Skip to main content

Measuring Clinical Outcomes

  • Chapter
  • First Online:
Rethinking the Clinical Gaze

Part of the book series: Health, Technology and Society ((HTE))

  • 448 Accesses

Abstract

Generating ‘robust evidence’ on the effectiveness of DBS in paediatric neurology is challenging. In order to overcome this, the team has adopted a patient-centred assessment tool from occupational therapy. This chapter argues that clinical assessment tools can be seen as constructed perceptual systems that create useful clinical knowledge by rendering patients intelligible according to differences in degree. Drawing on ethnographic data, the chapter follows team members as they construct a ‘domestic’ assessment space and deploy the patient-centred tool that directs the clinician’s gaze to the patient’s domestic body technique. The team’s adoption of such tools – which are important elements of the patient-centred proto-platform – reflects a general shift in many areas of clinical practice towards the measurement of the ‘social’ aspects of illness.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

eBook
USD 16.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 54.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Notes

  1. 1.

    This is what Jesperson and colleagues (2014) have referred to as the care work that is required to produce objective facts; the emotional labour required to ensure the compliance of patients, so that data can be extracted from their bodies.

Bibliography

  • Armstrong, D., R. Lilford, J. Ogden, and S. Wessely. 2007. “Health-Related Quality of Life and the Transformation of Symptoms.” Sociol Health Illn 29(4): 570–583. doi: 10.1111/j.1467-9566.2007.01006.x.

    Article  Google Scholar 

  • Bell, K. 2013. “Biomarkers, the Molecular Gaze and the Transformation of Cancer Survivorship.” Biosocieties 8(2): 124–143. doi: 10.1057/biosoc.2013.6.

    Article  Google Scholar 

  • Burke, R. E., S. Fahn, C. D. Marsden, S. B. Bressman, C. Moskowitz, and J. Friedman. 1985. “Validity and Reliability of a Rating Scale for the Primary Torsion Dystonias.” Neurology 35(1): 73–77.

    Article  Google Scholar 

  • Buskens, E., and J. Van Gijn. 2001. “Ethics, Outcome Variables and Clinical Scales: The Clinician’s Point of View.” In Clinical Trials in Neurology, edited by Roberto J. Guiloff, 29–41. London: Springer London.

    Chapter  Google Scholar 

  • Clarke, Adele E., Janet K. Shim, Laura Mamo, Jennifer Ruth Fosket, and Jennifer R. Fishman. 2003. “Biomedicalization: Technoscientific Transformations of Health, Illness, and U.S. Biomedicine.” American Sociological Review 68(2): 161–194. doi: 10.2307/1519765.

    Article  Google Scholar 

  • Clarke, A.E., L. Mamo, J.R. Fosket, J.R. Fishman, J.K. Shim, and E. Riska. 2009. Biomedicalization: Technoscience, Health, and Illness in the U.S. Durham NC: Duke University Press.

    Book  Google Scholar 

  • Fisher, Anne. 2001. Assessment of Motor and Process Skills: User Manual. Fort Collins, CO: Three Star Press, Incorporated.

    Google Scholar 

  • Fisher, Anne. 2003. Assessment of Motor and Process Skills. 6th edn. Fort Collins, CO: Fort Collins, CO.

    Google Scholar 

  • Fisher, A. G., and K. B. Jones. 2010. Assessment of Motor and Process Skills. Vol. 1: Development, Standardization, and Administration Manual. 7 ed. Fort Collins: Three Star Press.

    Google Scholar 

  • Foucault, Michel. 1991. Discipline and Punish: The Birth of the Prison. London: Penguin.

    Google Scholar 

  • Gimeno, H., K. Tustin, R. Selway, and J. P. Lin. 2012. “Beyond the Burke-Fahn-Marsden Dystonia Rating Scale: Deep Brain Stimulation in Childhood Secondary Dystonia.” Eur J Paediatr Neurol 16(5): 501–508. doi: 10.1016/j.ejpn.2011.12.014.

    Article  Google Scholar 

  • Goodwin, Charles. 1994. “Professional Vision.” American Anthropologist 96(3): 606–633.

    Article  Google Scholar 

  • Goto, S., A. G. Fisher, and W. L. Mayberry. 1996. “The Assessment of Motor and Process Skills Applied Cross-Culturally to the Japanese.” Am J Occup Ther 50(10): 798–806.

    Article  Google Scholar 

  • Grosz, Elizabeth. 2005. “Bergson, Deleuze and the Becoming of Unbecoming.” Parallax 11(2): 4–13. doi: 10.1080/13534640500058434.

    Article  Google Scholar 

  • Guggenheim, Michael. 2012. “Laboratizing and De-Laboratizing the World: Changing Sociological Concepts for Places of Knowledge Production.” History of the Human Sciences 25(1): 99–118. doi: 10.1177/0952695111422978.

    Article  Google Scholar 

  • Haraway, Donna. 1988. “Situated Knowledges: The Science Question in Feminism and the Privilege of Partial Perspective.” Feminist Studies 14(3): 575–599. doi: 10.2307/3178066.

