Abstract
A major objective in research about disability is to understand the lived experience of persons with limitations and to facilitate their inclusion in Society in the way that they would choose for themselves. For almost 200 years we have identified individuals with some impairments in our national Censuses in order to track different aspects of their existence, age, gender, living arrangements, school attendance, ability to work and in some instances their location in institutions. However, we have ignored the impact of environment on that experience because we have not had adequate measures of the environment. Though data collected in relationship to aging now has important information about the home environment, for the most part we have missed an important part of the disability equation by not accounting for environmental barriers and supports in our data. We identify the person at risk of having a disabling experience in their everyday life based either on their personal limitations or restricted participation, but have not identified anything about the context of that life that creates the participation disability. Identifying the person with limitations in their basic actions, such as walking or hearing is only identifying the “risk” for disadvantage or discrimination. The nature of the environmental facilitators or barriers are the other piece so that Type of Risk (limitations) +/− Environmental factors (barriers/supports) contributes to Level of Participation. Therefore the purpose of this discussion of environmental measurement is to identify a way to capture the social policy related environmental facilitators and barriers that most prominently support or prevent participation.
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Notes
- 1.
Ideally we would want to know that information for everyone in the culture since the social structure may provide barriers and supports for everyone in one way or another. However, our first concern is to identify the types of barriers and supports experienced by persons with disabilities.
- 2.
The authors of this paper were not able to reconcile their difference in opinion about the inclusion of health conditions and functional limitations as well as environmental characteristics as answer categories before the second author passed away. Therefore both approaches to these answers are included here for the reader to come to their own conclusion.
References
Agree, E. (1999). The influence of personal care and assistive devices on the measurement of disability. Social Science and Medicine, 48, 427–443.
Altman, B., Lollar, D., & Rasch, E. (2014). The experience of environmental barriers among adults with disabilities: A national description. In B. M. Altman & S. N. Barnartt (Eds.), Research in social science and disability (Vol. 8, pp. 33–53). Bingley: Emerald Group Publishing Limited.
Barnartt, S. (2013). Disability and intersecting statuses. In S. Barnartt & B. Altman (Eds.), Disability and intersecting statuses (Research in social science and disability, Vol. 7, pp. 1–20). Bingley: Emerald Press.
Brandt, E. P. (1997). Enabling America: Assessing the role of rehabilitation science and engineering. Washington, DC: National Academy Press.
Chang, F.-H., & Coster, W. (2014). Conceptualizing the construct of participation in adults with disabilities. Archives of Physical Medicine and Rehabilitation, 95, 1791–8.
Chang, F.-H., Coster, W., & Helfrich, C. (2013). Community participation measures for people with disabilities: A systematic review of content from an international classification of functioning, disability and health perspective. Archives of Physical Medicine and Rehabilitation, 94, 771–81.
Clarke, P., & George, L. K. (2005). The role of the built environment in the disablement process. American Journal of Public Health, 95, 1933–1939.
Dubuc, N., Haley, S., Kooyoomjian, J., & Jette, A. (2004). Assessing disability in older adults: The effects of asking questions with and without health attributions. Journal of Rehabilitation Medicine, 36, 226–31.
Gray, D. H. (2008). A subjective measure of the environmental facilitators and barriers to participation for people with mobility limitations. Disability and Rehabilitation, 30, 434–457.
Gray, D., Hollingsworth, H., Stark, S., & Morgan, K. (2006). Participation survey/mobility: Psychometric properties of a measure of participation for people with mobility impairments and limitations. Archives of Physical Medicine and Rehabilitation, 87, 189–97.
Keysor, J., Jette, A., & Haley, S. (2005). Development of the home and community environment (HACE) instrument. Journal of Rehabilitation Medicine, 37, 37–44.
Nagi, S. (1964). A study in the evaluation of disability and rehabilitation potential. American Journal of Public Health, 54(9), 1568–79.
Nagi, S. (1981). The disabled in developing societies. International Social Security Review, 34(3), 259–273.
Noonan, V., Kopec, J., Noreau, L., Singer, J., Chan, A., Masse, L., & Dvorak, M. (2009). Comparing the content of participation instruments using the international classification of functioning, disability and health. Health and Quality of Life Outcomes, 7, 93–105.
Stark, S. H. (2007). Development of a measure of receptivity of the physical environment. Disability and Rehabilitation, 29, 123–137.
Whiteneck, G. H.-F. (2004). Quantifying environmental factors: A measure of physical, attitudinal, service, productivity, and policy barriers. Archives of Physical and Medical Rehabilitation, 85, 1324–1331.
WHO. (2001). International classification of functioning, disability and health. Geneva: World Health Organization.
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Source: Brandt (1997)
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Altman, B.M., Meltzer, H. (2016). Developing Tools to Identify Environmental Factors as Context for Disability: A Theoretical Perspective. In: Altman, B. (eds) International Measurement of Disability. Social Indicators Research Series, vol 61. Springer, Cham. https://doi.org/10.1007/978-3-319-28498-9_12
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