Skip to main content
SpringerLink
Log in

Promoting Resilience During the Transition to Adolescence in Chronically Ill Children and Their Families

  • Chapter
  • First Online:
Child and Adolescent Resilience Within Medical Contexts

Abstract

This chapter explores resilience during the transition to adolescence in chronically ill children and their families from the perspective of pediatric psychology. Specifically, we aim to identify resilience factors and how medical practitioners can target these factors as a way to promote an optimal response to pediatric chronic illness during the transition to adolescence. We discuss how pediatric chronic illness presents families with numerous challenges, particularly during the transition from childhood to adolescence. We review the impact of pediatric chronic illness on children and families during the transition to adolescence, including its impact on children’s biological, cognitive, psychological, and social functioning, as well as its impact on parenting and family functioning. We identify potential individual, family, and community resilience factors that can serve as targets for interventions. We discuss how implementing interventions through a strengths-based perspective can encourage optimal outcomes and conclude with implications for medical practitioners who work with families of chronically ill children, and recommendations for future research.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 69.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 89.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 109.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Alderfer, M. A., Fiese, B. H., Gold, J. I., Cutili, J. J., Holmbeck, G. N., Goldbeck, L., … Patterson, J. (2008). Evidence-based assessment in pediatric psychology: Family measures. Journal of Pediatric Psychology, 33(9), 1046–1061. doi:10.1093/jpepsy/jsm083.

    Google Scholar 

  • Anderson, B., Ho, J., Brackett, J., Finkelstein, D., & Laffel, L. (1997). Parental involvement in diabetes management tasks: Relationships to blood glucose monitoring adherence and metabolic control in young adolescents with insulin-dependent diabetes mellitus. Journal of Pediatrics, 130(2), 257–265. doi:10.2337/diaspect.16.3.184.

    Article  PubMed  Google Scholar 

  • Arrigo, T., Rulli, I., Sferlazzas, C., & De Luca, F. (2003). Pubertal development in cystic fibrosis: An overview. Journal of Pediatric Endocrinology and Metabolism, 16, 267–270. doi:10.1080/08035250310004333.

    Article  PubMed  Google Scholar 

  • Aylward, B. S., Bender, J. A., Graves, M. M., & Roberts, M. C. (2009). Historical developments and trends in pediatric psychology. In M. C. Roberts & R. G. Steele (Eds.), Handbook of pediatric psychology (4th ed., pp. 3–18). New York, NY: Guilford.

    Google Scholar 

  • Barlow, J. H., & Ellard, D. R. (2006). The psychosocial well‐being of children with chronic disease, their parents and siblings: An overview of the research evidence base. Child: Care, Health and Development, 32(1), 19–31. doi:10.1111/j.1365-2214.2006.00591.x.

    Google Scholar 

  • Barnum, D. D., Snyder, C. R., Rapoff, M. A., Mani, M. M., & Thompson, R. (1998). Hope and social support in psychological adjustment of children who have survived burn injuries and their matched controls. Children’s Health Care, 27(1), 15–30. doi:10.1207/s15326888chc2701_2.

    Article  Google Scholar 

  • Barrera, M., Shaw, A. K., Speechley, K. N., Maunsell, E., & Pogany, L. (2005). Educational and social late effects of childhood cancer and related clinical, personal, and familial characteristics. Cancer, 104(8), 1751–1760. doi:10.1002/cncr.21390.

    Article  PubMed  Google Scholar 

  • Bauman, L. J., Silver, E. J., & Stein, R. E. (2006). Cumulative social disadvantage and child health. Pediatrics, 117(4), 1321–1328. doi:10.1542/peds.2005-1647.

    Article  PubMed  Google Scholar 

  • Betancourt, T. S., Meyers-Ohki, S. E., Charrow, A., & Hansen, N. (2013). Annual research review: Mental health and resilience in HIV/AIDS affected children–a review of the literature and recommendations for future research. Journal of Child Psychology and Psychiatry, 54(4), 423–444. doi:10.1111/j.1469-7610.2012.02613.x.

    Article  PubMed  Google Scholar 

  • Betancourt, T. S., Meyers-Ohki, S., Stulac, S. N., Barrera, A. E., Mushashi, C., & Beardslee, W. R. (2011). Nothing can defeat combined hands: Protective processes and resilience in Rwandan children and families affected by HIV/AIDS. Social Science & Medicine, 73(5), 693–701. doi:10.1016/j.socscimed.2011.06.053.

    Article  Google Scholar 

  • Blount, R. L., Simons, L. E., Devine, K. A., Jaaniste, T., Cohen, L. L., Chambers, C. T., & Hayutin, L. G. (2008). Evidence-based assessment of coping and stress in pediatric psychology. Journal of Pediatric Psychology, 33(9), 1021–1045. doi:10.1093/jpepsy/jsm071.

    Google Scholar 

  • Bronfenbrenner, U., & Morris, P. A. (2006). The bioecological model of human development. In W. Damon & R. M. Lerne (Eds.), Handbook of child psychology (Theoretical models of human development 6th ed., Vol. 1, pp. 793–828). New York, NY: Wiley.

    Google Scholar 

  • Case-Smith, J. (2007). Parenting a child with a chronic medical condition. In A. E. Dell Orto & P. W. Power (Eds.), The psychological and social impact of illness and disability (pp. 310–328). New York, NY: Springer.

    Google Scholar 

  • Children’s Health Insurance Program Reauthorization Act of 2009 (Pub L No. 111–3). Retrieved August 17, 2014, from www.gpo.gov/fdsys/pkg/BILLS-111hr2enr/pdf/BILLS-111hr2enr.pdf.

  • Committee on Child Health Financing. (2014). Children’s health insurance program (CHIP): Accomplishments, challenges, and policy recommendations. Pediatrics, 133(3), e784–e793. doi:10.1542/peds.2013-4059.

