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Incorporating Patient Generated Health Data into Chronic Disease Management: A Human Factors Approach

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Healthcare Information Management Systems

Part of the book series: Health Informatics ((HI))

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Abstract

Understanding the relationships between technology design and Human Factors can help overcome barriers to incorporating patient generated health data (PGHD) into the day-to-day management of chronic disease. User Centered Design (UCD), a Human Factors approach that frames technology design in terms of users, tasks and contexts, can help developers to understand barriers to incorporating PGHD into patient and provider workflows and into electronic health record systems (EHR-S). An example of the application of UCD is presented within the context of primary care delivery for a hypothetical patient with Hypertension/Type II Diabetes Mellitus (DM2), with a focus on barriers and design issues inherent in incorporating PGHD into the EHR and into practice workflow. The results of a field trial are presented as an application of the UCD methodology in the evolution of a mobile application for collecting and using PGHD for patient disease monitoring.

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References

  1. Ahern D, Woods SS, Lightowler MC, et al. Promise of and potential for patient-facing technologies to enable meaningful use. Am J Prev Med. 2011;40(5S2):161–72.

    Google Scholar 

  2. Anderson RM, Funnell MM. Patient empowerment: myths and misconceptions. Patient Educ Couns. 2010;79(30):277–82.

    Article  PubMed Central  PubMed  Google Scholar 

  3. Berwick DM. What “patient-centered” should mean: confessions of an extremist. Health Aff. 2009;28(4):555–65.

    Article  Google Scholar 

  4. Bodenheimer T, Lorig K, Holman H, et al. Patient self-management of chronic disease in primary care. JAMA. 2002;288(19):2469–75. Brennan, PF. Incorporating patient-generated information to manage health HIT policy committee hearing, 8 Jun 2012. Available from http://www.healthit.gov/archive/archive_files/FACA%20Hearings/2012/2012-06-08%20Policy%3A%20Meaningful%20Use%20WG%20Patient%20Generated%20Health%20Data%20Hearing/patti-brennan-patient-generated-data-hearing-testimony-060812.pdf.

  5. Brennan PF. Project health Design: rethinking the power and potential of personal health records. 2014. Available from http://www.rwjf.org/content/dam/farm/reports/issue_briefs/2014/rwjf412107.

  6. Brockmann RJ. Writing better computer user documentation: from paper to online. New York: Wiley; 1986.

    Google Scholar 

  7. Chapanis A. The chapanis chronicles: 50 years of human factors research, education, and desing. Santa Barbara: Aegean Publishing; 1999.

    Google Scholar 

  8. Chase D. Patients gain information and skills to improve self-management through innovative tools. The Commonwealth Fund, Dec 2010/Jan 2011.

    Google Scholar 

  9. Coury BG, Ellingstad VS, Jolly JM. Transportation accident investigation: the development of human factors research and practice. Rev Hum Factors Ergon. 2013;6(1):1–33.

    Article  Google Scholar 

  10. Danis CM, Ballen S, Minitti MJ, et al. Bringing patients into the loop: using technology to engage patients and improve health outcomes. J Health Inf Manag. 2014;28(1):20–7.

    Google Scholar 

  11. Danis CM, Minniti MJ, Ballen S, et al. Patient engagement at the point of care: technology as an enabler. In: Grando M, Rozenblum R, Bates D, editors. Information technologies for patient empowerment in healthcare. Berlin/Boston/Munich: Walter De Gruyter Inc. 2015.

    Google Scholar 

  12. DiMatteo MR, Haskard-Zolnierek KB, Martin LR. Improving patient adherence: a three-factor model to guide practice. Health Psychol Rev Health Psychol Rev. 2012;6:74–91.

    Article  Google Scholar 

  13. DPP (The Diabetes Prevention Program Research Group at the Biostatistics Center, George Washington University). Description of lifestyle intervention. Diabetes Care. 2002;12:2165–71.

    Google Scholar 

  14. ECDG (European Commission Directorate General for Communication). Eurobarometer qualitative study on patient involvement. 2012. Available at: http://ec.europa.eu/public_opinion/archives/quali/ql_5937_patient_en.pdf. Accessed Nov 2013.

