Advertisement

Australian Indigenous People with Disability: Ethics and Standpoint Theory

  • John GilroyEmail author
  • Michelle Donelly
Chapter
Part of the International Perspectives on Social Policy, Administration, and Practice book series (IPSPAP)

Abstract

Research on impairment and disability among Indigenous people in Australia has reflected and served the colonial enterprise. National ethical guidelines on research have not been effective in addressing the manner in which Australian Indigenous people with a disability are framed and disempowered in disability research methodology and epistemology. A comprehensive community-grounded, structural enquiry framework is proposed to address these concerns

Keywords

Indigenous Standpoint Theory Indigenous disability understandings Ethics Australia Colonialism Knowledge production Race and racism 

References

  1. Alatas, S. F. (2003). Academic dependency and the global division of labour in the social sciences. Current Sociology, 51(6), 599–613.CrossRefGoogle Scholar
  2. Alderete, E. (1999). The health of indigenous peoples. Geneva: World Health Organization.Google Scholar
  3. Alexander, L. & Moore, M. (2012). Deontological ethics. In E. N. Zalta (Ed.), The Stanford encyclopedia of philosophy (Winter 2012 edn.). Retrieved February 2014, from http://plato.stanford.edu/archives/win2012/entries/ethics-deontological/.
  4. Anderson, I. (1996). Ethics and health research in Aboriginal communities. In J. Daly (Ed.), Ethical intersections (pp. 153–165). Sydney: Allen & Unwin.Google Scholar
  5. Attwood, B. (1989). The making of the aborigines. Sydney: Allen & Unwin.Google Scholar
  6. Australian Institute of Health and Welfare (AIHW). (2011). Aboriginal and Torres Strait Islander people with disability: Wellbeing, participation and support. Canberra: AIHW.Google Scholar
  7. Beauchamp, T. (2007). The ‘four principles’ approach to health care ethics. In R. Ashcroft, A. Dawson, H. Draper, & J. McMillan (Eds.), Principles of healthcare ethics (pp. 3–10). Chichester: Wiley.Google Scholar
  8. Bishop, R. (1998). Freeing ourselves from neo-colonial domination in research: A Maori approach to creating knowledge. International Journal of Qualitative Studies in Education, 11, 199–219.CrossRefGoogle Scholar
  9. Bostock, J. (1924). Insanity in the Australian Aboriginal and its bearing on the evolution of mental disease. The Medical Journal of Australia, 5(July), 459–464.Google Scholar
  10. Brady, W. (1992). Indigenous control of Aboriginal and Torres Strait Islander research. 2nd Aboriginal Studies Association Conference, University of New South Wales, pp. 311–315.Google Scholar
  11. Brodsky, I. (1943). Congenital abnormalities, teratology and embryology: Some evidence of primitive man’s knowledge as expressed in art and lore in Oceania. The Medical Journal of Australia, 8(May), 417–420.Google Scholar
  12. Cawte, J. (1964). Tjimi and tjagolo: Ethnopsychiatry in the Kalumburu people of north-western Australia. Oceania, 34, 170–190.CrossRefGoogle Scholar
  13. Cawte, J. (1966). Australian aborigines in mental hospitals. Oceania, 36(4), 264–282.CrossRefGoogle Scholar
  14. Chewings, C. (1936). Back in the stone age: The natives of central Australia. Sydney: Angus and Robertson.Google Scholar
  15. Choy, S., & Woodlock, J. (2007). Implementing indigenous standpoint theory: Challenges for a TAFE trainer. International Journal of Training Research, 5(1), 39–44.CrossRefGoogle Scholar
  16. Cohen, A. (1999). The mental health of indigenous peoples: An international overview. Geneva: World Health Organization.Google Scholar
  17. Connell, R. (2007). Southern theory: The global dynamics of knowledge in the social sciences. Sydney: Allen & Unwin.Google Scholar
  18. Crow, L. (1996). Including all of our lives: Renewing the social model of disability. In C. Barnes & G. Mercer (Eds.), Exploring the divide: Illness and disability. Leeds: Disability Press.Google Scholar
  19. Curr, E. M. (1886). The Australian race: Its origin, languages, customs, place of landing in Australia, and the routes by which it spread itself over that continent. Melbourne: John Ferres, Government Printer.Google Scholar
  20. Driver, J. (2009). The history of utilitarianism. In E. N. Zalta (Ed.), The stanford encyclopedia of philosophy, (Summer 2009 edn.). Retrieved February 2014, from http://plato.stanford.edu/archives/sum2009/entries/utilitarianism-history/.