    Article  Google Scholar 

  • Compas, B. E., Desjardins, L., Vannatta, K., Young-Saleme, T., Rodriguez, E. M., Dunn, M., … Gerhardt, C. A. (2014). Children and adolescents coping with cancer: Self- and parent reports of coping with anxiety/depression. Health Psychology, 33(8), 853–861. doi:10.1037/hea0000083.

    Google Scholar 

  • Compas, B. E., Jaser, S. S., Dunn, M. J., & Rodriguez, E. M. (2012). Coping with chronic illness in childhood and adolescence. Annual Review of Clinical Psychology, 8, 455–480. doi:10.1146/annurev-clinpsy-032511-143108.

    Article  PubMed  Google Scholar 

  • Costigan, C. L., Floyd, F. J., Harter, K. S., & McClintock, J. C. (1997). Family processes and adaption to children with mental retardation: Disruption and resilience in family problem-solving interactions. Journal of Family Psychology, 11(4), 515–529. doi:10.1037/0893-3200.11.4.515.

    Article  Google Scholar 

  • Cystic Fibrosis Foundation [CFF]. (2010). Cystic fibrosis foundation patient registry 2010 annual data report. Bethesda, MD: Cystic Fibrosis Foundation.

    Google Scholar 

  • Dabelea, D., Mayer-Davis, E. J., Saydah, S., Imperatore, G., Linder, B., Divers, J., … Hamman, R. F. (2014). Prevalence of type 1 and type 2 diabetes among children and adolescents from 2001 to 2009. The Journal of the American Medical Association, 311(17), 1778–1786. doi:10.1001/jama.2014.3201.

    Google Scholar 

  • Devine, K. A., Gayes, L., Purnell, J., & Holmbeck, G. N. (2012). Friendships of children and adolescents with spina bifida: Social adjustment, social performance, and social skills. Journal of Pediatric Psychology, 37(2), 220–231. doi:10.1093/jpepsy/jsr075.

    Article  PubMed  Google Scholar 

  • Drotar, D. (1997). Relating parent and family functioning to the psychological adjustment of children with chronic health conditions: What have we learned? What do we need to know? Journal of Pediatric Psychology, 22(2), 149–165. doi:10.1093/jpepsy/22.2.149.

    Article  PubMed  Google Scholar 

  • Ellis, D. A., Podolski, C. L., Frey, M., Naar-King, S., Wang, B., & Moltz, K. (2007). The role of parental monitoring in adolescent health outcomes: Impact on regimen adherence in youth with type 1 diabetes. Journal of Pediatric Psychology, 32(8), 907–917. doi:10.1093/jpepsy/jsm009.

    Article  PubMed  Google Scholar 

  • Feldmann, R., Weglage, J., Roth, J., Foell, D., & Frosch, M. (2005). Systemic juvenile rheumatoid arthritis: Cognitive function and social adjustment. Annals of Neurology, 58(4), 605–609. doi:10.1002/ana.20626.

    Article  PubMed  Google Scholar 

  • Feragen, K. B., Kvalem, I. L., Rumsey, N., & Borge, A. I. (2010). Adolescents with and without a facial difference: The role of friendships and social acceptance in perceptions of appearance and emotional resilience. Body Image, 7(4), 271–279. doi:10.1016/j.bodyim.2010.05.002.

    Article  PubMed  Google Scholar 

  • Forrest, C. B., Bevans, K. B., Riley, A. W., Crespo, R., & Louis, T. A. (2013). Health and school outcomes during children’s transition into adolescence. Journal of Adolescent Health, 52(2), 186–194. doi:10.1016/j.jadohealth.2012.06.019.

    Article  PubMed  Google Scholar 

  • Friedman, D., Holmbeck, G. N., DeLucia, C., Jandasek, B., & Zebracki, K. (2009). Trajectories of autonomy development across the adolescent transition in children with spina bifida. Rehabilitation Psychology, 54(1), 16–27. doi:10.1037/a0014279.

    Article  PubMed  Google Scholar 

  • Funck-Brentano, I., Dalban, C., Veber, F., Quartier, P., Hefez, S., Costagliola, D., & Blanche, S. (2005). Evaluation of a peer support group therapy for HIV-infected adolescents. AIDS, 19(4), 1501–1508. doi:10.1097/01.aids.0000183124.86335.0a.

    Google Scholar 

  • Gartland, D., Bond, L., Olsson, C. A., Buzwell, S., & Sawyer, S. M. (2011). Development of a multi-dimensional measure of resilience in adolescents: The Adolescent Resilience Questionnaire. Biomed Central Medical Research Methodology, 11(134), 1–10. doi:10.1186/1471-2288-11-134.

    Google Scholar 

  • Graber, J. A. (2004). Internalizing problems during adolescence. In R. M. Lerner & L. Steinberg’s (Eds.), Handbook of adolescent psychology (2nd ed., pp. 587–626). Hoboken, NJ: Wiley.

    Google Scholar 

  • Greco, P., Pendley, J. S., McDonell, K., & Reeves, G. (2001). A peer group intervention for adolescents with type 1 diabetes and their best friends. Journal of Pediatric Psychology, 26(8), 485–490. doi:10.1093/jpepsy/26.8.485.

    Article  PubMed  Google Scholar 

  • Grey, M., Cameron, M. E., & Thurber, F. W. (1991). Coping and adaptation in children with diabetes. Nursing research, 40(3), 144–148. doi:10.1097/00006199-199105000-00004.

    Article  PubMed  Google Scholar 

  • Haase, J. E. (2004). The Adolescent Resilience Model as a guide to interventions. Journal of Pediatric Oncology Nursing, 21, 289–299. doi:10.1177/1043454204267922.

    Article  PubMed  Google Scholar 

  • Halfon, N., & Newacheck, P. W. (2010). Evolving notions of childhood chronic illness. The Journal of the American Medical Association, 303(7), 665–666. doi:10.1001/jama.2010.130.

