Abstract
This chapter focuses on the ways that ethics and morality are defined in the context of high-risk pregnancies and preterm births in the U.S.: which values and principles are invoked, how authority and agency to make moral decisions are understood, and what types of ethical problems commonly occur. Ethical problems include conflicts between two moral principles held by the same individual, conflicts between the moral views of different parties, and conflicts over which parties have the standing to be involved in ethical decisions. Three sets of ethical decisions are examined in the context of high-risk pregnancies: whether women should receive multiple embryo transfers during in vitro fertilization (IVF) (a practice which increases the risk of preterm birth), whether pregnant women can be required against their own preferences to receive certain prenatal screenings, and who makes decisions about prenatal interventions. The chapter then examines ethical concerns in the decisions around resuscitation and the provision of life support for preterm newborns. For all of these decisions, the chapter reviews moral principles held and acted on by clinical care providers, by pregnant women and their families, and by the third parties who represent societal interests. Discussion of ethical issues in Canada, Great Britain, and Western Europe reflect all of the same concerns, but also, because of the publicly financed nature of their healthcare systems in these countries, consider the ethics of resource expenditures, an issue that is seldom openly discussed in the U.S.
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Notes
- 1.
Several other aspects of the Tuskegee study, including its persistence after the immorality of conducting research without subject consent was acknowledged, continued deception of participants and attempts to restrict their access to syphilis treatment, lead most observers to the conclusion that the study violated research ethics other than the expectation of informed consent at entry (Parker and Alvarez 2003).
- 2.
The self-governance paradigm is most compatible with the framework of virtue ethics in philosophy.
- 3.
For example, in January 2015, 36 year-old Erica Morales, a Phoenix woman who was pregnant with quadruplets after undergoing IVF, died of blood loss after an emergency cesarean section. The procedure was conducted when she was 31 weeks pregnant and experiencing extreme blood pressure elevation (Campbell 2015). Her four preterm infants survived, and are under the care of their widowed father (Keating 2015).
- 4.
These options were proposed as hypothetical choices in a large study of couples who underwent IVF. Many of these options are not actually offered to IVF patients, due to legal restrictions (e.g., prohibitions against stem cell research with embryos) and fertility clinic practices. The primary option for most IVF patients is freezing of embryos, and most respondents simply prolonged freezing because of few desirable alternative options (Lyerly et al. 2010).
- 5.
The ethics of prenatal genetic screening has been extensively scrutinized because it raises so many issues, including the impact of expanding technology, the balance of risks and benefits of screening, whether termination of an affected pregnancy can be considered a benefit, how clinical personnel can reasonably adopt a position of ethical neutrality when advising patients on prenatal genetic screening, and whether having the “gift of knowledge” about fetal abnormalities actually enhances a pregnant woman’s autonomy in decision-making, see (Allyse et al. 2015; Chervenak et al. 2008; Farsides et al. 2004; Kenan 1996).
- 6.
In 2001, the Supreme Court ruled in favor of 10 South Carolina women who sued their prenatal care provider, the Medical University of South Carolina in Charleston, for screening them for drug use without their explicit consent and turning the positive results over to local law enforcement authorities. The basis of the ruling was that the screening constituted illegal search and seizure because it was used for legal and not therapeutic purposes; it is not clear whether the expectation for explicit patient consent for prenatal drug screening, if it is used for therapeutic purposes, has the force of law (Gostin 2001; Sikich 2005).
- 7.
This comment is also interesting because it indicates how the clinical reasoning around prescribing bed rest during high-risk pregnancies reflects beliefs about medicine—that action is preferable to no action—and social reproduction—that fetuses are separable from mothers and that the health of the mother can appropriately be sacrificed for the benefit of the fetus.
- 8.
In fact, they note, physicians would not be liable if they failed to seek a court order for a recommended intervention, but would be liable if they proceeded with surgery without maternal consent.
- 9.
Data from this study was used to create a web-based tool for estimating survival ranges with and without impairment, given gestational age, birth weight, sex, singleton or multiple status, and use of corticosteroids. This tool is available at www.nichd.nih.gov/about/org/der/branches/ppb/programs/bepo/Pages/epbo_case.aspx.
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Bronstein, J.M. (2016). The Ethical Dimension: Moral Decision-Making About Preterm Birth. In: Preterm Birth in the United States. Springer, Cham. https://doi.org/10.1007/978-3-319-32715-0_6
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