Skip to main content
SpringerLink
Log in

Issues to Discuss: Consultation Style in Transition

  • Chapter
  • First Online:
Congenital Heart Disease and Adolescence

Part of the book series: Congenital Heart Disease in Adolescents and Adults ((CHDAA))

  • 844 Accesses

Abstract

The aim of this chapter is to illustrate how age-appropriate consultation styles focusing on adolescents differ from any other age group. The consultation style in transition is not merely about the timing of treating the adolescent patient like an adult patient. Rather, specific elements such as consultation setting, content, and communication style can make a difference with regard to patient outcome and overall satisfaction with disease management.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 84.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 119.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 109.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Abbreviations

ACHD:

Adult congenital heart disease

CHD:

Congenital heart disease

References

  1. Ambresin AE, Bennett K, Patton GC, Sanci LA, Sawyer SM (2013) Assessment of youth-friendly health care: a systematic review of indicators drawn from young people’s perspectives. J Adolesc Health 52(6):670–681

    Article  PubMed  Google Scholar 

  2. Bayer R, Santelli J, Klitzman R (2015) New challenges for electronic health records: confidentiality and access to sensitive health information about parents and adolescents. JAMA 313(1):29–30

    Article  CAS  PubMed  Google Scholar 

  3. Berlan ED (2009) Confidentiality consent and caring for the adolescent patient. Curr Opin Pediatr 21:450–456

    Article  PubMed  Google Scholar 

  4. Bourgeois FC, Nigrin DJ, Harper MB (2015) Preserving patient privacy and confidentiality in the era of personal health records. Pediatrics 135(5):e1125–e1127

    Article  PubMed  Google Scholar 

  5. Britto MT, DeVellis RF, Hornung RW, DeFriese GH, Atherton HD, Slap GB (2004) Health care preferences and priorities of adolescents with chronic illnesses. Pediatrics 114(5):1272–1280

    Article  PubMed  Google Scholar 

  6. Chaisson N, Shore WB (2014) Adolescent health care maintenance in a teen-friendly clinic. Prim Care 41(3):451–464

    Article  PubMed  Google Scholar 

  7. Choquet M, Du Pasquier Fediaevsky L, Manfredi R (1997) Sexual behavior among adolescents reporting chronic conditions: a French national survey. J Adolesc Health 20:62–67

    Article  CAS  PubMed  Google Scholar 

  8. Clarizia NA, Chahal N, Manlhiot C, Kilburn J, Redington AN, McCrindle BW (2009) Transition to adult health care for adolescents and young adults with congenital heart disease: perspectives of the patient, parent and health care provider. Can J Cardiol 25(9):e317–e322

    Article  PubMed  PubMed Central  Google Scholar 

  9. Clough BA, Casey LM (2011) Technological adjuncts to increase adherence to therapy: a review. Clin Psychol Rev 31:697–710

    Article  PubMed  Google Scholar 

  10. Crowley R, Wolfe I, Lock K, McKee M (2011) Improving the transition between paediatric and adult healthcare: A systematic review. Arch Dis Child 96:548–553

    Article  CAS  PubMed  Google Scholar 

  11. Dennis C-L (2003) Peer support within a health care context: a concept analysis. Int J Nurs Stud 40:321–332

    Article  PubMed  Google Scholar 

  12. Duncan RE, Jekel M, O’Connell MA, Sanci LA, Sawyer SM (2014) Balancing parental involvement with adolescent friendly health care in teenagers with diabetes: are we getting it right? J Adolesc Health 55(1):59–64

    Article  PubMed  Google Scholar 

  13. Ford C, English A, Sigman G (2004) Confidential Health Care for Adolescents: position paper for the society for adolescent medicine. J Adolesc Health 35(2):160–167

    Article  PubMed  Google Scholar 

  14. Ford CA, Millstein SG (1997) Delivery of confidentiality assurances to adolescents by primary care physicians. Arch Pediatr Adolesc Med 151:505–509

    Article  CAS  PubMed  Google Scholar 

  15. Ford CA, Millstein SG, Halpern-Felsher BL, Irwin CE (1997) Influence of physician confidentiality assurances on adolescents’ willingness to disclose information and seek future health care. JAMA 278:1029–1034

    Article  CAS  PubMed  Google Scholar 

  16. Ford CA, Thomsen SL, Compton B (2001) Adolescents’ interpretations of conditional confidentiality assurances. J Adolesc Health 29:156–159

    Article  CAS  PubMed  Google Scholar 

  17. Fredericks EM, Dore-Stites D, Well A, Magee JC, Freed GL, Shieck V, James Lopez M (2010) Assessment of transition readiness skills and adherence in pediatric liver transplant recipients. Pediatr Transplant 14(8):944–953