    Article  PubMed  Google Scholar 

  • Hall, D. K. (2010). Compendium of selected resilience and related measures for children and youth. Toronto, ON, Canada: The Child and Family Partnership.

    Google Scholar 

  • Harnall, K. M., Heard, T. R., Inder, K. J., McGill, K. M., & Kay-Lambkin, F. (2014). The Child Illness and Resilience Program (CHiRP): A study protocol of a stepped care intervention to improve the resilience and wellbeing of families living with childhood chronic illness. Biomed Central Psychology, 2(5), 1–10. doi:10.1186/2050-7283-2-5.

    Google Scholar 

  • Harter, S. (1999). The construction of the self: A developmental perspective. New York, NY: Guilford.

    Google Scholar 

  • Helgeson, V. S., Lopez, L. C., & Kamarck, T. (2009). Peer relationships and diabetes: Retrospective and ecological momentary assessment approaches. Health Psychology, 28(3), 273–282. doi:10.1037/a0013784.

    Article  PubMed  PubMed Central  Google Scholar 

  • Helgeson, V. S., Reynolds, K. A., Shestak, A., & Wei, S. (2006). Brief report: Friendships of adolescents with and without diabetes. Journal of Pediatric Psychology, 31(2), 194–199. doi:10.1093/jpepsy/jsj009.

    Article  PubMed  Google Scholar 

  • Helms, S. W., Dellon, E. P., & Prinstein, M. J. (2015). Friendship quality and health-related outcomes among adolescents with cystic fibrosis. Journal of Pediatric Psychology, 40(3), 349–358. doi:10.1093/jpepsy/jsu063.

    Article  PubMed  Google Scholar 

  • Hill, N. E., Bromell, L., Tyson, D. F., & Flint, R. (2007). Ecological perspectives on parental influences during adolescence. Journal of Clinical Child and Adolescent Psychology, 36(3), 367–377. doi:10.1080/15374410701444322.

    Article  PubMed  Google Scholar 

  • Hill, J. P., & Holmbeck, G. N. (1986). Attachment and autonomy during adolescence. Annals of Child Development, 3, 145–189.

    Google Scholar 

  • Hilliard, M. E., Ernst, M. M., Gray, W. N., Saeed, S. A., & Cortina, S. (2012). Adapting pediatric psychology interventions: Lessons learned in treating families from the Middle East. Journal of Pediatric Psychology, 37(8), 882–892. doi:10.1093/jpepsy/jsr084.

    Article  PubMed  Google Scholar 

  • Hocking, M. C., Barnes, M., Shaw, C., Lochman, J. E., Madan-Swain, A., & Saeed, S. (2011). Executive function and attention regulation as predictors of coping success in youth with functional abdominal pain. Journal of Pediatric Psychology, 36(1), 64–73. doi:10.1093/jpepsy/jsq056.

    Article  PubMed  Google Scholar 

  • Holbein, C. E., Murray, C. B., Psihogios, A. M., Wasserman, R. M., Essner, B. S., O’Hara, L. K., & Holmbeck, G. N. (2013). A camp-based psychosocial intervention to promote independence and social function in individuals with spina bifida: Moderators of treatment effectiveness. Journal of Pediatric Psychology, 38(4), 412–424. doi: 10.1093/jpepsy/jst003.

    Google Scholar 

  • Holmbeck, G. N., Coakley, R. M., Hommeyer, J. S., Shapera, W. E., & Westhoven, V. C. (2002). Observed and perceived dyadic and systemic functioning in families of preadolescents with spina bifida. Journal of Pediatric Psychology, 27(2), 177–189. doi:10.1093/jpepsy/27.2.177.

    Google Scholar 

  • Holmbeck, G. N., DeLucia, C., Essner, B., Kelly, L., Zebracki, K., Friedman, D., & Jandasek, B. (2010). Trajectories of psychosocial adjustment in adolescents with spina bifida: A 6-year, four-wave longitudinal follow-up. Journal of Consulting and Clinical Psychology, 78(4), 511–525. doi:10.1037/a0019599.

    Google Scholar 

  • Holmbeck, G. N., Shapera, W., & Hommeyer, J. S. (2002). Observed and perceived parenting behaviors and psychosocial adjustment in pre-adolescents with spina bifida. In B. K. Barber (Ed.), Intrusive parenting: How psychological control affects children and adolescents (pp. 191–234). Washington, DC: American Psychological Association.

    Chapter  Google Scholar 

  • Hood, K. K., Huestis, S., Maher, A., Butler, D., Volkening, L., & Laffel, L. M. B. (2006). Depressive symptoms in children and adolescents with Type 1 diabetes: Association with diabetes-specific characteristics. Diabetes Care, 29(6), 1389–1391. doi:10.2337/dc06-0087.

    Article  PubMed  Google Scholar 

  • Jaser, S. S., & White, L. E. (2011). Coping and resilience in adolescents with type 1 diabetes. Child: Care, Health and Development, 37(3), 335–342. doi:10.1111/j.1365-2214.2010.01184.x.

    Google Scholar 

  • Johnson, G., Kent, G., & Leather, J. (2004). Strengthening the parent-child relationship: A review of family interventions and their use in medical setting. Child: Care, Health and Development, 31(1), 25–32. doi:10.1111/j.1365-2214.2005.00446.x.

    Google Scholar 

  • Jones, J. M., Lawson, M. I., Daneman, D., Olmsted, M. P., & Rodin, G. (2000). Eating disorders in adolescent females with and without Type 1 diabetes: Cross sectional study. British Medical Journal, 320, 1563–1566. doi:10.1136/bmj.320.7249.1563.

    Article  PubMed  PubMed Central  Google Scholar 

  • Kazak, A. E., Rourke, M. T., & Navsaria, N. (2009). Families and other systems in pediatric psychology. In M. C. Roberts & R. G. Steele (Eds.), Handbook of pediatric psychology (4th ed., pp. 656–671). New York, NY: Guilford.

