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Abstract

Communication is the most common “procedure” in pediatric oncology and, when done well, can have a lasting positive impact on pediatric patients and their families. This chapter reviews the general purposes and strategies for communication in pediatric oncology with a specific focus on the unique role psychosocial clinicians play in facilitating effective communication between patients, caregivers, and providers. Unique issues and topics in pediatric oncology are discussed including multidisciplinary collaboration, triadic communication and decision-making, developmental considerations, discussing bad news, and communication with caregivers in distress.

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References

  • Aronsson K, Rundström B (1989) Cats, dogs, and sweets in the clinical negotiation of reality: on politeness and coherence in pediatric discourse. Lang Soc 18(04):483–504

    Article  Google Scholar 

  • Back AL, Arnold RM, Baile WF, Tulsky JA, Fryer-Edwards K (2005) Approaching difficult communication tasks in oncology. CA Cancer J Clin 55(3):164–177

    Article  PubMed  Google Scholar 

  • Baile WF, Buckman R, Lenzi R, Glober G, Beale EA, Kudelka AP (2000) SPIKES-A six-step protocol for delivering bad news: application to the patient with cancer. Oncologist 5(4):302–311

    Article  CAS  PubMed  Google Scholar 

  • Beale EA, Baile WF, Aaron J (2005) Silence is not golden: communicating with children dying from cancer. J Clin Oncol 23(15):3629–3631

    Article  PubMed  Google Scholar 

  • Björk M, Nordström B, Hallström I (2006) Needs of young children with cancer during their initial hospitalization: an observational study. J Pediatr Oncol Nurs 23(4):210–219

    Article  PubMed  Google Scholar 

  • Bluebond-Langner M, DeCicco A, Belasco J (2005) Involving children with life-shortening illnesses in decisions about participation in clinical research: a proposal for shuttle diplomacy and negotiation. In: Kodish E (ed) Ethics and research with children. Oxford University Press, New York, USA. pp 323–344

    Google Scholar 

  • Bluebond-Langner M, Belasco JB, DeMesquita Wander M (2010) “I want to live, until I don’t want to live anymore”: involving children with life-threatening and life-shortening illnesses in decision making about care and treatment. Nurs Clin North Am 45(3):329–343

    Article  PubMed  Google Scholar 

  • Cahill P, Papageorgiou A (2007) Triadic communication in the primary care paediatric consultation: a review of the literature. Br J Gen Pract 57(544):904–911

    Article  PubMed Central  PubMed  Google Scholar 

  • Clarke SA, Davies H, Jenney M, Glaser A, Eiser C (2005) Parental communication and children’s behaviour following diagnosis of childhood leukaemia. Psychooncology 14(4):274–281

    Article  PubMed  Google Scholar 

  • Cousino MK, Zyzanski SJ, Yamokoski AD, Hazen RA, Baker JN, Noll RB, Rheingold SR, Geyer JR, Alexander SC, Drotar D, Kodish ED (2012) Communicating and understanding the purpose of pediatric phase I cancer trials. J Clin Oncol 2012;30(35):4367– 4372

    Google Scholar 

  • Dixon-Woods M, Anwar Z, Young B, Brooke A (2002) Lay evaluation of services for childhood asthma. Health Soc Care Community 10(6):503–511

    Google Scholar 

  • Kelsey J, Abelson-Mitchell N, Skirton H (2007) Perceptions of young people about decision making in the acute healthcare environment. Paediatr Nurs 19(6):14–18

    PubMed  Google Scholar 

  • Lambert V, Glacken M, McCarron M (2008) ‘Visibleness’: the nature of communication for children admitted to a specialist children’s hospital in the Republic of Ireland. J Clin Nurs 17(23):3092–3102

    Article  PubMed  Google Scholar 

  • Levetown M (2008) Communicating with children and families: from everyday interactions to skill in conveying distressing information. Pediatrics 121(5):e1441–e1460

    Article  PubMed  Google Scholar 

  • Mack JW, Grier HE (2004) The day one talk. J Clin Oncol 22(3):563–566

    Article  PubMed  Google Scholar 

  • Mack JW, Joffe S (2014) Communicating about prognosis: ethical responsibilities of pediatricians and parents. Pediatrics 133(Suppl 1):S24–S30

    Article  PubMed  Google Scholar 

  • Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC (2006) Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. J Clin Oncol 24(33):5265–5270

    Article  PubMed  Google Scholar 

  • Marik PE, Callahan A, Paganelli G, Reville B, Parks SM, Delgado EM (2009) Multidisciplinary family meetings in the ICU facilitate end-of-life decision making. Am J Hosp Palliat Med 26(4):295–302

