Skip to main content

Building a “Module on Child Functioning and Disability”

  • Chapter
  • First Online:
International Measurement of Disability

Part of the book series: Social Indicators Research Series ((SINS,volume 61))

Abstract

In spite of the global interest and commitment to promoting full social inclusion of children with disabilities, there are not enough national data on this target population and the available data are not comparable cross-nationally. This lack of data seriously limits the development of disability policies for children and their evaluation.

The chapter presents the work carried out by the Washington Group on Disability Statistics and UNICEF in developing a “Child Functioning and Disability Module”, to be used in population surveys. The widespread use of the module will aid in the production of cross-nationally comparable data that, in combination with other data collected on specific topics, can be used to determine the degree of participation in society of children and youth with disabilities compared with those without disabilities.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 99.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 129.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 129.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Notes

  1. 1.

    A/RES/66/141. The resolution also calls upon States to implement fully the commitments undertaken in the Resolution “Realizing the Millennium Development Goals for persons with disabilities towards 2015 and beyond” (A/RES/65/186 del 2010), and to ensure that children with disabilities are rendered visible in the collection and analysis of data.

  2. 2.

    For more information: http://www.unicef.org/statistics/index_24302.html

  3. 3.

    Representatives from National Institute of Statistics of these countries are or have been involved the group: Italy, Usa, Canada, Australia, Uganda, Philippines, Sri Lanka, Mongolia, Zimbabwe, Oman, Togo, China, Sudan, Mozambique, Ivory Coast, Croatia.

  4. 4.

    The ICF components considered were Body Functions and Activity and Participation.

References

  • Altman, B. (2001). Disability definitions, models and classification schemes. In G. L. Albrecht, K. Seelman, & M. Bury (Eds.), Disability studies handbook (pp. 97–121). London: Sage.

    Chapter  Google Scholar 

  • Barbotte, E., Guillemin, F., Chau, N., & Lorhandicap Group. (2001). Prevalence of impairments, disabilities, handicaps and quality of life in the general population: a review of recent literature. Bulletin of the World Health Organization, 79(11), 1047–1055. PMID:11731812 http://www.scielosp.org/pdf/bwho/v79n11/bu0467.pdf Accessed 20 Oct 2014.

  • Blackburn, C. M., Read, J., & Spencer, N. J. (2007). Can we count them? Scoping data sources on disabled children and their households in the UK. Child: Care, Health and Development, 33(3), 291–295. doi:10.1111/j.1365-2214.2006.00646.x.

    Google Scholar 

  • Blackburn, C. M., Spencer, N. J., & Read, J. M. (2010). Prevalence of childhood disability and the characteristics and circumstances of disabled children in the UK: Secondary analysis of the Family Resources Survey. BMC Pediatrics, 10, 21. doi:10.1186/1471-2431-10-21. http://www.biomedcentral.com/1471-2431/10/21 Accessed 15 March 2012.

  • Blair, J., Menon, G., & Bickart, B. (1991). Measurement effects in self vs. Proxy responses: an information-processing perspective. In P. P. Biemer, R. M. Groves, L. E. Lyberg, N. A. Mathiowetz, & S. Sudman (Eds.), Measurement errors in surveys (pp. 145–166). New York: Wiley.

    Google Scholar 

  • Durkin, M. S,. Davidson, L. L., Desai, P., Hasan, Z. M., Khan, N., Shrout, P. E., et al. (1994). Validity of the ten questions screen for childhood disability: Results from population-based studies in Bangladesh, Jamaica, and Pakistan. Epidemiology, 5, 283–289. http://www.childinfo.org/disability_references.html Accessed 20 Oct 2014.

    Google Scholar 

  • Durkin, M. S., Wang, W., Shrout, P., Zaman, S., Hasan, Z. M., Desai, P., et al. (1995). Evaluating a ten questions screen for childhood disability: reliability and internal structure in different cultures. Journal of Clinical Epidemiology, 48(5), 657–666. doi:10.1016/0895-4356(94)00163-K.

