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Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care pp 243–263Cite as

Palliative Care for Children with Cancer and Their Families

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Abstract

Pediatric palliative care (PPC) involves both a medical subspecialty and an integrated interdisciplinary approach to whole patient care that extends throughout the illness course. Psychosocial care features prominently in PPC. It is provided by the primary psychosocial oncology team from the time of diagnosis of cancer. As cancer advances or circumstances become more complex, children, families, and clinicians may also benefit from the added support of a pediatric palliative care service. In this chapter, we define and describe specific components of PPC while highlighting opportunities to expand the breadth of psychosocial support for patients and families facing prognostic uncertainty. For example, early integration of both medical oncology and psychological oncology and PPC teams may facilitate patient and family adjustment, support, and comprehension of complicated and/or high-risk treatment plans. Later PPC roles include exploring overall goals of care and subsequent medical decision-making for patients with poor prognoses, advance care planning for the end of life, anticipatory grief counseling, and ongoing bereavement support. PPC can seamlessly complement the services available to patients and families in overwhelming situations, thereby helping to alleviate distress and promote quality of life.

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Authors and Affiliations

  1. Seattle Children’s Hospital Cancer and Blood Disorders Center, Seattle, WA, USA

    Abby R. Rosenberg MD, MS

  2. Clinical Research Division, Fred Hutchinson Cancer Research Center, Seattle, WA, USA

    Abby R. Rosenberg MD, MS

  3. Treuman Katz Center for Pediatric Bioethics, Seattle Children’s Research Institute, Seattle, WA, USA

    Abby R. Rosenberg MD, MS

  4. Department of Psychosocial Oncology and Palliative Care, Center for Outcomes and Policy Research, Dana-Farber Cancer Institute, 450 Brookline Avenue, Boston, MA, 02215, USA

    Joanne Wolfe MD, MPH

  5. Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, MA, USA

    Joanne Wolfe MD, MPH

  6. Boston Children’s Hospital, Boston, MA, USA

    Joanne Wolfe MD, MPH

  7. School of Social Work, University of Texas at Austin, Austin, TX, USA

    Barbara L. Jones PhD, MSW

  8. The Institute for Grief, Loss, and Family Survival, UT Austin School of Social Work, 1925 San Jacinto Blvd, Mail Stop D3500, Austin, TX, 78712, USA

    Barbara L. Jones PhD, MSW

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  1. Abby R. Rosenberg MD, MS
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  2. Joanne Wolfe MD, MPH
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  3. Barbara L. Jones PhD, MSW
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Correspondence to Abby R. Rosenberg MD, MS .

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Editors and Affiliations

  1. Hemat. Oncol. Massachusetts General Hosp, Div. of Child & Adol. Psychiatry & Pedia, Boston, Massachusetts, USA

    Annah N. Abrams

  2. Dana-Farber Cancer Institute, Depart. of Psychosocial Oncol. & Palliat, Boston, Massachusetts, USA

    Anna C. Muriel

  3. National Cancer Instit. Center for Cance, Pediatric Oncology Branch , Bethesda, Maryland, USA

    Lori Wiener

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Rosenberg, A.R., Wolfe, J., Jones, B.L. (2016). Palliative Care for Children with Cancer and Their Families. In: Abrams, A., Muriel, A., Wiener, L. (eds) Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care. Springer, Cham. https://doi.org/10.1007/978-3-319-21374-3_14

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  • DOI: https://doi.org/10.1007/978-3-319-21374-3_14

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-21373-6

  • Online ISBN: 978-3-319-21374-3

  • eBook Packages: MedicineMedicine (R0)

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