    Article  PubMed  PubMed Central  Google Scholar 

  18. Fry KM, Gerhardt CA, Ash J, Zaidi AN, Garg V, McBride KL, Fitzgerald-Butt SM (2015) Lifetime prevalence of sexual intercourse and contraception use at last sex among adolescents and young adults with congenital heart disease. J Adolesc Health 56(4):396–401

    Article  PubMed  PubMed Central  Google Scholar 

  19. Gilbert AL, Rickert VI, Aalsma MC (2014) Clinical conversations about health: the impact of confidentiality in preventive adolescent care. J Adolesc Health 55(5):672–677

    Article  PubMed  Google Scholar 

  20. Ginsburg KR, Slap GB, Cnaan A, Forke C, Balsley CM, Rouselle DM (1995) Adolescents’ perceptions of factors affecting their decisions to seek health care. JAMA 273:1913–1918

    Article  CAS  PubMed  Google Scholar 

  21. Goldenring JM, Cohen E (1988) Getting into adolescent heads. Contemp Pediatr 5:75–90

    Google Scholar 

  22. Goossens E, Fieuws S, Van Deyk K, Luyckx K, Gewillig M, Budts W, Moons P (2015) Effectiveness of structured education on knowledge and health behaviors in patients with congenital heart disease. J Pediatr 166(6):1370–1376.e1371

    Article  PubMed  Google Scholar 

  23. Gray SH, Pasternak RH, Gooding HC, Woodward K, Hawkins K, Sawyer S, Anoshiravani A (2014) Recommendations for electronic health record use for delivery of adolescent health care. JAMA 54(4):487–490

    Google Scholar 

  24. Gupta P (2014) Caring for a teen with congenital heart disease. Pediatr Clin North Am 61(1):207–228

    Article  PubMed  Google Scholar 

  25. Haller DM, Meynard A, Pejic D, Sredic A, Huseinagic S, Courvoisier DS, Perone N, Sanci LA, Narring F (2012) YFHS-WHO+ Questionnaire: validation of a measure of youth-friendly primary care services. J Adolesc Health 51(5):422–430

    Article  PubMed  Google Scholar 

  26. Hutchinson JW, Stafford EM (2005) Changing parental opinions about teen privacy through education. Pediatrics 116(4):966–971

    Article  PubMed  Google Scholar 

  27. Kahana SY, Frazier TW, Drotar D (2008) Preliminary quantitative investigation of predictors of treatment non-adherence in pediatric transplantation: a brief report. Pediatr Transplant 12(6):656–660

    Article  PubMed  Google Scholar 

  28. Kels CG (2015) ELectronic health records and adolescent privacy. JAMA 313(13):1373

    Article  CAS  PubMed  Google Scholar 

  29. Kennedy A, Sawyer S (2008) Transition from pediatric to adult services: are we getting it right? Curr Opin Pediatr 20:403–409

    Article  PubMed  Google Scholar 

  30. Kondryn HJ, Edmondson CL, Hill J, Eden TOB (2011) Treatment non-adherence in teenage and young adult patients with cancer. Lancet Oncol 12:100–108

    Article  PubMed  Google Scholar 

  31. LaRosa C (2011) Solid-organ transplantation in childhood: transitioning to adult health care. Pediatrics 127:742–753

    Article  PubMed  Google Scholar 

  32. Lemly D, Weitzman E, O’Hare K (2013) Advancing healthcare transitions in the medical home: tools for providers, families and adolescents with special healthcare needs. Curr Opin Pediatr 25:439–446

    Article  PubMed  Google Scholar 

  33. McPherson A (2005) Adolescents in primary care. BMJ 330:465–467

    Article  PubMed  PubMed Central  Google Scholar 

  34. Mellion K, Uzark K, Cassedy A, Drotar D, Wernovsky G, Newburger JW, Mahony L, Mussatto K, Cohen M, Limbers C, Marino BS (2014) Health-related quality of life outcomes in children and adolescents with congenital heart disease. J Pediatr 164(4):781–788.e781

    Article  PubMed  Google Scholar 

  35. Michaud PA, Stronski S, Fonseca H, Macfarlane A (2004) The development and pilot-testing of a training curriculum in adolescent medicine and health. J Adolesc Health 35:51–57

    PubMed  Google Scholar 

  36. Michaud PA, Suris JC, Viner R (2004) The adolescent with a chronic condition. Part II: healthcare provision. Arch Dis Child 89:943–949