    Google Scholar 

  • Eiser, C., & Morse, R. (2001) Can parents rate their child’s health-related quality of life? Results of a systematic review. Quality of Life Research, 10(4), 347–357. doi:10.1023/A:1012253723272.

    Google Scholar 

  • Groce, N. (2006). Cultural beliefs and practices that influence the type and nature of data collected on individuals with disability through national census. In B. M. Altman & S. N. Barnartt (Eds.), International views on disability measures: Moving toward comparative measurement (pp. 41–54). Amsterdam: Elsevier.

    Chapter  Google Scholar 

  • Harkness, J. A., Vande Vijver, F. J. R., & Mohler, P. P. (Eds.). (2003). Cross-cultural survey methods. Hoboken. New York: Wiley.

    Google Scholar 

  • Hogan, D. P., Msall, M. E., Rogers, M. L., & Avery, R. C. (1997). Improved disability population estimates of functional limitation among American children age 5–17. Maternal and Child Health Journal, 1(4), 203–216. doi10.1023/A:1022354126797.

  • Kostanjsek, N. (2011). Use of The International Classification of Functioning, Disability and Health (ICF) as a conceptual framework and common language for disability statistics and health information systems. BMC Public Health, 11(Suppl 4), 53. http://www.biomedcentral.com/1471-2458/11/S4/S3.10. Accessed 10 Nov 2012.

    Google Scholar 

  • Lee, A. M. (2011). Using the ICF-CY to organise characteristics of children’s functioning. Disability and Rehabilitation, 33(7), 605–616. doi:10.3109/09638288.2010.505993.

    Google Scholar 

  • Lee, S., Mathiowetz, N. A., & Tourangeau, R. (2004). Perceptions of disability: The effect of self- and proxy response. Journal of Official Statistics, 20(4), 671–686. http://www.jos.nu/Articles/abstract.asp?article=204671. Accessed 10 Feb 2011.

    Google Scholar 

  • Loeb, M. (2013). Disability statistics: And integral but missing (and misunderstood) component of development work. NJHR, 31(3), 306–324.

    Google Scholar 

  • Loeb, M. E., & Eide, A. H. (2006). Paradigms lost: The changing face of disability in research. In B. Altman & S. Barnartt (Eds.), International views on disability measures: Moving towards comparative measurement (Research in social science and disability, Vol. 4, pp. 111–129). Oxford: Elsevier Ltd.

    Chapter  Google Scholar 

  • Madans, J. H., Altman, B. M., Rasch, E. K., Mbogoni, M., Synneborn, M., Banda, J. et al. (2004). Washington Group Position Paper: Proposed purpose of an internationally comparable general disability Measure. Paper presented at The 3rd Washington Group on disability statistics meeting. Brussels. http://www.cdc.gov/nchs/data/washington_group/WG_purpose_paper.pdf Accessed 10 Oct 2013.

  • Madans, J. H., Loeb, M. E., Altman, B. M.. (2011). Measuring disability and monitoring the UN convention on the rights of persons with disabilities: the work of the Washington Group on Disability Statistics. BMC Public Health, 11(Suppl 4), S4. doi:10.1186/1471-2458-11-S4-S4.

    Google Scholar 

  • Massey, M., Chepp, V., Zablotsky, B., & Creamer, L. (forthcoming). Analysis of cognitive interview testing of child disability questions in five countries. Hyattsville: National Center for Health Statistics, Questionnaire Design Research Laboratory.

    Google Scholar 

  • McConachie, H., Colver, A. F., Forsyth, R. J., Jarvis, S. N., & Parkinson, K. N. (2006). Participation of disabled children: How should it be characterised and measured? Disability and Rehabilitation, 28(18), 1157–1164. doi:10.1080/09638280500534507.

    Article  Google Scholar 

  • Miller, K., Mont, D., Maitland, A., Altman, B., & Madans, J. (2010). Results of a cross-national structured cognitive interviewing protocol to test measures of disability. Quality and Quantity, 45(4), 801–815. doi:10.1007/s11135-010-9370-4.