  15. Emont S. Measuring the impact of patient portals: what the literature tells us. Oakland: California Health Care Foundation; 2011. http://www.chcf.org/~/media/MEDIA%20LIBRARY%20Files/PDF/M/PDF%20MeasuringImpactPatientPortals.pdf. Accessed 19 Apr 2015.

    Google Scholar 

  16. Gould JD, Lewis C. Designing for usability: key principles and what designers think. Commun ACM. 1985;28(3):300–11.

    Article  Google Scholar 

  17. Gould JD. How to design usable systems. In: Helander M, editor. Handbook of human-computer interaction. Amsterdam: Elsevier Science Publishers; 1988.

    Google Scholar 

  18. Grudin J. Why CSCW applications fail: problems in the design and evaluation of organizational artifacts. ACM conference on computer supported cooperative work (CSCW 88); Portland; 1988. p. 362–69. p. 85–93.

    Google Scholar 

  19. Grudin J. Groupware ane social dynamics eight challenges for developers. Commun ACM. 1994;37(1):93–104.

    Article  Google Scholar 

  20. Harris D. Improving aircraft safety. Aviat Psychol. 2014;27(2):90–5. Available from: http://www.aerotelegraph.com/sites/default/files/n238/Artikel.pdf.

    Google Scholar 

  21. Hibbard JH, Mahoney ER, Stock R, et al. Self-management and health care utilization: do increases in patient activation result in imposed self-management behaviors. Health Res Educ Trust. 2006. doi:10.1111/j.1475-6773.2006.00669.x.

    Google Scholar 

  22. Irby C, Bergsteinsson L, Moran T, et al. A methodology for user interface design. Xerox Palo Alto Research Center Internal Report. 1977.

    Google Scholar 

  23. James G, Witten D, Hastie T, et al. An introduction to statistical learning. New York: Springer; 2013.

    Book  Google Scholar 

  24. Jones L, Danis C, Boies SJ. Avoiding the mistake of cloning: a case for user-centered design methods to reengineer documents. System sciences. 1999. HICSS-32. In: Proceedings of the 32nd annual Hawaii international conference on, Volume: Track2.

    Google Scholar 

  25. Karat C. Cost-justifying human factors support on development projects. Hum Factors Soc Bull. 1992;35(11):1–8.

    Google Scholar 

  26. Kirwan B, Ainsworth LK, editors. A guide to task analysis: the task analysis working group. Boca Raton: Taylor & Francis Group, LLC.; 1992.

    Google Scholar 

  27. Lorig KR, Mazonson PD, Holman HR. Evidence suggesting that health education for self-management in patients with chronic arthritis has sustained health benefits while reducing health care costs. Arthritis Rheum. 1993;36(4):439–46.

    Article  CAS  PubMed  Google Scholar 

  28. Lorig KR, Sobel DS, Stewart AL, et al. Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization. Med Care. 1999;37(1):5–14.

    Article  CAS  PubMed  Google Scholar 

  29. McNeill D, editor. Analytics in healthcare and the life sciences. Upper Saddle River: Pearson; 2013.

    Google Scholar 

  30. Michie S, Abraham C, Whittington C, et al. Effective techniques in healthy eating and physical activity interventions: a meta-regression. Health Psychol. 2009;28(6):690–701.

    Article  PubMed  Google Scholar 

  31. Myers B, Hudson SE, Pausch R. Past, present, and future of user interface software tools. ACM Trans Comput-Hum Interact (TOCHI) – Spec Issue Hum-Comput Interact New Millennium. 2000;7(1):3–28.

    Article  Google Scholar 

  32. Orlikowslki WJ. Learning from notes: organizational issues in groupware implementation. In: Proceedings of ACM conference on computer supported cooperative work (CSCW 92). Toronto; 1992. p. 362–69.

    Google Scholar 

  33. Paap KR, Roske-Hofstrand RJ. The design of menus. In: Helander M, editor. Handbook of human-computer interaction. Amsterdam: Elsevier Science Publishers; 1988.

    Google Scholar 

  34. Paperny DMN. Privacy issues. In: Lehmann C, Kim GR, Johnson KB, editors. Pediatric informatics: computer applications in child health. New York: Springer Verlag; 2009.