    Google Scholar 

  • Keating, D. P. (2004). Puberty and psychological development. In R. M. Lerner & L. Steinberg’s (Eds.), Handbook of adolescent psychology (2nd ed., pp. 45–84). Hoboken, NJ: Wiley.

    Google Scholar 

  • Kessler, R. C., Avenevoli, S., & Merikangas, K. R. (2001). Mood disorders in children and adolescents: An epidemiologic perspective. Biological Psychiatry, 49(12), 1002–1014. doi:10.1016/S0006-3223(01)01129-5.

    Article  PubMed  Google Scholar 

  • Kim, D. H., & Yoo, I. Y. (2010). Factors associated with resilience of school age children with cancer. Journal of Paediatrics and Child Health, 46(7–8), 431–436. doi:10.1111/j.1440-1754.2010.01749.x.

    Article  PubMed  Google Scholar 

  • Klassen, A., Raina, P., Reineking, S., Dix, D., Pritchard, S., & O’Donnell, M. (2007). Developing a literature base to understand the caregiving experience of parents of children with cancer: A systematic review of factors related to parental health and well-being. Supportive Care in Cancer, 15(7), 807–818. doi:10.1007/s00520-007-0243-x.

    Article  PubMed  Google Scholar 

  • Kliewer, W., & Lewis, H. (1995). Family influences on coping processes in children and adolescents with sickle cell disease. Journal of Pediatric Psychology, 20(4), 511–525. doi:10.1093/jpepsy/20.4.511.

    Article  PubMed  Google Scholar 

  • Knafl, K. A., & Gilliss, C. L. (2002). Families and chronic illness: A synthesis of current research. Journal of Family Nursing, 8(3), 178–198.

    Article  Google Scholar 

  • Kovacs, M., Goldston, D., Obrosky, D. S., & Bonar, L. K. (1997). Psychiatric disorders in youths with IDDM: Rates and risk factors. Diabetes Care, 20(1), 36–44. doi:10.2337/diacare.20.1.36.

    Article  PubMed  Google Scholar 

  • La Greca, A. M. (1990). Social consequences of pediatric conditions: Fertile area for future investigation and intervention? Journal of Pediatric Psychology, 15(3), 285–307. doi:10.1093/jpepsy/15.3.285.

    Article  PubMed  Google Scholar 

  • La Greca, A. M., Bearman, K. J., & Moore, H. (2002). Peer relations of youth with pediatric conditions and health risks: Promoting social support and healthy lifestyles. Developmental and Behavioural Pediatrics, 23(4), 271–280. doi:10.1097/00004703-200208000-00013.

    Article  Google Scholar 

  • La Greca, A. M., & Mackey, E. R. (2009). Adherence to pediatric treatment regimens. In M. C. Roberts & R. G. Steele (Eds.), Handbook of pediatric psychology (4th ed., pp. 130–152). New York, NY: Guilford.

    Google Scholar 

  • Larson, R., & Richards, M. H. (1991). Daily companionship in late childhood and early adolescence: Changing developmental contexts. Child Development, 62(2), 284–300. doi:10.1111/j.1467-8624.1991.tb01531.x.

    Article  PubMed  Google Scholar 

  • Lavigne, J. V., & Faier-Routman, J. (1992). Psychological adjustment to pediatric physical disorders: A meta-analytic review. Journal of Pediatric Psychology, 17(2), 133–157. doi:10.1093/jpepsy/17.2.133.

    Article  PubMed  Google Scholar 

  • Law, E. F., Fisher, E., Fales, J., Noel, M., & Eccleston, C. (2014). Systematic review and meta-analysis of parent and family-based interventions for children and adolescents with chronic medical conditions. Journal of Pediatric Psychology, 39(8), 866–886. doi:10.1093/jpepsy/jsu032.

    Article  PubMed  Google Scholar 

  • Lazarus, R. S., & Folkman, S. (1987). Transactional theory and research on emotions and coping. European Journal of Personality, 1(3), 141–169. doi:10.1002/per.2410010304.

    Article  Google Scholar 

  • Lemanek, K. L., Horwitz, W., & Ohene-Frempong, K. (1994). A multiperspective investigation of social competence in children with sickle cell disease. Journal of Pediatric Psychology, 19(4), 443–456. doi:10.1093/jpepsy/19.4.443.

    Article  PubMed  Google Scholar 

  • Lemanek, K. L., & Ranalli, M. (2009). Sickle cell disease. In M. C. Roberts & R. G. Steele (Eds.), Handbook of pediatric psychology (4th ed., pp. 303–318). New York, NY: Guilford.

    Google Scholar 

  • Lennon, J. M., Murray, C. B., Bechtel, C. F., & Holmbeck, G. N. (2015). Resilience and disruption in observed family interactions in youth with and without spina bifida: An eight-year, five-wave longitudinal study. Journal of Pediatric Psychology, 40(9), 943–955. doi: 10.1093/jpepsy/jsv033.

    Article  PubMed  PubMed Central  Google Scholar 

  • Letourneau, N., Stewart, M., Masuda, J. R., Anderson, S., Cicutto, L., McGhan, S., & Watt, S. (2012). Impact of online support for youth with asthma and allergies: Pilot study. Journal of Pediatric Nursing, 27(1), 65–73. doi:10.1016/j.pedn.2010.07.007.

    Google Scholar 

  • Lewis, H. A., & Kliewer, W. (1996). Hope, coping, and adjustment among children with sickle cell disease: Tests of mediator and moderator models. Journal of Pediatric Psychology, 21(1), 25–41. doi:10.1093/jpepsy/21.1.25.

    Article  PubMed  Google Scholar 

  • Luther, S. (1991). Vulnerability and resilience: A study of high-risk adolescents. Child Development, 62(3), 600–616. doi:10.2307/1131134.

