scale for the Primary Torsion Dystonias.” Neurology 35(1): 73–77.
Buskens, E., and J. Van Gijn. 2001. “Ethics, Outcome Variables and Clinical Scales: The Clinician’s Point of View.” In Clinical Trials in Neurology, edited by Roberto J. Guiloff, 29–41. London: Springer London.
Clarke, Adele E., Janet K. Shim, Laura Mamo, Jennifer Ruth Fosket, and Jennifer R. Fishman. 2003. “Biomedicalization: Technoscientific Transformations of Health, Illness, and U.S. Biomedicine.” American Sociological Review 68(2): 161–194. doi: 10.2307/1519765.
Clarke, A.E., L. Mamo, J.R. Fosket, J.R. Fishman, J.K. Shim, and E. Riska. 2009. Biomedicalization: Technoscience, Health, and Illness in the U.S. Durham NC: Duke University Press.
Fisher, Anne. 2001. Assessment of Motor and Process Skills: User Manual. Fort Collins, CO: Three Star Press, Incorporated.
Fisher, Anne. 2003. Assessment of Motor and Process Skills. 6th edn. Fort Collins, CO: Fort Collins, CO.
Fisher, A. G., and K. B. Jones. 2010. Assessment of Motor and Process Skills. Vol. 1: Development, Standardization, and Administration Manual. 7 ed. Fort Collins: Three Star Press.
Foucault, Michel. 1991. Discipline and Punish: The Birth of the Prison. London: Penguin.
Gimeno, H., K. Tustin, R. Selway, and J. P. Lin. 2012. “Beyond the Burke-Fahn-Marsden Dystonia Rating Scale: Deep Brain Stimulation in Childhood Secondary Dystonia.” Eur J Paediatr Neurol 16(5): 501–508. doi: 10.1016/j.ejpn.2011.12.014.
Goodwin, Charles. 1994. “Professional Vision.” American Anthropologist 96(3): 606–633.
Goto, S., A. G. Fisher, and W. L. Mayberry. 1996. “The Assessment of Motor and Process Skills Applied Cross-Culturally to the Japanese.” Am J Occup Ther 50(10): 798–806.
Grosz, Elizabeth. 2005. “Bergson, Deleuze and the Becoming of Unbecoming.” Parallax 11(2): 4–13. doi: 10.1080/13534640500058434.
Guggenheim, Michael. 2012. “Laboratizing and De-Laboratizing the World: Changing Sociological Concepts for Places of Knowledge Production.” History of the Human Sciences 25(1): 99–118. doi: 10.1177/0952695111422978.
Haraway, Donna. 1988. “Situated Knowledges: The Science Question in Feminism and the Privilege of Partial Perspective.” Feminist Studies 14(3): 575–599. doi: 10.2307/3178066.
Hardt, M. 1995. Gilles Deleuze: An Apprenticeship in Philosophy. Minneapolis: University of Minnesota Press.
Henke, C., and Thomas F. Gieryn. 2008. “Sites of Scientific Practice: The Enduring Importance of Place.” In The Handbook of Science and Technology Studies, edited by E. Hackett, O. Amsterdamska, M. Lynch, and Wajcman, 353–376. Cambridge MA: MIT Press.
Hobart, J. C., and A. J. Thompson. 2001. “Assessment Measures and Clinical Scales.” In Clinical Trials in Neurology, edited by Roberto J. Guiloff, 17–28. London: Springer London.
Jespersen, Astrid P., Julie Bønnelycke, and Hanne H. Eriksen. 2014. “Careful Science? Bodywork and Care Practices in Randomised Clinical Trials.” Sociology of Health & Illness 36(5): 655–669. doi: 10.1111/1467-9566.12094.
Krystkowiak, P., S. T. Du Montcel, L. Vercueil, J. L. Houeto, C. Lagrange, P. Cornu, S. Blond, A. L. Benabid, P. Pollak, and M. Vidailhet. 2007. “Reliability of the Burke-Fahn-Marsden Scale in a Multicenter Trial for Dystonia.” Mov Disord 22(5): 685–689. doi: 10.1002/mds.21392.
Latour, B., and S. Woolgar. 1979. Laboratory Life: The Construction of Scientific Facts. Princeton: Princeton University Press.
Marks, W. A., J. Honeycutt, F. Acosta, and M. Reed. 2009. “Deep Brain Stimulation for Pediatric Movement Disorders.” Semin Pediatr Neurol 16(2): 90–98. doi: 10.1016/j.spen.2009.04.001.
Martínez-Martín, P., A. Gil-Nagel, L. Morlán Gracia, J. Balseiro Gómez, J. Martínez-Sarriés, and F. Bermejo. 1994. “Unified Parkinson’s Disease Rating Scale Characteristics and Structure.” Movement Disorders 9(1): 76–83. doi: 10.1002/mds.870090112.
Mauss, Marcel. 1973. “Techniques of the Body.” Economy and Society 2(1): 70–88. doi: 10.1080/03085147300000003.
Monbaliu, E., E. Ortibus, F. Roelens, K. Desloovere, J. Deklerck, P. Prinzie, P. De Cock, and H. Feys. 2010. “Rating Scales for Dystonia in Cerebral Palsy: Reliability and Validity.” Developmental Medicine & Child Neurology 52(6): 570–575. doi: 10.1111/j.1469-8749.2009.03581.x.
Nygard, L., B. Bernspang, A. G. Fisher, and B. Winblad. 1994. “Comparing Motor and Process Ability of Persons with Suspected Dementia in Home and Clinic Settings.” Am J Occup Ther 48(8): 689–696.
Petryna, Adriana. 2006. “Globalizing Human Subjects Research.” In Global Pharmaceuticals: Ethics, Markets, Practices, edited by Adriana Petryna, Andrew Lakoff, and Arthure Kleinman, 33–60. Durham: Duke University Press.
Rabinow, Paul. 2008. “Artificiality and Enlightenment: From Sociobiology to Biosociality.” In Anthropologies of Modernity, edited by P. Rabinow, 179–193. Hoboken NJ: Blackwell Publishing Ltd.
Rose, Nikolas. 2007. The Politics of Life Itself: Biomedicine, Power, and Subjectivity in the Twenty-First Century. Princeton and Oxford: Princeton University Press.
Van Zelst, B. R., M. D. Miller, R. Russo, S. Murchland, and M. Crotty. 2006. “Activities of Daily Living in Children with Hemiplegic Cerebral Palsy: A Cross-Sectional Evaluation Using the Assessment of Motor and Process Skills.” Dev Med Child Neurol 48(9): 723–727. doi: 10.1017/s0012162206001551.
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Gardner, J. (2017). Measuring Clinical Outcomes. In: Rethinking the Clinical Gaze. Health, Technology and Society. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-319-53270-7_7
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