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HIV Disclosure in Pediatric Populations: Who, What, When to Tell, and then What?

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A Clinical Guide to Pediatric HIV

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Abstract

Within pediatric populations, HIV disclosure has important implications for care and treatment. This chapter outlines key findings regarding the child and caregiver characteristics affecting HIV disclosure in pediatric populations, including disclosure of parental HIV status to a child, disclosure of child HIV status to that child, and child self-disclosure to others. Readers will learn about patterns and correlates of disclosure, outcomes of disclosure, evidence-based and promising approaches to support disclosure, as well as related guidelines and recommendations.

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Annotated Bibliography

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  • Krauss and colleagues conducted a systematic literature review to examine the disclosure of a caregiver HIV-positive status to a child under the age of 12. Major findings highlight the importance of child age and maturity during the disclosure process. Age-appropriate disclosure is also discussed.

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  • Qiao, S., Li, X., & Stanton, B. (2013). Disclosure of parental HIV infection to children: a systematic review of global literature. AIDS Behav, 17(1), 369–389. doi:10.1007/s10461-011-0069-x

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  • Qiao and colleagues conducted a systematic review of literature published prior to 2011 examining disclosure of a parental HIV-positive status to a child. Disclosure rates were often low, and tended to be higher in the United States than internationally. Reasons for disclosure, non-disclosure, and related outcomes are discussed.

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  • Vreeman, R. C., Gramelspacher, A. M., Gisore, P. O., Scanlon, M. L., & Nyandiko, W. M. (2013). Disclosure of HIV status to children in resource-limited settings: a systematic review. J Int AIDS Soc, 16, 18466. doi:10.7448/IAS.16.1.18466

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  1. University of South Florida, Tampa, FL, USA

    Stephanie L. Marhefka & DeAnne E. Turner

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    Tiffany Chenneville

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Marhefka, S.L., Turner, D.E., Chenneville, T. (2016). HIV Disclosure in Pediatric Populations: Who, What, When to Tell, and then What?. In: Chenneville, T. (eds) A Clinical Guide to Pediatric HIV. Springer, Cham. https://doi.org/10.1007/978-3-319-49704-4_8

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