    Article  Google Scholar 

  • Mackner, L. M., & Crandall, W. V. (2006). Brief report: Psychosocial adjustment in adolescents with inflammatory bowel disease. Journal of Pediatric Psychology, 31(3), 281–285. doi:10.1093/jpepsy/jsj023.

    Article  PubMed  Google Scholar 

  • Martinez, W., Carter, J. S., & Legato, L. J. (2011). Social competence in children with chronic illness: A meta-analytic review. Journal of Pediatric Psychology, 36(8), 878–890. doi:10.1093/jpepsy/jsr035.

    Article  PubMed  Google Scholar 

  • Masten, A., Best, K., & Garmezy, N. (1990). Resilience and development: Contributions from the study of children who overcome adversity. Development and Psychopathology, 2(4), 425–444. doi:10.1017/S0954579400005812.

    Article  Google Scholar 

  • McCarroll, E. M., Lindsey, E. W., MacKinnon-Lewis, C., Chambers, J. C., & Frabutt, J. M. (2009). Health status and peer relationships in early adolescence: The role of peer contact, self-esteem, and social anxiety. Journal of Child and Family Studies, 18(4), 473–485. 10.1007/s10826-008-9251-9.

  • McCubbin, H. I., McCubbin, M. A., Patterson, J. M., Cauble, A. E., Wilson, L. R., & Warlick, W. (1983). CHIP-coping health inventory for parents: An assessment of parental coping patterns in the care of the chronically ill child. Journal of Marriage and the Family, 45(2), 359–370. doi:10.2307/351514.

    Article  Google Scholar 

  • McCubbin, H. I., McCubbin, M. A., Thompson, A. I., Han, S. Y., & Allen, C. T. (1997). Families under stress: What makes them resilient. Journal of Family and Consumer Sciences, 89, 2–11.

    Google Scholar 

  • McLone, D. G., & Ito, J. (1998). An introduction to spina bifida. Chicago, IL: Children’s Memorial Hospital MM Team.

    Google Scholar 

  • Michaud, P. A., Suris, J., & Viner, R. (2007). The adolescent with a chronic condition: Epidemiology, developmental issues and health care provisions. Geneva, Switzerland: World Health Organization.

    Google Scholar 

  • Modi, A. C., Marciel, K. K., Slater, S. K., Drotar, D., & Quittner, A. L. (2008). The influence of parental supervision on medical adherence in adolescents with cystic fibrosis: Developmental shifts from pre to late adolescence. Children's Health Care, 37(1), 78–92. doi:10.1080/02739610701766925.

    Article  Google Scholar 

  • Moos, R. H., & Moos, B. S. (1994). Family Environment Scale manual: Development, applications, research (3rd ed.). Palo Alto, CA: Consulting Psychologists Press.

    Google Scholar 

  • Murphy, N. A., & Carbone, P. S. (2008). Promoting the participation of children with disabilities in sports, recreation, and physical activities. Pediatrics, 121(5), 1057–1061. doi:10.1542/peds.2008-0566.

    Article  PubMed  Google Scholar 

  • Nadeau, L., & Tessier, R. (2009). Social adjustment at school: Are children with cerebral palsy perceived more negatively by their peers than other at-risk children? Disability and Rehabilitation, 31(4), 302–308. doi:10.1080/09638280801945899.

    Article  PubMed  Google Scholar 

  • Nassau, J. H., & Drotar, D. (1997). Social competence among children with central nervous system-related chronic health conditions: A review. Journal of Pediatric Psychology, 22(6), 771–793.

    Article  PubMed  Google Scholar 

  • Newacheck, P. W., Hung, Y. Y., & Wright, K. K. (2002). Racial and ethnic disparities in access to care for children with special health care needs. Ambulatory Pediatrics, 2(4), 247–254. doi:10.1367/1539-4409(2002)002<0247:RAEDIA>2.0.CO;2.

    Article  PubMed  Google Scholar 

  • Noll, R. B., Vannatta, K., Koontz, K., Kalinyak, K., Bukowski, W. F., & Davies, W. H. (1996). Peer relationships and emotional well-being of youngsters with sickle cell disease. Child Development, 67(2), 423–436. doi:10.1111/j.1467-8624.1996.tb01743.x.

    PubMed  Google Scholar 

  • Odar, C., Canter, K. S., & Roberts, M. C. (2013). Relationship between camp attendance and self-perceptions in children with chronic health conditions: A meta-analysis. Journal of Pediatric Psychology, 38(4), 398–411. doi:10.1093/jpepsy/jss176.

    Article  PubMed  Google Scholar 

  • Ogden, C. L., Carroll, M. D., Curtin, L. R., Lamb, M. M., & Flegal, K. M. (2010). Prevalence of high body mass index in US children and adolescents, 2007–2008. The Journal of the American Medical Association, 303(3), 242–249. doi:10.1001/jama.2009.2012.

    Article  PubMed  Google Scholar 

  • Olsson, C. A., Boyce, M. F., Toumbourou, J. W., & Sawyer, S. M. (2005). The role of peer support in facilitating psychosocial adjustment to chronic illness in adolescence. Clinical Child Psychology and Psychiatry, 10(1), 78–87. doi:10.1177/1359104505048793.

    Article  Google Scholar 

  • Pai, A. L., Greenley, R. N., Lewandowski, A., Drotar, D., Youngstrom, E., & Peterson, C. C. (2007). A meta-analytic review of the influence of pediatric cancer on parent and family functioning. Journal of Family Psychology, 21(3), 407–415. doi:10.1037/0893-3200.21.3.407.

    Article  PubMed  Google Scholar 

  • Pai, A. L. H., & Schwartz, L. A. (2011). Introduction to the special issue: Health care transitions of adolescents and young adults with pediatric chronic conditions. Journal of Pediatric Psychology, 36(2), 129–133. doi:10.1093/jpepsy/jsq100.

