Abstract
UK government policy makes it clear that people who are affected by dementia should not only receive a timely, ideally early diagnosis but that they should also be provided with support to help them to adapt to the illness. In part, this is based around a belief that early diagnosis and support will facilitate people who receive a diagnosis being able to plan ahead and to take control over their illness. Thus, the recent “Dementia – State of the Nation” report set as a goal that by March 2015, two third of people diagnosed with dementia in the UK should “be supported after diagnosis, to exercise control and choice over their lives and helped to manage their condition so they can live independently for longer”.
While the State of the Nation report mentions the importance of peer support, it provides no guidance as to how this support can be provided effectively. Across the UK, the provision of post-diagnostic support within memory clinics is, at best, variable, with some services providing little or none, while others have structured forms of individual and group therapy.
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References
Department of Health. Dementia – a state of the nation report on dementia care and support in England. 2013. Retrieved from https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/262139/Dementia.pdf.
Connell CM, Boise L, Stuckey JC, Holmes SB, Hudson ML. Attitudes toward the diagnosis and disclosure of dementia among family caregivers and primary care physicians. Gerontologist. 2004;44(4):500–7.
Aminzadeh F, Byszewski A, Molnar FJ, Eisner M. Emotional impact of dementia diagnosis: exploring persons with dementia and caregivers’ perspectives. Aging Ment Health. 2007;11(3):281–90.
Ouimet MA, Dion D, Élie M, Dendukuri N, Belzile E. Disclosure of Alzheimer’s disease Senior citizens’ opinions. Can Fam Physician. 2004;50(12):1671–7.
Elson P. Do older adults presenting with memory complaints wish to be told if later diagnosed with Alzheimer’s disease? Int J Geriatr Psychiatry. 2006;21:419–25.
Jha A, Tabet N, Orrell M. To tell or not to tell – comparison of older patients’ reaction to their diagnosis of dementia and depression. Int J Geriatr Psychiatry. 2001;16(9):879–85.
Cheston R. Psychotherapy and dementia: a review of the literature. Br J Med Psychol. 1998;71:211–31.
Logsdon R, Pike KC, McCurry SM, Hunter P, Maher J, Snyder L, Teri L. Early-stage memory loss support groups: outcomes from a randomized controlled clinical trial. J Gerontol: B Psychol Sci Soc Sci. 2010;65B(6):691–7.
Sørensen LV, Waldorf FB, Waldemar G. Early counselling and support for patients with mild Alzheimer’s disease and their caregivers: a qualitative study on outcome. Aging Ment Health. 2008;12(4):444–50.
Aarons S. Living with memory loss: a program for people with early stage dementia and their carers: a case study. Clin Psychol. 2003;7(1):63–6.
Fabris G. Psychotherapeutic groups for elderly people suffering from Alzheimer’s disease or dementia. Gruppi. 2006;8(1):75–85.
Ishizaki J, Meguro K, Ishii H, Yamaguchi S, Shimada M, Yamadori A, Yambe Y, Yamazaki H. The effects of group work therapy in patients with Alzheimer’s disease. Int J Geriatr Psychiatry. 2000;15(6):532–5.
Scheurich A, Schanz B, Muller MJ, Fellgiebel A. Early interventional group therapy for patients with incipient Alzheimer disease and their relatives. Psychother Psychosom Med Psychol. 2008;58(6):246–52.
Scheurich A, Fellgiebel A. Group therapy for patients with early Alzheimer disease. Z Neuropsychol. 2009;20(1):21–9.
Cheston R, Jones K, Gilliard J. Group psychotherapy and people with dementia. Aging Ment Health. 2003;7(6):452–61.
Cheston R, Jones R. A small-scale study comparing the impact of psycho-education and exploratory psychotherapy groups on newcomers to a group for people with dementia. Aging Ment Health. 2009;13(3):410–25.
Watkins B, Cheston R, Jones K, Gilliard J. “Coming out with Alzheimer’s disease”: changes in insight during a psychotherapy group for people with dementia. Aging Ment Health. 2006;10(2):1–11.
Cheston R. Stories and metaphors: talking about the past in a psychotherapy group for people with dementia. Ageing Soc. 1996;16:579–602.
Cheston R. Dementia as a problematic experience: using the Assimilation Model as a framework for psychotherapeutic work with people with dementia. Neurodisabil Psychother. 2013;1(1):70–95.
Marshall A. Coping in early dementia: findings of a new type of support group. In: Miesen B, Jones G, editors. Care-giving in dementia: research and applications, vol. 3. London: Routledge; 2004.
Preston L, Bucks RS, Marshall A. Investigating the ways that older people cope with dementia: the role of identity. BPS Spec Interes Group Elder Newsl. 2005;90:8–14.
Preston L, Marshall A, Bucks R. Investigating the ways that older people cope with dementia: a qualitative study. Aging Ment Health. 2007;11(2):131–43.
Hill L, Roberts G, Wildgoose J, Perkins R, Hahn S. Recovery and person-centred care in dementia: common purpose, common practice? Adv Psychiatr Treat. 2010;16:288–98.
Marshall A, Spreadbury J, Cheston R, Coleman P, Ballinger C, Mullee M, Pritchard J, Russell C, Bartlett E. A Pilot Randomised Control trial to compare changes in quality of life for participants with early diagnosis dementia who attend a “Living Well with Dementia” group compared to waiting list control. Aging Ment Health. 2014. doi:10.1080/13607863.2014.954527.
Cheston R, Gatting L, Marshall A, Spreadbury J and Coleman P. Markers of Assimilation of Problematic Experiences in Dementia within the LIVDEM project, Dementia: the International Journal of Social Research and Policy. 2015. doi:10.1177/1471301215602473. Published on-line September 2, 2015,
Cheston R, Howells L. A feasibility study of translating “Living Well with Dementia” groups into a Primary care IAPT service (innovative practice), Dementia: the International Journal of Social Research and Policy. 2015. doi:10.1177/1471301215582104. Published on-line April 17, 2015.
Logsdon RG, et al. Quality of life in Alzheimer’s disease: patient and caregiver reports. J Ment Health Aging. 1999;5:21–32.
Department of Health. Improving Access to Psychological Therapies (IAPT) commissioning toolkit. London: Department of Health: The Stationery Office; 2008.
Turpin G, Richards D, Hope R, Duffy R. Delivering the IAPT programme. Healthc Couns Psychother J. 2008;8(2):2–7.
Dodd E, Cheston R, Fear T, Brown E, Fox C, Morley C, Jefferies R, Gray R. An evaluation of primary care led dementia diagnostic services in Bristol. BMC Health Serv Res. 2014;14:592. doi:10.1186/s12913-014-0592-3.
Dodd E, Cheston R, Ismail S, Cullum S, Gatting L, Jefferies R, Fear T, Gray R. Primary care led dementia services: themes from families, patients and health professionals. Dement: Int J Soc Res Policy. 2015. doi:10.1177/1471301214566476. First published on January 22, 2015.
Acknowledgements
I would like to thank all the participants for their involvement in the study and additionally the psychologists based at the LIFT psychology service in Swindon: Liz Howells OBE, Marianne Evans, Rosa Hoshi, Kim Jackson-Blott, Brian O’Cealliagh and Karen Wiltshire.
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Cheston, R. (2016). Psychotherapy Interventions with People Affected by Dementia. In: Chew-Graham, C., Ray, M. (eds) Mental Health and Older People. Springer, Cham. https://doi.org/10.1007/978-3-319-29492-6_20
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