  21. Fitzgerald, M. (2004). Punctuated equilibrium, moral panics and the ethics review process. Journal of Academic Ethics, 2, 315–338. doi: 10.1007/s10805-005-9004-y.CrossRefGoogle Scholar
  22. Foley, D. (2003). Indigenous epistemology and indigenous standpoint theory. Social Alternatives, 22(1), 44–52.Google Scholar
  23. Foley, D. (2006). Indigenous standpoint theory: An acceptable academic research process for Indigenous academics. International Journal of the Humanities, 3(4), 25–36.Google Scholar
  24. Fredericks, B. (2006). Aboriginal and Torres Strait Islander lead and governed research: A sign of social change. In Proceedings of the Social Change in the 21st Century Conference 2006, Queensland University of Technology, Brisbane.Google Scholar
  25. Gilroy, J. (2010). History of Aboriginal people with disability in NSW: How are Aboriginal people with disability positioned and represented in the NSW disability services sector? Interaction: Special Edition on Aboriginal People with Disability, 24(1), 6–29. Retrieved from http://aiidd.org.au/interaction/24/24.1.pdf.Google Scholar
  26. Gilroy, J. (2012). The participation of Aboriginal persons with disability in disability services in New South Wales, Australia. Doctoral dissertation, University of Sydney, Australia.Google Scholar
  27. Gilroy, J., Colmar, S., Donelly, M., & Parmenter, T. (2013). Conceptual framework for policy and research development with Indigenous persons with disability. Journal of Australian Aboriginal Studies, 2, 42–58.Google Scholar
  28. Grech, S. (2012). Disability and the majority world: A neo-colonial approach. In D. Goodley, B. Hughes, & L. Davis (Eds.), Disability and social theory. Basingstoke: Palgrave Macmillan (Chapter 4).Google Scholar
  29. Guba, E., & Lincoln, Y. (2005). Paradigmatic controversies, contradictions and emerging confluences. In N. Denzin & Y. Lincoln (Eds.), The sage handbook of qualitative research (3rd ed., pp. 191–215). Thousand Oaks, CA: Sage.Google Scholar
  30. Hackett, C. (1936). Boomerang leg and yaws in Australian aborigines. London: Royal Society of Tropical Medicine and Hygiene.Google Scholar
  31. Harris, J. (1990). One blood: 200 years of Aboriginal encounter with Christianity—A story of hope. Sutherland, NSW: Albatross Books.Google Scholar
  32. Henry, J., Dunbar, T., Arnott, A., Scrimgeour, M., Matthews, A., Murakami, L., et al. (2002). Indigenous research reform agenda: Changing institutions (Links monograph series). Darwin: Cooperative Research Centre for Aboriginal and Tropical Health.Google Scholar
  33. Hollinsworth, D. (2013). Decolonizing Indigenous disability in Australia. Disability & Society, 28(5), 601–615.CrossRefGoogle Scholar
  34. Huggins, J. (Ed.). (1993). Pretty deadly tidda business. Sydney: Allen and Unwin.Google Scholar
  35. Hughes, B., & Paterson, K. (1997). The social model of disability and the disappearing body: Towards a sociology of impairment. Disability & Society, 12(3), 325–340.CrossRefGoogle Scholar
  36. Humphery, K. (2001). Dirty questions: Indigenous health and western research. Australian and New Zealand Journal of Public Health, 25, 197–202.CrossRefGoogle Scholar
  37. Jones, D. (1990). Contemporary medical scandals: A challenge to ethical codes and ethical principles. Perspectives on Sciences and Christian Faith, 42, 2–14.Google Scholar
  38. Kidson, M. (1965). Ethnopsychiatry in central Australia: A survey of mental illness in the Walbiri. Unpublished manuscript. Sydney: Prince Henry Hospital.Google Scholar
  39. Kidson, M. (1967). Psychiatric disorders in the Walbiri Central Australia. Australian and New Zealand Journal of Psychiatry, 1, 14–22.CrossRefGoogle Scholar
  40. Kowal, E., Anderson, I., & Bailie, R. (2005). Moving beyond good intentions: Indigenous participation in Aboriginal and Torres Strait Islander health research. Australian and New Zealand Journal of Public Health, 29, 468–470.CrossRefGoogle Scholar
  41. Langton, M. (1993). Well I heard it on the radio and I saw it on the television. Sydney: Australian Film Commission.Google Scholar
  42. Lindsay, D. (1893). Journal of the elder scientific exploring exhibition 1891–2. Adelaide: Corkwood Press.Google Scholar