    Article  PubMed  Google Scholar 

  • Palermo, T. M., & Eccleston, C. (2009). Parents of children and adolescents with chronic pain. Pain, 146(1–2), 15–17. doi:10.1016/j.pain.2009.05.009.

    Article  PubMed  PubMed Central  Google Scholar 

  • Palladino, D. K., & Helgeson, V. S. (2012). Friends or foes? A review of peer influence on self-care and glycemic control in adolescents with type 1 diabetes. Journal of Pediatric Psychology, 37(5), 591–603. doi:10.1093/jpepsy/jss009.

    Article  PubMed  PubMed Central  Google Scholar 

  • Parker, S. E., Mai, C. T., Canfield, M. A., Rickard, R., Wang, Y., Meyer, R. E., … Correa, A. (2010). Updated national birth prevalence estimates for selected birth defects in the United States, 2004–2006. Birth Defects Research Part A: Clinical and Molecular Teratology, 88(12), 1008–1016. doi:10.1002/bdra.20735.

    Google Scholar 

  • Patient Protection and Affordable Care Act of 2010 (Pub L No. 111-148). Retrieved August 17, 2014, from www.gpo.gov/fdsys/pkg/BILLS-111hr3590enr/pdf/BILLS-111hr3590enr.pdf.

  • Patterson, J. M. (2002). Understanding family resilience. Journal of Clinical Psychology, 58(3), 233–246. doi:10.1002/jclp.10019.

    Article  PubMed  Google Scholar 

  • Pereira, M. G., Berg-Cross, L., Almeida, P., & Machado, J. C. (2008). Impact of family environment and support on adherence, metabolic control, and quality of life in adolescents with diabetes. International Journal of Behavioral Medicine, 15(3), 187–193. doi:10.1080/10705500802222436.

    Article  PubMed  Google Scholar 

  • Perlman, J. L., & Routh, D. K. (1980). Stigmatizing effects of a child’s wheelchair in successive and simultaneous interactions. Journal of Pediatric Psychology, 5(1), 43–55. doi:10.1093/jpepsy/5.1.43.

    Article  PubMed  Google Scholar 

  • Petteway, R. J., Valerio, M. A., & Patel, M. R. (2011). What about your friends? Exploring asthma-related peer interactions. Journal of Asthma, 48(4), 393–399. doi:10.3109/02770903.2011.563807.

    Article  PubMed  Google Scholar 

  • Pinquart, M. (2013). Do the parent–child relationship and parenting behaviors differ between families with a child with and without chronic illness? A meta-analysis. Journal of Pediatric Psychology, 38(7), 708–721. doi:10.1093/jpepsy/jst020.

    Article  PubMed  Google Scholar 

  • Pinquart, M., & Teubert, D. (2012). Academic, physical, and social function of children and adolescents with chronic physical illness: A meta-analysis. Journal of Pediatric Psychology, 37(4), 376–389. doi:10.1093/jpepsy/jsr106.

    Article  PubMed  Google Scholar 

  • Psihogios, A. M., & Holmbeck, G. N. (2013). Discrepancies in mother and child perceptions of spina bifida medical responsibilities during the transition to adolescence: Associations with family conflict and medical adherence. Journal of Pediatric Psychology, 38(8), 859–870. doi:10.1093/jpepsy/jst047.

    Article  PubMed  PubMed Central  Google Scholar 

  • Quittner, A. L., Barker, D. H., Marciel, K. K., & Grimley, M. E. (2009). Cystic fibrosis: A model for drug discovery and patient care. In M. C. Roberts & R. G. Steele (Eds.), Handbook of pediatric psychology (4th ed., pp. 271–286). New York, NY: Guilford.

    Google Scholar 

  • Quittner, A. L., Romero, S. L., Blackwell, L. S., Romero, C. V., Marciel, K. K., Dawkins, K., … Martinez, J. (2012). Preliminary data on the efficacy of an online social network for adolescents with CF: Age and health severity group comparisons. Pediatric Pulmonology, 35(Suppl.), 388.

    Google Scholar 

  • Reiter-Purtill, J., Gerhardt, C. A., Vannatta, K., Passo, M. H., & Noll, R. B. (2003). A controlled longitudinal study of the social functioning of children with juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 28(1), 17–28. doi:10.1093/jpepsy/28.1.17.

    Article  PubMed  Google Scholar 

  • Reiter-Purtill, J., Vannatta, K., Gerhardt, C. A., Correll, J., & Noll, R. B. (2003). A controlled longitudinal study of the social functioning of children who completed treatment of cancer. Journal of Pediatric Hematology/Oncology, 25(6), 467–473.

    Article  PubMed  Google Scholar 

  • Reynolds, N., Mrug, S., Hensler, M., Guion, K., & Madan-Swain, A. (2014). Spiritual coping and adjustment in adolescents with chronic illness: A 2-year prospective study. Journal of Pediatric Psychology, 39(5), 542–551. doi:10.1093/jpepsy/jsu011.

    Article  PubMed  Google Scholar 

  • Rolland, J. S., & Walsh, F. (2006). Facilitating family resilience with childhood illness and disability. Current Opinion in Pediatrics, 18(5), 527–538. doi:10.1097/01.mop.0000245354.83454.68.

    Article  PubMed  Google Scholar 

  • Rose, B. M., & Holmbeck, G. N. (2007). Attention and executive function in adolescents with spina bifida. Journal of Pediatric Psychology, 32(8), 983–994. doi:10.1093/jpepsy/jsm042.

    Article  PubMed  Google Scholar 

  • Rutter, M. (1985). Resilience in the face of adversity: Protective factors and resistance to psychiatric disorder. The British Journal of Psychiatry, 147, 598–611. doi:10.1192/bjp.147.6.598.