    Google Scholar 

  35. PCPCC (Patient Centered Primary Care Collaborative). Transforming patient engagement: health IT in the patient centered medical home. 2010. Available at: http://www.pcpcc.org/guide/transforming-patient-engagement. Accessed 30 May 2014.

  36. Pew Research Center. Mobile technology fact sheet. 2014. http://www.pewinternet.org/fact-sheets/mobile-technology-fact-sheet/.

  37. Pew Research Center. Older adults and technology use: usage and adoption. 2014b. http://www.pewinternet.org/2014/04/03/usage-and-adoption/.

  38. Schulz PJ, Nakamoto K. “Bad” literacy, the internet, and the limits of patient empowerment. AAAI Spring Symposium. 2011.

    Google Scholar 

  39. Shapiro M, Johnston D, Wald J, Mon D. Patient-generated health data: white paper prepared for the Office of the National Coordinator for Health IT by RTI International. Apr 2012. http://www.rti.org/pubs/patientgeneratedhealthdata.pdf.

  40. Statista. Number of smartphone users in the US from 2010 to 2018. 2014. http://www.statista.com/statistics/201182/forecast-of-smartphone-users-in-the-us/.

  41. Sujansky & Associates LLC. A standards-based model for the sharing of patient-generated health information with electronic health records. 2013. Available from http://www.projecthealthdesign.org/media/file/Standard-Model-For-Collecting-And-Reporting-PGHI_Sujansky_Assoc_2013-07-18.pdf.

  42. Taylor F. Principles of scientific management. New York: Harper & Row; 1911. Available from https://www.marxists.org/reference/subject/economics/taylor/principles/.

    Google Scholar 

  43. Terry K. Meaningful use 2: a work in progress for physicians. 2014. Available from http://medicaleconomics.modernmedicine.com/medical-economics/news/meaningful-use-2-work-progress-physicians?page=full.

  44. vonKorf M, Gruman J, Schaefer JK, et al. Collaborative management of chronic illness. Ann Inter Med. 1997;127:1097–102.

    Article  Google Scholar 

  45. Whelton PK, Appel LJ, Espeland MA, et al. A randomized controlled trial of nonpharmacologic interventions in the elderly (TONE). JAMA. 1998;279(11):839–46. Erratum in: JAMA, 24;279(24):1954.

    Article  CAS  PubMed  Google Scholar 

  46. Wixon D, Jones S. Usability for fun and profit: a case study of the design of DEC RALLY version 2. Internal report, Digital Equipment Corporation. 1991.

    Google Scholar 

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Acknowledgements

My thanks to the entire research team and the patients who participated in the field study that served as the motivating example in this chapter. I learned a great deal through the experience, particularly through a long-term interaction with the core team members: Marion Ball, Sasha Ballen, Scott Cashon, Marj Miller, and Marty Minniti. Thanks also to my colleagues Bonnie John and Tom Erickson for pointers to literature.

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Authors and Affiliations

  1. Health Informatics Research, IBM T.J. Watson Research Center, Yorktown Heights, NY, USA

    Catalina M. Danis PhD

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  1. Catalina M. Danis PhD
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Correspondence to Catalina M. Danis PhD .

Editor information

Editors and Affiliations

  1. Gentiva Health Services, Atlanta, Georgia, USA

    Charlotte A. Weaver

  2. Healthcare Informatics, IBM Research, Baltimore, Maryland, USA

    Marion J. Ball

  3. Division of Health Sciences Informatics, The Johns Hopkins University, Baltimore, Maryland, USA

    George R. Kim

  4. Duquesne University, Pittsburgh, Pennsylvania, USA

    Joan M. Kiel

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Danis, C.M. (2016). Incorporating Patient Generated Health Data into Chronic Disease Management: A Human Factors Approach. In: Weaver, C., Ball, M., Kim, G., Kiel, J. (eds) Healthcare Information Management Systems. Health Informatics. Springer, Cham. https://doi.org/10.1007/978-3-319-20765-0_10

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  • DOI: https://doi.org/10.1007/978-3-319-20765-0_10

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-20764-3

  • Online ISBN: 978-3-319-20765-0

  • eBook Packages: MedicineMedicine (R0)

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