    Article  Google Scholar 

  • Hardt, M. 1995. Gilles Deleuze: An Apprenticeship in Philosophy. Minneapolis: University of Minnesota Press.

    Google Scholar 

  • Henke, C., and Thomas F. Gieryn. 2008. “Sites of Scientific Practice: The Enduring Importance of Place.” In The Handbook of Science and Technology Studies, edited by E. Hackett, O. Amsterdamska, M. Lynch, and Wajcman, 353–376. Cambridge MA: MIT Press.

    Google Scholar 

  • Hobart, J. C., and A. J. Thompson. 2001. “Assessment Measures and Clinical Scales.” In Clinical Trials in Neurology, edited by Roberto J. Guiloff, 17–28. London: Springer London.

    Chapter  Google Scholar 

  • Jespersen, Astrid P., Julie Bønnelycke, and Hanne H. Eriksen. 2014. “Careful Science? Bodywork and Care Practices in Randomised Clinical Trials.” Sociology of Health & Illness 36(5): 655–669. doi: 10.1111/1467-9566.12094.

    Article  Google Scholar 

  • Krystkowiak, P., S. T. Du Montcel, L. Vercueil, J. L. Houeto, C. Lagrange, P. Cornu, S. Blond, A. L. Benabid, P. Pollak, and M. Vidailhet. 2007. “Reliability of the Burke-Fahn-Marsden Scale in a Multicenter Trial for Dystonia.” Mov Disord 22(5): 685–689. doi: 10.1002/mds.21392.

    Article  Google Scholar 

  • Latour, B., and S. Woolgar. 1979. Laboratory Life: The Construction of Scientific Facts. Princeton: Princeton University Press.

    Google Scholar 

  • Marks, W. A., J. Honeycutt, F. Acosta, and M. Reed. 2009. “Deep Brain Stimulation for Pediatric Movement Disorders.” Semin Pediatr Neurol 16(2): 90–98. doi: 10.1016/j.spen.2009.04.001.

    Article  Google Scholar 

  • Martínez-Martín, P., A. Gil-Nagel, L. Morlán Gracia, J. Balseiro Gómez, J. Martínez-Sarriés, and F. Bermejo. 1994. “Unified Parkinson’s Disease Rating Scale Characteristics and Structure.” Movement Disorders 9(1): 76–83. doi: 10.1002/mds.870090112.

    Article  Google Scholar 

  • Mauss, Marcel. 1973. “Techniques of the Body.” Economy and Society 2(1): 70–88. doi: 10.1080/03085147300000003.

    Article  Google Scholar 

  • Monbaliu, E., E. Ortibus, F. Roelens, K. Desloovere, J. Deklerck, P. Prinzie, P. De Cock, and H. Feys. 2010. “Rating Scales for Dystonia in Cerebral Palsy: Reliability and Validity.” Developmental Medicine & Child Neurology 52(6): 570–575. doi: 10.1111/j.1469-8749.2009.03581.x.

    Article  Google Scholar 

  • Nygard, L., B. Bernspang, A. G. Fisher, and B. Winblad. 1994. “Comparing Motor and Process Ability of Persons with Suspected Dementia in Home and Clinic Settings.” Am J Occup Ther 48(8): 689–696.

    Article  Google Scholar 

  • Petryna, Adriana. 2006. “Globalizing Human Subjects Research.” In Global Pharmaceuticals: Ethics, Markets, Practices, edited by Adriana Petryna, Andrew Lakoff, and Arthure Kleinman, 33–60. Durham: Duke University Press.

    Chapter  Google Scholar 

  • Rabinow, Paul. 2008. “Artificiality and Enlightenment: From Sociobiology to Biosociality.” In Anthropologies of Modernity, edited by P. Rabinow, 179–193. Hoboken NJ: Blackwell Publishing Ltd.

    Google Scholar 

  • Rose, Nikolas. 2007. The Politics of Life Itself: Biomedicine, Power, and Subjectivity in the Twenty-First Century. Princeton and Oxford: Princeton University Press.

    Book  Google Scholar 

  • Van Zelst, B. R., M. D. Miller, R. Russo, S. Murchland, and M. Crotty. 2006. “Activities of Daily Living in Children with Hemiplegic Cerebral Palsy: A Cross-Sectional Evaluation Using the Assessment of Motor and Process Skills.” Dev Med Child Neurol 48(9): 723–727. doi: 10.1017/s0012162206001551.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Rights and permissions

Reprints and permissions

Copyright information

© 2017 The Author(s)

About this chapter

Cite this chapter

Gardner, J. (2017). Measuring Clinical Outcomes. In: Rethinking the Clinical Gaze. Health, Technology and Society. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-319-53270-7_7

Download citation

  • DOI: https://doi.org/10.1007/978-3-319-53270-7_7

  • Published:

  • Publisher Name: Palgrave Macmillan, Cham

  • Print ISBN: 978-3-319-53269-1

  • Online ISBN: 978-3-319-53270-7

  • eBook Packages: Social SciencesSocial Sciences (R0)

Publish with us

Policies and ethics