    Article  PubMed  Google Scholar 

  • Seid, M. (2008). Barriers to care and primary care for vulnerable children with asthma. Pediatrics, 122, 994–1002. doi:10.1542/peds.2007-3114.

    Article  PubMed  Google Scholar 

  • Seid, M., Opipari-Arrigan, L., & Sobo, E. J. (2009). Families’ interactions with the health care system: Interactions for pediatric psychology. In M. C. Roberts & R. G. Steele (Eds.), Handbook of pediatric psychology (4th ed., pp. 703–718). New York, NY: Guilford.

    Google Scholar 

  • Seid, M., Sobo, E. J., Zivkovic, M., Nelson, M., & Davodi-Far, M. (2003). Conceptual models of quality care and health-related quality of life for vulnerable children. In E. J. Sobo & P. S. Kurtin (Eds.), Child health services research: Application, innovation and insights (pp. 243–274). San Francisco, CA: Jossey-Bass.

    Google Scholar 

  • Shah, S., Peat, J. K., Mazurski, E. J., Wang, H., Sindhusake, D., Bruce, C., … Gibson, P. G. (2001). Effect of peer led programme for asthma education in adolescents: Cluster randomised controlled trial. British Medical Journal, 322(7286), 583–585. doi:10.1136/bmj.322.7286.583.

    Google Scholar 

  • Shapiro, E. R. (2002). Chronic illness as a family process: A social-developmental approach to promoting resilience. Journal of Clinical Psychology, 58(11), 1375–1384.

    Article  PubMed  Google Scholar 

  • Sharpe, D., & Rossiter, L. (2002). Siblings of children with a chronic illness: A meta-analysis. Journal of Pediatric Psychology, 27(8), 699–710. doi:10.1093/jpepsy/27.8.699.

    Article  PubMed  Google Scholar 

  • Smith, J. M., Martz, K., & Blydt-Hansen, T. D. (2013). Pediatric kidney transplant practice patterns and outcome benchmarks, 1987–2010: A report of the North American Pediatric Renal Trials and Collaborative Studies. Pediatric Transplant, 17(2), 149–157. doi:10.1111/petr.12034.

    Article  Google Scholar 

  • Soliday, E., Kool, E., & Lande, M. B. (2000). Psychosocial adjustment in children with kidney disease. Journal of Pediatric Psychology, 25(2), 93–103. doi:10.1093/jpepsy/25.2.93.

    Article  PubMed  Google Scholar 

  • Spirito, A., Stark, L. J., Gil, K. M., & Tyc, V. L. (1995). Coping with everyday and disease-related stressors by chronically ill children and adolescents. Journal of the American Academy of Child and Adolescent Psychiatry, 34(3), 283–290.

    Article  PubMed  Google Scholar 

  • Stam, H., Grootenhuis, M. A., & Last, B. F. (2001). Social and emotional adjustment in young survivors of childhood cancer. Supportive Care in Cancer, 9(7), 489–513.

    Article  PubMed  Google Scholar 

  • Stancin, T., & Perrin, E. C. (2014). Psychologists and pediatricians: Opportunities for collaboration in primary care. American Psychologist, 69(4), 332–343. doi:10.1037/a0036046.

    Article  PubMed  Google Scholar 

  • Steinberg, L. (2010). Adolescence (9th ed.). New York, NY: McGraw-Hill.

    Google Scholar 

  • Steinberg, L., & Morris, A. S. (2001). Adolescent development. Annual Review of Psychology, 52(1), 83–110. doi:10.1146/annurev.psych.52.1.83.

    Article  PubMed  Google Scholar 

  • Stepansky, M. A., Roache, C. R., Holmbeck, G. N., & Schultz, K. (2010). Medical adherence in young adolescents with spina bifida: Longitudinal associations with family functioning. Journal of Pediatric Psychology, 35(2), 167–176. doi:10.1093/jpepsy/jsp054.

    Article  PubMed  Google Scholar 

  • Stokes, A., Bawden, H. N., Camfield, P. R., Backman, J. E., & Dooley, J. M. (1991). Peer problems in Tourette’s disorder. Pediatrics, 87(6), 936–942.

    PubMed  Google Scholar 

  • Susman, E. J., & Rogel, A. (2004). Puberty and psychological development. In R. M. Lerner & L. Steinberg’s (Eds.), Handbook of adolescent psychology (2nd ed., pp. 15–44). Hoboken, NJ: Wiley.

    Google Scholar 

  • Tamis-LeMonda, C. S., Hughes, D., Yoshikawa, H., Kalman, R. K., & Niwa, E. Y. (2008). Parents’ goals for children: The dynamic coexistence of individualism and collectivism in cultures and individuals. Social Development, 7(1), 183–209. doi:10.1111/j.1467-9507.2007.00419.x.

    Google Scholar 

  • Taylor, H. G., Yeates, K. O., Wade, S. L., Drotar, D., Stancin, T., & Minich, N. (2002). A prospective study of short- and long-term outcomes after traumatic brain injury in children: Behavior and achievement. Neuropsychology, 16(1), 15–27. doi:10.1037//0894-4105.16.1.15.

    Article  PubMed  Google Scholar 

  • Tinsley, B. J., Castro, C. N., Ericksen, A. J., Kwasman, A., & Ortiz, R. V. (2002). Health promotion for parents. In M. H. Bornstein (Ed.), Handbook of parenting (2nd ed., Vol. 5). Mahwah, NJ: Lawrence Erlbaum.

    Google Scholar 

  • Ungar, M., Ghazinour, M., & Richter, J. (2013). Annual research review: What is resilience within the social ecology of human development? The Journal of Child Psychology and Psychiatry, 54(4), 348–366. doi:10.1111/jcpp.12025.