    Google Scholar 

  • McCabe MA (1996) Involving children and adolescents in medical decision making: developmental and clinical considerations. J Pediatr Psychol 21(4):505–516

    Article  CAS  PubMed  Google Scholar 

  • Meyer EC, Sellers DE, Browning DM, McGuffie K, Solomon MZ, Truog RD (2009) Difficult conversations: improving communication skills and relational abilities in health care. Pediatr Crit Care Med 10(3):352–359

    Article  PubMed  Google Scholar 

  • Moore L, Kirk S (2010) A literature review of children’s and young people’s participation in decisions relating to health care. J Clin Nurs 19(15–16):2215–2225

    Article  PubMed  Google Scholar 

  • Nelson JE, Walker AS, Luhrs CA, Cortez TB, Pronovost PJ (2009) Family meetings made simpler: a toolkit for the intensive care unit. J Crit Care 24(4):626. e627–626. e614

    Article  Google Scholar 

  • Radwany S, Albanese T, Clough L, Sims L, Mason H, Jahangiri S (2009) End-of-life decision making and emotional burden: placing family meetings in context. Am J Hosp Palliat Care 26(5):376–383

    Article  PubMed  Google Scholar 

  • Ranmal R, Prictor M, Scott JT (2008) Interventions for improving communication with children and adolescents about their cancer. Cochrane Database Syst Rev (4):CD002969

    Google Scholar 

  • Rutishauser C (2003) Communicating with young people. Paediatr Respir Rev 4(4):319–324

    Article  PubMed  Google Scholar 

  • Sawyer SM, Aroni RA (2005) Self-management in adolescents with chronic illness. What does it mean and how can it be achieved. Med J Aust 183(8):405

    PubMed  Google Scholar 

  • Schwabe L, Wolf OT (2010) Learning under stress impairs memory formation. Neurobiol Learn Mem 93(2):183–188

    Article  PubMed  Google Scholar 

  • Spinetta JJ, Masera G, Eden T, Oppenheim D, Martins AG, van Dongen-Melman J, Siegler M, Eiser C, Weyl M (2002) Refusal, non-compliance, and abandonment of treatment in children and adolescents with cancer. A report of the SIOP Working Committee on Phychosocial Issues in Pediatric Oncology. Med Pediatr Oncol 38(2):114–117

    Article  PubMed  Google Scholar 

  • Spinetta JJ, Jankovic M, Masera G, Ablin AR, Barr RD, Arush MWB, D’Angio GJ, Van Dongen-Melman J, Eden T, Epelman C (2009) Optimal care for the child with cancer: a summary statement from the SIOP Working Committee on Psychosocial Issues in Pediatric Oncology. Pediatr Blood Cancer 52(7):904–907

    Article  PubMed  Google Scholar 

  • Tates K, Meeuwesen L (2001) Doctor–parent–child communication. A (re) view of the literature. Soc Sci Med 52(6):839–851

    Article  CAS  PubMed  Google Scholar 

  • van Osch M, Sep M, van Vliet LM, van Dulmen S, Bensing JM (2014) Reducing patients’ anxiety and uncertainty, and improving recall in bad news consultations. Health Psychol 33(11):1382

    Article  PubMed  Google Scholar 

  • Wiener L, Zadeh S, Battles H, Baird K, Ballard E, Osherow J (2012) Allowing adolescents and young adults to plan their end-of-life care. Pediatrics 130(5):897–905

    Article  PubMed Central  PubMed  Google Scholar 

  • Wiener L, Sweeney C, Baird K, Merchant MS, Warren KE, Corner GW, Roberts KE, Lichtenthal WG (2014) What do parents want to know when considering autopsy for their child with cancer? J Pediatr Hematol Oncol 36(6):464–470

    Article  PubMed Central  PubMed  Google Scholar 

  • Young B, Ward J, Salmon P, Gravenhorst K, Hill J, Eden T (2011) Parents’ experiences of their children’s presence in discussions with physicians about leukemia. Pediatrics 127(5):e1230–e1238

    Article  PubMed  Google Scholar 

  • Zadeh S, Pao M, Wiener L (2014) Opening end-of-life discussions: how to introduce Voicing My CHOiCES™, an advance care planning guide for adolescents and young adults. Palliat Support Care 13(3):591–599

    Google Scholar 

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Correspondence to Sarah R. Brand PhD .

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Brand, S.R., Tarquini, S., Mack, J.W. (2016). Communication in the Pediatric Oncology Setting. In: Abrams, A., Muriel, A., Wiener, L. (eds) Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care. Springer, Cham. https://doi.org/10.1007/978-3-319-21374-3_2

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  • DOI: https://doi.org/10.1007/978-3-319-21374-3_2

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-21373-6

  • Online ISBN: 978-3-319-21374-3

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