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The Role and Guidance of Parents of CHD Patients

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Book cover Congenital Heart Disease and Adolescence

Part of the book series: Congenital Heart Disease in Adolescents and Adults ((CHDAA))

Abstract

The presence of a chronic illness has an important impact on the well-being of the family. When it comes to the psychosocial aspects related to these conditions, there could be elements in common to all conditions; however, it is essential to specifically investigate factors associated with the well-being of families with congenital heart disease (CHD) patients. In this chapter, the literature pertaining to the well-being of the families of the adolescents (and children) with CHD will be explored. Particular focus will be given on types of parenting styles and how they affect the adolescent patients, the role of parental overprotection on parental well-being, and, finally, some practical indications on how to improve the handling of these families are provided.

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Author information

Authors and Affiliations

  1. Pediatric and Adult Congenital Heart Disease Centre, IRCCS Policlinico San Donato, San Donato Milanese, Milan, Italy

    Edward Callus & Emilia Quadri

  2. Center for Biobehavioral Health, Nationwide Children’s Hospital, Columbus, OH, USA

    Jamie L. Jackson

  3. Department of Pediatrics, The Ohio State University, Columbus, OH, USA

    Jamie L. Jackson

  4. Department of Child and Adolescent Psychiatry/Psychology, Erasmus Medical Center – Sophia Children’s Hospital, Rotterdam, The Netherlands

    Elisabeth M. W. J. Utens & Karolijn Dulfer

Authors
  1. Edward Callus
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  2. Emilia Quadri
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  3. Jamie L. Jackson
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  4. Elisabeth M. W. J. Utens
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  5. Karolijn Dulfer
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Corresponding author

Correspondence to Edward Callus .

Editor information

Editors and Affiliations

  1. Center for Congenital Heart Disease, University Hospital Inselspital, Bern, Switzerland

    Markus Schwerzmann

  2. Center for Congenital Heart Disease, University Hospital Inselspital, Bern, Switzerland

    Corina Thomet

  3. Department of Public Health and Primary Care, KU Leuven – University of Leuven, Leuven, Belgium and Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden

    Philip Moons

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Callus, E., Quadri, E., Jackson, J.L., Utens, E.M.W.J., Dulfer, K. (2016). The Role and Guidance of Parents of CHD Patients. In: Schwerzmann, M., Thomet, C., Moons, P. (eds) Congenital Heart Disease and Adolescence. Congenital Heart Disease in Adolescents and Adults. Springer, Cham. https://doi.org/10.1007/978-3-319-31139-5_12

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  • DOI: https://doi.org/10.1007/978-3-319-31139-5_12

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-31137-1

  • Online ISBN: 978-3-319-31139-5

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