    Article  PubMed  Google Scholar 

  • Van Campen, K. S., & Russell, S. T. (2010). Cultural differences in parenting practices: What Asian American families can teach us (Frances McClelland Institute for Children, Youth, and Families ResearchLink 2, No. 1). Tucson, AZ: The University of Arizona.

    Google Scholar 

  • Van Cleave, J., Gortmaker, S. L., & Perrin, J. M. (2010). Dynamics of obesity and chronic health conditions among children and youth. Journal of the American Medical Association, 303(7), 623–630. doi:10.1001/jama.2010.104.

    Article  PubMed  Google Scholar 

  • van der Lee, J. H., Mokkink, L. B., Grootenhuis, M.A., Heymans, H. S.& Offringa, M. (2007). Definitions and measurement of chronic health conditions in childhood. Journal of the American Medical Association, 297(24), 2741–2751. doi:10.1001/jama.2010.297.24.2741.

  • Wallace, M. L., Harcourt, D., Rumsey, N., & Foot, A. (2007). Managing appearance changes resulting from cancer treatment: Resilience in adolescent females. Psycho-Oncology, 16(11), 1019–1027. doi:10.1002/pon.1176.

    Article  PubMed  Google Scholar 

  • Wallander, J., & Varni, J. W. (1998). Effects of pediatric chronic physical disorder on child and family adjustment. Journal of Child Psychology and Psychiatry, 39(1), 29–46. doi:10.1111/1469-7610.00302.

    Article  PubMed  Google Scholar 

  • Wallander, J. L., Varni, J. W., Babani, L., Banis, H. T., & Wilcox, K. T. (1989). Family resources as resistance factors for psychological maladjustment in chronically ill and handicapped children. Journal of Pediatric Psychology, 14(2), 157–173. doi:10.1093/jpepsy/14.2.157.

    Article  PubMed  Google Scholar 

  • Ward, E., De Santis, C., Robbins, A., Kohler, B., & Jemal, A. (2014). Childhood and adolescent cancer statistics, 2014. CA: A Cancer Journal for Clinicians, 64(2), 83–103. doi:10.3322/caac.21219.

    Google Scholar 

  • Weiss, K. B., Sullivan, S. D., & Lyttle, C. S. (2006). Trends in the cost of illness for asthma in the United States, 1985–1994. Journal of Allergy and Clinical Immunology, 106(3), 493–499. doi:10.1067/mai.2000.109426.

    Article  Google Scholar 

  • Wiegerink, D. J. H. G., Roebroeck, M. E., Donkervoort, M., Stam, H. J., & Cohen-Kettenis, P. T. (2006). Social and sexual relationships of adolescents and young adults with cerebral palsy: A review. Clinical Rehabilitation, 20(12), 1023–1031. doi:10.1177/0269215506071275.

    Article  PubMed  Google Scholar 

  • Williams, P. G., Holmbeck, G. N., & Greenly, R. N. (2002). Adolescent health psychology. Journal of Consulting and Clinical Psychology, 70(3), 828–842. doi:10.1037//0022-006X.70.3.828.

    Article  PubMed  Google Scholar 

  • Windle, G., Bennet, K. M., & Noyes, J. (2011). A methodological review of resilience measure scales. Health and Quality of Life Outcomes, 9(8), 1–18. doi:10.1186/1477-7525-9-8.

    Google Scholar 

  • Wu, L., Sheen, J., Shu, H., Chang, S., & Hsiao, C. (2013). Predictors of anxiety and resilience in adolescents undergoing cancer treatment. Journal of Advanced Nursing, 69(1), 158–166. doi:10.1111/j.1365-2648.2012.06003.x.

    Article  PubMed  Google Scholar 

  • Wysocki, T., Miller, K. M., Greco, P., Harris, M. A., Harvey, L. M., Taylor, A., … White, N. H. (1999). Behavior therapy for families of adolescents with diabetes: Effects on directly observed family interactions. Behavior Therapy, 30(3), 507–525. doi:10.1016/S0005-7894(99)80022-7.

    Google Scholar 

  • Yeo, M., & Sawyer, S. (2005). Chronic illness and disability. British Medical Journal, 330(7493), 721–723. doi:10.1136/bmj.330.7493.721.

    Article  PubMed  PubMed Central  Google Scholar 

Download references

Author information

Authors and Affiliations

  1. Department of Psychology, Loyola University Chicago, 1032 W. Sheridan Rd., Chicago, 60660, IL, USA

    Jaclyn M. Lennon M.A., Alexandra M. Psihogios M.A., Caitlin B. Murray M.A., Christina E. Holbein M.A. & Grayson N. Holmbeck Ph.D.

Authors
  1. Jaclyn M. Lennon M.A.
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Alexandra M. Psihogios M.A.
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Caitlin B. Murray M.A.
    View author publications

    You can also search for this author in PubMed Google Scholar

  4. Christina E. Holbein M.A.
    View author publications

    You can also search for this author in PubMed Google Scholar

  5. Grayson N. Holmbeck Ph.D.
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Jaclyn M. Lennon M.A. .

Editor information

Editors and Affiliations

  1. Department of Applied Psychology and Human Development Joint Center for Bioethics, University of Toronto, Toronto, Ontario, Canada

    Carey DeMichelis

  2. Department of Applied Psychology and Human Development, University of Toronto, OISE, Toronto, Ontario, Canada

    Michel Ferrari

Rights and permissions

Reprints and permissions

Copyright information

© 2016 Springer International Publishing Switzerland

About this chapter

Cite this chapter

Lennon, J.M., Psihogios, A.M., Murray, C.B., Holbein, C.E., Holmbeck, G.N. (2016). Promoting Resilience During the Transition to Adolescence in Chronically Ill Children and Their Families. In: DeMichelis, C., Ferrari, M. (eds) Child and Adolescent Resilience Within Medical Contexts. Springer, Cham. https://doi.org/10.1007/978-3-319-32223-0_4

Download citation

Publish with us

Policies and ethics

Search

Navigation