    Article  PubMed  PubMed Central  Google Scholar 

  37. Miloh T, Annunziato R, Arnon R, Warshaw J, Parkar S, Suchy FJ, Iyer K, Kerkar N (2009) Improved adherence and outcomes for pediatric liver transplant recipients by using text messaging. Pediatrics 124:e844–e850

    Article  PubMed  Google Scholar 

  38. Mussatto KA, Sawin KJ, Schiffman R, Leske J, Simpson P, Marino BS (2014) The importance of self-perceptions to psychosocial adjustment in adolescents with heart disease. J Pediatr Health Care 28(3):251–261

    Article  PubMed  Google Scholar 

  39. Narring F, Junod Perron N, Dominicé Dao M, Camparini Righini N, Humair JP, Broers B, Gaspoz J-M, Haller DM (2013) Text-messaging to reduce missed appointment in a youth clinic: a randomised controlled trial. J Epidemiol Community Health 67:888–891

    Article  PubMed  Google Scholar 

  40. Neinstein LS (1996) The office visit, interview techniques, and recommendations to parents. In: Neinstein LS (ed) Adolescent health care. A practical guide. Williams & Wilkins, Baltimore, pp 46–60

    Google Scholar 

  41. Reid GJ, Siu SC, McCrindle BW, Irvine MJ, Webb GD (2008) Sexual behavior and reproductive concerns among adolescents and young adults with congenital heart disease. Int J Cardiol 125(3):332–338

    Article  PubMed  Google Scholar 

  42. Riley M, Ahmed S, Reed BD, Quint EH (2015) Physician knowledge and attitudes around confidential care for minor patients. J Pediatr Adolesc Gynecol 28(4):234–239

    Article  PubMed  Google Scholar 

  43. Rutishauser C (2003) Communicating with young people. Paediatr Respir Rev 4:319–324

    Article  PubMed  Google Scholar 

  44. Rutishauser C, Esslinger A, Bond L, Sennhauser F (2003) Consultations with adolescents: the gap between their expectations and their experiences. Acta Paediatr 92:1322–1326

    Article  CAS  PubMed  Google Scholar 

  45. Rutishauser C, Sawyer SM, Ambresin AE (2014) Transition of young people with chronic conditions: a cross-sectional study of patient perceptions before and after transfer from pediatric to adult health care. Eur J Pediatr 173(8):1067–1074

    Article  PubMed  Google Scholar 

  46. Sacks D, Westwood M (2003) An approach to interviewing adolescents. Paediatr Child Health 8(9):554–556

    PubMed  PubMed Central  Google Scholar 

  47. Sanci LA, Sawyer SM, Kang MS, Haller DM, Patton GC (2005) Confidential health care for adolescents: reconciling clinical evidence with family values. Med J Aust 183(8):410–414

    PubMed  Google Scholar 

  48. Santelli J, Bayer R, Klitzman R (2015) Electronic health records and adolescent privacy—reply. JAMA 313(13):1373–1374

    Article  PubMed  Google Scholar 

  49. Sasse RA, Aroni RA, Sawyer SM, Duncan RE (2013) Confidential consultations with adolescents: an exploration of Australian parents’ perspectives. J Adolesc Health 52(6):786–791

    Article  PubMed  Google Scholar 

  50. Sawyer SM, Zalan A, Bond LM (2002) Telephone reminders improve adolescent clinic attendance: a randomized controlled trial. J Paediatr Child Health 38:79–83

    Article  CAS  PubMed  Google Scholar 

  51. Sawyer SM (2002) Action plans, self-monitoring and adherence: changing behaviour to promote better self-management. Med J Aust 177(Suppl):S72–S74

    PubMed  Google Scholar 

  52. Sawyer SM, Drew S, Yeo MS, Britto MT (2007) Adolescents with a chronic condition: challenges living, challenges treating. Lancet 369(9571):1481–1489

    Article  PubMed  Google Scholar 

  53. Sedlmeyer IL, Palmert MR (2002) Delayed Puberty: analysis of a large case series from an academic center. J Clin Endocrinol Metab 87(4):1613–1620

    Article  CAS  PubMed  Google Scholar 

  54. Simons LE, McCormick ML, Mee LL, Blount RL (2009) Parent and patient perspectives on barriers to medication adherence in adolescent transplant recipients. Pediatr Transplant 13:338–347

    Article  PubMed  Google Scholar 

  55. Steinberg L (2014) Age of opportunity. Lessons from the new science of adolescence. Houghton Mifflin Harcourt Publishing Company, Boston