    Article  Google Scholar 

  • Miller, K., Fitzgerald, R., Padilla, J., Willson, S., Widdop, S., Caspar, R., Dimov, M., Gray, M., Nunes, C., Prüfer, P., Schöbi, N., & Schoua-Glusberg, A. (2011). Design and analysis of cognitive interviews for comparative multinational testing. Field Methods, 23(4), 379–396. doi:10.1177/1525822X11414802.

    Article  Google Scholar 

  • Mont, D. (2007). Measuring disability prevalence (Social Protection Discussion paper No. 0706). Washington, DC: The World Bank.

    Google Scholar 

  • Morris, C., Gibbons, E., Fitzpatrick, R. (2009). Child and parent reported outcome measures: A scoping report focus on feasibility for routine use in the NHS (A report to the Department of Health). Oxford University, UK.

    Google Scholar 

  • Schneider, M. (2009). The difference a word makes: Responding to questions on ‘disability’ and ‘difficulty’ in South Africa. Disability and Rehabilitation, 31(1), 42–50. doi:10.1080/09638280802280338.

    Article  Google Scholar 

  • Simeonsson, R. J. (2006). Appendix C: Defining and classifying disability in children. In M. J. Field, A. Jette, & L. Martin (Eds.), Workshop on disability in america: A new look (pp. 67–87). Washington, DC: National Academy Press.

    Google Scholar 

  • Simeonsson, R. J. (2009). ICF-CY: A universal tool for documentation of disability. Journal of Policy and Practice in Intellectual Disabilities, 6(2), 70–72.

    Article  Google Scholar 

  • United Nations. (1989). UN convention on the rights of the child. New York: UN.

    Google Scholar 

  • United Nations. (2006). UN convention on the rights of persons with disabilities. New York: UN.

    Google Scholar 

  • United Nations Children’s Fund. (2008). Monitoring child disability in developing countries. In Results from the multiple indicator cluster surveys. New York: UNICEF.

    Google Scholar 

  • United Nations Children’s Fund. (2013). The state of the world’s children 2013. Children with disabilities. New York: UNICEF.

    Google Scholar 

  • United Nations General Assembly. (2010). Realizing the millennium development goals for persons with disabilities towards 2015 and beyond (A/RES/65/186). New York: UN.

    Google Scholar 

  • United Nations General Assembly. (2011). Rights of the child (A/RES/66/141). New York: UN.

    Google Scholar 

  • Wells, T., & Hogan, D. (2003). Developing concise measures of childhood activity limitations. Maternal and Child Health Journal, 7(2), 115–126.

    Article  Google Scholar 

  • World Health Organization (WHO). (2001). ICF International classification of functioning, disability and health. Geneva: WHO.

    Google Scholar 

  • World Health Organization (WHO). (2007). ICF-CY International classification of functioning, disability and health. Children and youth version. Geneva: WHO.

    Google Scholar 

  • World Health Organization (WHO), & The United Nations Economic and Social Commission for Asia and the Pacific (UNESCAP). (2008). Training manual on disability statistics. Bangkok: United Nations.

    Google Scholar 

  • World Health Organization, & World Bank. (2011). The world report on disability. Geneva: WHO. http://whqlibdoc.who.int/publications/2011/9789240685215_eng.pdf. Accessed 5 Nov 2013.

Download references

Acknowledgements

The authors would like to thank Mitchell Loeb (NCHS/CDC) for his valuable comments and suggestions on this paper.

Author information

Authors and Affiliations

Authors

Consortia

Corresponding author

Correspondence to Elena De Palma .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2016 Springer International Publishing Switzerland

About this chapter

Cite this chapter

Crialesi, R., De Palma, E., Battisti, A., Children’s Workgroup. (2016). Building a “Module on Child Functioning and Disability”. In: Altman, B. (eds) International Measurement of Disability. Social Indicators Research Series, vol 61. Springer, Cham. https://doi.org/10.1007/978-3-319-28498-9_10

Download citation

  • DOI: https://doi.org/10.1007/978-3-319-28498-9_10

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-28496-5

  • Online ISBN: 978-3-319-28498-9

  • eBook Packages: Social SciencesSocial Sciences (R0)

Publish with us

Policies and ethics