  43. Meekosha, H. (2004). Drifting down the gulf stream: Navigating the cultures of disability studies. Disability & Society, 19(7), 721–733.CrossRefGoogle Scholar
  44. Meekosha, H. (2011). Decolonising disability: Thinking and acting globally. Disability & Society, 26(6), 667–682.CrossRefGoogle Scholar
  45. Meyer, M. (2001). Our own liberation: Reflections on Hawaiian epistemology. The Contemporary Pacific, 13(Spring), 124–309.CrossRefGoogle Scholar
  46. Meyer, M. (2008). Indigenous and authentic: Hawaiian epistemology and the triangulation of meaning. In N. Denzin, Y. Lincoln, & L. T. Smith (Eds.), Handbook of critical and Indigenous methodologies (pp. 217–232). London: Sage.CrossRefGoogle Scholar
  47. Moreton-Robinson, A. (2000). Talkin’ up to the white woman: Aboriginal women and feminism. Brisbane: University of Queensland Press.Google Scholar
  48. Moreton-Robinson, A. (2004). Whiteness, epistemology and Indigenous representation. In A. Moreton-Robinson (Ed.), Whitening race: Essays in social and cultural criticism (pp. 75–88). Canberra: Aboriginal Studies Press.Google Scholar
  49. Morris, J. (1991). Pride against prejudice: A personal politics of disability. London: Women’s Press.Google Scholar
  50. Nakata, M. (1997). The cultural interface: An exploration of the intersection of western knowledge systems and Torres Strait Islander positions and experiences. Doctoral dissertation, James Cook University, Townsville, QLD.Google Scholar
  51. Nakata, M. (1998). Anthropological texts and indigenous standpoints. Australian Indigenous Studies, 3, 3–15.Google Scholar
  52. Nakata, M. (Ed.). (2004). Indigenous knowledge and the cultural interface: Underlying issues at the intersection of knowledge and information systems. Sydney: Post Press.Google Scholar
  53. National Commission for the Protection of Human Subjects of Biomedical and Behavioural Research. (1979). Ethical principles and guidelines for the protection of human subjects of research (Belmont Report). Washington, DC: US Department of Health, Education, and Welfare. Retrieved November 7, 2014, from http://www.hhs.gov/ohrp/humansubjects/guidance/belmont.html.Google Scholar
  54. National Health Medical Research Council (NHMRC). (1991). Guidelines on ethical matters in Aboriginal and Torres Strait Islander health research. Canberra: NHMRC. Retrieved November 2013, from http://www.nhmrc.gov.au/_files_nhmrc/publications/attachments/e11.pdf.Google Scholar
  55. NHMRC. (2003). Values and ethics: Guidelines for ethical conduct in Aboriginal and Torres Strait Islander health research. Canberra: Commonwealth of Australia. Retrieved November 2014, from http://www.nhmrc.gov.au/_files_nhmrc/publications/attachments/e52.pdf.Google Scholar
  56. NHMRC. (2006). Keeping research on track: A guide for Aboriginal and Torres Strait Islander peoples about health research ethics. Canberra: NHMRC. Retrieved November 2014, from https://www.nhmrc.gov.au/guidelines/publications/e65.Google Scholar
  57. NHMRC. (2007). National statement on ethical conduct in human research. Canberra: NHMRC. Retrieved October 2013, from http://www.nhmrc.gov.au/health-ethics/human-research-ethics-committees-hrecs/human-research-ethics-committees-hrecs/national/.Google Scholar
  58. NHMRC. (2010). NHMRC road map II: A strategic framework for improving the health of Aboriginal and Torres Strait Islander people through research. Canberra: NHMRC. Retrieved June 2013, from https://www.nhmrc.gov.au/guidelines/publications/r47.Google Scholar
  59. NHMRC. (2013). Researching right way Sydney consultation notes: Stakeholder experiences of using the NHMRC values and ethics guidelines and keeping research on track. Unpublished.Google Scholar
  60. Ngaanyatjarra Pitjantjatjara Yankunytjatjara Women’s Council. (1995). They might have to drag me like a bullock. In The Tjilpi Pampa Tjutaku Project. Alice Springs: NPYWC.Google Scholar
  61. Oates, W. (2003). Bastards of the bush: Towards an Indigenous Australian research. In P. Jeffrey (Ed.), AARE Conference Proceedings, Auckland, New Zealand. Retrieved November 7, 2014, from http://www.aare.edu.au/publications-database.php/3929/bastards-of-the-bush-towards-an-indigenous-australian-research-methodology.
  62. Oliver, M. (1990). The politics of disablement. London: Macmillan.CrossRefGoogle Scholar
