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Adherence and Self-Management

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Care of Adults with Chronic Childhood Conditions

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Abstract

As adolescents and young adults (AYA) with a range of diagnoses transition from pediatric to adult-focused healthcare systems, developing strategies to maintain health outcomes during this period is critical. A key driver for maintaining optimal outcomes is adherence to recommended care therapies and condition-specific management plans. However, for AYA, particularly those with complex chronic health conditions, adherence to a daily regimen is a challenge. Therapeutic regimens are often complex, multifaceted, and time consuming. Additionally, normal adolescent development, including a desire for independence from caregivers, can hinder appropriate adherence behaviors and disease self-management. Therefore, improving adherence is a key part of transitional care. This chapter reviews the clinical approach to adherence for AYA with chronic health conditions, including the recognition of distinct patterns of adherence behaviors, outlines barriers to optimal adherence, and suggests strategies to improve adherence in this high-risk population.

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Authors and Affiliations

  1. Division of Respiratory Diseases, Boston Children’s Hospital, Harvard Medical School, 300 Longwood Avenue, Boston, MA, 02115, USA

    Gregory S. Sawicki

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  1. Gregory S. Sawicki
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Correspondence to Gregory S. Sawicki .

Editor information

Editors and Affiliations

  1. School of Medicine, Hofstra North Shore-LIJ School of Medicine, LAKE SUCCESS, New York, USA

    Mariecel Pilapil

  2. Mount Sinai School of Medicine , NEW YORK, New York, USA

    David E. DeLaet

  3. University of California Los Angeles , SANTA MONICA, California, USA

    Alice A. Kuo

  4. Baylor Clinic , HOUSTON, Texas, USA

    Cynthia Peacock

  5. Brigham and Women's Hospital , BOSTON, Massachusetts, USA

    Niraj Sharma

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© 2016 Springer International Publishing Switzerland

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Sawicki, G.S. (2016). Adherence and Self-Management. In: Pilapil, M., DeLaet, D., Kuo, A., Peacock, C., Sharma, N. (eds) Care of Adults with Chronic Childhood Conditions. Springer, Cham. https://doi.org/10.1007/978-3-319-43827-6_26

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  • DOI: https://doi.org/10.1007/978-3-319-43827-6_26

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-43825-2

  • Online ISBN: 978-3-319-43827-6

  • eBook Packages: MedicineMedicine (R0)

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