    Google Scholar 

  56. Stronski S, Bühlmann U, Rutishauser C, Michaud PA, Caflisch M (1999) Adoleszentenmedizin in der pädiatrischen Praxis - erste Resultate einer gesamtschweizerischen Umfrage. Swiss Med Weekly 129(Suppl 108):10 S

    Google Scholar 

  57. Surís J-C, Michaud P-A, Akre C, Sawyer SM (2008) Health risk behaviors in adolescents with chronic conditions. Pediatrics 122(5):e1113–e1118

    Article  PubMed  Google Scholar 

  58. Surís J-C, Resnick MD, Cassuto N, Blum RWM (1996) Sexual behavior of adolescents with chronic disease and disability. J Adolesc Health 19(2):124–131

    Article  PubMed  Google Scholar 

  59. Suris JC, Michaud PA, Viner R (2004) The adolescent with a chronic condition. Part I: developmental issues. Arch Dis Child 89(10):938–942

    Article  PubMed  PubMed Central  Google Scholar 

  60. Suris JC, Parera N (2005) Sex, drugs and chronic illness: health behaviours among chronically ill youth. Eur J Public Health 15(5):484–488

    Article  PubMed  Google Scholar 

  61. Tebb K, Hernandez LK, Shafer MA, Chang F, Eyre SL, Otero-Sabogal R (2012) Understanding the attitudes of Latino parents toward confidential health services for teens. J Adolesc Health 50(6):572–577

    Article  PubMed  PubMed Central  Google Scholar 

  62. Tulloch T, Kaufman M (2013) Adolescent sexuality. Pediatr Rev 34(1):29–38

    Article  PubMed  Google Scholar 

  63. Tylee A, Haller DM, Graham T, Churchill R, Sanci LA (2007) Youth-friendly primary-care services: how are we doing and what more needs to be done? Lancet 369(9572):1565–1573

    Article  PubMed  Google Scholar 

  64. Uzark K, Smith C, Donohue J, Yu S, Afton K, Norris M, Cotts T (2015) Assessment of transition readiness in adolescents and young adults with heart disease. J Pediatr. doi:10.1016/j.jpeds.2015.07.043

    Google Scholar 

  65. Veit FC, Sanci LA, Coffey CM, Young DY, Bowes G (1996) Barriers to effective primary health care for adolescents. Med J Aust 165:131–133

    CAS  PubMed  Google Scholar 

  66. Viner R (1999) Transition from paediatric to adult care. Bridging the gaps or passing the buck? Arch Dis Child 81:271–275

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  67. Viner R (2008) Transition of care from paediatric to adult services: one part of improved health services for adolescents. Arch Dis Child 93:160–163

    Article  PubMed  Google Scholar 

  68. WHO (2002) Adolescent friendly health services. World Health Organization, Geneva

    Google Scholar 

  69. Williams RG (2015) Transitioning youth with congenital heart disease from pediatric to adult health care. J Pediatr 166(1):15–19

    Article  PubMed  Google Scholar 

Download references

Acknowledgment

The author would like to acknowledge Dr. Angela Oxenius, senior consultant in pediatric cardiology at the University Children’s Hospital, Zurich, and Corina Thomet, advanced practice nurse at the University Hospital, Bern, for their valuable support to include cardiology-specific aspects when dealing with adolescents.

Author information

Authors and Affiliations

  1. Head Adolescent Medicine Unit, University Children’s Hospital, Steinwiesstrasse 75, Zurich, CH-8032, Switzerland

    Christoph Rutishauser MD

Authors
  1. Christoph Rutishauser MD
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Christoph Rutishauser MD .

Editor information

Editors and Affiliations

  1. Center for Congenital Heart Disease, University Hospital Inselspital, Bern, Switzerland

    Markus Schwerzmann

  2. Center for Congenital Heart Disease, University Hospital Inselspital, Bern, Switzerland

    Corina Thomet

  3. Department of Public Health and Primary Care, KU Leuven – University of Leuven, Leuven, Belgium and Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden

    Philip Moons

Rights and permissions

Reprints and permissions

Copyright information

© 2016 Springer International Publishing Switzerland

About this chapter

Cite this chapter

Rutishauser, C. (2016). Issues to Discuss: Consultation Style in Transition. In: Schwerzmann, M., Thomet, C., Moons, P. (eds) Congenital Heart Disease and Adolescence. Congenital Heart Disease in Adolescents and Adults. Springer, Cham. https://doi.org/10.1007/978-3-319-31139-5_7

Download citation

  • DOI: https://doi.org/10.1007/978-3-319-31139-5_7

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-31137-1

  • Online ISBN: 978-3-319-31139-5

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics

Search

Navigation