  63. Peters-Little, F. (2000). The community game: Aboriginal self definition at the local level. AIATSIS discussion paper, 10. Retrieved November 7, 2014, from http://epress.anu.edu.au/caepr_series/no_20/mobile_devices/ch19.html.
  64. Pétré-Grenouilleau, O. (2004). From slave trade to empire: European colonisation of black Africa, 1780s–1880s. New York: Routledge.Google Scholar
  65. Proctor, R. (1992). Nazi doctors, racial medicine, and human experimentation. In G. Annas & M. Grodin (Eds.), The Nazi doctors and the Nuremberg code. New York: Oxford University Press.Google Scholar
  66. Pulver, L. J., Haswell, M. R., Ring, I., Waldon, J., Clark, W., Whetung, V. et al. (2010). Indigenous health—Australia, Canada, Aotearoa New Zealand and the United States—laying claim to a future that embraces health for us all. Background paper 33. Geneva: World Health Organization.Google Scholar
  67. Reynolds, H. (1981). The other side of the frontier: An interpretation of the Aboriginal response to the invasion and settlement of Australia. Townsville, QLD: James Cook University.Google Scholar
  68. Rigney, L. (1999). Internationalisation of an Indigenous anticolonial cultural critique of research methodologies: A guide to indiginist research methodology and its principles. Wicazo SA Review, 14(2), 109–121.CrossRefGoogle Scholar
  69. Rigney, L. (2007). Indiginist research epistemologies: A historical journey of conviction, contradiction and transformation. Doctoral thesis. Flinders University, Adelaide.Google Scholar
  70. Said, E. (1978). Orientalism. London: Routledge & Kegan Paul.Google Scholar
  71. Shakespeare, T., & Watson, N. (1997). Defending the social model. Disability & Society, 12(2), 293–300.CrossRefGoogle Scholar
  72. Smith, G. (1997). Kaupapa Maori: Theory and praxis. Auckland: The International Research Institute for Maori and Indigenous Education.Google Scholar
  73. Smith, G. (2008). Theorizing, transforming and reclaiming ourselves. Presented at the International Health—Wellbeing Course, University of British Columbia, Canada.Google Scholar
  74. Stirling, E. (1950). Sir Edward Stirling, F.R.S.: Boomerang legs, the marsupial mole and diprotodon remains. The Medical Journal of Australia, 29(April), 556–557.Google Scholar
  75. Tierney, P. (2000, November 6). The fierce anthropologist. The New Yorker, 1–15. Retrieved from http://www.old.li.suu.edu/library/circulation/Dean/anth1010edTiernyFierceAnthropologistFall08.pdf.
  76. Tuhiwai Smith, L. (1999). Decolonising methodologies: Research and Indigenous peoples. Dunedin: University of Otago Press.Google Scholar
  77. Ungunmerr, M. R. (1995). Dadirri. In E. Stockton (Ed.), The Aboriginal gift: Spirituality for a nation (pp. 179–184). Alexandria: Millennium Books.Google Scholar
  78. Ungunmerr, M. R. (2002). Dadirri: Inner deep listening and quiet still awareness. Melbourne: Secretariat of National Aboriginal and Islander Child Care.Google Scholar
  79. UN. (2006). Convention on the rights of persons with disabilities. New York: United Nations. Retrieved from http://www.un.org/disabilities/convention/signature.shtml.Google Scholar
  80. United Nations (UN). (2008). Declaration on the rights of indigenous peoples. New York: United Nations. Retrieved from http://www.un.org/esa/socdev/unpfii/documents/DRIPS_en.pdf.Google Scholar
  81. Walker, R. (2004). Transformative strategies in indigenous education: A study of decolonisation and positive social change, the indigenous community management program. Doctoral dissertation, University of Western Sydney, Bansktown, NSW.Google Scholar
  82. West, E. (2000). An alternative to existing Australian research and teaching models: the Japanangka teaching and research paradigm, an Australian Aboriginal model. Doctoral thesis, Southern Cross University.Google Scholar
  83. World Health Organization (WHO). (2002). Towards a common language for functioning, disability and health ICF. Geneva: WHO.Google Scholar
  84. WHO. (2008). Commission on social determinants of health—Final report. Geneva: WHO.Google Scholar

Copyright information

© Springer International Publishing Switzerland 2016

Authors and Affiliations

  1. 1.Centre for Disability, Research and Policy, University of SydneySydneyAustralia
  2. 2.Health and Human SciencesSouthern Cross UniversityCoolangattaAustralia

Personalised recommendations